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Showing results for tags 'Patient engagement'.
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Content ArticleChris Wardley has shared his useful summary of Learn Together's '5 stage process' in involving patients and families in patient safety investigations.
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The SACCIA approach by Professor Annagret Hannawa
Patient-Safety-Learning posted an article in Culture
Achieving shared interpersonal understanding between healthcare professionals, patients and families is a core patient safety challenge around the world. The SACCIA model promotes safe communication practice amongst healthcare teams and between providers patients. It was developed by Professor Annagret Hannawa, Director of the Center for the Advancement of Healthcare Quality & Safety in Switzerland. The interpersonal processes that are captured in the SACCIA acronym are considered 'safe' because they lead to a shared understanding between all care participants: Sufficiency Accuracy Clarity Contextualization Interpersonal Adaptation The five SACCIA competencies emerged from a communication science analysis of hundreds of critical healthcare incidents. They were identified as common deficient interpersonal processes that often cause and contribute to preventable patient harm and insufficient care. They therefore represent an evidence-based set of core competencies for safe communication, which constitute the vehicle to patient care that is safe, efficient, timely, effective and patient-centred. -
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Patient-led assessments of the care environment (PLACE)
Patient Safety Learning posted an article in Environmental
PLACE assessments will provide motivation for improvement by providing a clear message, directly from patients, about how the environment or services might be enhanced. The 2023 programme is planned for launch in early September 2023. -
Content ArticleFor World Patient Safety Day 2023, the NHS National Patient Safety Team have produced a series of bitesize videos around the theme of 'engaging patients for patient safety'. In this video, Joan Russell, head of patient safety (policy and partnerships), and Hester Wain, head of patient safety policy, in NHS England, talk about the background and history of formally involving patients to support the NHS to improve patient safety, and how this became part of the NHS Patient Safety Strategy, followed by the Framework for Involving Patients in Patient Safety. They go on to provide an update on the work to introduce Patient Safety Partners across the NHS and future plans.
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Content ArticleThis is the first in a series of podcasts NHS England has produced to mark World Patient Safety Day 2023, and celebrate its theme of ‘engaging patients for patient safety’. The series features some of the Patient Safety Partners that work with the National Patient Safety Team, who play a vital role in providing a patient’s perspective to support our work to improve patient safety. In this podcast, Graham, who became a patient safety partner in 2020, shares his insights on the benefits of involving patients and why he feels it is so important in supporting the NHS to improve patient safety, and talks about his experience as a patient safety partner, particularly working to co-design elements of the medical examiner and medicines safety improvement programmes.
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Content ArticlePatients and families are key partners in diagnosis, but there are few methods to routinely engage them in diagnostic safety. Policy mandating patient access to electronic health information presents new opportunities, and in this study, researchers tested a new online tool—OurDX—that was codesigned with patients and families. The study aimed to determine the types and frequencies of potential safety issues identified by patients with chronic health conditions and their families and whether their contributions were integrated into the visit note. The results showed that probable Diagnostic Safety Opportunities (DSOs) were identified by 7.5% of paediatric and adult patients with underlying health conditions or their families. Among patients reporting diagnostic concerns, 63% were verified as probable DSOs. The most common types of DSOs were patients or families not feeling heard, problems or delays with tests or referrals and problems or delays with explanation or next steps. In chart review, most clinician notes included all or some patient/family priorities and patient-reported histories. The researchers concluded that OurDX can help engage patients and families living with chronic health conditions in diagnosis. Participating patients and families identified DSOs and most of their OurDX contributions were included in the visit note.
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Content ArticleThere is widespread variation in the instance and quality of meaningful patient involvement across the 42 Integrated Care Systems (ICSs) of NHS England. This is seen throughout the structures, policies and processes of the ICSs, from the omission of patient representatives on decision-making bodies—such as Integrated Care Boards (ICBs)—to the neglect of clear consultation when decisions are made concerning a patient’s care. This report present the results of research and analysis conducted by the Medical Technology Group (MTG). It shows that where a patient lives is the biggest determinant to whether they are involved in their care meaningfully, or at all. It makes recommendations for the Government, NHS England and ICS's on the approach that should be taken to ensure meaningful patient engagement.
