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Showing results for tags 'Patient engagement'.
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Content ArticleTransparent collaborations between patient organisations and clinical research sponsors can identify and address the unmet needs of patients and caregivers. These insights can improve clinical trial participant experience and delivery of medical innovations necessary to advance health outcomes and standards of care. Roennow et al. share their experiences from such a collaboration undertaken surrounding the SENSCIS® clinical trial and discuss its impact during, and legacy beyond, the trial.
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Content ArticleFor some, the day we learned of our rare disease diagnosis is a happy day. Odd, isn’t it? Imagine having your closest friends and family thinking that you are overreacting a bit, or that you are searching for some attention? It might be frustrating! Having a diagnosis can be very important, not only in order to consider medical needs, but sometimes it can also come as proof that something is happening to the body, proof to others that there is something going on. Several people across the globe, with different rare diseases, have shared their story, telling us about needing to be heard and understood.
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Content ArticleHaving stepped down as Chief Executive of the Point of Care Foundation last year, Jocelyn Cornwell reflects on the journey that she and the organisation have made and what she has learnt. This is her personal take on their history, the principles behind the work and achievements plus some reflections on changes that have and have not happened over the last fifteen years.
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Content ArticleThe approach to resolution of adverse events in hospital and healthcare organisations has remained subpar for decades and open and honest communication are often compromised in favor of litigation. Models like CANDOR have been recognised as essential to transparency, person-centeredness, and healthcare quality and safety. The impactful implementation of CANDOR into organisational culture requires commitment, prioritization, involvement from all, and event analysis for continuous improvement. This is a recording of the Patient Safety Movement webinar 'Improving patient safety using CANDOR' which took place 28 January 2021.
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Patient Safety Movement: Informed consent blog
Patient Safety Learning posted an article in Consent issues
Clinicians often have competing priorities in the clinical setting which hinder their ability to provide time for thorough dialogue with patients. Often, this dialogue contains information about procedures or processes for which the patient needs a thorough understanding in order to make an informed decision. Due to the lack of time, sometimes this informed consent process is passed from the clinician to the medical assistant or nurse. Furthermore, clinicians are increasingly facing pressure to visit with more and more patients, thereby cutting the time with each one shorter and shorter. Therefore, typically only the most essential information is discussed with the patient during these short times and often, education doesn’t make the cut. This asymmetrical information makes it difficult for patients to make informed decisions about their care and may create situations with unforeseen consequences. These workflow barriers within the system itself make it extraordinarily difficult for clinicians to effectively explain and discuss informed consent with their patients. -
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National Voices: What We Need Now
PatientSafetyLearning Team posted an article in Data, research and statistics
This report summarises how National Voices engaged with people who have ongoing health and care needs during the first phase of the pandemic and how this engagement led to a set of statements that describe what people who use health and care services now expect these services to look and feel like.These statements express people’s reasonable expectations of healthcare. Most would see the demand to be listened to and have one’s decisions respected as basic tenets of normal healthcare. The power of these statements lies in the fact that they are truly reflective of what people with significant health and care needs said they needed and wanted. National Voices believe that their simplicity, their self-evident realism and the pragmatism they therefore inspire demand an equally practical and grounded response from system leaders, and everyone tasked with designing and delivering health and care. -
Content ArticleIn this short guide, Kent Community Health explain why patient engagement in quality improvement is vital. They provide tips for how to get started and how to involve patients, clients and service users and carers/family members.
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Content ArticleEngaging with patients is a time-honoured tradition in medicine, and by no means a new concept. A great physician-patient relationship is something that every patient would love to have. Back in the day, the physician was like Marcus Welby – they would visit your house and know all about you and your family. This arrangement was not only great for improving the physician-patient relationship, but also improved health outcomes by providing the most patient-centered care possible. Today, many medical professionals face some new challenges in making that all-important connection. These days, doctors are pressed for time and don’t have that same one-on-one relationship with their patients. While doctors can pull up a chair and speak to the patient at eye level, technology is playing a greater role these days. The increasing role of technology in healthcare has been advantageous in some ways, but has posed new challenges, too. In this blog, David Mayer explores the challenges physicians face.
