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Found 1,218 results
  1. Event
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    The Black Maternal Health All Party Parliamentary Group (APPG) is having a meeting to discuss various updates and new improvements that have been made in the maternity world. The meeting will be hosted and chaired by Bell Ribeiro-Addy MP, Chair of the APPG and the Secretariat of the APPG is provided by Five X More CIC The E8 Group and Mimosa Midwives. The APPG aims to raise awareness of the issue of racial disparities within maternal healthcare and offer solutions to end this. Register
  2. Event
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    Communities are playing an increasingly important role in improving health and meeting the wellbeing needs of people locally, highlighted in part by their role in the response to the Covid-19 pandemic. Integrated care systems (ICSs) need to recognise the role communities can play in improving and sustaining good health, and as part of this they need to seek greater involvement with local voluntary, community and social enterprise (VCSE) groups at the place and neighbourhood level, where the link local communities is at its strongest. This conference will provide an opportunity to discuss the impact of community-led and person-centred approaches to improving health and wellbeing, and to explore what more can be done to build on community interventions, assets and solutions that developed as a response to the pandemic. It will also consider the challenges of demonstrating value and of working with communities to assess need and provide services. You will hear from community groups who have worked with others – including their ICS, local health system or local authority – to develop a collaborative approach to tackling health inequalities.
  3. Event
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    Primary care services are the front door to the NHS – they are the first port of call when we feel unwell and the main coordinator of care when we are living with ill health. The primary care team have an important role in making people feel welcomed, listened to and taken seriously. At National Voices we often hear stories from groups of people who struggle to have their communication needs met within primary care. As just one example, five years after the launch of the Accessible Information Standard, 67 per cent of Deaf people reported that still no accessible method of contacting their GP has been made available to them (Signhealth, 2022). This issue also affects other groups with specific communication needs - people who don't speak English fluently, people with learning disabilities, autistic people, people with dementia, people with low or no literacy, people who are digitally excluded, people living nomadically, people experiencing homelessness and more. We know that these experiences happen within the context of a primary care team under exceptional pressures. This workshop will bring together people with lived experience from all the groups mentioned above, as well as voluntary sector organisations, members of the primary care workforce, primary care policy leads, as well as commissioners and providers to discuss the challenges and co-produce solutions. At the workshop, we hope to build and improve understanding of: The experiences of people with diverse communication needs within primary care. The barriers primary care teams experience in meeting diverse communication needs, especially under existing pressures. Practical ways that we can embed and improve inclusive communications within the primary care setting. Register for the webinar. If you have any questions, please contact aleyah.babb-benjamin@nationalvoices.org.uk
  4. Event
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    This workshop will educate delegates about the principles of health inequality and the relationship between health equity and human rights. The workshop will cover the principles and definitions of health inequalities and how they can be measured and studied. Delegates will be given practical guidance on how to translate this knowledge into their own practice. The workshop will include a range of guest speakers from Public Health Wales, and will provide real world examples from Wales and across the world. Register for the webinar
  5. Event
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    In this webinar you will hear directly from young people who will share their experiences of the barriers they face in leading healthy lives and accessing healthcare services. We will also highlight the latest available data on ethnicity and health outcomes, demonstrating where inequalities exist for young people aged 10-25. During the event we will be launching two major publications that explore in more detail the role of ethnicity in understanding young people’s health, this will be the first opportunity to hear the learnings and recommendations from this research. The webinar is hosted jointly by the Association for Young People's Health and the Race Equality Foundation and will be Co-Chaired by a young person with experience on this topic. We will be joined by a range of expert speakers. Sign up for the webinar
  6. Event