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NHS: Consent to treatment
Patient_Safety_Learning posted an article in Consent issues
Consent to treatment means a person must give permission before they receive any type of medical treatment, test or examination. This must be done on the basis of an explanation by a clinician. Consent from a patient is needed regardless of the procedure, whether it's a physical examination or something else. The principle of consent is an important part of medical ethics and international human rights law. This webpage from the NHS includes information on: how consent is given and what we mean by consent assessing capacity consent from children and young people assessing capacity when consent is not needed consent and life support. -
Content ArticleShaping Our Lives is a non-profit, user-led group, led by Disabled people and service users. They want to make sure everyone can have their say, especially those from marginalised groups who often face barriers to getting involved. Involvement activities enable people to influence and improve policies and services that affect their lives, like health or social care. Involvement can mean sharing your experiences and opinions in a focus group, a patient involvement forum, or a research study. The My Involvement Profile was designed by Disabled people. It’s made up of two simple template forms. It can help you: Keep a record of your involvement activities. Keep a list of your access and support requirements so you don’t have to keep repeating them. Each section has help notes to assist you in completing it if you need them. Download the profile via the link to the Shaping Our Lives website below.
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Content ArticleThe NHS.uk website averaged over 2,000 visitors per minute in 2022 and, while websites are hardly considered cutting edge, this technology is important to help make trusted and reliable health and care knowledge easily accessible to patients and the public. Web-based information, alongside access to medical records and personalised care initiatives, means people are potentially more informed to make decisions and be actively involved in their own care. However simply having access to information doesn’t necessarily make it useable.
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Content ArticleThe USA President’s Council of Advisors on Science and Technology have released their report to the US President, Joe Biden, on patient safety. The report contains recommendations aimed at dramatically improving patient safety in Amercia.
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Content ArticleWomen across England are being encouraged to help shape future reproductive health policy by sharing their experiences of a range of issues, as the government launches a new landmark survey. Delivering on a key commitment in the Women’s Health Strategy, the Women’s Reproductive Health Survey will seek women’s views across England on issues including periods, contraception, fertility, pregnancy and the menopause. Findings from the survey will then be used to better understand women’s reproductive health experiences over time. The vital information gathered about the lives and experiences of women will inform current and future government decision-making and health policy. There are currently disparities in women’s health across the country, and far too many cases where women’s voices are not being heard. Along with the strategy, the new survey will play a key part in changing this.
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To mark this year’s World Patient Safety Day (WPSD), the Royal College of Surgeons of Edinburgh (RCSEd) will be running a series of blogs and Talking Heads on key surgical and dental topics in this area. These have been provided by patients, families and carers, alongside members of the College’s Patient Safety Group, College Council and the wider College fellowship. The College’s eleven Surgical Specialty Boards (SSBs) have been asked to provide blogs on how patient involvement in their individual specialty has helped to drive up standards of care. The blogs will provide examples of how patients and carers can play vital roles in making decisions about their own individual care and also how they can enhance the safety of the healthcare system as a whole by contributing to strategic decisions at organisational level. Two blogs will be released on each day of the College’s week-long WPSD campaign, starting on Monday 11 September and leading up to WPSD on Sunday 17 September. Members and Fellows will have access to these through the College website following the campaign. -
Content ArticleThe Alzheimer’s Society Accelerator Programme aims to support the development of products and services to help people living with dementia. There is £100,000 of funding available, together with mentoring, peer-to-peer learning and opportunities for co-creation with people who have the condition. Engineers, designers, developers, innovators, academics, entrepreneurs, or anyone with a good idea can apply. Your idea could be a simple product that makes an everyday task easier for a person living with dementia. You may have an innovative idea for a new product or service. To bring your idea to life, the programme offers a 12-month partnership including: Up to £100K of funding Expert innovation and dementia support for 12 months Peer-to-peer learning with our Innovation Collective Opportunities to learn from people living with dementia through co-creation. Support during the application process. Apply from link below. Closing date 4 October 2023.
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In this video we hear from three people campaigning for patient safety improvements: Sandra Igwe – CEO of the Motherhood Group. Tim Edwards – campaigner for improvements in pulmonary embolism care and diagnosis. Soojin Jun – co-founder of Patients for Patient Safety US. They talk about their experiences of engaging with the system, the challenges they have faced and offer advice for others seeking to campaign for change in healthcare. The insights they share help evidence the need for healthcare organisations and frontline staff to work with patients, their families and campaigners in improving safety and reducing inequalities. -
Content ArticleLearn Together is a resource website that equips patients and families with the knowledge and resources to be involved effectively in patient safety investigations. The resources have been designed, together with people who have experienced patient safety incidents and investigations, to provide the information and support patients might need following a patient safety incident. Information is provided in a range of formats including downloadable guides, videos and infographics. The site also provides information and resources for engagement leads. Learn Together is a partnership between Sheffield Hallam University, the University of Leeds, Bradford Teaching Hospitals NHS Foundation Trust, Bradford District Care NHS Foundation Trust, Leeds and York Partnership NHS Foundation Trust and York and Scarborough Teaching Hospitals NHS Foundation Trust, and is funded by the National Institute for Health and Care Research (NIHR).
