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Found 949 results
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Content ArticleAs the number of Pennsylvanians diagnosed with autism spectrum disorder (ASD) continues to grow, healthcare facilities are seeing an increase in the number of these individuals seeking care. Negative interactions with the healthcare system and concerns about the quality of care provided to this population have been reported by individuals with ASD, their families, and healthcare providers. The Pennsylvania Patient Safety Authority received 138 reports of events involving patients with ASD from July 2004 through August 2014. Qualitative analysis of event report narratives revealed 12 patient safety concern themes involving patients with ASD. Injury to self or potential injury to self was identified as the most frequently reported concern (n = 75), followed by interference or lack of cooperation with care (n = 30). Other events included aggressive behavior and/or injury to others, use of chemical or physical restraints, patient communication difficulties, and caregiver communication difficulties and/or consent issues. The patient safety concerns commonly encountered by ASD patients and their families as reported to the Authority are consistent with the concerns cited in the published literature. Resources such as those developed by the Western Pennsylvania Autism Services, Education, Resources, and Training Collaborative are available to help healthcare facilities improve care for this population.
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Content ArticleResearch has shown that there is variability in quality of life (QOL) outcomes for people with intellectual disabilities who live in group homes. The aim of this study from Humphreys et al. was to examine dimensions of group home culture as predictors of QOL outcomes.
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Content ArticleResearch has shown that there is variability in quality of life (QOL) outcomes for people with intellectual disabilities who live in group homes. The aim of this study from Humphreys et al. was to examine dimensions of group home culture as predictors of QOL outcomes.
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Content ArticleBuilding on cultural dimensions of underperforming group homes, Bigby and Beadle-Brown analyses culture in better performing services. In depth qualitative case studies were conducted in three better group homes using participant observation and interviews. The culture in these homes, reflected in patterns of staff practice and talk, as well as artefacts differed from that found in underperforming services. Formal power holders were undisputed leaders, their values aligned with those of other staff and the organization, responsibility for practice quality was shared enabling teamwork, staff perceived their purpose as “making the life each person wants it to be,” working practices were person centered, and new ideas and outsiders were embraced. The culture was charactersed as coherent, respectful, “enabling” for residents, and “motivating” for staff. Though it is unclear whether good group homes have a similar culture to better ones the insights from this study provide knowledge to guide service development and evaluation.
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Content ArticleHealthcare workers (HCWs), particularly those from ethnic minority groups, have been shown to be at disproportionately higher risk of infection with severe acute respiratory syndrome coronavirus-2 (SARS-CoV-2) compared to the general population. However, there is insufficient evidence on how demographic and occupational factors influence infection risk among ethnic minority HCWs. Researchers analysed data from 10,772 HCWs who worked during the pandemic to identify demographic and household factors that contributed to infection risk. Results from the UK-REACH study, co-funded by the NIHR and UK Research and Innovation, showed that healthcare workers' risk of catching coronavirus increased in correlation with the level of exposure to COVID-19 patients. Other risk factors included a lack of PPE access and sharing living or working environments with other key workers. Geographical differences were also seen, with healthcare workers in Scotland and South West England at lower risk of infection compared with those in the West Midlands. Intensive care unit staff were also at lower risk than those in other hospital settings.
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Content Article
WHO European non-communicable disease dashboard (January 2022)
Patient-Safety-Learning posted an article in WHO
Non-communicable diseases (NCDs) including cardiovascular disease, cancer, chronic respiratory disease and diabetes, are leading causes of morbidity, disability and mortality in the WHO European Region, causing nearly 90% of all deaths and 67% of premature deaths. The World Health Organization (WHO) Regional Office for Europe has released the WHO Europe NCD Dashboard, which provides graphical data on NCDs in the 53 Member States of the Region and makes comparisons between them. The dashboard enables analysis of a country’s health situation and its progress towards meeting NCD health targets. It includes standardised data from national and international registries and surveys collected by countries, WHO and other international organisations -
Content ArticleHow does the public view the state of the health and care service? After political turmoil in Westminster, do people think the Government has the policies to set the NHS on the right course? With the health service under so much strain, do people remain committed to its founding principles? This long read by The Health Foundation presents its analysis of public perceptions research conducted with Ipsos that tracks the public’s views on health and social care in the UK every six months. The survey was conducted via Ipsos’ UK KnowledgePanel between 24 and 30 November 2022, with 2,063 people aged 16 and older across the UK.
