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News Article
Dr Camilla Kingdon to chair review of children's hearing services
Patient Safety Learning posted a news article in News
The Secretary of State, Wes Streeting, has commissioned an independent review of children’s hearing services and has appointed Dr Camilla Kingdon as its independent chair. The review will consider: the NHS England response to the service failures in paediatric audiology how the relevant governance arrangements between NHS England and the Department of Health and Social Care (DHSC) could be improved and identify lessons learned how NHS England’s handling of any future service failures in similar services could be improved and identify lessons learned. In December 2021, a report was published into service issues in paediatric audiology in NHS Lothian, which focused on whether children’s hearing tests were being conducted properly and effectively followed up. Further issues with the diagnosis of hearing issues in newborns and children were identified in other Scottish NHS trusts in 2023. Subsequent assessment of NHS audiology services in paediatric departments across England in 2023 and 2024 identified similar problems. NHS England established the Paediatric Hearing Services Improvement Programme in 2023 to address the issues and oversee remedial action. Dr Kingdon brings extensive expertise to the review. She has been a consultant neonatologist at the Evelina London Children’s Hospital for over 20 years and until March last year she was President of RCPCH. She has an MA in Medical Careers Management and was Head of the London School of Paediatrics and Child Health for 5 years from 2014. Read full story Source: Gov UK, 14 April 2025- Posted
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- Medicine - Audiology
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Content Article
Dr Camilla Kingdon has been appointed by the Secretary of State to chair an independent review of children's hearing services. This document sets out the terms of reference for the independent review of children’s hearing services in England. The review will consider: NHS England’s response to the service failures in paediatric audiology how the relevant governance arrangements between NHS England and the Department of Health and Social Care could be improved and identify lessons learned how NHS England’s handling of any future service failures in similar services could be improved and identify lessons learned. Related reading on the hub: Top picks: 11 resources to support people with hearing loss or deafness- Posted
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News Article
NHS hearing units misdiagnosed thousands of children and ‘did nothing’
Patient Safety Learning posted a news article in News
Watching from the side of the school playing field, Amy and Noel Denman were worried about Scarlet, their three-year-old daughter. While other children ran around laughing, enjoying their first sports day at the Lincolnshire nursery school, Scarlet seemed vacant. When the teachers told her to run she stood still … then burst into tears. Amy Denman now knows why her daughter was acting so strangely. Recalling that day six years ago, she is furious over how the NHS has failed her family. Scarlet, she has learnt, is partially deaf. She could not understand what was happening or what was expected of her. She is one of thousands of children misdiagnosed by NHS audiology units across England. Leaked internal documents from NHS England reveal a nationwide failure in child hearing services. They suggest that 1,540 children have been misdiagnosed since 2019. Some, like Scarlet, were given the all-clear when they had significant problems. Others were told they were deaf — but hearing aids could have helped them. Some 480 children suffered moderate or severe harm, the papers say. For some infants this will mean permanent delays in speech and language development as well as their educational abilities. Read full story (paywalled) Source: The Times, 28 September 2024- Posted
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- Medicine - Audiology
- Deafness
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News Article
Dozens more children harmed after care failures
Patient Safety Learning posted a news article in News
Dozens more children have suffered harm due to failings in audiology services, HSJ can reveal. Several trusts have newly admitted their assessment of the damage caused by a widespread failing in the services, which are meant to pick up and begin addressing hearing problems while people are young. Reports emerged in Scotland in 2021, and last year an NHS England audit found services in England were also likely to have similar problems. Failures include ineffective testing leading to infants’ deafness being missed for long periods and other children not being properly referred for help they needed. It was caused by failures across training, leadership, equipment, and governance. As of last year, several English trusts had declared a total of 36 known cases of “severe” harm, defined as “permanent or long-term” damage. Several of those providers have now declared they have found more cases of harm, while some new trusts have declared problems and harm for the first time. Read full story (paywalled) Source: HSJ, 24 September 2024- Posted
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- Medicine - Audiology
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Content Article
As the Cumberlege Review and Paterson Inquiry made clear, having accurate and timely data on treatments and outcomes is critical to patient safety. NHS England is working to strengthen this data by implementing a central database to collect key details of implantable devices at the time of operation. The new Outcomes and Registry Platform will bring existing registries together for the first time and introduce new registries. In a blog for the Patient Safety Commissioner website, Scott Pryde, Programme Director for NHS England’s Outcomes and Registries Programme, and Katherine Wilson, Clinical Steering Group Chair of the programme, discuss the new National Registry of Hearing Implants, a registry specifically for cochlear implants. They highlight the importance of collaboration between patients, clinicians, regulators and medical device manufacturers.- Posted
