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  3. News Article
    The Patient-Centered Outcomes Research Institute (PCORI) awarded Patients for Patient Safety US (PFPS US) a $100,000 Eugene Washington PCORI Engagement Award for a new project called “Patients Involved in deVeloping Outcomes Together” or “Project PIVOT.” Project PIVOT is a novel patient-led initiative to advance the integration of patient-centred patient-reported outcomes (PROs) and patient-reported experiences (PREs) into Patient-Centered Outcome Research (PCOR), Comparative Clinical Effectiveness Research (CER) and quality assessment measurement tools to improve patient safety, diagnostic quality, and equity. “This award will allow us to identify opportunities to capture—directly from patients and families—their care experiences and challenges, filling key gaps in the traditional data sources used to evaluate healthcare quality and safety,” stated Sue Sheridan, co-founder of PFPS US. In contrast to traditional tools, such as clinical outcome measures and hospital readmission rates, Project PIVOT’s long-term goal is to make healthcare safer and more equitable by capturing and learning from patients’ experiences related to patient safety, diagnostic quality and bias. Project PIVOT will have a special focus on historically underserved communities to help define which questions and outcomes are most important to capture. Priority areas of focus include maternal/newborn health in communities of colour, the physical, intellectual and developmental disability communities and older adults. Read full story Source: Newswire, 13 May 2024
  4. News Article
    The changes will allow pharmacists to spend more time with patients, levelling the playing field between smaller pharmacies and larger chains. The government has confirmed plans to make ‘hub and spoke’ dispensing models available to all local pharmacies. The change aims to make local pharmacies more efficient and free up time for more complex elements of dispensing and clinical care. The move is part of government’s drive to make patient access to medicines and treatment more efficient across the NHS. Patients stand to benefit thanks to an efficiency drive that will allow all local pharmacies to dispense medicines more efficiently. Currently, larger pharmacy chains can take advantage of the efficiencies and cost-savings that come with centralising the dispensing of medicines at a larger ‘hub’. But smaller independent pharmacies are unable to operate the same model due to legal restrictions on dispensing for pharmacies under different ownership, meaning they can face additional costs and workload. Under the changes announced today, the government will progress in making the ‘hub and spoke’ model universally available, allowing pharmacies belonging to different legal entities to use hubs belonging to other companies. This will level the playing field between smaller pharmacies and larger chains. The changes will enable pharmacists to dispense medicines more efficiently and spend more time dealing face to face with patients. Primary Care Minister, Andrea Leadsom said, “We’re continuing our drive to make access to medicines and care faster, simpler and fairer for all patients, including at local pharmacies. These proposals will level the playing field and enable our hard-working community pharmacies to benefit from centralised dispensing. It will also free up highly skilled pharmacists from back-office duties to deliver patient-facing services, including Pharmacy First and contraception consultations, supply medicines and provide advice.” Read full story Source: WiredGov, 13 May 2024
  5. Event
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    In 2014 Seth Goodburn died from pancreatic cancer 33 short and heart breaking days after diagnosis. Seth's wanted to die at home however, the weight of systems and processes meant that he sadly died in an acute hospital. After Seth died his wife Lesley shared their story via a play, a film and an educational resource called Seth's Story Sharing the story has three aims to: improve and of life care. highlight the need for psychosocial support. raise awareness of pancreatic cancer signs and symptoms. Ten years later, join us at this free conference to hear the impact of sharing Seth's Story, the improvements that have been made and future plans to help others share their experiences through creative art forms. This interactive series of talks and discussions will cover: Hearing and seeing the person who has a terminal disease Role of creativity in understanding experience of care at end of life The power of sharing lived experiences through storytelling The role of the people who are important to the person receiving care and their role in care partnerships Understanding who and what is important to the person receiving care Can compassion be taught or is it an innate quality How to have compassionate kind and gentle conversations How can we support people to celebrate their life as life draws to an end How will the new integrated care systems help focus on palliative and end of life care What are the key challenges for the future of end of life care The event is hybrid, virtual and also hosted at Marie Curie London, 1 Embassy Gardens, Nine Elms, Vauxhall, SW11 7BW, with a complimentary sandwich lunch. Register for free if you wish to attend online only via MS Teams Register to attend in person More information is available on the event flyer
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    Written by ENT Surgeon David Alderson, True Cut is a new play that asks: “What happens when things go wrong in healthcare?” It brings the hidden world of the operating theatre onto the stage. When promising, young surgeon, Jo, gets out of his depth, the repercussions are profound — for everyone involved. In the papers, on TV, on social, medicine’s a pantomime: voyeuristic entertainment masquerading as news. There are really only two stories about surgeons: there’s the Hero’s Journey of unflagging compassion and selfless dedication in the face of overwhelming odds, of miracle cures wrought from challenge and graft; and then there are the evil villains for us to boo at and hiss: incompetent charlatans who should be named, shamed and punished to protect the innocent. True Cut presents a dramatic biopsy cored from the hidden heart of surgery in the real words of those who work with our warm, wet flesh: constantly striving for the perfection that their patients deserve but fated, as humans, to sometimes fall short. It’s the story of those who learn to cut—and must learn how to live with the things that they do. Following the performance there will be refreshments and the opportunity to participate in a Q&A with the creative team. AGE 18+ True Cut portrays the events surrounding a tragic mistake in clinical practice, which has profound implications for the physical and mental health of all those involved. Audience members who have experienced similar traumas may find aspects of the performance distressing. Purchase a ticket for the play
  7. Content Article
    The NHS Health Check is a free check-up of your overall health. It can tell you whether you're at higher risk of getting certain health problems, such as heart disease, diabetes, kidney disease and stroke. Local authority commissioners have a statutory responsibility for delivering the NHS Health check to the eligible population within their area. All the information collected through NHS Health Checks is sent through to the relevant GP practice, and results in either no action required, lifestyle and behaviour advice and information to reduce CVD risk, or clinical intervention if needed. The Professional Records Standards Body (PRSC) is running a survey to gain views form healthcare professionals and IT system suppliers on the information recorded through NHS Health Checks. The results of the survey will inform the development of an information standard that will ensure that the information collected is recorded and communicated in a standardised format, using recognised clinical coding wherever possible. The government is also undertaking the development of a digital version of the NHS Health Check as a delivery option for the future, where a person can choose to complete the health check questions online and carry out biometric tests at home, before the results are written back to the GP record–therefore some questions in the survey may reflect this new development by way of future proofing the information standard once a digital option is available.
