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Found 327 results
  1. Content Article
    This article by the National Institute for Health Research (NIHR) summarises recent evidence about the information and support pregnant women need to make decisions about their maternity care, and any interventions they may need. It discusses the following areas: The importance of continuity of carer and personalised care in maternity services Women need clear information and better access to mental health care Helping women with complicated pregnancies make informed decisions about their care Supporting shared decision-making when there are problems with the baby
  2. Content Article
    This decision aid is for women who have complications caused by pelvic mesh that was used to treat their stress urinary incontinence. Pelvic mesh has also been called ‘tape’, ‘net’ or a ‘sling’. Stress urinary incontinence is when you leak urine accidentally, especially during exercise or when you cough, laugh or sneeze. This decision aid has been written for women who have been referred to a specialist centre to treat complications from mesh used for stress urinary incontinence.
  3. Event
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    Healthwatch is hosting this event to launch the Your Care, Your Way campaign, which calls for improved accountability and implementation of the Accessible Information Standard (AIS). Healthwatch England has joined forces with a coalition of user-led national organisations to highlight how the NHS and social care fail to support people's accessible communication needs. By law, all publicly funded health and social care providers must fully comply with the AIS and ensure people are given information about their health and care in accessible formats. New research by Healthwatch England and partner organisations has shown this is not happening, with many services overlooking people's needs and failing to provide the right support. At this webinar, you will hear: A summary of Healthwatch England's recent research findings on accessible information, drawing on Freedom of Information requests submitted to 200 NHS provider trusts and over 6,000 people's experiences shared with Healthwatch Survey data on staff and public experiences of the AIS from a coalition of user-led charities, including RNIB, SignHealth and RNID, and user-led perspectives on how to improve implementation Information about NHS England's ongoing review of the AIS, developing conclusions from the review, and opportunities to contribute A perspective from an NHS Trust on the barriers to implementing the AIS and overcoming them We welcome questions from the audience and contributions towards the end of the webinar, as well as a discussion about how you and your organisations can get involved in supporting the campaign. This event is for staff working in NHS and social care services, service providers, ICS leaders, voluntary sector and professionals. Register This event is being run by: Urte Macikene, Policy and External Affairs Manager, Healthwatch England. Healthwatch England sits on the Accessible Information Standard Review Programme Board. Malcolm Pearce, Senior Manager, North of England Commissioning Support, Malcolm led the Rapid Review of British Sign Language on behalf of NHS E/I and is currently supporting the review of the Accessible Information Standard Mike Wordingham, Policy and Campaigns Officer, RNIB (Royal National Institute of Blind People) A speaker from an NHS Trust about their experience of implementing the AIS (TBC)
  4. Content Article
    It is easy to underestimate people’s health literacy needs, because those needs can be hidden or people can be reluctant to admit that they haven’t understood the information they have been given. This toolkit by The Health Literacy Place contains a range of resources to help healthcare professionals better understand and meet the health literacy needs of their patients.
  5. Content Article
    This German study in the journal Implementation Science aimed to evaluate an empirically and theoretically grounded implementation program for shared decision making (SDM) in cancer care. The program included six elements: Training for health care professionals Individual coaching for physicians Patient activation intervention Patient information material/decision aids Revision of quality management documents Reflection on multidisciplinary team meetings. The results showed no statistically significant improvement in SDM uptake and the authors conclude that this may be because of the low reach of the study. They call for further research to understand factors influencing the uptake of SDM in cancer care.
  6. Content Article
    The tinnitus decision aid is designed to help clinicians and patients work together to choose the right treatment option for each individual. People with tinnitus vary in their preferences, for example, some like to use sound, others prefer a talking therapy approach. The decision aid provides information on key points that patients need to know to make a decision. The decision aid was developed through a systematic process of reviewing evidence, gathering key questions from patients and refining the information to be readable and useable. All the approaches listed are available everywhere but may require some travel or cost to access them. This should be discussed in consultations.