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    Join us to learn how welfare rights advice services are being integrated with healthcare nationwide to tackle poverty and health inequality. This event will be of interest to people working in Integrated Care Systems and public health policy and practice. Taking action on poverty and health inequality is ever more important for the NHS, as the current cost of living crisis increases hardship among communities. The consequences for health and wellbeing will be felt most keenly among low income and vulnerable patient groups. Health justice partnerships are targeted interventions that support patients with social and economic circumstances that are root causes of health inequality. They are partnerships between health services and organisations specialising in welfare rights. Advice on welfare rights issues is integrated with patient care, helping people resolve problems relating to benefits, debt, housing, employment and immigration, among others. This can support those in the hardest circumstances to maximise their health and wellbeing. This one-day in-person workshop is an opportunity to learn about health justice partnerships and how they are being implemented across the country in a range of NHS settings. We will be joined by speakers who are engaged in service delivery, policy and research, who will provide examples and insights from their work. Speakers will include: Professor Dame Hazel Genn, Director of the Centre for Access to Justice, UCL Cedi Frederick, Chair of the NHS Kent and Medway Integrated Care Board Natalie Davis, Head of Legal Support Policy, Ministry of Justice Catherine McClennan, Director of the Women’s Health and Maternity Programme, Cheshire and Merseyside Health & Care Partnership Paul Sweeting, Insight and Performance Partner, Macmillan Cancer Support Refreshments are provided and there will be opportunities for discussion and networking. Outline of the day (provisional timings) 09.15: Registration and refreshments 10.15: Plenary session 1 - Introducing Health Justice Partnerships 11.45: Plenary session 2 - Health Justice Partnership case studies 13.00: Lunch provided 14.00: Plenary session 3 - Implementing Health Justice Partnerships 15.15: Group discussion session 4 - Where next for you? 16.30: Refreshments and networking Please see our website for further information on Health Justice Partnerships. Register for a place This event is supported by The Legal Education Foundation.
  7. Event
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    The Institute for Healthcare Improvement (IHI) and BMJ bring you one of the largest international conferences focused on improving outcomes for patients and communities through quality improvement. Themed Adapting to a changing world: equity, sustainability and wellbeing for all, the conference programme will focus on how the improvement movement can help healthcare systems adapt and thrive in a rapidly changing world. Key topics we will address include equity, sustainability, wellbeing and learning from adverse events. Further information and registration
  8. Event
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    The Covid-19 pandemic has laid bare deep-seated health inequalities and the issue is now at the forefront of the minds of people across the health and care system, as they seek to develop strategies aimed at reducing health inequalities at a regional, integrated care system (ICS) and place level. This conference will bring together individuals and teams developing health inequalities strategies. We will discuss the need for universal action at a population health level and targeted action to address issues affecting people facing the worst health outcomes, showing how these two approaches interlink. The conference will also explore opportunities across health and care to tackle health inequalities and learn from local and international leaders about how they are overcoming the challenges of turning evidence into action to make a difference to health inequalities. Register
  9. Event
    The case for addressing poverty, its root causes and associated health inequalities is urgent and overwhelming. The Covid-19 pandemic has laid bare the harm caused by deprivation, and the cost-of-living crisis is likely to hit the poorest the hardest – leading to poorer health and lower social mobility. At this event, leaders across the NHS, local government, the voluntary, community and social enterprise (VCSE) sector, and those with lived experience will share learning on the role of the health and care sector in tackling the root causes of poverty. This King's Fund event will provide practical examples on how the health and care sector can effectively engage with partners across local government, the VCSE sector and business, to achieve meaningful progress on poverty and deliver services to the most excluded in society. You will hear about the role of NHS organisations as ‘anchor institutions’ and discuss how health and care organisations should use their influence and resources to poverty-proof services, address inequalities, and benefit the communities they serve. Register
  10. Event
