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Found 1,294 results
  1. Content Article
    This cross-sectional survey in the BMJ Open aimed to examine the sociodemographic characteristics, activities, motivations, experiences, skills and challenges of patient partners working across multiple health system settings in Canada. This survey was the first of its kind to examine the characteristics, experiences and dynamics of a large sample of self-identified patient partners at a population level. Although patient partners who took part were from similar sociodemographic background, the scope, intensity and longevity of their roles varied. Respondents predominantly identified as female (76.6%), white (84%) and university educated (70.2%). Primary motivations for becoming a patient partner were the desire to improve the health system based on either a negative (36.2%) or positive (23.3%) experience. Respondents reported feeling enthusiastic (83.6%), valued (76.9%) and needed (63.3%) always or most of the time. Just under half felt they had always or often been adequately compensated in their role.
  2. Content Article
    This policy is for patients and the public, and for NHS England staff. It sets out NHS England’s ambition of strengthening patient and public participation in all of its work, and how it intends to achieve this. The term ‘patients and the public’ includes everyone who uses services or may do so in the future, including carers and families. People who use health and care services may be referred to as ‘experts by experience’. NHS England recognises and values what they can contribute to its work as a result of their lived experience.
  3. Content Article
    Jen Gilroy-Cheetham, Programme Manager at the Innovation Agency, talks about her experiences as a patient and makes a plea for a different way of doing things. Jen was speaking at the Innovation Agency's Eco 18 event, held at Haydock Racecourse in March 2019, focusing on innovating to meet NHS and social care workforce challenges.
  4. Content Article
    This toolkit by The Point of Care Foundation is a step-by-step guide to improving processes of care and staff–patient interactions. It offers a simple way for organisations to show their commitment to patients’ experience while also motivating the staff who deliver that care.
  5. Content Article
    Craig Bradley is Product & Business Lead (Associate Director) at Shire Pharmaceuticals and Chair of the Pharmaceutical Marketing Society. Here he talks about the importance of patient engagement within the pharmaceutical industry.
  6. Content Article
    This report is part of a technical series on safer primary care, published by the World Health Organization. The series explores the magnitude and nature of harm in the primary care setting from a number of different angles and provides some possible solutions and practical next steps for improving safety. The patient engagement report examines why it is important to involve people using services in improving safety and how this might best be done.
  7. Content Article
    A great animated video brought to you by No More Throw Away People – voiced by Brian Blessed, this tale of blobs and squares paints an accurate picture of how co-production matters. This short animation shows why its vitally important to engage and include our patients and service users in clinical system design.  It explains simply what may happen if we don't listen to all parts of our system to make care safer.
  8. Content Article
    What is patient and public involvement in mental health research? Why is it important? How can people get involved? The Oxford Health and Biomedical Research Centre launched a short animated film to answer these questions and share the patient and public involvement work they are doing.
  9. Content Article
    The Center for the Advancement of Team Science, Analytics, and Systems Thinking, College of Medicine, Ohio State University, have created a model to conceptualise engagement capacity drawing upon social cognitive theory, developed in the 1960s and 1970s by Canadian psychologist Albert Bandura to explain the various ways that people acquire behaviours. This theoretical framework is widely used specifically to study how people acquire their health habits. The theory includes the concept of 'reciprocal determinism': the idea that there is a dynamic relationship between the person, their environment, and their behaviours, in which they continually influence each other and are influenced by each other. A focus on capacity and context can help providers and health care organisations identify the dimension(s) of engagement that create the greatest barriers for both individual patients and their patient population as a whole, and allocate their resources accordingly.
  10. Content Article
    Michael Seres was a husband, a father, a successful entrepreneur and many more things. Most importantly in some ways, he was a lifelong Chrohn's patient who finally succumbed to an associated cancer last weekend. His loss has hit hard those who knew and admired him and the tributes have been numerous and from both clinicians and other patients. His death is a real loss for anyone interested in promoting patient engagement, and the involvement of patients in safer medical practise.
  11. Content Article
    The UK Standards for Public Involvement are designed to improve the quality and consistency of public involvement in research.  Developed over three years by a UK-wide partnership, the standards are a description of what good public involvement looks like and encourages approaches and behaviours that are the hallmark of good public involvement, such as flexibility, sharing and learning and respect for each other.  The standards are for everyone doing health or social care research and have been tested by over 40 individuals, groups and organisations during a year-long pilot programme. They provide guidance and reassurance for users working towards achieving their own best practice.