  7. News Article
    Electronic systems and clinical decision support software must become “the norm” for all NHS clinicians, under plans being drawn up by NHS England’s new transformation directorate, HSJ has revealed. The massive increase in clinicians’ use of technology forms a major part of the draft plans, seen by HSJ, with the new directorate set to launch ambitious targets for the health service. Other targets include every integrated care system creating virtual wards which are the equivalent size of a district general hospital — around 500 beds each — and installing electronic patient records at every NHS trust. The proposals are led by former US healthcare chief Tim Ferris, NHSE’s new transformation director, who was appointed last year. According to the plans, NHSE’s ambition is to increase the “safe and effective use” of computer assisted processes and clinical decision support so it becomes the “expected norm for all clinicians”. NHS leaders have welcomed the use of virtual wards to improve home care and reduce hospital occupancy, but clinicians have warned of safety issues within virtual wards, with some prominent doctors calling for a careful implementation of the policy. Read full story (paywalled) Source: HSJ, 2 February 2022
  8. Content Article
    COVID-19 has meant people have died the ultimate medicalised deaths, often alone in hospitals with little communication with their families. But in other settings, including in some lower income countries, many people remain undertreated, dying of preventable conditions and without access to basic pain relief. The unbalanced and contradictory picture of death and dying is the basis for the Lancet Commission on the Value of Death. Drawing on multidisciplinary perspectives from around the globe, the Commissioners argue that death and life are bound together: without death there would be no life. The Commission proposes a new vision for death and dying, with greater community involvement alongside health and social care services, and increased bereavement support.
  9. Content Article
    This is the recording of a webinar given on 19 January 2022 for the International Shared Decision Making Society by Professor Kirsten McCaffery from the University of Sydney and Marie Anne Durand from the University of Lausanne. It covers the following topics: What is health literacy and why does it matter Conceptualising health literacy and shared decision making Findings from recent health literacy and shared decision making reserach What can we do better?
  10. Content Article
    In this blog, Lotty Tizzard, Patient Safety Learning's Content and Engagement Manager, looks at how positive, proactive communication improves patient trust in health services. She highlights that negative past experiences can prevent patients accessing the support and treatment they need, and looks at possible ways to build patient trust in the health system.
  11. Event
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    This is the third in a series of online lectures organised by the International Shared Decision Making Society (ISDM). This lecture will be hosted by Kristen Pecanac, UW-Madison School of Nursing. Join the webinar
  12. Content Article
    This article, published in Mayo Clinic Proceedings, looks at how outsourcing in health care has become increasingly common as health system administrators seek to enhance profitability and efficiency while maintaining clinical excellence. However, outsourcing clinical services often results in lower quality patient care, including patient harm, and compromises the values of the organisation.
  13. Content Article
    In 2015, the ruling of the UK Supreme Court in Scotland in the case of Montgomery v Lanarkshire Health Board fundamentally changed the practice of consent. According to the Judges in this case, doctors are no longer the sole arbiter of determining what risks are material to their patients. They should not make assumptions about the information a patient might want or need but they must take reasonable steps to ensure that patients are aware of all risks that are material to them. The Royal College of Surgeons has developed guidance on consent that sets out the principles for working with patients through a process of supported decision-making, and a series of podcasts that illustrate those principles in practice.
  14. Content Article
    At the first Patient Safety Management Network (PSMN)* meeting of 2022, we were privileged to hear from a bereaved relative about her shocking experience, which reminded us all of why we do what we do.  Claire Cox, one of the PSMN founders, invited Susan (not her real name to protect her confidentiality) to share with us the causes of her relative’s untimely death and the poor and shameful experience when she and her GP started to ask questions. This kicked off a valuable and insightful discussion about how patients are responded to when things go wrong and about honesty and blame, patient and family engagement in decision making when patients are terminally ill, and how we need to ensure that the new Patient Safety Incident Response Framework (PSIRF) guidance embeds good practice informed by the real-life experience of patients and staff.
  15. Content Article
    Shared decision making is a collaborative process in which clinicians and patients consider treatment options based on evidence about their potential benefits and harms, to enable the patient to decide the best course for themselves. The person’s priorities and concerns, wishes, preferences and goals should inform the conversation and the decision made. The Professional Records Standards Body (PRSB) produced this draft standard on shared decision making following widespread consultation and a series of role plays which tested the standard’s usability in practice. It was was developed to align with the GMC guidance on shared decision-making and consent, as well as the NICE guidelines on shared decision-making. The final version of the PRSB standard is due to be released in Summer 2022.