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    The free, one-day, virtual conference will explore the themes and issues arising from the report recently published by the Authority, Safer care for all – solutions from professional regulation and beyond. It will be an opportunity to hear a range of views, debates and discussions about some of the issues in the report with the aim of moving towards solutions to support safer care for all. Safer care for all – solutions from professional regulation and beyond is the Authority’s contribution to the debate on some of the key patient and service user safety challenges within health and social care, drawing on insights from our role overseeing the ten health and care professional regulators and the Accredited Registers programme. Topics that we focus on within the report include: tackling inequalities regulating for new risks facing up to the workforce crisis accountability, fear and public safety. Register
  11. Event
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    Join us and discover first-hand how the equitable implementation of NICE recommendations ensures that care provided is effective, makes efficient use of resources and reduces inequalities and unwarranted variation. Discover how we are aligning what we do with Integrated Care Systems (ICS) and wider system priorities and how our evidence-based recommendations are aligned to recognised health inequalities frameworks such as Labonte and Marmot. Register for the event
  12. Event
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    Local public health systems have recently been tested to an unprecedented degree. The pandemic response since March 2020 has necessitated the scaling up of diagnostic and testing capacity, enhanced collaborative working across the health system and a rapidly assembled nationwide vaccination programme. This free online event from the King's Fund will provide an opportunity to share experiences and lessons from the public health response to the pandemic, including how local systems have mobilised and collaborated, the barriers faced by those designing and delivering services and priorities for ensuring the NHS and wider public health system are equipped to tackle any future public health crisis. Recognising the link between inequalities and pandemic-related health outcomes, our expert panel will also explore ways to increase vaccine uptake in deprived communities and share data across local areas to inform the response. This discussion will consider the role of innovation and those involved at a place and system level in the response to emerging health security concerns and the challenges that remain for integration between health system partners. Register
  13. Event
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    Tackling inequalities is of vital importance to improving health outcomes. Join top experts from healthcare, science and policy at this full-day conference, in partnership with NHS England. Taking place at the Royal Society of Medicine in Central London, you’ll connect with the latest research and thinking on health inequalities, including at a networking event in the evening. The conference will include key speakers and panel sessions in the morning. The panels will focus on the importance of the key clinical areas outlined in the Core20PLUS5 approach and the role of national organisations in reducing healthcare inequalities. In the afternoon there will be expert sessions, focusing on the five clinical areas of health inequalities and a session on prevention. These will be delivered by senior leads from NHS England and specialist leads from the Royal Society of Medicine. This is a unique opportunity to network over drinks and a complimentary lunch with leaders in the tackling inequalities space, and specialists within the Core20PLUS5 medical sections. Keynote speakers: Dr Bola Owolabi, Director, Health Inequalities at NHS England Professor Sir Michael Marmot, Professor of Epidemiology at University College London, Director of the UCL Institute of Health Equity Register
  14. Event
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    To address health disparities, we need to focus on improving health literacy, digital literacy and digital access. In this 30-minute live webinar and Q&A from Health Education England, you will find out about our newly available maps and online tool using, place-based geodata to identify levels of health literacy and digital access in your area. The session will also introduce easy read resources for shared decision making, co-produced with experts by experience, and how to use these are part of a series of steps to address local health disparities. Register for the webinar
  15. Event
    This Westminster conference discusses the Government’s Women’s Health Strategy for England and the next steps for implementing ambitions in the context of a new Prime Minister. Delegates will look at the priorities for improving women’s health outcomes, service delivery and workforce education. Areas for discussion include: the strategy - scope and emphasis - implementation - the leadership and accountability to achieve progress service development - improving diagnosis - integration - tackling variation in access and other areas of inequality stigma - improvement of the first points of contact in primary care sexual and reproductive health - care and support across the life cycle - diagnosis rates - accessibility of services and information - patient-centred approaches research - areas of focus for women’s health - improving the data and the evidence base inequalities - tackling disparities in health outcomes - building a responsive environment for women’. Register
