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Showing results for tags 'Patient engagement'.
Found 1,327 results
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Content ArticleIn this infographic, the Patient Safety Commissioner for England, Dr Henrietta Hughes, sets out her strategy for supporting the development of a new culture for the health system centred on listening to patients.
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This constructive commentary reflects on two recent related publications, the Healthcare Safety Investigation Branch (HSIB) report, Variations in the delivery of palliative care services to adults, and an article from Sarcoma UK, Family insights from Dermot’s experience of sarcoma care. Drawing from these publications, Richard, brother-in-law of Dermot, gives a family perspective, calling for a more open discussion around how we can improve palliative care and sarcoma services, and why we must listen and act upon family and patient experience and insight.- Posted
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Content ArticleThis study published in the BMJ evaluated the effect of chair placement on length of time physicians sit during a bedside consultation and patients’ satisfaction. The study concluded that chair placement is a simple, no cost, low tech intervention that increases a physician’s likelihood of sitting during a bedside consultation and resulted in higher patients’ scores for both satisfaction and communication.
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As part of the Lancet's Child and Adolescent Health Spotlight, the journal called for young people around the world aged 18–25 years to lend their perspectives and lived experiences on the two key spotlight asks: That children must be immediately prioritised in health and social policies; children and young people deserve attention in their own right, and not only because they are an indispensable foundation for a sustainable future. That governments and health providers should prioritise health equity for children and young people, within and between countries. The Lancet received 104 submissions in Chinese, English, Portuguese and Spanish, many of which have been published as essays in Lancet publications. This article in The Lancet Child & Adolescent Health summarises the key themes that were raised in the submissions received, including: the need for honest conversations with trusted adults about less talked-about areas including sex and death. the mental health impacts of attacks on transgender young people. the issues associated with living with a chronic illness as a young person. the importance of non-tokenistic youth engagement in research. -
Content ArticleThis guide by the Health Foundation can be used to make the case for improvement to policy, executive, operational and front-line audiences, and to initiate and support conversations about the benefits of improvement approaches among key stakeholders. The guide is divided into four broad areas improvement approaches can benefit: the health and care workforce patients, service users and society organisations and system-level bodies. Specific examples are given for each area, illustrating the diverse and multi-faceted benefits that come from improvement approaches.
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Content ArticleHealthcare decision making should be a collaboration between patients and their providers. This eBook produced by Pfizer is for patients, caregivers and care team members. It aims to help empower individuals on their healthcare journey so they can be engaged patients who understand the health information they receive in order to act upon it.
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Patients for safer nuclear medicine (PSNM)
Patient_Safety_Learning posted an article in Extravasation
Patients for safer nuclear medicine (PSNM) is a coalition of patient advocacy groups and corporate partners demanding that patients get the information they need about extravasations so their diseases are accurately diagnosed and treated. Pam Kohl is a metastatic breast cancer patient whose length of life depends on the accuracy of her nuclear scans. During a recent scan, she was extravasated. “I felt something burn,” she says. “I really felt something wasn’t right.” Watch Pam's story and find out more about PSNM. -
Content ArticleThis leaflet aims to help people with type 1 diabetes decide between the different technologies available to manage diabetes. It contains summaries of devices available and infographics outlining eligibility criteria for continuous glucose monitors (CGM), insulin pumps and hybrid-closed loop systems. Diabetes care is one of the five clinical areas of focus for integrated care boards and partnerships to achieve system change and improve care as part of Core20Plus5 for children and young people with the aim to increase access to real-time continuous glucose monitors and insulin pumps across the most deprived quintiles and from ethnic minority backgrounds.
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Content ArticleThe Care Quality Commission (CQC) is consulting on its proposed guidance to help providers and other stakeholders understand and meet the new standard on visiting and accompaniment in care homes, hospitals and hospices. The guidance also sets out what people using health and social care services and their families, friends or advocates can expect. The CQC is inviting responses from members of the public, providers, their representatives and other stakeholders. The consultation closes at midday on 20 February 2024.