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Content ArticleThe Perfect Patient Information Journey is Patient Information Forum's long-running project investigating how high-quality information can be provided throughout a person’s journey with a long-term condition.
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Content ArticleThis report by the Patient Experience Library explores the reasons why the healthcare system in the UK has failed to listen to and learn from patient experience. It highlights how the NHS – at an institutional and cultural level – fails to take patient experience evidence seriously enough. It also identifies steps that would strengthen evidence-based practice and ensure that the patient voice is better heard.
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Content ArticleDEPTH conducts research to understand the implications and effects of community involvement and dialogue in promoting health, planning health services, and quality improvement of existing services.DEPTH's work spans seven key research themes:Voices and experiences in healthCommunity participation and citizenshipDialogues about sexual and reproductive healthTransitions to adulthoodDigital lifeConducting and communicating science in an ethical wayDialogue and the arts.
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Content ArticleThe British Association of Perinatal Medicine is inviting parents of babies who have spent time in a neonatal intensive care unit (NICU) to submit questions for neonatal research to the Neonatal Priority Setting Partnership. The partnership is made up of healthcare professionals and parent representatives that have come together to oversee a process to identify and prioritise research questions that can be tested in randomised trials in UK neonatal care. Answers to the questions submitted should improve neonatal care and reduce unwanted variations in practice. Questions can be submitted until 28 February 2022.
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Content ArticleIn this blog, Sophie Jarvis, NIHR Public Partnerships Manager, Una Rennard, a public contributor, and Bryher Bowness, a PhD Student at King’s College London, highlight the role of people who care for friends and family in health and social care research, and why they should be involved.
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Content ArticleIn this opinion piece for the BMJ, Miles Sibley argues that hierarchy of evidence-based medicine is out of date and gives little weight to the role of the patient voice in preventing harm.
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Content ArticleTechnology holds promise for the future of healthcare. It can prevent illness, enable early diagnosis, empower health management and support general wellbeing. But how might people use technology to have more control over their health and wellbeing? And do they want to? This report explores the role of technology in managing, improving and supporting health and wellbeing. The NHS Confederation, in partnership with Google Health, commissioned Ipsos to explore people’s behaviours, attitudes and beliefs about responsibility and control when it comes to their health, the role that health technologies play in this and their expectations about the future of healthcare. A survey of more than 1,000 adults in the UK – a third of whom live with one or more long-term conditions (LTCs) – and interviews with individuals with LTCs and who have frequent interaction with the health system, forms the centrepiece of this report.
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Content ArticleThe Patient Experience Library aims to gather research and evidence about patient experience in one place, so that it can be accessed and used to improve patients' experiences of healthcare. In this annual report, The Patient Experience Library presents its top picks of evidence gathering about patient experience in England from the last twelve months. The research featured in the report includes studies by patient voice organisations, health charities, academic institutions and policy think tanks. The research takes variety of formats, from peer-reviewed formal research to less formal approaches built on community relationships, that lead to trusted dialogue and deep insight.
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Content ArticleThis decriptive study in BMC Health Services Research aimed to increase understanding of how patient and family education affects the prevention of medical errors, and provide basic data for developing educational content. The authors surveyed patients, families and Patient Safety Officers to investigate the relationship between educational approaches and medical error prevention. Participants thought that educational contents developed through this study could prevent medical errors. The results of this study are expected to provide basic data for national patient safety campaigns and standardised educational content development to prevent medical errors.