  16. Event
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    Entrenched health inequalities have come to the fore over the past couple of years and we have seen some of the sharpest declines in health and wellbeing for our children, young people and their families. Never has there been a more urgent need to address the link between wider social, economic and environmental causes to the increased risk of poor public health and mental health. These are best understood and addressed at a local level by people and organisations that have relationships and knowledge of the nuances and cultures of individuals and communities. The formation of Integrated Care Systems (ICSs) represents a significant opportunity for Boards to engage the voluntary, community and social enterprise (VCSE) sector in order to enable a truly integrated Health and Social Care System to be delivered. These new arrangements which will bring together local system partners should serve to strengthen relationships between the NHS and VCSE sector and promote greater equity. This free webinar, co-produced and sponsored by Barnardo’s, brings together an esteemed panel of experts to discuss how we make the most of these opportunities at this critical time, as well as showcasing innovative VCSE projects that are delivering improved outcomes for children, young people and their families. Register for the webinar
  17. Event
    In its 15th year, the HSJ Patient Safety Congress is the largest annual event to unite patient safety leaders, front-line innovators, national policymakers and patient representatives from across the UK to learn and exchange ideas that will transform patient safety and standards of care. Patient safety is a field that never stands still. Practitioners across the patient pathway are dedicated to continuous improvement and improving the patient experience, ensuring equity of care for all and optimising outcomes. As a result of this Congress, changes have been made to medical textbooks and led to new research being commissioned. But more importantly, it is through this event that changes are made within teams and organisations that help save lives. This year’s Congress will address both new and long-standing patient safety challenges, offering new insights, practical ideas and actionable solutions to help improve care in your organisation: Building a restorative culture. Integrating human factors approach to improve safety. Focusing on patient safety in non-acute settings. Practical approaches to patient and family engagement. Safety and equality in women’s health. Protecting and supporting our workforce. Improving governance and regulation to achieve consistent care. Encouraging clinician-led innovation. Examining safety for vulnerable people. Recognising and responding to the deteriorating patient. Breaking the cycle of repeat errors to advance the safety agenda. Responding to catastrophe in a healthcare setting. Reversing the impact of normalised deviance on patient safety. Eliminating unnecessary deaths in a post-pandemic. Register
  18. Community Post
    The comments below were all shared by members of Sling the Mesh in response to a call for the worst things that have been said to patients on their mesh journey. If you have had mesh surgery, please add your accounts of interactions with doctors and other healthcare professionals in this thread. Transvaginal mesh Hubby said "It’s really painful for her when we have sex." Dr replied, "Have you tried anal?" and then winked at my hubby. I thought my husband was going to punch the surgeon. My surgeon emailed me to attend mental well being therapy classes, as in ‘it was mind over matter’, for my pain and agony that I was suffering 12 weeks after insertion! You can only imagine my reply to her 😡 …10 weeks later she discovered under another general anaesthetic that the Mesh had cut right through my bladder! "You will have to learn to live with the pain… Drs are not miracle workers." Mine said, "l don't know why women over 50 want to have sex anyway!" Top urogynaecologist: "don’t worry you don’t have cancer" patting my knee. Surgeon said no way is it the mesh you are reading to much crap on the internet, it’s working that’s all you need to know. For a whole year, I was told by my implanting surgeon that the razor blade/ hot knife feeling cutting into me was all in my head… his registrar discovered that the mesh was cutting into my vaginal wall. When I questioned about the "tape " I was told it was not mesh & don't believe everything you read in Newspapers . Also my pain was in my head! It’s your menopause not the mesh 😡 “I just don’t understand why you have all this pain, Anatomically you look beautiful” followed by a laugh!! Mine told me I probably need hip replacements. Surgeon punctured my intestine during mesh surgery and said “well it’s probably good that happened because it caused you to rest in a bed for a month.” Uh… a hospital bed in which I almost died because he refused to admit he did anything wrong. My family had to demand an independent team come in and evaluate me… I would have been dead within hours if they