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News ArticleOver half of men with an eating disorder have never had any treatment, according to new research. Despite typically being linked with females, males account for a quarter of all eating disorder cases – and many are not getting any support, the eating disorder charity Beat is highlighting “Eating disorders affect 1.25 million people in the UK, and we estimate one in four of those are men,” says Tom Quinn, Beat’s director of external affairs – speaking to mark this year’s Eating Disorders Awareness Week (February 27 – March 5). “We surveyed men across the UK about their experiences of an eating disorder and, alarmingly, we discovered over half have never had treatment for their eating disorder, and one in three have never tried to get treatment in the first place. “There’s a harmful misconception that eating disorders are female illnesses, which creates a great deal of shame and can entrench harmful behaviours for men who are unwell,” Quinn adds. Read full story Source: The Independent, 27 February 2023 Further reading on the hub: Top picks: Eight resources on eating disorders
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Eating disorder patients ‘repeatedly failed’, says England watchdog
Patient Safety Learning posted a news article in News
Urgent action is needed to prevent people dying from eating disorders, the parliamentary and health service ombudsman for England has warned, as he said those affected are being “repeatedly failed”. The NHS needs a “complete culture change” in how it approaches the condition, while ministers must make it a “key priority”, according to Rob Behrens. Little progress has been made since the publication of a devastating report by his office in 2017, which highlighted “serious failings” in eating disorder services, he said. Lives continue to be lost because of “the lack of parity between child and adult services”, and “poor coordination” between NHS staff involved in treating patients. There remain issues with the training of medical professionals, Behrens added. “We raised concerns six years ago in our ignoring the alarms report, so it’s extremely disappointing to see the same issues still occurring,” he said. “Small steps in improvements have been taken, but progress has been slow, and we need to see a much bigger shift in the way eating disorder services are delivered." Read full story Source: The Guardian, 27 February 2023- Posted
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Service in ‘very distressing’ state after 19 deaths
Patient_Safety_Learning posted a news article in News
The author of a Parliamentary report into ‘failing’ eating disorder services in 2017 says the number of concerning deaths still being reported five years on is ‘very distressing’. In the five years since ombudsman Rob Behrens warned of major shortcomings around adult eating disorder services, HSJ has identified at least 19 women whose deaths sparked concerns from coroners about their care (see list below). At least 15 of these were deemed avoidable, and resulted in formal warnings being issued to mental health chiefs. Source: HSJ, 14 February 2023 Read full story -
News ArticleA record number of eating disorder patients are not getting the life-saving treatment they need due to lengthy waits, leaked NHS data shows. More than 8,000 adults are waiting to be seen for therapy, according to internal figures from NHS England – the highest figure recorded since data collection began in 2019. In March 2021, there were around 6,000 adults waiting, while it was less than 2,000 in March 2019. One leading doctor warned that delays were leading to avoidable deaths, while multiple coroners investigating the deaths of nine patients since 2021 have repeatedly called on the NHS and ministers to improve services to prevent more. An investigation by The Independent can also reveal that long waits have led to a woman, 24, taking her own life while waiting two years for appropriate care, and patients being admitted to hospital because their conditions became so severe they developed life-threatening physical conditions. Dr Agnes Ayton, the Royal College of Psychiatrists’ lead for adult eating disorders, said long waits meant patients were “dying avoidably” because under-resourced services were forced to turn them away or leave them waiting for years. Anorexia has the highest morality rate of any psychiatric disorder. “One important thing is eating disorders are treatable, people can get better with time and treatment. We shouldn’t accept anorexia has the highest mortality rate because a lot of these deaths are avoidable and treatable. We should be aiming to provide high-quality care,” she said. Read full story Source: The Independent, 6 February 2023 Further reading on the hub: People with eating disorders should not face stigma in the health system and barriers to accessing support in 2022 Eating disorders: challenges of the pandemic
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Content ArticleEating disorders are often seen as an illness that affects young women, but research estimates that one in four people with eating disorders are male. As a result, boys and men with eating disorders most often live in silence with the double stigma of having a mental health condition that is not recognised in their gender. In this BBC documentary, former England cricketer and TV presenter Andrew "Freddie" Flintoff goes on a personal journey into the eating disorder he has kept secret for over 20 years–bulimia. He discusses his own experience and meets specialists and young men with eating disorders across the UK.
