Search the hub
Showing results for tags 'Patient engagement'.
Found 1,329 results
-
Content ArticleThis report sets out Care Quality Commission's activity and findings during 2022/23 from our engagement with people who are subject to the Mental Health Act 1983 (MHA) as well as a review of services registered to assess, treat and care for people detained using the MHA.
-
Content Article
Think Ammonia! Elliot's story
Patient Safety Learning posted an article in Patient stories
In March 2018, Elliot Peters, 14, died after becoming suddenly and seriously ill before being diagnosed with Ornithine transcarbamylase (OTC) deficiency. His mum, Holly, is dedicated to speaking out about Elliot’s story to raise awareness and prevent more deaths. -
Content ArticleThe British Social Attitudes (BSA) survey assesses public mood about the NHS, and the 2023 results reveal record low levels of satisfaction with the health service. This Nuffield Trust blog takes a closer look at what the results tell us.
-
Content Article
Amplifying maternal voices toolkit (MMHA, 18 March 2024)
Patient-Safety-Learning posted an article in Maternity
Drawing on insights from Maternal Mental Health Alliance (MMHA) Lived Experience Champions, member organisations and local contacts, this toolkit offers creative ideas and practical tools to empower individuals in shaping perinatal mental health care at a local level. The toolkit explores innovative examples of ongoing efforts to bring about this much-needed change. It contains resources relating to: Breaking barriers Demonstrating impact Making connections Sharing stories -
Content ArticleThis systematic review in JAMA Network Open explored how much shared decision-making (SDM) is used in interventions aimed at improving cardiovascular risk management, and how it affects decisional outcomes, cardiovascular risk factors and health behaviours. The review looked at 57 randomised clinical trials that included 88,578 patients on SDM interventions for cardiovascular risk management and 1341 clinicians, SDM interventions were associated with a slight decrease in decisional conflict and an improvement in haemoglobin A1c levels.
-
Content ArticleThis qualitative study in the Journal of Patient Safety aimed to understand the perception of dental patients who have experienced a dental diagnostic error and to identify patient-centred strategies to help reduce future occurrences. Recruiting patients via social media, the researchers conducted a screening survey, initial assessment and 67 individual patient interviews to capture the effects of misdiagnosis, missed diagnosis or delayed diagnosis on patient lives. They found that dental patients endured prolonged suffering, disease progression, unnecessary treatments and the development of new symptoms as a result of diagnostic errors. Patients believed that the following factors contributed to diagnostic errors: Poor provider communication Inadequate time with provider Lack of patient self-advocacy and health literacy. Patients suggested that future diagnostic errors could be mitigated through: improvements in provider chairside manners more detailed patient diagnostic workups improving personal self-advocacy enhanced reporting systems.
-
Content ArticleWhen ECRI unveiled its list of the leading threats to patient safety for 2024, some items are likely to be expected, such as physician burnout, delays in care due to drug shortages or falls in the hospital. However, ECRI, a non-profit group focused on patient safety, placed one item atop all others: the challenges in helping new clinicians move from training to caring for patients. In an interview with Chief Healthcare Executive®, Dr. Marcus Schabacker, president and CEO of ECRI, explained that workforce shortages are making it more difficult for newer doctors and nurses to make the transition and grow comfortably. “We think that that is a challenging situation, even the best of times,” Schabacker says. “But in this time, these clinicians who are coming to practice now had a very difficult time during the pandemic, which was only a couple years ago, to get the necessary hands-on training. And so we're concerned about that.”
-
Content ArticleWith a record number of patients stuck in A&E, Healthwatch England’s CEO Louise Ansari wants to see a longer-term plan to improve conditions in which people wait for life-saving care. This should include real-life monitoring and reporting on patient experience.
-
Content ArticleImproving maternity care is a key Government and National Institute for Health and Care Research (NIHR) priority. In March 2024, an NIHR Evidence webinar showcased research from their recent Collection, Maternity services: evidence to support improvement. This summary includes videos of researchers’ presentations and captures some of the points raised in the webinar Q&A. It highlights seven features of safety in the maternity units, kind and compassionate care around the induction of labour, and the role of hospital boards in improving maternity care.
-
Content ArticlePatients in England value the NHS App, but some users say there are limits to the information they can access, or find it difficult to use, according to a new report from the Digital Coalition. Patients who need help to use the NHS App would value more support materials to enable them to use it independently, according to the report’s findings. But survey respondents were clear that using the NHS App must remain the patient’s choice, and face-to-face services must be retained. The report is based on findings from a survey run by The Patient Coalition for AI, Data and Digital Tech in Health (also known as the Digital Coalition). More than 600 people from across England completed the survey.