hadn’t. I was SO relieved to find Sling The Mesh support group after hearing about it on the news (after the Cumberlege review) I wouldn't wish this sh*t on my worst enemy but I was SO glad to discover I wasn't going mad, its not all in my head, I wasn't the only person with complications. That evening I cried hard! Such a relief and source of support 🥰 What am I moaning about, your husband should be very pleased! I’m the only one to ever have anything wrong, it must be my body not the mesh! Your like a 21 year old down there now! Where would I start 🤔so many gems to choose from! .. one of my faves is.. "DO YOU HAVE ANY OTHER MENTAL ILLNESSES??" My surgeon told me that it definitely won't be the mesh that's causing my problems. I have learned since that he has received 6 figure sums from the mesh manufacturers for promoting it! I had a “specialist” that actually said to me “ look shit happens ..and it happened to you.” Don't be silly mesh doesn't cause leg pain. I have had 2 partial removals, drag my leg around daily, hip wear and tear, urine infections, have had E/coli infections in mesh with 7 times daily antibiotics. "It's all in your mind, maybe you need to speak to someone. " Yes a lawyer you fool. My surgeon said my mesh would last about ten years I asked what do we do then , he said we will worry about that when the time comes ! My urologist told me to stop looking at Sling the Mesh on Facebook 😂😂😂😂 and to believe the professionals!!! I stood up and walked out before I did him damage!!!😂 My surgeon said Chin up and have a glass of Prosecco. I was told "Surely it's a good thing when sex hurts a bit" After telling him for five years my new urinary issues were due to the mesh, I eventually got it removed due to erosion, but at my follow up being angry at not being listened to, he suggested I had PTSD and got referred to the psychiatric team! That is an insult to the poor people who do have it , I don’t I just had anger and vented it! One of the doctors at my surgery said “your to complicated, I cannot help you. Book another appointment to see somebody else” I was told that my GP practice could not help me as my problems are too complex. Looking at me, he said "I just don't understand how you could be in pain, I will refer you to a Psychiatrist". To my partner, he said "I've made her nice and tight for you". It’s your weight try exercise, when u can’t even walk. I asked my surgeon, is there a good mesh and bad mesh! He said there is NO bad mesh! Mine told me it was all in my head! That maybe I had a low pain threshold. My gynaecologist said stop 🛑 listening to the hype !!!!! 😡 Mine said, "You’re too fat for your hips." Has this all been brought on by the Mesh nonsense in the media!!! The first doctor suggested my problems were I needed more foreplay or a lubricant during sex after I said my husband feels something sharp when inside me!!! My original TVT had 'slipped'. My gynae surgeon said he would do a TVTO, a pelvic floor repair and a posterior pro-lift. At no point was the word mesh used and in my ignorance I thought he knew best, how gullible was I? It is in your head by so many over the years that you feel you are going mad 😡 as you know the pain your in. All in my head and then your too complex you must be imagining things you can’t be in that much pain. Your back has nothing to do with your vagina so how can your back pain be linked (female consultant). I have TOT mesh implant. Suffer with groin infection and fistula. After I had infection drained (unsuccessfully) I was seen by the gynaecologist, I mentioned that the infections were the mesh incisions in my groin ... he told me not to be silly .. that mesh is in the vagina not in the groin area .. he obviously only knew about tvt mesh not TOT.. I told him to go away and do some research... I didn't see him again!!!! I got told it’s not the mesh it’s were it should be and doing it’s job 😡. Also got told to stop looking and reading stuff in mesh groups as everything isn’t true 🤬 My surgeon said "Oh, so you are jumping on the Mesh bandwagon?" When I mentioned mesh because of my endless infections to yet another doctor at my previous surgery he said ‘as long as you’re nice, we look after people who are nice’. I was so taken aback I just couldn’t even answer- I’ve never been anything but nice through many surgeries and issues. I was told -“Nothing more we can do for you so will discharge you” Worst one was sent for testing STDs When we told my surgeon I could no longer have sex because it was too painful he said I had a duty to my husband so I should just put up with it. My husband was furious he said do you really think I could enjoy sex knowing my wife is in pain. My surgeon told me he had only one women with mesh had problems and she was "neurotic"... Surgeon Quote “you can’t be in that much pain its a standard operation ?” Surgeon Quote “ It must be sciatic pain, I’ll get an orthopaedic doctor to look at you and send you home!” Another mesh specialist “it’s blue and it’s eroded but majority of women are fine I don’t understand why you can’t walk anymore your infections and blood in urine must be due to a bladder infection!” Diagnosis in 2018 Mesh cut through obturator nerve, put in to lateral too tight, too much pressure on urethra and permanent pain and damage. I was treated in a very misogynistic way even though I have my husband present. Just ignored every time I mention it, no matter who it is. “You are an awkward patient…” "‘You're to old to have pain there." "It can't be the mesh causing you pain, I've inserted lots of these and your the only one who has complained!!" (2017) mesh inserted 2014. “You can’t believe what you hear in the news about other people having mesh problems, after all, I am the trained consultant…” 😥🤦‍♀️ It’s just the menopause, you will get used to it. “Your mesh is the gold standard, it is the old mesh that causes problems.