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Showing results for tags 'Patient engagement'.
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Content ArticleLast year, a report from the Health Foundation looked at quality measurement—including patient experience—across a range of healthcare services. It described a “measurement maze”, with multiple sources and numerous national bodies presiding over data collection. The potential usefulness of the data for trusts was “limited by the data being hard to locate online, with multiple spreadsheets to choose from and large Excel workbooks to download and navigate.” The Patient Experience Library wanted to find a solution to this, to find a way to organise all the data such that every Trust could get one-click access to everything it might need.. Miles Sibley, Director of the Patient Experience Library, explains what they did.
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Content ArticleThis policy is for patients and the public, and for NHS England staff. It sets out NHS England’s ambition of strengthening patient and public participation in all of its work, and how it intends to achieve this. The term ‘patients and the public’ includes everyone who uses services or may do so in the future, including carers and families. People who use health and care services may be referred to as ‘experts by experience’. NHS England recognises and values what they can contribute to its work as a result of their lived experience.
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Content ArticleThis film, produced by Hearts in Healthcare, shows Kathy talking about her experience of being in an Intensive Care Unit following a serious accident. Kathy talks about the importance of communicating to patients, even when they are unable to respond, and recalls one particular nurse who made a huge difference to her recovery. An incredibly powerful account that beautifully illustrates human-centred healthcare.
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Content ArticleOne in three Canadians has had patient harm affect themselves or a loved one, yet the public is collectively unaware that the problem exists. If nothing changes, 1.2 million Canadians will die from preventable patient harm in the next 30 years. The Conquer Silence campaign, from the Canadian Institute of Patient Safety (CPSI), argues that what we must battle in our collective efforts to reduce patient harm, is systemic silence. Silence between patients and providers, between colleagues in healthcare facilities, between administrators in different regions, and between the public and policymakers. If something looks wrong, feels wrong, or is wrong – people need to speak up, in the moment. It is only by bringing these issues to light that we can begin to work together to solve them. The campaign, gives people the opportunity to 'donate their voice' by recording their stories of healthcare harm and sharing advice or insight to help others avoid harm.
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Content ArticleJen Gilroy-Cheetham, Programme Manager at the Innovation Agency, talks about her experiences as a patient and makes a plea for a different way of doing things. Jen was speaking at the Innovation Agency's Eco 18 event, held at Haydock Racecourse in March 2019, focusing on innovating to meet NHS and social care workforce challenges.
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Michael Seres – the passing of a patient champion
Clive Flashman posted an article in Patient engagement
Michael Seres was a husband, a father, a successful entrepreneur and many more things. Most importantly in some ways, he was a lifelong Chrohn's patient who finally succumbed to an associated cancer last weekend. His loss has hit hard those who knew and admired him and the tributes have been numerous and from both clinicians and other patients. His death is a real loss for anyone interested in promoting patient engagement, and the involvement of patients in safer medical practise. -
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UK Standards for Public Involvement
Claire Cox posted an article in Patient engagement
The UK Standards for Public Involvement are designed to improve the quality and consistency of public involvement in research. Developed over three years by a UK-wide partnership, the standards are a description of what good public involvement looks like and encourages approaches and behaviours that are the hallmark of good public involvement, such as flexibility, sharing and learning and respect for each other. The standards are for everyone doing health or social care research and have been tested by over 40 individuals, groups and organisations during a year-long pilot programme. They provide guidance and reassurance for users working towards achieving their own best practice. -
Content ArticleGood patient communication is key, particularly when a patient is waiting for planned care or treatment. From referral by a primary care clinician through to discharge from secondary care – clear, accessible communication is vital throughout. The Elective Recovery Delivery Plan commits to providing better information and support to patients. As we begin to implement new, innovative ways of delivering healthcare, it is more important than ever that patients feel confident they are supported throughout their journey. Prolonged periods of industrial action and continuing pressures have inevitably had an impact on planned care. In this context, it is important that integrated care boards (ICBs) and providers do all they can to offer support to those affected by delays, including with patient communications. This guide sets out key communication principles to help providers deliver personalised, patient-centred communications. It includes considerations for communicating to patients about new models of care as well as helpful information and resources.
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Content ArticleIn this blog, Aleyah Babb-Benjamin, Outreach and Insight Manager at National Voices, shares insights from a Long Covid Webinar event that looked at how to develop a community-focussed response.
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Content ArticleShared decision making describes the way in which patients and their healthcare providers work together to decide treatment, management or self-management support goals. It includes sharing information about a patient’s options and preferred outcomes. The goal is for patient and professional to agree treatment, or no treatment. This webinar hosted by The Patients' Association discusses what makes shared decision making effective, barriers for staff and patients and research on ways to improve the practice.
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Black and Asian bereaved parents whose baby died during pregnancy or shortly after birth have shared their experiences as part of the Sands Listening Project. The 56 parents who took part shone a light on care that works well, while also highlighting barriers, biases, and poor care. In the report, published by Sands, you can read more about: the findings pregnancy loss and baby deaths among Black and Asian babies in the UK real-life experiences and case studies what needs to change. Follow the link below to access the Listening Project report on the Sands website. -
Content ArticleThis report by the Commission for Health Improvement (CHI) sets out what the CHI has found out about the involvement of patients and the public from more than 300 inspections and from its research into the topic. It discusses what CHI looks for when assessing patient, service user, carer and public involvement (PPI), examples of how organisations are tackling this agenda and messages for the NHS in taking PPI forward.
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Think Local Act Personal - Making it real framework
Patient-Safety-Learning posted an article in Patient engagement
Making it Real is a framework for how to do personalised care and support for people who work in and access health, adult social care and housing services. The framework is built around six themes that support co-production between people, commissioners and providers: Wellbeing and independence Information and advice Active and supportive communities Flexible and integrated care and support When things need to change Workforce -
Content ArticleDavid Gilbert is a writer and health activist. He was the first patient director in the healthcare system. He is a mental health service user with 40 years of experience in healthcare, specialising in patient and public engagement and coproduction. He helped pioneer the concept of patient leadership and authored ‘The Patient Revolution - how we can heal the health care system’. He is the founder and director of InHealth Associates, a network of specialists that supports experiential practice and patient leadership. His monthly newsletter, Impatient, is now published on the HSJ website.
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Content ArticleFollowing Jeremy Hunt’s appointment as chancellor, HSJ is now hosting the Patient Safety Watch newsletter, written by Patient Safety Watch trustee James Titcombe. Read the latest newsletter: Patient Safety Watch: What can be done to improve duty of candour?