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Content Article
Serious failings in support for deaf children have been laid bare in the final report of the Independent Review of Audiology Services in Scotland. Mark Ballard, National Deaf Children's Society, Head of Policy for Scotland, outlines the history of the Review, and suggests that it is time for the Scottish Government to act on the recommendations of the report.- Posted
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- Medicine - Audiology
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Content Article
Review report and recommendations from the Independent Review of Audiology Services in NHS Scotland. The Review was announced by the Scottish Government in January 2022 in the context of failings in the standards of care provided in the NHS Lothian Paediatrics Services. The overarching aims across the findings and recommendations are: to reduce variation and ensure the delivery of safe, high-quality, patient-centred care across Scotland, with clear accountability. to build a sustainable pipeline of talent and ensure that patients are cared for by professionals with the right knowledge and specialist skills, within services with effective, skilled leadership. to ensure a culture of continuous improvement of quality and outcomes of care across the patient journey, with external assurance of patient safety, clinical effectiveness and patient experience. to ensure that national structures are in place to provide strategic oversight and assurance of audiology services.- Posted
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- Medicine - Audiology
- Investigation
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News Article
People with buildups of ear wax are being left with hearing loss and socially isolated because of an NHS “postcode lottery” in removing it, a new report claims. Ear wax removal services have declined so dramatically that 9.8 million people in England now cannot access help on the NHS, forcing some to pay a “tax on wax” for private treatment. The report, from the RNID hearing loss charity, also found that more than half of NHS commissioners are breaching official guidelines by not ensuring that all adults can access care. The RNID, formerly the Royal National Institute for Deaf People, said its “horrifying” findings highlighted the misery people who cannot get wax removed are suffering. “Ear wax buildup can cause painful and distressing symptoms – such as hearing loss, tinnitus and earache – and lead to social isolation and poor mental health,” the RNID said. “With a patchy service across England, many people are left living in silence or forced to pay for private removal,” it added. Non-NHS providers charge £50-£100 a visit to suction wax out. Older people and those who wear hearing aids are most likely to experience buildups. Read full story Source: The Guardian, 24 January 2024- Posted
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News Article
Kara Dilliway was just three years old when she came down with a common ear infection in October 2022. She recovered quickly, as was expected, but just days after the infection cleared her parents found she was struggling to hear and talk. “We’d noticed she’d just started to say yes and no to things, that’s when we thought something is going on,” says her mother Sam Dilliway, a 41-year-old community care worker from Basildon, Essex. Doctors said she could have glue ear, a common condition in children – fluid build-up had started to cause problems with her hearing, and would need draining. But what should have been a minor ailment has turned into a never-ending ordeal for the family. What was a simple case of glue ear could now leave her with hearing loss for up to two years as she awaits routine treatment. It comes after data released in January found that over 10 million people have been left on NHS waiting lists for basic ear care services. Dr Aymat says that the long-term effects of such conditions being left untreated in children can be severe. While glue ear is unlikely to leave permanent damage, there is always a small risk of permanent hearing loss. However, the developmental effects are far more likely and potentially long-lasting. Read full story Source: The Independent, 1 April 2024- Posted
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- Children and Young People
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News Article
Parents sue over failures in child hearing service at NHS Lothian
Patient Safety Learning posted a news article in News
More than a dozen families are seeking compensation following "significant failures" at NHS Lothian's hearing service for children. The health board apologised to more than 155 families after an independent investigation found serious problems diagnosing and treating hearing loss. Sophie was born partly deaf and failed repeated hearing tests for years. Her family say no help was offered by the paediatric audiology department at NHS Lothian who kept saying she would be fine. But her parents say she is not. Sophie is now seven. Her speech and language has not developed fully and is sometimes hard to understand. Her confidence has been affected. Her mum Sarah said: "They failed Sophie. You kind of trust what they were doing, you thought maybe she doesn't need hearing aids, maybe she will just catch up and now she's almost eight years old and she's still not caught up and you think 'OK, maybe there were mistakes made then'." An independent investigation by the British Academy of Audiology (BAA), published in December last year, found "significant failures" involving 155 children over nine years at NHS Lothian. Several profoundly deaf children were diagnosed too late for vital implant surgery. The health board has "apologised sincerely" to those affected. The BAA looked at more than 1,000 patient records finding "significant failures" in almost 14% of them. The BAA said it found "no evidence" that national guidelines and protocols on hearing tests for children had been followed or consistently applied "at any point since 2009". Read full story Source: BBC News, 2 March 2022- Posted