  12. Content Article
    UK experts have issued an update on the timing of elective surgery and risk assessment after COVID-19 infection. Your operation may be delayed if you test positive for Covid-19. Studies of people who had COVID-19 just before or after their surgery show that they had more complications and an increased risk of dying. The risks of chest problems, blood clots or death are about 3 or 4 times greater for a full 7 weeks following COVID-19. These risks are increased even if the patient had no symptoms from COVID-19 (i.e. just a positive test).
  13. Content Article
    This guide aims to help staff and services understand the impact of psychological trauma on women in the perinatal period and respond in a sensitive and compassionate way. It aims to support staff to ensure they ‘do no harm’ through care delivery that, without thought or intention, could retraumatise individuals. This includes examples of how to: recognise and understand the impact of psychological trauma and how experiences may present during the perinatal period respond to disclosures and tailor care to needs of women and families so that services do not retraumatise individuals best support staff working in maternity and mental health services, acknowledging the effects of vicarious trauma and that staff may have their own experiences of trauma, which could impact on their capacity to deliver trauma-informed care.
  14. Content Article
    It takes around seven to eight years on average for a woman to get diagnosed with endometriosis from the time she starts experiencing symptoms. Whilst this has reduced from the eleven years measured previously, it is still far too long. The symptoms of endometriosis are very similar to other common conditions. It's important to share as much information with your doctor as possible To help you prepare for a GP appointment, Endometriosis UK has produced a factsheet giving tips on what to say to your GP, what will happen at your appointment, what to do if you are not satisfied that your symptoms are being properly looked into by your GP, how to get a referral and questions to ask your GP.
  15. Content Article
    In April 2022, an investigation commenced into the communications provided to patients and/or their carers following placement on a waiting list in Northern Ireland. The primary focus of the investigation is the adequacy of Trust communications to patients, and/or their carers, across various stages of the waiting list process, with significant consideration being given to the content of the Integrated Elected Access Protocol (Department of Health guidance), and its application by the Trusts. The objective was to determine whether or not systemic maladministration has arisen within the communication practices of the Northern Ireland Health and Social Care Trusts (the Trusts) and whether improvements are required. It also aims to publicise what patients and/or their carers should expect from waiting list communications. The Investigative Methodology drew evidence from a wide range of sources. This included extensive queries and information requests to the Trusts and the Department; a General Public survey (with 646 responses); a General Practitioner (GP) survey (with 321 responses); follow up interviews with a number of General Public and GP survey respondents; and a number of Case Study reviews. 
  16. Content Article
    In this interview for Healthcare IT News, Lisa Hedges, associate principal analyst at Software Advice, discusses the findings of a survey of 1,000 patients on telemedicine usage after the worst of the pandemic. She also talks about the future of telemedicine. The survey found that: more than half of patients are concerned about the quality of care they're receiving through telemedicine. the majority of people prefer virtual appointments for common illnesses. 86% of patients rate their telemedicine experience as positive. 91% are more likely to choose a provider that offers telemedicine. 49% prefer telemedicine visits for mental health treatment, despite it being one of the more remote-ready specialties.
  17. Content Article
    There was a national roll out of ‘COVID Virtual Wards’ (CVW) during England's second COVID-19 wave (Autumn 2020 – Spring 2021). These services used remote pulse oximetry monitoring for COVID-19 patients following discharge from hospital. A key aim was to enable rapid detection of patient deterioration. It was anticipated that the services would support early discharge, reducing pressure on beds. This study from Georghiou et al. evaluated the impact of the CVW services on hospital activity. The study found no evidence of early discharges or changes in readmissions associated with the roll out of COVID Virtual Wards across England.
  18. Content Article
    Many practices are now using or considering using alternatives to face-to-face consultations because of concerns about COVID-19. Important new information and guidance is now available to support video consultations. Produced by researchers at the University of Oxford, this document is packed with extremely useful, practical advice and tips to help doctors,other primary care clinicians, and patients navigate these almost uncharted waters at a time of unprecedented challenge for the health service.
  19. Content Article
    Fewer than 1% of UK general practice consultations occur by video. This study by Trisha Greenhalgh and colleagues aims to explain why video consultations are not more widely used in general practice.
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