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Content ArticleYoung people and expert mental healthcare staff say patients are unlikely to receive in-patient mental health care unless they “have attempted suicide multiple times”, according to a new report published by Look Ahead Care and Support. Launched in the House of Lords, the report – funded by Wates Family Enterprise Trust and produced by experts Care Research – argues Accident and Emergency departments have become an ‘accidental hub’ for children and young people experiencing crisis but are ill-equipped to offer the treatment required. Based on in-depth interviews with service users, parents and carers, and NHS and social care staff from across England, the findings from the Look Ahead Care and Support report draws on experience of treating depression, anxiety, self-harm, suicidal thoughts and suicide attempts, eating disorders, addiction and psychosis.
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Content ArticleOn the 5 February 2020 an inquest was opened into the death of Hayley Smith. The jury concluded on 9 March 2022 with a narrative conclusion “The deceased died from complications of anorexia nervosa.” Hayley had developed severe and enduring anorexia nervosa at around the age of nine or ten and was resistant to treatment including several hospital admissions both voluntary, and at times compulsory treatment under the Mental Health Act. She was repeatedly admitted to hospital. On the 23 December 2019 Hayley had not eaten, became confused and unwell, and an ambulance was called. The correct emergency treatment was provided but Hayley responded quickly and regained consciousness and refused further treatment or admission to hospital. On 24 December she became unwell again and this time was taken to Queen Elizabeth the Queen Mother hospital where she again refused treatment and discharged herself against medical advice. The responsible medical officer from the Kent Eating disorder team gave evidence that had the team known of either of these episodes they would have taken steps to admit her and treat her.] On Christmas Day 2019 she collapsed for a final time and this time, had an out of hospital cardiac arrest, and was admitted to Queen Elizabeth the Queen Mother hospital and transferred to Intensive care where she was diagnosed as suffering from hypoxic brain damage as a result of her cardiac arrest due to severe hypoglycaemia as a consequence of her Anorexia Nervosa. She died on 29 December 2019 at the age of 27.
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Child referrals for mental health care in England up 39% in a year
Patient Safety Learning posted a news article in News
The number of children in England needing treatment for serious mental health problems has risen by 39% in a year, official data shows. Experts say the pandemic, social inequality, austerity and online harm are all fuelling a crisis in which NHS mental health treatment referrals for under-18s have increased to more than 1.1m in 2021-22. In 2020-21 – the first year of the pandemic – the figure was 839,570, while in 2019-20 there were 850,741 referrals, according to analysis of official figures by the PA Media. The figures include children who are suicidal, self-harming, suffering serious depression or anxiety, and those with eating disorders. Dr Elaine Lockhart, chair of the child and adolescent psychiatry faculty at the Royal College of Psychiatrists, said the rise in referrals reflected a “whole range” of illnesses. She said “specialist services are needing to respond to the most urgent and the most unwell”, including young people suffering from psychosis, suicidal thoughts and severe anxiety disorder. Lockhart said targets for seeing children urgently with eating disorders were sliding “completely” and that more staff were needed. Read full story Source: The Guardian, 3 January 2023- Posted
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Content ArticleThe number of children and young people admitted to children’s wards with an eating disorder has increased significantly since the start of the Covid-19 pandemic. In the most extreme cases, those with severe malnutrition may need to be fed via a nasogastric tube without their consent. Children’s nurses working on hospital wards may therefore care for children and young people who need to receive nasogastric tube feeding under physical restraint. This article offers an overview of eating disorders and their detrimental effects as well as practical advice for children’s nurses, supporting them to provide safe, compassionate and person-centred care to their patients.