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- Medicine - Audiology
- Organisation / service factors
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News Article
Incessant noise of tinnitus can feel like torture
Patient Safety Learning posted a news article in News
Tinnitus Week 2022 is taking place from 7-13 February and the British Tinnitus Association are calling for the establishment of a Tinnitus Biobank The UK urgently needs a biobank library of human tissue samples so experts can study and find better treatments, or a cure, for "ringing in the ears", says the BTA. More than seven million adults in the UK are thought to have tinnitus. This stressful and upsetting condition of hearing whooshing, buzzing or other intensely annoying sounds with no external source is poorly understood. For some, it becomes difficult or impossible to lead a normal life. A survey by the charity, carried out in November with 2,600 people with tinnitus, suggests almost one in 10 living with the condition has experienced thoughts about suicide or self-harm in the past two years. One in three thought about their condition every hour - causing them anxiety and sadness. The BTA says other people with tinnitus share similar experiences of feeling isolated, debilitated and stressed. Malcolm Hilton, an ear, nose and throat expert at University of Exeter's Medical School, says a national biobank for tinnitus would be massively beneficial, and might reveal better ways for managing the condition. "There are many treatments available for tinnitus and it is disappointing that people still come away with the message that they have to 'learn to live with it' without support." Read full story Source: BBC News, 7 February 2022 -
Content Article
The tinnitus decision aid is designed to help clinicians and patients work together to choose the right treatment option for each individual. People with tinnitus vary in their preferences, for example, some like to use sound, others prefer a talking therapy approach. The decision aid provides information on key points that patients need to know to make a decision. The decision aid was developed through a systematic process of reviewing evidence, gathering key questions from patients and refining the information to be readable and useable. All the approaches listed are available everywhere but may require some travel or cost to access them. This should be discussed in consultations.- Posted
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- Medicine - Audiology
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News Article
With so many operations put on hold when the pandemic started in March, surgeon Douglas Hartley and a team of medical veterans got to work pioneering new types of protective equipment. When the coronavirus pandemic first hit the UK, thousands of surgical procedures were put on hold. For surgeons like Douglas, who performs operations on deaf children to restore their hearing, this created a significant moral dilemma – he wanted to get back into surgery to provide this vital care, but didn’t want to inadvertently catch or pass on COVID-19 in the process. Douglas regularly carries out cochlear implant surgery, a process in which a surgeon embeds an electronic device which stimulates the hearing nerve in the ear. The scientific evidence is clear that this surgery needs to be performed at the earliest opportunity so that these children can benefit from being able to hear at a vital stage in their development. But performing the surgery as normal would have put both children and surgical teams in danger. They needed to come up with another way of doing things. The team in Nottingham had to combine creativity and science to develop a novel and safe way to restart cochlear implant surgery in a matter of just a few weeks. The team used a systematic evidence-based approach to evaluate a variety of PPE for its usability and effectiveness. During simulated cochlear implant surgery, they evaluated each type of PPE across several parameters, including its effect on a surgeon’s ability to communicate, their field of vision, and their comfort. Many of the PPE options were found to substantially restrict the surgeon’s vision during operating. That rendered them unsafe for performing this sort of surgery. Instead, they found that the combination of “spoggles” and a half-face respirator mask had consistently superior performance across all aspects of clinical usability compared with all other options. During their studies, Douglas and his team also worked with a surgical product manufacturer to develop a novel drape, basically a tent, that was designed to be suspended from a microscope covering the patient’s head and torso to provide a physical barrier between the site of drilling and the rest of the team. They found that the operating tent significantly contained the droplets and prevented them from spreading around the theatre environment. They are the first – and are currently only – group in the world to develop an operating tent design that is marked for medical use. After completing our studies, we now had appropriate PPE and a protective operating tent to permit the safe restarting of cochlear implant surgery during the pandemic. These recommendations were rapidly disseminated internationally via webinars and journal publications and quickly adopted as standard patient care by Nottingham University NHS Foundation Trust and, subsequently, embraced in other departments in the UK and across the world. Read full story Source: The Independent, 22 October 2020 -