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Content ArticlePeter Walsh, Chief Executive of Action against Medical Accidents (AvMa), guest blogs for the Professional Standards Authority, setting out the key priorities AvMa would like to see as part of regulatory reform to ensure patients have a voice.
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Content ArticleRaymond Cipollini, a long-time employee (recently retired) of the maintenance department at Einstein Medical Center Montgomery in East Norriton, Pennsylvania, used to visit patients during his shifts. His fellow staff noted that he would respond to call lights, asking how he could help, with a cheerful demeanor. Raymond often intervened if a patient was restless and pulling at IV lines or needed nurse assistance to get out of bed—potentially preventing falls. The Patient Safety Authority (PSA) named him the winner of its 2017 I AM Patient Safety Award in the category Individual Impact; he was nominated by his colleagues, who had frequently noted lively conversations coming from patient rooms, where he bonded with his “friends” over sports or other shared interests. It is lonely sometimes in those rooms, especially for patients who do not have visitors. “When I stop in, I hope I take their mind off their troubles and make them smile,” he said. These connections attend to patient’s physical safety and emotional well-being. Raymond brought his own perspective to his job and felt empowered to act for the benefit of patients and strengthened the fabric of the organisational culture.
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Content ArticleFollowing the publication of Donna Ockenden’s first report: Emerging Findings and Recommendations from the Independent Review of Maternity Services at the Shrewsbury and Telford Hospitals NHS Trust on 11 December 2020, the NHS has issued this latest update. Read previous letter update
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Content ArticleWould you like to help our healthcare professionals understand how they can continue to use a new approach for prescribing safety in general practices? This research is looking at making prescribing safer in general practices in England and is jointly conducted by the Universities of Nottingham, Manchester, Edinburgh & Dundee. GP surgeries are working with pharmacists to use a computer programme to help find patients who may need their medicines reviewing. People from patient and public groups are invited to say what they think about continuing this service across the country in the longer term. If you choose to take part, this will involve being part of a group discussion on issues relating to continuing the service for medicines safety. You do not need to know about the service before taking part as this will be explained to you. If interested, please contact: azwa.shamsuddin@ed.ac.uk
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Content ArticleLast year, the NHS published proposals for new legislation that is intended to reduce the role of competition in the NHS, and increase integration and collaboration between NHS organisations. The Patients Association have now submitted their response, making clear that while they support many of the aims of the proposals, they are deeply concerned about the complete lack of any clear role for patients in the new system. Co-design and co-production should become the default approach in the NHS, but instead the proposals take a traditional, paternalistic approach in which the NHS holds itself separate from patients. The Patients Association are writing to Simon Stevens, Chief Executive of NHS England and Improvement, to make clear that an appropriate role for patients must be included in the new proposals in order for them to be able to support any future legislation.
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Content ArticleThe Accessible Information Standard directs and defines a specific, consistent approach to identifying, recording, flagging, sharing and meeting individuals’ information and communication support needs by NHS and adult social care service providers.
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Content ArticleChoosing Wisely UK is part of a global initiative aimed at improving conversations between patients and their doctors and nurses.By having discussions that are informed by the doctor, but take into account what’s important to the patient too, both sides can be supported to make better decisions about care. Often, this will help to avoid tests, treatments or procedures that are unlikely to be of benefit.
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Content ArticleThis article from Peden et al. reviews of some of the key topics and challenges in quality, safety, and the measurement and improvement of outcomes in anaesthesia. Topics covered include medication safety, changes in approaches to patient safety, payment reform, longer term measurement of outcomes, large-scale improvement programmes, the ageing population, and burnout. The article begins with a section on the success of the specialty of anaesthesia in improving the quality, safety, and outcomes for our patients, and ends with a look to future developments, including greater use of technology and patient engagement.