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Content ArticlePatients are increasingly describing their healthcare experiences publicly online. This has been facilitated by digital technology, a growing focus on transparency in healthcare and the emergence of a feedback culture in many sectors. The aim of this study was to identify a typology of responses that healthcare staff provide on Care Opinion, a not-for-profit online platform on which patients are able to provide narrative feedback about health and social care in the UK. The authors used framework analysis to qualitatively analyse a sample of 486 stories regarding hospital care and their 475 responses. Five response types were identified: non-responses, generic responses, appreciative responses, offline responses and transparent, conversational responses. The key factors that varied between these response types included the extent to which responses were specific and personal to the patient story, how much responders' embraced the transparent nature of public online discussion and whether or not responders suggested that the feedback had led to learning or impacted subsequent care delivery. Staff provide varying responses to feedback from patients online, with the response types provided being likely to have strong organisational influences. The findings offer valuable insight and have both practical and theoretical implications for those looking to enable meaningful conversations between patients and staff to help inform improvement. The authors suggest that future research should focus on the relationship between response type, organisational culture and the ways in which feedback is used in practice.
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In 2020, the Independent Medicines and Medical Devices Safety Review (IMMDS), chaired by Baroness Cumberlege, highlighted the avoidable harm caused by both pelvic and sodium valproate. It also set out the devastating impact on people’s lives when patients’ voices go unheard. The Minister for Mental Health and Women’s Health Strategy, Maria Caulfield MP, asked the Patient Safety Commissioner (PSC) to explore redress options for those who have been harmed by pelvic mesh and sodium valproate. The work will focus on what a suitable redress scheme for those affected should look like, to meet the needs of those affected. -
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In this blog, Patient Safety Learning looks ahead to World Patient Safety Day 2023 and the theme of this year’s event, ‘Engaging patients for patient safety’. -
Content ArticleDiagnostic error research has largely focused on individual clinicians’ decision making and system design, largely overlooking information from patients. This article in the journal Health Affairs analysed a unique data source of patient- and family-reported error narratives to explore factors that contribute to diagnostic errors. The analysis identified 224 instances of behavioural and interpersonal factors that reflected unprofessional clinician behaviour, including ignoring patients’ knowledge, disrespecting patients, failing to communicate and manipulation or deception. The authors concluded that patients’ perspectives can lead to a more comprehensive understanding of why diagnostic errors occur and help develop strategies for mitigation. They argue that health systems should develop and implement formal programs to collect patients’ experiences with the diagnostic process and use these data to promote an organisational culture that strives to reduce harm from diagnostic error.
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Content ArticlePeople living in deprived areas experience the most significant health inequalities in terms of access, experience and outcomes. There are large reductions in life expectancy for those living in the most deprived areas compared to people living in the least deprived areas. NHS England commissioned a research project into access, experience and outcomes related to health services in socio-economically deprived communities. This communications and engagement toolkit is an output of the research. The toolkit is designed to be used by communications and engagement professionals and others across the NHS with a responsibility for communicating to and engaging with people in the most deprived areas.
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Content ArticleThe aim of this study from Hutchinson et al. was to explore the reasons for and experiences of patients who make an unplanned return visit to the emergency department.
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Content ArticleChris Graham of the Picker Institute and Jacob Lant from charity National Voices join host Annabelle Collins to discuss patient experience revealed by recent national surveys, how the findings should be used to improve quality and reduce health inequalities, and whether there is a bigger role for “real-time” experience measures.
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Content ArticleMost people experience a diagnostic error at least once in their lifetime. Patients’ experiences with their diagnosis could provide important insights when setting research priorities to reduce diagnostic error. The objective of this study from Zwaan et al. was to engage patients in research agenda setting for improving diagnosis. Patients were involved in generating, discussing, prioritising, and ranking of research questions for diagnostic error reduction.
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For Every Pregnancy campaign (NMC)
Patient-Safety-Learning posted an article in Maternity
For Every Pregnancy is a campaign by the Nursing & Midwifery Council. It aims to show that each pregnancy is unique, and whatever stage you're at, your midwife team should be right alongside you. The campaign includes posters and videos aimed at outlining the standards of care pregnant women and birthing people can expect and the importance of shared decision making.
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