-
Content ArticleThe State of the State blends two forms of research to provide a view of the state from the people who depend on it and the people who run it. To understand public attitudes, Deloitte and Reform commissioned Ipsos UK to conduct an online survey of 5,815 UK adults aged 16-75 between 27 October and 1 November 2023. Quotas were set to reflect the known profile of the UK adult offline population and a boost sample was achieved in each of the UK nations. In total 821 responses were achieved in Scotland, 713 in Wales and 420 in Northern Ireland. For the UK figures, results have been weighted back to the correct proportion for each nation. Where responses do not sum to 100 this is due to computer rounding or questions which require multiple answers to be chosen. To bring a strategic perspective, our qualitative research comprises interviews with more than 100 leaders in government and public services, which is double the number from last year. They include permanent secretaries and other senior civil servants, police chief constables, council chief executives, NHS leaders and elected representatives. The interviews took place between September and December 2023
-
Content ArticleSharon shares her experience of using an external female catheter. This is an example of where person centred care has a positive impact on the physical and mental wellbeing of a patient.
-
Content ArticlePerson-centred interactions should be marked by listening, dignity, compassion and respect. One practical approach to providing person-centred care can be in the use of the five "Must Do With Me" elements of care to design the interactions between people receiving services and those delivering them: What matters to you? Your personal goals and the things that are important to you are discussed and form the basis of your care or treatment. Who matters to you? You are asked about the people that matter most in your life and have opportunity to involve them in the way that you choose. What information do you need? You get understandable full information and are supported to make decisions that take account of your personal goals and the things that are important to you. Nothing about me without me. You are always given the opportunity to be involved in discussions. All information exchanges and communication between professionals or between different services are transparent and always provide you with the opportunity either to be present or to contribute to the process. Personalised contact. As much as possible, the timing and methods by which you contact and use services or supports are flexible and can be adapted to your personal needs. Find out more via the link below to the Healthcare Improvement Scotland website.
-
News Article
Public satisfaction with NHS at lowest ever level, survey shows
Patient Safety Learning posted a news article in News
Public satisfaction with the NHS has dropped again, setting a new low recorded by the long-running British Social Attitudes survey. Just 24% said they were satisfied with the NHS in 2023, with waiting times and staff shortages the biggest concerns. That is five percentage points down on last year and a drop from the 2010 high of 70% satisfaction. The findings on the NHS, published by the Nuffield Trust and King's Fund think tanks, show once again that performance has deteriorated after a new record low was seen last year. In total, since 2020, satisfaction has fallen by 29 percentage points. Of the core services, the public was least satisfied with A&E and dentistry. The survey also showed satisfaction with social care had fallen to 13% - again the lowest since the survey began. The major reasons for dissatisfaction were long waiting times, staffing shortages and lack of funding. Read full story Source: BBC News, 27 March 2024 -
Content ArticlePublic satisfaction with the NHS has fallen to the lowest level ever recorded, according to analysis of the latest British Social Attitudes survey (BSA) published by The King’s Fund and the Nuffield Trust. Just 24% of people are satisfied with the way the NHS is running, a fall of 5 percentage points from 2022 and a 29 percentage point drop since 2020. Despite these record lows, the overwhelming majority of survey respondents expressed high levels of support for the principles the NHS was founded upon, in particular that it should be free of charge when needed. Nearly half of those surveyed also support the government increasing taxes and spending more on the NHS.
-
Content Article
This is part of our series of Patient Safety Spotlight interviews, where we talk to people working for patient safety about their role and what motivates them. Rachel speaks to us about how patient partnership is key to tackling major issues facing the healthcare system and describes the central role of communication in improving patient safety. -
Content ArticleThis leaflet produced by East London NHS Foundation Trust (ELFT) explains the Patient Safety Incident Response Framework (PSIRF) to patients and families, outlining the aims of PSIRF and what they can expect from the process.
-
Content ArticleThe World Health Organization (WHO) is in the process of establishing a Roster of consultants in the area of patient safety with the main objective of identifying experts from all over the world in different patient safety areas who may support the implementation of the Global Patient Safety Action Plan (GPSAP) 2021-2030 at global, regional, country and institutional levels. The experts with the successful outcome of their application will be placed on the Roster and subsequently may be selected for consultancy assignments in the specified area of work, primarily across the seven strategic objectives of the GPSAP 2021-2030. More information can be found in the link below. Closing date for applicants: 3 April 2024.
-
Content ArticleThe role of artificial intelligence (AI) in healthcare is expanding quickly with clinical, administrative, and patient facing uses emerging in many specialties. Research on the effectiveness of AI in healthcare is generally weak, but evidence of AI improving doctor’s diagnostic decisions is emerging for some focused clinical applications, including interpreting lung pathology and retinal images. However, we must work with patients to understand how AI impacts on their care, says Rebecca Rosen in this BMJ opinion piece.
-
Content ArticleAmbulatory safety nets not only safeguard against diagnostic errors, they also encourage collaboration, support health care providers, and break down competitive barriers for the greater good of patient safety.