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EventThis virtual masterclass will build confidence in compassionately engaging and involving families and loved ones to work within the requirements of PSIRF and the Complaints Standards Framework. But more than this, the masterclass will support staff to go beyond compliance to understand the issues and emotional component on a deeper level; to have real authentic engagement and involvement with patients and families. New frameworks such as PSIRF are now in place, but how do we not only comply with these, but go beyond compliance to have real authentic compassionate engagement and involvement with patients, families and indeed staff to make a real positive difference? Connecting new knowledge with emotions can really support long term learning, which is an important part of this masterclass. This one-day masterclass will look at the new PSIRF and the Complaints Standards Framework and through real life content, bringing the human focus for the patients, loved ones, and indeed staff to the forefront. It will support staff to explore what compassionate engagement looks like, feels like, and how to communicate it authentically and meaningfully. In a supportive and relaxed environment, delegates will have the opportunity to gain in depth knowledge of the emotional component, relate to, analyse and realise the significance of and believe in their own abilities in creating practices that not only support the PSIRF but go beyond compliance to be working in a way that supports gaining an optimum outcome for patients, families and staff, in often a less than optimum situation. Key learning objectives: Feel, analyse, and explore the presence and absence of compassionate engagement within life, trauma, and a healthcare incident and how empathy is the gateway to compassion. Seeing perspectives and understanding emotional motivations and the emotional component recognising vulnerability in others and self. Seeing the bigger picture and having an enquiring mind to understand the story and how the ‘Funnel of Life’ can impact on our ability to engage. Build confidence in the positive impact of compassionate engagement and really being authentically interested in the emotional component to be able to create an optimum outcome in often a less than optimum situation. Explore and have a good grasp of how internal unconscious belief systems, can link through to the outcomes we achieve. We know what works with compassionate engagement, but why do we so often struggle? Explore and analyse biases, judgments, and how a lack of compassionate engagement not only has the potential to cause psychological harm, but can prevent optimum outcomes for the organisation. Realise the significance of authenticity rather than feeling fearful of not doing things perfectly. Examine where can we get emotional information from to support us, even if we are not aware we are doing it! Identify the importance of an enquiring mind and a hypothesis as we try and understand the story that we are aiming to compassionately engage with. Develop understanding of Safeguarded Personal Resolution (SPR ®) to formulate compassionate engagement under PSIRF and the Complaints Standards Framework. Develop awareness on personal wellbeing and resilience. Register hub members receive a 20% discount. Email info@pslhub.org for the discount code.
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EventThis conference will focus on measuring, understanding and acting on patient experience insight, and demonstrating responsiveness to that insight to ensure patient feedback is translated into quality improvement and assurance. Through national updates and case study presentations the conference will support you to measure, monitor and improve patient experience in your service, and ensure that insight leads to quality improvement. Sessions will include learning from patients, improving patient experience, practical sessions focusing on delivering a patient experience based culture, measuring patient experience, demonstrating insight and responsiveness in real time, monitoring and improving staff experience, the role of human factors in improving quality, using patient experience to drive improvement, changing the way we think about patient experience, and learning from excellence in patient experience practice. For further information and to book your place visit https://www.healthcareconferencesuk.co.uk/virtual-online-courses/patient-experience-insight or email frida@hc-uk.org.uk Follow on Twitter @HCUK_Clare #PatientExp hub members receive a 20% discount. Email info@pslhub.org for the discount code.
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Content ArticleJessie Cunnett, new CEO at the Point of Care Foundation, shares her journey of commitment to humanise healthcare through her personal and professional stories. She reflects on the importance of creating space for everyone to feel seen and heard in health and care settings.
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EventThe Patient Advocacy Leadership Collective (PALC) is an innovative hub that provides connectivity, community resources, and tools focused on sustainable capacity building for patient advocates globally. Advocacy skills are necessary for patient organisations as these allow the patients to actively participate in their healthcare, improve communication with healthcare providers, access information and resources, and contribute to positive changes in the healthcare system. The PALC is an excellent platform that is focused on supporting the growth, development, and leadership of patient advocacy organizations and offers a NextGen Leadership, Mentorship, and Global Health Fellows program. The PALC has been developed by leading global patient advocacy leaders with support from Pfizer. The purpose of this webinar is to spread awareness and build capacities by taking all concerned through this very important tool for Patient Advocacy. Register
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ISQua 2024
Patient Safety Learning posted an event in Community Calendar
untilTogether with the Türkiye Health Care Quality and Accreditation Institute (TUSKA) and the Ministry of Health, Türkiye, ISQua is delighted to host their 40th International Conference in Istanbul. The theme for the 2024 conference is 'Health for People and Planet: Building Bridges to a Sustainable Future'. It will address the continued challenges of making person-centred care part of the healthcare system, as well as addressing some of the hot topics that matter most in a rapidly changing world. Issues such as environmental challenges, reducing the healthcare sector's carbon footprint, and ensuring the long-term resilience of healthcare will be addressed at the conference. It will also examine the potentials and pitfalls of AI and Digital Transformation in healthcare, and how it can revolutionise healthcare and enable better patient engagement. Further information -
Content ArticleDerek Richford’s grandson Harry died in November 2017 at just a week old. Since Harry’s death, Derek has worked tirelessly to uncover the truth about what happened at East Kent Hospitals University Foundation Trust (EKHUFT) to cause Harry’s death. In a blog published on the Making Families Count website, Derek explores some aspects of how the family's complaints were handled. Further reading on the hub: “Getting the hospital to be honest with us felt like a battle from day one.” An interview with Derek Richford
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Content ArticleRecording of the European Patient Safety Foundation conference which took place on the 17 November in Vienna, Austria.
