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Showing results for tags 'Patient engagement'.
Found 1,334 results
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Content ArticleThis patient decision aid from the National Institute for Health and Care Excellence (NICE) aims to help adults with type 2 diabetes understand the risks and benefits of taking a second medication, so that they can make an informed decision about their care.
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Content ArticleThis patient decision aid from the National Institute for Health and Care Excellence (NICE) aims to help family members and carers of severe stroke patients under 60 understand the risks and benefits of decompressive hemicraniectomy, so that they can make an informed decision about treatment.
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Content ArticleThis patient decision aid from the National Institute for Health and Care Excellence (NICE) aims to help patients with high blood pressure understand the risks and benefits of different treatment options so that they can make an informed decision about their care.
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Content ArticleThese free e-learning courses about communicating the potential harms and benefits of treatment to patients have been produced by the Winton Centre for Risk & Evidence Communication, the Academy of Medical Royal Colleges in the UK and the Australian Commission on Safety & Quality in Healthcare.
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Content ArticleThe use of healthcare complaints to improve quality and safety has been limited by a lack of reliable analysis tools and uncertainty about the insights that can be obtained. The Healthcare Complaints Analysis Tool, developed by Alex Gillespie and Tom W. Reader was used to analyse a benchmark national data set, conceptualise a systematic analysis, and identify the added value of complaint data.
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Content ArticlePatients and families are important contributors to the diagnostic team, but their perspectives are not reflected in current diagnostic measures. Patients/families can identify some breakdowns in the diagnostic process beyond the clinician’s view. Bell et al. developed a framework with patients/families to help organisations identify and categorise patient-reported diagnostic process-related breakdowns (PRDBs) to inform organisational learning. The framework describes 7 patient-reported breakdown categories (with 40 subcategories), 19 patient-identified contributing factors and 11 potential patient-reported impacts. Patients identified breakdowns in each step of the diagnostic process, including missing or inaccurate main concerns and symptoms; missing/outdated test results; and communication breakdowns such as not feeling heard or misalignment between patient and provider about symptoms, events, or their significance. The PRDB framework can help organisations identify and reliably categorise PRDBs, including some that are invisible to clinicians; guide interventions to engage patients and families as diagnostic partners; and inform whole organisational learning.
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Content ArticleThis article in Social Science and Medicine examines the role of patients in naming and defining Long Covid. Patients with the condition, many of whom had ‘mild’ illness initially, used different evidence and advocacy to demonstrate a longer, more complex course of illness than was laid out in initial reports from Wuhan.
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Content ArticleThis blog on the tech website Mashable outlines the key points of a recent international consensus statement on open-source automated insulin delivery. It discusses the need for a consensus statement, the impact of this technology on the lives of people with diabetes and the importance of the statement in paving the way for further user-driven technologies and innovations in healthcare.
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National Maternity and Perinatal Audit lay summaries (2021)
Patient-Safety-Learning posted an article in Maternity
The National Maternity and Perinatal Audit (NMPA) has produced lay summaries covering three of its sprint audits into: perinatal mental health services maternity care for women with a body mass index of 30kg/m2 or above ethnic and socio-economic inequalities in NHS maternity care. The NMPA is a large-scale project established to provide data and information to those working in and using maternity services. The purpose of NMPA is to evaluate and improve NHS maternity services, as well as to support women, birthing people and their families to use the data in their decision-making. -
Content ArticleThis guide for people who inject insulin or GLP-1 to treat diabetes includes information on: how to correctly inject insulin where to inject to ensure insulin and GLP-1 medication enter the body correctly how to avoid ‘Lipos’ how to store medication correctly how to dispose of needles safely.
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Content ArticleIn this video of a plenary session from the Guidelines International Network (GIN) Conference on 26 October 2021, James McCormack, Professor at the Faculty of Pharmaceutical Science, University of British Columbia, discusses issues with clinical practice guidelines and ways to overcome them.
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For World Diabetes Day, Lotty Tizzard, Patient Safety Learning's Content and Engagement Manager, takes a look at the benefits of closed-loop insulin delivery, how patients have literally led on its development, and patient safety issues associated with artificial pancreas systems. -
Content ArticleThis is the recording of a Royal College of Nursing (RCN) online event with actor David Harewood in conversation with mental health workers Simon Arday and Kojo Bonsu. Drawing on expertise from Black health care professionals and those with lived experience, the event explored what needs to be done to improve black people's experiences of mental health services. The event was chaired by Catherine Gamble RCN Fellow and Associate Director of Nursing Education South West London and St George's Mental Health NHS Trust.
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Content ArticleThe Patient Experience Platform (PEP) is a listening tool which offers a new approach to collecting and analysing the views of patients on health services. The platform delivers comprehensive real-time reporting of what patients think about their care and provides actionable insights to inform operational decisions. This second annual report explains how PEP data is collected and analysed and explores some key findings on trends and variations in patient experiences across hospitals in England.