-
EventuntilA four-week introduction to Patient Leadership, led by David Gilbert. Patient Leadership signals a breakthrough in healthcare that moves beyond traditional engagement and uncovers the pioneering and transformative work of patient leaders – those affected by life-changing illness, injury or disability who want to lead change in the healthcare system. Or ‘those who have been through stuff, who know stuff, who want to change stuff’. About this programme This course lays the foundation for understanding patient leadership – it is designed for both patients and non-patients to explore together different facets of this emerging social movement. It is for Patient and Carer Leaders, health professionals, managers, non-clinical staff and those from the independent, voluntary and charitable sector. And open to international attendees. This programme lays the foundations for understanding patient leadership. It leads you through the principles of patient leadership, what it is and where it came from, the qualities of an effective patient leader, support needed and models of embedded patient leadership. For patients, users, carers and staff (clinical, managerial). The framework for May's course The four sessions take place on consecutive Wednesdays, between 4pm and 7pm UK time. Wednesday 1 May - Session 1 - What is Patient Leadership The different tributaries of the ‘patient movement’ The failure of traditional engagement approaches The emergence of ‘patient leaders’ Definitions and clarifications What we bring - Jewels of wisdom and insight from the caves of suffering Wednesday 8 May - Session 2 - The Effective Patient Leader The Different Roles for a Patient Leader What Matters – an anchor for the effective Patient Leader Benefits of Patient Leadership The four main capabilities The different sorts of support needed Wednesday 15 May - Session 3 - Embedding Patient Leadership in Healthcare The Patient Leadership Triangle (the Sussex MSK Model) The Patient Director – a new role in healthcare Culture, systems and processes Progression routes & creating opportunities The current climate for Patient Leadership Wednesday 22 May - Session 4 - Reflections and Next Steps Reflections on the programme Exploring issues in more depth Your next steps Your learning and support requirements Register
-
Content ArticleThis Medscape article looks at misconceptions about the impact of diet on cancer progression that are being spread on social media platforms such as TikTok. Examples of these ideas include the idea that you can 'starve' cancer by cutting out carbohydrates, or that an alkaline diet will stop cancer by neutralising the acid environment around a tumour. The author, John Kerr, asks whether there should be a rallying call for cancer health professionals to do more to "push these scientifically illiterate concepts away." He suggests, "Rather than just shrugging our shoulders, perhaps we should be thinking more about it?"
-
EventThis one-day masterclass will look at the new PSIRF and the Complaints Standards Framework and through real life content, bringing the human focus for the patients, loved ones, and indeed staff to the forefront. It will support staff to explore what compassionate engagement looks like, feels like, and how to communicate it authentically and meaningfully. In a supportive and relaxed environment, delegates will have the opportunity to gain in depth knowledge of the emotional component, relate to, analyse and realise the significance of and believe in their own abilities in creating practices that not only support the PSIRF but go beyond compliance to be working in a way that supports gaining an optimum outcome for patients, families and staff, in often a less than optimum situation. Key learning objectives: Feel, analyse, and explore the presence and absence of compassionate engagement within life, trauma, and a healthcare incident and how empathy is the gateway to compassion. Seeing perspectives and understanding emotional motivations and the emotional component recognising vulnerability in others and self. Seeing the bigger picture and having an enquiring mind to understand the story and how the ‘Funnel of Life’ can impact on our ability to engage. Build confidence in the positive impact of compassionate engagement and really being authentically interested in the emotional component to be able to create an optimum outcome in often a less than optimum situation. Explore and have a good grasp of how internal unconscious belief systems, can link through to the outcomes we achieve. We know what works with compassionate engagement, but why do we so often struggle? Explore and analyse biases, judgments, and how a lack of compassionate engagement not only has the potential to cause psychological harm, but can prevent optimum outcomes for the organisation. Realise the significance of authenticity rather than feeling fearful of not doing things perfectly. Examine where can we get emotional information from to support us, even if we are not aware we are doing it! Identify the importance of an enquiring mind and a hypothesis as we try and understand the story that we are aiming to compassionately engage with. Develop understanding of Safeguarded Personal Resolution (SPR ®) to formulate compassionate engagement under PSIRF and the Complaints Standards Framework. Develop awareness on personal wellbeing and resilience. Register
-
Content ArticleNottingham University Hospitals Trust has produced a leaflet for pregnant people who have experienced vaginal bleeding in later pregnancy. The leaflet aims to give women and families more information about possible causes of bleeding and recommendations that might be made for changes in pregnancy care. The leaflet has been produced in partnership with the parents of baby Quinn Parker, who tragically died in July 2021 after suffering oxygen starvation in the womb.
-
Content ArticleThe Health Research Authority, the National Institute for Health and Care Research and a host of organisations across the UK have been working together to bring about changes which will drive up standards in health and social care research. Together they have signed up to a Shared Commitment to public involvement.