News Article
A 45-year-old British man has been left with permanent hearing loss after developing COVID-19. UK doctors say it is the first such case they have seen linked to the pandemic coronavirus. Although rare, sudden hearing loss can follow other viral infections, such as flu. The ear-nose-and-throat experts told BMJ Case Reports journal steroid drugs could help avoid this damage if given early enough. The patient, who has asthma, had been admitted to a London hospital with COVID-19 symptoms and transferred to intensive care after struggling to breathe. Tests confirmed he had coronavirus and he was put on a ventilator machine. He also needed various drugs and a blood transfusion before beginning to recover and coming off the ventilator 30 days later. A week after the breathing tube was removed and he left intensive care, he noticed tinnitus (a ringing or buzzing noise) followed by sudden hearing loss in his left ear. A hearing test suggested the loss was linked to damage to the hearing nerve, the middle ear, or both, rather than inflammation or a blockage to the ear canal. Doctors could find no explanations for his hearing problem, other than his recent COVID-19 illness. They gave him steroid tablets as well as injections into the ear, which helped a little, but he has some irreversible hearing loss. Read full story Source: BBC News, 14 October 2020 -
Content Article
Clinical governance is the system through which NHS organisations are accountable for continuously improving the quality of their services and safeguarding high standards of care by creating an environment in which clinical excellence will flourish. Clinical governance encompasses quality assurance, quality improvement and risk and incident management. These guidelines cover responsibilities, programme standards and performance monitoring, quality assurance, quality improvement, and risk and incident management. -
Content Article
Babies and young children (under five years) can suffer serious injury if they ingest coin/button batteries or poke them into their nostrils or ears. While the larger lithium batteries have the greatest potential to cause harm, including death, the smaller zinc–air batteries, used in hearing aids, cochlear implants, bone-anchored hearing aids (BAHA) and similar equipment, still present a significant risk. This National Patient Safety Alert requires all organisations supplying NHS-funded hearing aids to ensure those issued to babies and children under five years of age have secure battery compartments. Where hearing aids are issued to older children and adults, organisations are required to consider the need for a secure battery compartment for anyone living with young children and babies, or with a person with additional risk factors, such as those with a significant learning disability, dementia or other cognitive or sensory impairment.- Posted
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News Article
Dozens more children than initially thought have come to “severe” harm following failings in audiology care, HSJ can reveal. Two more trusts have confirmed that, between them, 30 children suffered severe harm – which is defined as ”permanent or long-term harm” – after the failings. Northern Lincolnshire and Goole Foundation Trust said an external investigation had revealed 14 such cases, while Worcestershire Acute Hospitals Trust found 16 more after going through the same process. A total of 36 confirmed or suspected severe harm cases from paediatric audiology failings across six English trusts are now known about. I NHS England wrote to all 42 integrated care boards at the end of August, asking them to ensure the “approximately” 130 paediatric hearing services in England were running safely. Sir David Sloman, then-chief operating officer, and Dame Sue Hill, chief science officer, said the NHSE “review of these trusts has identified root causes that have led to poor service delivery and outcomes… [which include] lack of clinical governance and oversight, poor reporting of data, poor interpretation of results, poor retention of diagnostic data, and lack of accreditation.” The National Deaf Children’s Society called the speed of the NHS’s response “a scandal”. Read full story (paywalled) Source: HSJ, 19 September 2023- Posted
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- Children and Young People
- Patient harmed
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News Article
Trusts admit ‘severe’ harm to children
Patient Safety Learning posted a news article in News
Children have suffered severe harm at two further hospital trusts as a result of failures in paediatric audiology, HSJ has revealed. HSJ reported in July that three children at Croydon Health Service Trust may have come to “severe harm” – meaning they may have suffered permanent damage – following failures in the trust’s processes in audiology. Now East and North Hertfordshire Trust and North West Anglia Foundation Trust have also confirmed a small number of cases of severe or serious harm; while some trusts have yet to confirm findings from case reviews they have carried out. Major problems emerged earlier this year, initially in Scotland, of poor quality checks missing children with hearing problems who should have received support, and of a failure to inspect the services. NHS England ordered a review of data from the national newborn screening programme which, alongside other review work, identified six English trusts as having likely failures in their service: Croydon, East and North Herts, North West Anglia, Warrington and Halton Hospitals, North Lincolnshire and Goole, and Worcestershire Acute Hospitals. Read full story (paywalled) Source: HSJ, 14 September 2023- Posted
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- Patient harmed
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