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Content ArticleThe Department for Health and Social Care has launched an investigation into allegations made by 22 former patients of mental health units run by private firm The Huntercombe Group. The group ran at least six children’s mental health hospitals between 2012 and 2022. In this Independent article, young women who were subject to humiliating and sometimes abusive treatment talk about their time as inpatients. Some of the experiences they recount are harrowing: "I would get awoken by staff members restraining me out of bed and dragging me down to the de-escalation room to force-feed me." "Patients were left naked in their rooms under anti-ligature blankets because they wouldn’t buy anti-ligature clothing." "I distinctly remember someone saying ‘if you hit me again, I’ll hit you back ten times harder because there are no cameras in here and you can’t cry to [name of nurse] about it’."
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Eating disorders: Toolkit to help schools cope developed
Patient Safety Learning posted a news article in News
Mental health professionals have unveiled a "toolkit" to help school nurses support pupils with eating disorders. Bath-based campaigner Hope Virgo developed the strategy with the School and Public Health Nurses Association (Saphna) after a rise in cases. The toolkit aims to equip school nurses with techniques to discuss eating disorders, and also "what not to say". Ms Virgo has called on the government to deal with the backlog those waiting for treatment, which totalled 1,946 at the beginning of March, data from eating disorder charity Beat shows. Sharon White, Saphna's chair, said the organisation had been promoting the toolkit among its members. "We can't solve the huge waiting lists and reduced services, but what we can do is inform ourselves better," she said. The toolkit provides "the hints, the tips, the language, the stock phrases, and importantly, what not to say", Ms White added. The Department of Health and Social Care has been supportive of the scheme, Ms White said, adding it may adopt it as part of its own guidance in future. Read full story Source: BBC News, 17 October 2022 Read a recent blog Hope Virgo wrote for the hub: People with eating disorders should not face stigma in the health system and barriers to accessing support in 2022- Posted
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SAPHNA - Eating disorder toolkit (October 2022)
Patient-Safety-Learning posted an article in Eating disorders
This toolkit has been co-produced by the School and Public Health Nurses Association (SAPHNA) with school nursing services, mental health campaigners, eating disorder experts, education colleagues and young people with lived-experience of eating disorders. It is aimed at qualified, trained and skilled nurses who have access to robust supervision. The toolkit is free of charge, but you will need to enter your details in order to receive a PDF copy by email.- Posted
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NHS eating disorder services forced to ‘exclude’ patients and ‘ration care’
Patient Safety Learning posted a news article in News
Patients are being excluded from life-saving eating disorder treatment as services are severely underfunded, experts have warned. Adult eating disorder services are so severely underfunded and understaffed that they are having to employ rationing measures and turn away patients, leading psychiatrist Dr Agnes Ayton told The Independent. In their research, Dr Ayton and 22 other psychiatrists found that in 2019-20, just 31% of eating disorder services accepted all patients, regardless of the level of illness. The researchers warned that the situation had become more serious following the pandemic, which had driven a “worsening of the demand and capacity” crisis across the services. Experts have called for emergency funding to meet the needs of adult patients with eating disorders, and say that these services should be receiving at least £7m per million population each year to meet standards. Dr Ayton warned that patients who are “literally on death’s door” are not getting care when they need it. Read full story Source: The Independent, 25 September 2022- Posted
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Content ArticlePeople with eating disorders often find it difficult to get help and treatment from the health system because of pervasive stigma, misinformation and stereotypes around eating disorders. In this blog, Hope Virgo, an eating disorder survivor and mental health campaigner, looks at the barriers people face when they try to access support, and talks about her own experience of being told she was ‘not thin enough for support’. She calls for long-overdue action on funding, training and awareness of eating disorders within the NHS.
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Content ArticleTo tackle the serious harms, up to and including death, associated with eating disorders it is crucial that more is done to identify them at the earliest stage possible so that the appropriate care and treatment can be provided. The aim of this guidance from the Royal College of Psychiatrists is to make preventable deaths due to eating disorders a thing of the past.