“ “Your mesh just needs time to seed itself in.” “ I don’t know why you can’t have a sex life, there is enough room for a penis.” My implanting surgeon's response to my second visit following tvt implant was to take a cursory look in my vagina and pronounce all was fine. I have learned this response is common amongst patients who've had mesh complications. By this time I was peeing to the left and pooing to the right like some sort of sick trick. I likened it to turning up at A and E with a broken arm and the doctor not ordering an X ray. I later learned the mesh and resultant scar tissue had pulled my organs this way and that. I've just undergone my fifth and hopefully final operation to remove excessive scar tissue, small fragments of mesh after two full removals and perineum reconstruction. Surgeon suggested I see a shrink because he thought it was all in my head. “Go home and try to relax more” 😲 Neurologist -if you go see enough doctors you will eventually hear what you want to hear. There are so many shockers, but the worst has to be, "Prescription pads are expensive and patients like you are not worth the cost of a prescription" "It's all in your head nothing has snapped or eroded, you have to be patient with the incontinence settling down." GP listened to me telling her the unbearable vaginal pain I was going through feeling like glass cutting into me. She looked at me and said, "But why are you here today?" The cost of your catheters is too expensive for the NHS, we would like you to change to washable catheters 😲 It's all in your mind, you need anti depressants, and motivate yourself. A urologist that I had sought help from privately having walked out/discharged myself from care of implanting surgeon, "I sit on a board looking at mesh but I personally don’t believe any of this stuff you read on the internet . Mesh cannot cause such problems.“ “You must just have been coincidentally prone to interstitial cystitis and retention” Eye rolled as she said, “You shouldnt believe everything you read on the internet. Mesh is perfectly safe…” "This is a gold standard operation, it will be life changing." Well yeah, it was life changing but not in a good way. When I told the specialist how painful it was when my husband tried to put his penis in to have sex, he said , "Is he putting it in right?" We'd been married 36 years. I was told to massage it better My implanting surgeon said she "fixes up other surgeons mistakes" after putting mine in too tight and having to loosen it a year later. Mine told me I had a "good quality of life. Just to go home and get on with it." Surgeon said my operation was Tape is like a FREE TUMMY TUCK…” My favourite, "it’s your body that’s at fault!!!" “It can’t possibly hurt every time you urinate, that's an exaggeration surely.” Mine said, “Off the record, if you complain about this no-one will want to work on you in the future” Surgeon said, "If the mesh is still in place its doing its job" 🤬 I only brought it up to my surgeon once. He told me “not to believe I’m everything in the papers. Some women are just after a payout.” Surgeon said, “In 12 years I have never had anyone else complain so it cant be the mesh.” Blatant lie in 2016 as another patient at end of communication tether was busy putting warning flyers in his waiting room. Said in an abrupt tone, ”I doubt the pain is from the mesh it all stories from media and internet.” “You have been reading too much on the internet.” Well yes I have because from 3 days after the operation when I said something was horribly wrong you were telling me to go away and heal or that it could not possibly be the tape… thank goodness I googled TVT pain or I would never have found this group and thousands experiencing similar pain and disgusting treatment like me. Implanting surgeon “you’ll learn to live with it!” Consultant: "I've been to a conference and told some of colleagues about some of your problems and they said poor you, we're glad she's not our patient." "There's nothing there, it's not mesh!" Saw somebody else who could feel the mesh hanging out straight away. 😥 "It’s not mesh it can’t do this you’re wrong it’s your hip, go away and lose weight and exercise." Female GP after I’d read medical documents saying it can 😡 I was told I was having surgery with a dissolving hammock and medical records show no mention of MESH. "Oh it's you again!! I told you before it's not the TVT. You must be lonely or looking for attention." 