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Content ArticleNHS Resolution received 1,223 claims for incidents occurring between 2012 and 2017 that have cost the NHS £233 million so far. Of these cases, 728 claims are under review due to the complexities around consent. Consent can be a common contributing factor in many claims. This leaflet looks at examples of failure to provide adequate consent, a breakdown of these kinds of claims by clinical speciality, the importance of the Montgomery ruling and what supported decision making looks like.
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Content ArticleThe British Society for Immunology (BSI) has created two video question and answer sessions about vaccines for COVID-19. They took vaccine questions and concerns from the public on their Instagram channel and put them to expert immunology scientists, Dr Megan MacLeod and Prof Sheena Cruickshank. In the videos, Megan and Sheena answer these questions and explore the details of when vaccines may become available, who will receive the vaccines, how long immunity might last to a vaccine, how herd immunity can protect us and lots more. It’s important to understand and address vaccine concerns that are prominent in public discussion and may lead to hesitancy to vaccination. By answering your vaccine questions, the BSI hopes to provide expert information to help everyone make informed decisions about vaccines and their health. Follow the link below to watch the videos.
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Content Article
Informed consent: what is it?
Julie EIDO Healthcare posted an article in Consent and privacy
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Julie Smith is Content Director for EIDO Healthcare, an organisation that provides health professionals with resources and support around informed consent. In this blog, Julie explains what it means to give your ‘informed consent’ as a patient, and why it is so important to read the information given to you. -
Content ArticleDr. Donna Prosser, Chief Clinical Officer at the Patient Safety Movement Foundation, is joined by a multidisciplinary group of experts, including clinicians, administrators, and patients and family members, to understand the background of pressure ulcer prevention and management, discuss multi-faceted opportunities for organisation-wide improvement, and explore mechanisms for improved patient and family member involvement in prophylaxis. The group will tailor aspects of the dialogue to assess the COVID-19 impact on pressure ulcer prevalence and management.
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Content ArticleLecture from Dr Gordon Caldwell on ward rounds, covering quality, safety, personalising care and checklists.
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Content ArticleLast week, Patient Safety Learning’s Chief Executive, Helen Hughes, gave an overview of some of the patient safety issues we’ve focused on this year. We then published the first of five mini blogs, looking at one of these key areas, namely the impact of the COVID-19 pandemic on patient safety. This week, we turn our focus to Long COVID. Long COVID is a condition where people experience debilitating and sometimes severe symptoms for more than 12 weeks following confirmed or suspected COVID-19, and where their condition cannot be explained by an alternative diagnosis.
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Content ArticleEarlier this week, Patient Safety Learning’s Chief Executive, Helen Hughes, looked back over 2020, highlighting some of the big themes in patient safety we’ve seen this year and our own work in these areas. This is the first of five mini blogs, where we give an overview of each of these themes in turn. In this blog, we look at the impact COVID-19 has had on patient safety. As an additional option to the text below, you might like to watch the following short video from our Business and Policy Manager, Mark Hughes.
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Content ArticleWhat does person centred care mean for the role of patients? Fundamentally, it is an ethos that is intended to put users at the heart of services; encouraging a view of them as participants, not patients; active, not passive. This thinking should apply both to people accessing services as individuals and to citizens collectively – and that means the role of patients, and of their voice, is multiple. Chris Graham explores this further in his blog.
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Content Article
2020: The conversation changed but our goals did not
HelenH posted an article in Patient Safety Learning
2020 has been a strange year, and a very difficult one for many around the world. Along with organisations everywhere, we at Patient Safety Learning have had to adapt how we work due to the COVID-19 pandemic. Though our working environments and areas of focus have changed, our goals as a charity have not. We continue to be an independent voice, committed to working in partnership to improve patient safety.
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