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My experience of an outpatient hysteroscopy procedure
Anonymous posted an article in Patient stories
The following account has been shared with Patient Safety Learning anonymously. We’d like to thank the patient for to sharing their experience to help raise awareness of the patient safety issues surrounding outpatient hysteroscopy care.- Posted
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Patient safety and healthcare information are inextricably linked. But how can you be certain the content you’ve produced, or information you have received as a patient, is indeed ‘safe’? The sheer volume of information available is staggering – be it a leaflet about skin cancer, a poster about vaccines in your GP waiting room, a YouTube video about healthy living or a consent form for a surgical procedure. The list goes on and on and, without professional review, there really is no knowing how safe that information is. If you work in the healthcare sector, and especially if you work in the creation of healthcare information, you will probably be familiar with the Patient Information Forum and their ‘PIF TICK’. The PIF TICK provides reassurance that what is being given to patients is: safe reliable accurate accessible. At EIDO Healthcare, we were awarded our first PIF TICK in October 2020 and have had it successfully renewed every year since. In this blog, I will talk about my experience of receiving and maintaining a PIF TICK for our library of information leaflets for patients needing surgery. -
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This is part of our series of Patient Safety Spotlight interviews, where we talk to people working for patient safety about their role and what motivates them. Sonia talks to us about how her role at NHS Confederation helps her understand the issues facing NHS staff and why she decided to start drawing graphics to communicate important information to patients and staff. -
Content ArticleRob Behrens reflects on the work the Parliamentary and Health Service Ombudsman (PHSO) has done over the last year to drive improvements in patient safety.
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This is a guide, published by Shaping Our Lives, to help you get involved with organisations and researchers and share your views to help shape services, research and policy. -
Content ArticleAuthors of this report conclude that: "...patient-reported experience measures (PREMs) offer great insights into what is happening on the ground. The chances of any intentional/ unintentional bias are minimal as it comes directly from the patients. If appropriately implemented, PREMs can be a great proactive tool to ensure good quality of service rather than depending on near misses or incidents to happen and be reported. PREMs offer a unique opportunity to directly involve the patients in their care as they are essential stakeholders in the quality of care."
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Content ArticleAs part of the 21st Century Cures Act (April 2021), electronic health information (EHI) must be immediately released to patients in the USA. This study in the American Journal of Surgery sought to evaluate clinician and patient perceptions regarding this immediate release of results and reports. Interviews with patients and clinicians found differences in perceived patient distress and comprehension, emphasising the impersonal nature of electronic release and necessity for therapeutic clinician-patient communication.
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Content ArticleIn 2022 the Center for Medicare & Medicaid Services (CMS) launched the CMS National Quality Strategy (NQS), an ambitious long-term initiative that aims to promote the highest quality outcomes and safest care for all. This document gives an overview of the strategy, using infographics to explain its four priority areas: Outcomes and alignment Equity and engagement Safety and resiliency Interoperability and scientific advancement
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Content ArticleMany healthcare improvement approaches originated in manufacturing, where end users are framed as consumers. But in healthcare, greater recognition of the complexity of relationships between patients, staff, and services (beyond a provider-consumer exchange) is generating new insights and approaches to healthcare improvement informed directly by patient and staff experience. Co-production sees patients as active contributors to their own health and explores how interactions with staff and services can best be supported. Co-design is a related but distinct creative process, where patients and staff work in partnership to improve services or develop interventions. Both approaches are promoted for their technocratic benefits (better experiences, more effective and safer services) and democratic rationales (enabling inclusivity and equity), but the evidence base remains limited. This Element explores the origins of co-production and co-design, the development of approaches in healthcare, and associated challenges; in reviewing the evidence, it highlights the implications for practice and research.
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