😡 Surgeon said to stop listening to group (Scottish Mesh Survivors) as he was the expert with experience not a group of people who knew nothing!!! I asked why I was in so much pain and was told it was because I wasn't in a sexual relationship! "This has only ever happened to you. .... your body is to blame." Before I had my surgery (vaginal hysterectomy with anterior & posterior repair), the surgeon said he would sew me up "nice & tight" and actually winked at my husband!! Well, we haven't been able to have intercourse for 10 years since my op, despite physio, hormonal lubrication etc and I'm now on a waiting list (5 yrs so far) to see a sexual psychologist, cos it's all in my head of course. I ask him if the mesh he used was the same one they talked about on the tv program. He said no so I got him to write it down. When I got home I checked and it was the same polypropylene.. It’s got nothing to do with the mesh the pain is in your head 😡 My surgeons exact words to me, thankfully my husband was present... "I’m sick of all these women jumping on the mesh bandwagon. My surgery was a success. Your bowel is perfect. But if you think the mesh is to tight, I’ll open you up, detach the mesh from your spine, let it drop & put another piece of mesh over the top & reattach to your spine. You’ll be my first but I’ll give it a go!" Just to add, since removal of mesh I’m 80+% improved & my quality of life is really good. I was told I was one of the unlucky ones. He told me I needed to stop running all over the country trying to find a Dr who could help me even though He had not help me in five years. There is no cause for your pelvic pain! A pessary will fix you! Maybe stop going on social media! I’ve had a lot of problems since my removal of a TVT last August with extremely limited after care and no follow up appointments what so ever. When I did eventually get a telephone appointment I got upset because of the amount of issues I’ve had with no one to turn to for any help. Her reply was, "well you were warned that you could end up worse than before if YOU chose to go ahead with having it removed." My reply, "Yes I knew there was a risk of even more issues, as if I wasn’t having enough already… but what however was not explained was that there would be absolutely zero help with those issues if they did occur, no one to contact or answers to emails and voice mail messages…" She went very quiet after that. I was trying to find out if mesh had been used in my op & the surgeon said, "People see one Victoria Derbyshire program and panic." My female implanting surgeon told me she’d never had any problems with any other patients. She then told me it was a skin problem and gave me some cream then discharged me. She’d already discharged me and I asked my GP to go back and see her. My female GP kept telling me it was the healing process and to give it time. After months and months of me going back with pain and UTIs she started to get really sharp with me so I stopped going. Rectopexy mesh My surgeon said when I said my vagina was very tight and painful for intercourse that his wife would love an excuse like that not to bother. I got no referral elsewhere to investigate. Had no physical relationship for 11 years. Mine laughed in my face saying, "Don't be stupid I've done over 280 rectopexy surgeries and never once had a problem. This isn't mesh related." "If I take some of this out, you will HAVE to have a colostomy bag for life." No choice given. My implanting surgeon referred me to his colleague who was a pain specialist... the pain specialist said, "Its your periods you need to go into medical menopause." I was around 36 at the time. I was told it wasn't the mesh that was causing problems and to take ownership of situation. Mesh all removed now left with permanent stoma 😫😡 When I called my bowel specialist in agony and in desperate need of help. "Aww hun I wish i could just give you a hug." My GP said, "Some pain is unexplainable, you just have to live with it." 😡 Bowel specialist said you need rectopexy repair and don’t believe the hype about mesh. They said smoking was good for you in WW2... WHEN I QUESTIONED THE CHOICE OF MESH Hernia mesh On the day of my operation, the general surgeon didn’t want to do the removal, he denied my Physiomesh had been recalled in May 2016. I had to show the link on the government site, so my plastic surgeon believed my symptoms could be related to the mesh and agreed the operation was necessary. Mine told me these groups were filling our heads with rubbish. They are full of hysterical men and women. Was told I was the only one with these issues, never had issues like this before. Told me it was all in my head. Told mesh can't cause all of these symptoms. The groups have been the biggest support to me. I finally felt normal as in I wasn't alone. This wasn't in my head. It was a sigh of relief to find the groups. A hospital consultant said, "Hernia mesh can't cause these problems." (inflammation, autoimmune, joint pain, muscle pain, allergies, Lichen Sclerosis, etc.) "You're getting confused with vaginal mesh". "If hernia mesh were a problem, I would've heard about it and I've not seen one single case in my entire career... don't you think I would've heard if there were problems?" After I persisted in telling him the scale of the problem he then raised his voice and said, "You'll never prove it." And that spoke volumes! I guess he is still staying he has never heard of a single case. He also told me to stop believing what I read on the internet. “It’s not THIS mesh that’s on the news. THIS is a great product.” (The very next year THIS mesh was recalled).