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Content ArticleTCC-CASEMIX has created a unique infrastructure to provide total traceability of medical device performance. This infrastructure is supported by The Association of British HealthTech Industries [ABHI]. We refer to it as an 'Open Registry Infrastructure' for medical devices. It is 'open', because unlike existing clinically focused registries, which are 'closed', we enable wide searches across the registries connected into it. It is 'open' because registries will 'declare the content' (I don't know what I don't know, so how can I search for what I don't know?) Access to this infrastructure is through a Data Access Portal which is being configured for the specific needs of each stakeholder group. We are seeking interest from patient groups who would like to join an Advisory Board to help specify how data should be presented to patients in a way that is relevant and meaningful. Our vision is to link this portal into an enhanced pre-operative assessment process, and to transform patient informed consent.
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Content ArticleThis toolkit created by The National Academies of Sciences, Engineering and Medicine contains information and resources to help patients learn about and engage in the diagnostic process. There are many barriers to patients fully engaging in their diagnosis, and this toolkit aims to help patients take control of their role in the process, as well as equipping healthcare providers to create an atmosphere that allows patients to contribute meaningfully.
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Content ArticleThis paper in BMJ Quality & Safety brings together the two trends of increasing focus on reducing diagnostic error, and involving patients in their care. The authors analyse strategies for patient involvement: in reducing diagnostic errors in an individual’s own care. in improving the healthcare delivery system’s diagnostic safety. in contributing to research and policy development on diagnosis-related issues.
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Diagnostic Errors: Technical Series on Safer Primary Care (2016)
Patient-Safety-Learning posted an article in WHO
This document from the World Health Organization raises awareness about strategies that could reduce diagnostic errors in primary care. It highlights the importance of examining diagnostic errors, identifies the most common types of diagnostic error in primary care and describes potential solutions. -
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1- 7 November 2021 is Occupational Therapy Week. In this blog, Susanna Keenan, occupational therapist and Joanna Gilmore, student occupational therapist at Northumbria Healthcare NHS Foundation Trust, explain what their role involves and the important part occupational therapists play in patient safety.- Posted
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Content ArticleNursing is a predominantly female profession, yet sex and gender bias is rife. In a remarkably candid conversation, feminist writer Caroline Criado Perez, author of ‘Invisible Women: Exposing Data Bias in a World Designed for Men’, talks about how health care and health care research fails women, how changes are needed for women experiencing miscarriage – and what it means when medicine treats the female body as atypical and niche. Nursing Matters is presented by PNC Chair Rachel Hollis and PNC member Alison Leary. For this episode they are also joined by RCN member Leanne Patrick, who works in services for women experiencing gender-based violence and tweets on behalf of the RCN Feminist Network.
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Content ArticleToo often in healthcare, when effective solutions to prevent avoidable harm are found, there is a lack of means to share these more widely. This gap between learning and implementation means that while we may we know what improves patient safety, this information can often remain siloed in specific organisations and health care systems. This results in patients continuing to experience harm from problems that have already been addressed by others. This article published in the Journal of Patient Safety and Risk Management describes how the charity Patient Safety Learning created the hub, a platform to encourage and support shared learning for patient safety. Designed by and for patient safety professionals, clinicians and patients, the hub offers a powerful combination of tools, resources, stories, ideas, case studies and good practice to anyone who wants to make care safer for patients.
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Content ArticlePatients and their families are usually the first to notice new or changing symptoms and they can play an important role in preventing diagnostic errors. This blog in BMJ Opinion describes how researchers, healthcare professionals and patients worked together to develop OurDX, an online tool designed to improve the efficiency of medical appointments and reduce diagnostic errors.
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Content ArticleIncreasingly, healthcare organisations are using the unique perspective of patients and families to drive organisational change. As recipients of care, patients and families are well-positioned to add immense value as equal partners in efforts to advance healthcare quality. However, what is important is not just the engagement of patients in quality improvement, but how one engages them. Even with the best intentions, it is the ‘how’ that can be most challenging, as most recommendations end at high-level concepts, leaving quality improvement teams wondering how to most effectively engage their patients and families in a tangible and concrete way. A multidisciplinary team at a large health system undertook a quality improvement initiative utilising the ‘Plan-DoStudy-Act’ methodology for continuous quality improvement.
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Article: Culture, kinship and intelligent kindness (2013)
Patient-Safety-Learning posted an article in Culture
This article by Penny Campling for the Royal College of Psychiatrists suggests that cultivating a culture of 'intelligent kindness' within the NHS will result in more safe and humane care. The author proposes a 'virtuous circle of compassionate care' and highlights systemic barriers that prevent organisations achieving this ideal. She argues that to create this virtuous circle, healthcare professionals need to acknowledge - and consciously work against - structures that undermine kindness. This requires a greater understanding the emotional impact of healthcare work, an acknowledgement that market culture undermines compassionate care and a renewed focus on relationships between professionals. -
Content ArticleIn this blog for NHS Providers, National medical director's clinical fellow Cian Wade writes about his work with the NHS Improvement national patient safety team on reducing healthcare inequalities. Responding to commitments in the NHS Long Term Plan, this work focuses on two main areas: Determining the extent and causes of unequal experiences of clinical harm among different patient groups. This involved working with patient groups and system leaders to map patient journeys that demonstrate how and why some patients are at heightened risk of harm. Identifying areas for development that may help reduce health inequalities around patient safety. This second phase is in progress and involves gathering input on specific interventions that may reduce the risk of harm.
