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Showing results for tags 'Patient engagement'.
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Content ArticleThis online course by NHS England helps participants learn how to engage with different people and communities to reduce inequalities and ensure inclusive access to healthcare. It involves three hours of study time per week over two weeks and aims to equip healthcare professionals to: help the people they work with access healthcare services understand how people have different experiences in their access to healthcare explore inclusive engagement activities develop an awareness of implicit bias and underrepresentation
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Content Article
World Patient Safety Day 2023
Patient Safety Learning posted an article in WHO
This year's World Patient Safety Day on the 17 September will focus on engaging patients for patient safety, in recognition of the crucial role patients, families and caregivers play in the safety of healthcare. This article provides a brief summary about the event.- Posted
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Content ArticleIn this National Health Executive article, Dr Tom Milligan, Clinical Lead for Diabetes in Humber and North Yorkshire, discusses how ICB-led text messaging could dramatically increase patients' participation in programmes where other methods of patient outreach have already been tried.
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Content ArticleThis ethnographic qualitative study in the BMJ aimed to describe how patients are engaged with cancer decisions in the context of multidisciplinary teams (MDT) and how MDT recommendations are carried out in the context of a shared decision. The study was carried out at four head and neck cancer centres in the north of England. The authors found that the current model of MDT decision-making does not support shared decision-making, and may actively undermine it. They recommend the development of a model that allows the individual patient more input into MDT discussions, and where decisions are made on potential treatment options rather than providing a single recommendation for discussion with the patient. Deeper consideration should be given to how the MDT incorporates the patient perspective and/or delivers its discussion of options to the patient.
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Content Article
In this opinion piece, Kath Sansom, founder of Sling the Mesh, looks at why an audit of pelvic mesh outcomes due to be published in April 2023 has again failed to capture the true extent of the harm caused by the procedure. She outlines why the approach taken by the Government and NHS Digital was flawed and why it is so important to understand both the proportion of women who have experienced harm as a result of the procedure, and the nature of their injuries and side effects.- Posted
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Content ArticleDr Henrietta Hughes, Patient Safety Commissioner for England, sheds light on the disconnect between the executive corridor and what patients experience.
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Content Article
WHO: Introducing the Patient Safety Friendly Hospital Initiative
Patient Safety Learning posted an article in WHO
The Patient Safety Friendly Hospital Initiative (PSFHI) aims to address the burden of unsafe care in the Eastern Mediterranean Region. It helps institutions in countries of the Region to launch comprehensive patient safety programmes, with assistance from the World Health Organization (WHO). -
Content ArticleThe Centre for Perioperative Care (CPOC) has published new safety standards (NatSSIPs2) to enable all hospitals in the UK to improve patient safety by applying a consistent and proportionate set of safety checks for all invasive procedures. Listen to the podcast from the Royal College of Anaesthetists on the new standards.
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Content Article
Diabetes Type 1: S.T.I.G.M.A. (Revolve Comics)
Patient Safety Learning posted an article in Diabetes
Type 1: S.T.I.G.M.A. is the third issue in the type 1 diabetes comic series. Here, the focus is on stigma and on the risk that can be posed to people with type 1 diabetes if blood sugar levels fall too low… Supported by the NHS. -
Content ArticleThe NHS is committed to putting patients at the heart of what we do and it was a mother’s comment at a patient and family involvement workshop that kick-started the 15 Steps Challenge. She said about her daughter, whose condition needed frequent inpatient stays, “I can tell what kind of care my daughter is going to get within 15 steps of walking onto every new ward”. This mum was not a clinician or quality assurance manager, but very quickly she could tell some important things about the quality of care in the healthcare settings that she and her daughter were attending. Her comment highlights how important it is to understand what good quality care looks and feels like from a patient and carer’s perspective. Our patients have high expectations for safe, good quality care, delivered in welcoming and clean environments. This quote inspired the development of a series of 15 Steps Challenge guides. “The 15 Steps Challenge” is a suite of toolkits that explore different healthcare settings through the eyes of patients and relatives. With an easy to use methodology and alignment to NHS strategic drivers, these resources support staff to listen to patients and carers and understand the improvements that we can make. The toolkits help to explore patient experience and are a way of involving patients, carers and families in quality assurance processes.