  19. Community Post
    The recent press release from the UK Government outlines a White Paper which contains the reforms: "Major reform of Mental Health Act will empower individuals to have more control over their treatment and deliver on a key manifesto commitment. Reforms will deliver parity between mental and physical health services and put patients’ views at the centre of their care. Plan will tackle mental health inequalities including disproportionate detention of people from black, Asian and minority ethnic (BAME) communities, the use of the act to detain people with learning disabilities and autism, and improve care for patients within the criminal justice system..." The report covers: "A package of reforms has been set out in a wide-ranging new Reforming the Mental Health Act white paper, which builds on the recommendations made by Sir Simon Wessely’s Independent Review of the Mental Health Act in 2018. At the heart of the proposed reforms to the Mental Health Act is greater choice and autonomy for patients in a mental health crisis, ensuring the act’s powers are used in the least restrictive way, that patients receive the care they need to help them recover and all patients are viewed and treated as individuals. These reforms aim to tackle the racial disparities in mental health services, better meet the needs of people with learning disabilities and autism and ensure appropriate care for people with serious mental illness within the criminal justice system." Do you work for Mental Health services? Are you someone who uses Mental Health services? What are your views?
  20. Content Article
    The early use of automated external defibrillators (AEDs) improves outcomes in out-of-hospital cardiac arrest (OHCA). This study in the journal Heart investigated AED access across Great Britain according to socioeconomic deprivation. The authors found that in England and Scotland, there are differences in distances to the nearest 24/7 accessible AED between the most and least deprived communities. They concluded that equitable access to ‘out-of-hours’ accessible AEDs may improve outcomes for people with OHCA.
  21. Content Article
    People living in deprived areas experience the most significant health inequalities in terms of access, experience and outcomes. There are large reductions in life expectancy for those living in the most deprived areas compared to people living in the least deprived areas. NHS England commissioned a research project into access, experience and outcomes related to health services in socio-economically deprived communities. This communications and engagement toolkit is an output of the research. The toolkit is designed to be used by communications and engagement professionals and others across the NHS with a responsibility for communicating to and engaging with people in the most deprived areas. 
  22. Content Article
    Chris Graham of the Picker Institute and Jacob Lant from charity National Voices join host Annabelle Collins to discuss patient experience revealed by recent national surveys, how the findings should be used to improve quality and reduce health inequalities, and whether there is a bigger role for “real-time” experience measures.
  23. Content Article
    Georgia Stevenson discusses NHS England’s Long Term Workforce Plan, evaluating its potential to alleviate staffing shortages, enhance training routes, and ultimately improve care quality in maternity and neonatal services.
  24. Content Article
    There is a well-established case for involving communities and people with lived experience in health and care policy, service design and delivery. NHS England guidance on working in partnership with communities highlights the financial benefits and improvements to quality and health outcomes that working with local communities brings. But could this involvement go further? In this article, Loreen Chikwira, Researcher at The King's Fund looks at the arguments for the use of intersectional approaches in understanding people’s lived experience of care in tackling ethnic health inequalities. These intersectional approaches help health and care providers shift their focus from people’s behaviours to also identifying and addressing ways of working that create and reinforce inequalities and poor experiences of care.
  25. Content Article
    New research from Healthwatch shows that people are currently facing multiple cancellations or postponements of care which are having a significant impact on their lives and symptoms, while further increasing health inequalities.   Healthwatch cmmissioned a survey of 1084 people who have seen their NHS care either cancelled or postponed this year to understand the extent of disruption to care amid rising waiting lists, workforce issues, and industrial action, and other pressures on the NHS.  
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