  16. Content Article
    Women are entitled to clear information on the risks and benefits of different options in order to make informed decisions about the birth of their babies. Rates of induction are rising. One in three pregnancies is induced in Great Britain, according to most recent data.  Earlier this year Patient Information Fortum (PIF) members raised concerns about availability of information to support decision-making on induction of labour. PIF responded by collaborating on a survey with maternity charities including Tommy’s, Bliss and Birthrights.  The results are sobering and show there is much to do to put personalised care and shared decision making into practice in maternity care.
  17. Content Article
    Shared decision making describes the way in which patients and their healthcare providers work together to decide treatment, management or self-management support goals. It includes sharing information about a patient’s options and preferred outcomes. The goal is for patient and professional to agree treatment, or no treatment. This webinar hosted by The Patients' Association discusses what makes shared decision making effective, barriers for staff and patients and research on ways to improve the practice.
  18. Content Article
    These free e-learning courses about communicating the potential harms and benefits of treatment to patients have been produced by the Winton Centre for Risk & Evidence Communication, the Academy of Medical Royal Colleges in the UK and the Australian Commission on Safety & Quality in Healthcare.
  19. Content Article
    This Virtual Patient programme for healthcare professionals allows users to specify an environment, patient and therapeutic area to create a ‘case’ to practise and hone clinical and communications skills.
  20. Content Article
    In this blog, Aleyah Babb-Benjamin, Outreach and Insight Manager at National Voices, shares insights from a Long Covid Webinar event that looked at how to develop a community-focussed response.
  21. Content Article
    There are many respects in which the modern medical system is not fit for purpose and poses a threat to human health. In so many situations, our superficial assumptions about medicine are wrong. Having more tests to identify disease is often not better than leaving those “well enough” alone, labelling people with a specific disease may not be helpful, and more medicine may not be better than less medicine or no medicine at all. In our eagerness to intervene, we can end up doing harm. This fits with the estimation that around 30% of medical care is ineffective and another 10% is harmful. But why do doctors recommend tests, or diagnose and prescribe treatments that don’t help people? Ian A Harris, an orthopaedic surgeon, and Rachelle Buchbinder, a professor of clinical epidemiology, discuss in this BMJ opinion article.
  22. Content Article
    High Reliability Organisations (HRO), including healthcare and aviation, have a common focus on risk management. The human element is a ‘weak link’ which may result in accidents or adverse events taking place. Surgeons and other healthcare professionals can learn from aviation's rigorous approach to the role of human factors (HF) in such events, and how we can minimise them. Air Accident Investigation Branch (AAIB) reports show that fatal accidents are frequently caused by pilots flying outside their own personal limits, those of the aircraft or environment. Similarly, patient morbidity or mortality may occur if surgeons work outside personal their capability, with poor procedure selection and patient optimisation, or with a team or theatre environment not suited to the procedure. The authors of this study introduce the personal limitations checklist – a tool adapted from aviation that allows surgeons to define their limits in advance of any decision to operate, and develop critical self-reflection. It also allows management of patient expectations, shared decision making, and flattening of team hierarchy. The minimum skills, patient characteristics, team and theatre resources for any given procedure to proceed are defined. If the surgeon is ‘out of limits’, redressing these factors, seeking additional assistance, or thorough patient consenting may be required for the safe conduct of the procedure. The authors explore external pressures that could cause a surgeon to exceed both personal and organisational limits.
  23. Content Article
    In this video of a plenary session from the Guidelines International Network (GIN) Conference on 26 October 2021, James McCormack, Professor at the Faculty of Pharmaceutical Science, University of British Columbia, discusses issues with clinical practice guidelines and ways to overcome them.
  24. Content Article
    There has been little applied learning from organisations engaged in making evidence useful for decision makers. More focus has been given either to the work of individuals as knowledge brokers or to theoretical frameworks on embedding evidence. More intelligence is needed on the practice of knowledge intermediation. This paper from Tara Lamont and Elaine Maxwell describes the evolution of approaches by one UK Centre to promote and embed evidence in health and care services.
  25. Content Article
    This patient decision aid from the National Institute for Health and Care Excellence (NICE) aims to help adults with type 2 diabetes understand the risks and benefits of taking a second medication, so that they can make an informed decision about their care.
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