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Content ArticleJill White is the practice manager of the Nightingale Practice and has been using Care Opinion since 2018. The Nightingale Practice signed up as part of the City & Hackney GP Confederation pilot of implementing Care Opinion online feedback as a way of gathering feedback from our patients instead of using paper-based surveys.
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News Article
Medical jargon putting patients in harm's way
Patient Safety Learning posted a news article in News
Patients are struggling to understand their doctors because of confusing medical jargon, a study has found. Almost 80% of people do not know that the word 'impressive' actually means 'worrying' in a medical context. Critics said using the word borders on 'disrespectful' because 'we're describing something as impressive that is causing real harm for patients'. More than one in five of respondents could not work out the phrase 'your tumour is progressing', which means a patient's cancer is worsening. And the majority of participants failed to recognise that 'positive lymph nodes' meant the cancer had spread. The word 'impressive' means something admirable to most people. But when physicians describe a chest X-ray as impressive, they actually mean it is worrying. Some 79% of study participants did not get this meaning. Only 44 participants correctly understood that a clinician was actually giving them bad news. Read full story Source: Mail Online, 1 December 2022 -
News Article
Patients Know Best launches education programme for medical students
Clive Flashman posted a news article in News
Patients Know Best has launched an education programme which can be used by medical schools. Among the first to use the programme are undergraduate Pharmacy students at Liverpool John Moores University (LJMU). The Patients Know Best platform, which recently became the first personal health record to be fully integrated into the NHS App, has been incorporated into the curriculum to facilitate simulated interactions between patients and pharmacists. This has involved training the students to use Patients Know Best to enable their use of the platform to interact and collaborate with each other. Read the full article here. -
News ArticleMichael Seres, an entrepreneur, patient advocate, husband and father of three, died on Saturday in Orange County, California, of a sepsis infection. He was 51. Seres was widely considered to be one of the first and most prominent “e-patients,” a term which has become popular to denote patients who are informed and engaged in their health, often sharing their experiences online. He is also one of a small number of patient inventors who helped design and build a medical device – a digitally enhanced ostomy bag – that got FDA clearance in 2014. His invention eased the suffering of millions of people with bowel injuries, chronic gut illnesses and cancer. Source: CNBC, 2 June 2020 Read more about Michael and his innovative patient work in our hub blog
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News ArticleLloydsPharmacy is piloting an innovative new service that offers extra help and support to mental health patients. Funded by The National Institute for Health Research Greater Manchester Patient Safety Translational Research Centre (NIHR GM PSTRC), which is a partnership between The University of Manchester and Salford Royal, the pilot is being carried out in ten community pharmacies in Greater Manchester. The new service, referred to as AMPLIPHY, enables pharmacists to provide personalised support to people who have been newly prescribed a medicine for depression or anxiety, or those who have experienced a recent change to their prescription. The pilot programme has been funded and designed by researchers at the NIHR GM PSTRC in collaboration with LloydsPharmacy. Central to the programme is the ability for patients to lead the direction of support they receive. They set their own goals and objectives and the pharmacist supports them in these. Professor Darren Ashcroft, Deputy Director of the NIHR Greater Manchester PSTRC, said: "The NIHR Greater Manchester PSTRC focuses on improving patient safety across four themes, which include Medication Safety and Mental Health. AMPLIPHY covers two of these areas and we believe it has the potential to make a difference to patients, by providing enhanced support for their care in the community." The pilot is set to run until April 2020 when its impact will be evaluated before a decision is made on the next steps. Read full story Source: News-Medical.net, 22 January 2020
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Content Article
This is part of our new series of Patient Safety Spotlight interviews, where we talk to people about their role and what motivates them to make health and social care safer. Jono talks to us about why he is passionate about making sure patient voices are heard and valued in healthcare investigations and quality improvement. He also highlights the current workforce crisis, the need to look after NHS staff to ensure they can deliver compassionate, high quality care and the importance of being transparent with the public about the problems the NHS is currently facing. -
Content ArticleDisease-modifying antirheumatic drugs (DMARDs) are a group of medications commonly used in people with rheumatoid arthritis, ankylosing spondylitis, psoriatic arthritis and systemic lupus erythematosus (SLE). They work by work suppressing the body's overactive immune and/or inflammatory systems and take effect over weeks or months. This information guide gives information for patients on conventional and biologic DMARDS, including how they work, the different kinds available and their side effects.