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News Article
Children’s lives ‘put at risk’ as eating disorder waits reach record high
Patient Safety Learning posted a news article in News
Children’s lives are being put at risk, charities warn, as waiting times for eating disorder services soar to record highs. The number of children waiting more than four months following an urgent referral for an eating disorder was more than seven times higher at the end of 2021-22 compared to the same period in the previous year. Data showed that at the end of quarter four of 2021-22, 94 children were waiting more than 12 weeks following an urgent referral, the highest on record, compared to just 13 at the end of 2020-21. The latest NHS data on waiting times for community eating disorder services for children also showed more than 1,900 children were waiting for treatment at the end of March. Of these, 24 were waiting to start urgent treatment - up from 130 last year. Sophie Corlett, director of external affairs at Mind, said: “Our government is shamefully failing children and young people with eating disorders at the time when they need help most. Eating disorders have one of the highest mortality rates of any mental health problem. Children in need of urgent NHS treatment for eating disorders should always be seen within one week yet some children are still waiting for treatment after twelve weeks. This is irresponsible and disgraceful.” Read full story Source: The Independent, 12 May 2022- Posted
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York eating disorder clinic served unsafe food
Patient Safety Learning posted a news article in News
A hospital for adults with eating disorders has been rated inadequate after inspectors found the provision of food was "unsafe and unacceptable". A Care Quality Commission (CQC) report of the Schoen Clinic in York said some patients were given mouldy bread and one was served food containing plastic. Concerns were also raised around lack of staff and patient safety, though wards were clean and well-equipped. Schoen Clinic Group said issues raised in the report "were quickly addressed". Following the inspection in January the hospital has been placed in special measures and will be visited again in six months. Brian Cranna, CQC's head of hospital inspection, said: "The standards of care we found at Schoen Clinic York were putting patients at risk and so we have taken urgent enforcement action, which means the service must improve if it's to retain its registration." According to the report patients were put at risk of "physical and psychological harm due to unsafe and unacceptable food provision". Read full story Source: BBC News, 21 April 2022- Posted
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More support needed for GPs to treat eating disorders
Patient Safety Learning posted a news article in News
Two leading medical organisations have told the BBC that GPs are not getting the right support to treat eating disorders. The Royal College of General Practitioners (RCGP) and the British Medical Association (BMA) say doctors need more time with patients and more specialist units. Beat Eating Disorders asked nearly 1,700 people about their experience of trying to get a diagnosis from their GP. Over 92% asked thought their GP needed more training with eating disorders. Out of those questioned, 69% also said they felt their GP didn't know how to help them. The survey has been released to coincide with Eating Disorder Awareness Week. Jess Griffiths had an eating disorder between the ages of 11 and 21 and, now in full recovery, she works as a consultant to NHS England and with her local eating disorder service in Dorset. She tells the BBC that when she first went to her GP to try to get help, she wasn't entirely transparent about what she was struggling with. "I was presenting at a low weight and not having periods, so the GP put me on the pill, but I went there hoping he would ask me the questions [about a potential eating disorder]" she says. "But it's really hard for people with eating disorders to - in a really pressurised situation with a doctor - say how they really feel." Dr Richard Van Mellaerts is part of the BMA's GP committee and has told the BBC the results of the survey are "deeply saddening". "People with eating disorders should never feel that GPs are a barrier to accessing care, so it is vital that medical education and training supports doctors to identify eating disorders and support their treatment," he says. But he adds that there is "poor provision of specialist care", which has left GPs "frustrated up and down the country". Read full story Source: BBC News, 3 March 2022 Read hub blog from Dr Joanna Silver on the challenges the pandemic has brought to patients with eating disorders- Posted
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Eating disorders: Worth more than 2 hours of teaching
Patient Safety Learning posted a news article in News