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Content ArticleThis series of short guides aims to help providers and commissioners better understand the use of patient insight and to use it effectively in delivering local services. These topics are covered in the guides: Seeking feedback in distressing or highly emotional situations Writing an effective questionnaire Building greater insight through qualitative research Helping people with a learning disability to give feedback How and when to commission new insight and feedback Insight – what is already available? The National Patient Reported Outcome Measures (PROMS) programme
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Content ArticleIn this blog, peer researchers Saffron, Bianca and Alysha describe their involvement in a study about violence and mental health funded by the UKRI Violence, Abuse and Mental Health Network. The study looked at how adolescents’ experiences of violence and neighbourhood disorder—such as vandalism and muggings—affects their mental health as they move into adulthood. As peer researchers, they helped analyse data and used their lived experience to interpret the findings and co-author an academic research paper. They highlight the value of involving people with relevant lived experience in research studies.
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Content ArticleThe Department of health funded an initiative in 2013 to pioneer new approaches that would create a more integrated form of care. In order to receive funding, local Clinical Commissioning Groups were required to engage a range of stakeholders in a practical approach that generated the development of an integrated model of care. To fulfil this requirement, two sequential simulation (SqS) workshops were designed using real patient scenarios from the locality, covering the areas of general practice, community health and adult social care. They were attended by a diverse group of patients and frontline staff. In pre- and post-workshop questionnaires, attendees strongly agreed that they had had an opportunity to contribute to all discussions and raise questions, concerns and ideas (100%). Knowledge of current and new models of care was vastly improved and the opportunity to share information and to network was valued. The SqS approach seen as breaking professional barriers by 100% of attendees.
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Content ArticleThere is a paradox of representation in public involvement in research; public contributors are seen as either too naïve to meaningfully contribute or too knowledgeable to represent ‘the average patient’. More expert contributors who have experience in research can therefore be a target for criticism. This study in the journal Health Expectations aimed to examine how representation was discussed in two different scenarios—expert involvement and lived experience. The authors analysed the case of a Lived Experience Advisory Panel (LEAP) chosen for direct personal experience of a topic and the case of an expert Patient and Public Involvement (PPI) panel. They concluded that researchers tend to enact a confirmation logic that seeks a simple, unified patient voice to legitimise decisions. Contributors are therefore limited in their ability to realise a synthesis logic that would actively blend different types of knowledge.
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Content ArticleThe All-Party Parliamentary Group (APPG) on Coronavirus was set up in July 2020 to conduct a rapid inquiry into the UK Government’s handling of the Covid-19 pandemic. This report outlines the APPG's findings on the incidence, impact and treatment of Long Covid. It includes recommendations for the UK Government to tackle the issues related to Long Covid that individuals, employers and healthcare professionals face.
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Content ArticleHughes et al. studied video consulting in the NHS during 2020–2021 through video interviews, an online survey and online discussions with people who had provided and participated in such consultations. Video consulting had previously been used for selected groups in limited settings in the UK. The pandemic created a seismic shift in the context for remote consulting, in which video transformed from a niche technology typically introduced by individual clinicians committed to innovation and quality improvement to offering what many felt was the only safe way to deliver certain types of healthcare. A new practice emerged: a co-constitution of technology and healthcare made possible by new configurations of equipment, connectivity and physical spaces. Despite heterogeneous service settings and previous experiences of video consulting, we found certain kinds of common changes had made video consulting possible. The authors used practice theory to analyse these changes, interpreting the commonalities found in our data as changes in purpose, material arrangements and a relaxing of rules about security, confidentiality and location of consultations.
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Content ArticleThere was a national roll out of ‘COVID Virtual Wards’ (CVW) during England's second COVID-19 wave (Autumn 2020 – Spring 2021). These services used remote pulse oximetry monitoring for COVID-19 patients following discharge from hospital. A key aim was to enable rapid detection of patient deterioration. It was anticipated that the services would support early discharge, reducing pressure on beds. This study from Georghiou et al. evaluated the impact of the CVW services on hospital activity. The study found no evidence of early discharges or changes in readmissions associated with the roll out of COVID Virtual Wards across England.
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Content ArticleFewer than 1% of UK general practice consultations occur by video. This study by Trisha Greenhalgh and colleagues aims to explain why video consultations are not more widely used in general practice.