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Content ArticleThe first wave of the pandemic necessitated a large scale shift to greater digital engagement with patients, yet progress has not been uniform. While virtual consultations have become increasingly commonplace, communication outside of those appointments is still often analogue and generally sporadic. Cancelling an appointment – or indicating in advance that a specific day or time doesn’t work – remains a complicated, non-digital experience for many patients. With millions now on waiting lists for treatment, and a significant minority having already waited two years, this sort of communication gap becomes more challenging. As such there are arguments that it’s now time for the digital acceleration seen during the pandemic to extend to this area too.
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Content ArticleYoung people with type 1 diabetes experience higher rates of psychological distress, periods of burnout and feelings of being unable to cope with the daily burden of living with diabetes, than those who are diagnosed as adults. This article in The BMJ considers approaches to reduce anxiety and stress in young people with diabetes including: family, peer, and psychological support and education on living with diabetes. psychological screening assessment tools at diagnosis and annually. ensuring there are adequate local mental health support pathways. psychological and behavioural interventions, such as solution focused therapy, coping skills training, motivational interviewing and cognitive behavioural therapy.
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Content ArticleFrom the perspective of patient partners, the Ontario SPOR SUPPORT Unit Engaging Multi-stakeholders for Patient Oriented-research Wider Effects and Reach Awards have facilitated successful patient-partnered research projects, which, in turn, have led to an evolution in patient partnerships and engagement strategies. The 15 projects profiled in this special issue point to the beneficial impacts of patient-partnered research.
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Content ArticleAs part of the Medicines and Medical Devices Act 2021, the UK Government formally committed to establishing the new role of a Patient Safety Commissioner for England. In this blog Dr Victoria Moore explores the role of the proposed Patient Safety Commissioner, arguing that this may not be sufficient to ensure patient safety.
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Content ArticleThis webpage by the British Association of Dermatologists contains a selection of resources about skin cancer and sun safety for patients. it describes the different types of skin cancer, how to get moles checked and how to stay safe in the sun.
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Content ArticleEpistemic injustice occurs when a person is not given authority and credibility as a 'knower' in a conversation, due to negative stereotypes associated with their identity. These stereotypes might relate to their age, gender, ethnicity, social class, education, sexual orientation or health. Young people with unusual experiences and beliefs are particularly at risk of experiencing epistemic injustice, and this can have a negative impact on their health outcomes. In this blog Joe Houlders, Matthew Broome and Lisa Bortolotti from the University of Birmingham talk about the risks of young people with unusual experiences and beliefs experiencing epistemic injustice in clinical encounters. This is the first in a series of blogs reporting outcomes from a project on Agency in Youth Mental Health, led by Rose McCabe at City University.
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Content ArticleAn increasing number of cancer patients are using the internet to better understand their disease and connect with others facing the same challenges. Online cancer communities have developed into resources that highlight new research and evolving treatments. Combined with increasing health literacy and social media, they have enabled some patients to become experts in their cancer. This article in the journal JCO Oncology Practice examines the role of expert patients (e-patients) in advancing cancer medicine, and looks at opportunities available to those who wish to become more involved in research advocacy. The authors found that e-patients play a greater role in their own care and in larger conversations regarding practice, research, and policy. They highlight that clinicians can engage e-patients as partners in cancer care to work together towards improving healthcare access and outcomes for people with cancer.
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Content ArticleHealth literacy is about people having enough knowledge, understanding, skills and confidence to use health information, be active partners in their care and navigate health and social care systems. Health literacy levels in the UK are low, with 43% of 16 to 65-year-olds in England struggling with text-based health information and 61% unable to understand health information that includes both text and numbers. This e-learning resource by Health Education England and NHS Scotland aims to help people working in health and social care understand and promote health literacy.