On average, UK medical students receive less than two hours of teaching on eating disorders throughout their entire medical degree. Even more concerningly, a fifth of medical schools do not include eating disorders at all in their teaching. Given that 1 in 50 people in the UK suffer from an eating disorder, and around 5% of the population will be affected at some point in their lifetime, this is something that needs to change. This week is Eating Disorders Awareness Week and Beat Eating Disorders are campaigning for UK medical schools to introduce comprehensive training on eating disorders to their programmes. Eating disorders are highly complex mental illnesses, but they are treatable. Just two hours of training is not enough time to equip medical students with the knowledge to identify the signs and symptoms and provide the necessary support to help sufferers access the most appropriate treatment at the earliest opportunity. Read more Source: Beat Eating Disorders- Posted
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EventuntilThis Eating Disorders Awareness Week, Beat is asking for all future doctors to be given the training they need on eating disorders, and we need your help. We are holding a webinar to discuss this campaign and your role in taking it to the next level. During the webinar, the campaigns team will be covering: The history of medical training on eating disorders in the UK What changes Beat are campaigning for The progress of the campaign so far How you can get involved in the campaign Register
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Eating disorders: challenges of the pandemic
Dr Joanna Silver posted an article in Eating disorders
This week is Eating Disorders Awareness Week. Eating disorders are complex mental health conditions. People with eating disorders use food as a way of managing difficult feelings and maintaining control, particularly when life seems uncontrollable. In March 2020, the world changed in a blink of an eye when the COVID-19 pandemic struck. Dr Joanna Silver, Counselling Psychologist, discusses the additional challenges the pandemic brought for many people with eating disorders.- Posted
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Binge Eating Disorder GP Leaflet
Patient Safety Learning posted an article in Eating disorders
This leaflet from Beat Eating Disorders is designed for people with binge eating disorder to bring to a GP appointment, to help them get a quick referral from their GP to an eating disorders specialist. It has guidance for the person with binge eating disorder, and a tear-off section for the GP.- Posted
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Millions in England face ‘second pandemic’ of mental health issues
Patient Safety Learning posted a news article in News
Millions of patients in England face dangerously long waits for mental health care unless ministers urgently draw up a recovery plan to tackle a “second pandemic” of depression, anxiety, psychosis and eating disorders, NHS leaders and doctors have warned. The Covid crisis has sparked a dramatic rise in the numbers of people experiencing mental health problems, with 1.6 million waiting for specialised treatment and another 8 million who cannot get on the waiting list but would benefit from support, the heads of the NHS Confederation and the Royal College of Psychiatrists have told the Guardian. In some parts of the country, specialist mental health services are so overwhelmed they are “bouncing back” even the most serious cases of patients at risk of suicide, self-harm and starvation to the GPs that referred them, prompting warnings from doctors that some patients will likely die as a result. “We are moving towards a new phase of needing to ‘live with’ coronavirus but for a worrying number of people, the virus is leaving a growing legacy of poor mental health that services are not equipped to deal with adequately at present,” said Matthew Taylor, the chief executive of the NHS Confederation, which represents the whole of the healthcare system in England. “With projections showing that 10 million people in England, including 1.5 million children and teenagers, will need new or additional support for their mental health over the next three to five years it is no wonder that health leaders have dubbed this the second pandemic. A national crisis of this scale deserves targeted and sustained attention from the government in the same way we have seen with the elective care backlog.” One family doctor in Hertfordshire, Dr David Turner, said he was so concerned about the situation that he had chosen to speak out publicly for the first time in his 25-year career. “I and many other GPs feel the issue has become critical and it is only a matter of time before a child dies,” he told the Guardian. Turner said access to child and adolescent mental health services (CAMHS) was “never great pre-Covid” but was now “appalling”. The double whammy of a spike in demand and underinvestment in CAMHS was putting patients at risk, he added. Read full story Source: The Guardian, 21 February 2022- Posted
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Content ArticleSpotting the first signs of symptoms of an eating disorder is extremely important when encouraging individuals to get the help and support they need as quickly as possible. Beat Eating Disorders have produced a poster giving you the tips to spot those very first signs of an eating disorder. If you’re worried someone you care about is showing the signs of an eating disorder, the first step is to talk to them and encourage them to seek help from their GP.