How can patients' voices be heard and acted upon when they attempt to report incidents of harm?

Watch for update.  Further delays in any improvement at all so continuing failure to allow patients families and public to properly record harm events . Dangerous health care where and when it occurs allowed to continue 

DHCFT deception and cover up, leaves patients at risk. They will go to any lengths to cover up and protect their own interests and reputations.

Little Optimism.  When I see the lack of harmed patient voices at the new Patient Safety Commissioners advisory body I wonder how and why the voice of patients,  without any other interest apart from harm prevention and learning , are still kept away from the centre. What do governing bodies fear and are trying to hide, deny,  cover up, under play? Very worrying,  annoying,  heart breaking, infuriating... legitimate feelings at this time. 

Something is happening but it is under radar of too many patients.  Where do patient report harm events.  No where...still...yet. how can they?

I have been made aware of a consultation happening as part of a Discovery Phase for the development of The Learn from Patient Safety Events (LFPSE) service. See below for the information I received:

Consultation by NHS England. "Discovery Phase is taking place over around 8 weeks, with the involvement of a Patient Safety Partner recruited through our internal processes.

I’ve included an excerpt from the Task Profile we used for recruitment below, which explains more about the phase and its aims.

1.          The Learn from Patient Safety Events (LFPSE) service is a new national NHS service for the recording and analysis of patient safety events that occur in healthcare. This utilises new digital technologies to support learning from what does and does not go well, by replacing the National Reporting and Learning System with a new safety learning system. The service introduces a range of innovations to support the NHS to improve learning from the over 2.5 million patient safety events recorded each year, to help make care safer (see ‘How LFPSE will improve patient safety learning’). View this short animation: Introducing the Learn from Patient Safety Events service - YouTube.

2.         Patients Safety Partner involvement is important for understanding how best to ensure patients, carers and families can contribute to national patient safety learning and improvement. The LFPSE project team are undertaking a Discovery Phase to understand how Patients and Families can best share their safety experiences within the NHS to help support national learning and improvement. A ‘discovery phase’ is a process that helps to “define the problem” and decide what (if any) work then needs to take place (e.g. designing and building software/applications).

3.         The work will involve identifying target audiences (who else do we need to involve in the research?), what needs they are trying to meet (their aims after experiencing a patient safety event), what existing feedback channels or processes there are in place (where do people already go when wanting to share such information and experiences?), and any concerns/issues with current options (what stops people sharing their experiences? What makes it difficult to do? What gets in the way of this being used for learning?). At the end of the discovery phase, we will produce a report that summarises our findings, and makes recommendations for what should happen next. “

We are recruiting patients and families via a number of channels – some directly, like yourself, where they have expressed an interest previously, and some via NHS England’s engagement teams, as well as via CQC. We have reached out to a number of advocacy groups (AvMA, Patients Association, Harmed Patients Alliance, and Care Opinion) to try to get a wide range of views represented, both of patients with experience of harm, and those without. This is important to ensure we design a user-friendly service for “novice” patients, as well as those who understand the landscape of patient safety better.

The questions asked will cover things like whether the individual has any personal/family experience of harm; if not, do they know what a patient safety incident is, how they would describe the concept in their own words, where they would go if they had an experience that might involve a patient safety issue, what they would want out of that process, etc.

The intention is very much to get a sense of the current state of play, level of knowledge and awareness of issues, terminology, and options open to patients, and to then use that to explore what kind of service will work best to ensure we can gather the learning from patients for use at a national level, whilst also giving patients what they need in terms of feedback/closure etc (which will likely need to happen at the provider level, rather than nationally).'

to ask to be involved contact [email protected]  or [email protected]

No one currently investigates patient reports of harm from the patient perspective,  with a patient eye view & patient interests at heart.  They would require  both TRUE INDEPENDENCE ( of the reputation protecting NHS Trust involved and also be a fearless challenger, if needed  of the existing NHS  system and clinical base)  AND TRUE WIDE RANGING EXPERTISE  ( clinical,  human factors, safety & patient need focus), all woth with PATIENT OVERSIGHT  ( empowered. Informed. Suitably Rewarded. Co produced in a nutshell). Who can do that? Who will dare do that.  It is needed,  urgently . Will NHSE patient Safety dare? If you have thoughts: share here. Contact NHS staff above

I asked at my one hour session that harmed patient experts by experience are involved  in drafting of this key report. Nothing about us without us. I am still seeking assurance 

This first step is so important..who controls it ia a key concern. 

Update. Blog here .my meta concern is in the comments section. Patient reported harm needs Patient Involvement at all levels in the process,  empowered.  I do not see that. 

Patient exclusion at a fundamental level from NHS  is a growing concern, even from exemplar services with models with much Patient rhetoric but no evidence 

the recent report of a feedback consultation created this summery report, which to me raises major concerns-see attached

Patient and Family Show and Tell - Questions and Answers.pdf20231019 Public Show and Tell for the Patient and Family discovery - slides.pdf