  8. Content Article
    Project PIVOT is a new initiative led by Patients for Patient Safety US (PFPS US) that aims to advance the implementation of patient-centred patient-reported experiences (PREs) and patient-reported outcomes (PROs) to improve patient safety, diagnostic accuracy and equity in healthcare. Project PIVOT will provide an opportunity for diverse patients, communities of patients and patient organisations to collaborate with national and international experts and provide input via novel engagement methods to identify and prioritise PREs and PROs which are related to patient safety, diagnostic accuracy and equity–things that matter most to patients. Patients will also have opportunities to identify how and when they prefer to report their experiences and outcomes. Additionally, Project PIVOT will engage healthcare system leaders to identify and prioritise their PREs and PROs to explore possible synergies and integration with the PROs and PREs identified by patients. Project PIVOT is accepting applications from individuals interested in joining the project via the PFPS US website.
  9. News Article
    NHS England will begin monitoring and benchmarking systems on the extent to which patients are given the option to be treated by a private provider. The move follows the government today endorsing the recommendations of a review by the chair of the newly created Independent Patient Choice and Procurement Panel, which has highlighted how some local areas are restricting patient choice. It highlighted significant variation in choice between some systems, which it said was driven by factors including messaging from commissioners to GPs that discourages choice and/or encourages referrals to local NHS trusts, financial incentives for referrals to particular providers and difficulties in securing accreditation from commissioners. It cited one example where the operator of an independent sector hospital that is co-located with an NHS hospital was contractually prevented by the NHS trust from accepting certain referrals. Health and social care secretary Victoria Atkins said: “Empowering patients to take control of their own healthcare decisions is a key part of my missions to make the NHS faster, simpler and fairer for everyone that uses it.” Read full story (paywalled) Source: HSJ, 15 May 2024
  10. News Article
    A recent analysis found poor survival rates after bone fractures in older adults, with fewer than a third of men and half of women surviving five years after a fracture. Published in JBMR Plus, the study looked at a cohort of 98,474 Ontario residents age 66 and older who suffered fractures to parts of the body associated with osteoporosis between January 2011 and March 2015. The patients were grouped into sets based on the fracture site and matched to patients with a similar demographic profile but no bone breaks during the study period. The fracture cohort was mostly female (73 percent), and the median age at fracture was 80. In the year before the fracture, up to 45 percent of the women and 14 percent of the men had been treated for osteoporosis. The analysis revealed that those within a year of a hip, vertebral or proximal non-hip, non-vertebral fracture were at the highest risk of death. The survival probability was lower for the oldest patients. “Survival most dramatically declined within one month after most types of fracture, with a five-year survival being similar to or worse than some common cancers,” the paper’s lead author, Laval University department of medicine professor Jacques Brown, said Read full story (paywalled) Source: Washington Post, 12 May 2024
  11. News Article
    More and more UK hospitals are leaving patients in corridors due to a lack of bed space. NHS bosses say so-called corridor care is freeing up ambulances and saving lives, but BBC Newsnight has spoken to patients who say the growing practice is humiliating and degrading. Gregory Knowles counted 13 other patients alongside him on a corridor at the Norfolk and Norwich University Hospital (NNUH) in March. Complications after an operation put him back in hospital and on to a ward but at 04:00 one morning he was moved. The 68-year-old was wheeled in his bed to reception. "I was waking up with people around me. It was horrendous," he told the BBC. "I had no screens and no facilities for water or for really getting changed. My possessions were on the bottom of the bed. My daughter and partner were as horrified as I was," he said. His partner Alicia Goulty described how staff had been too rushed to attend to him. "One day when we got there his catheter had leaked in the bed when he was on the corridor. He was wet with no covers or any screens and I had to take him to the bathroom to get him cleaned". Ms Goulty said her partner's medication had been missed. "We had to ask for water for him. We had to ask sometimes for his meals because he got forgotten." Read full story Source: BBC News, 15 May 2024 You can read a nurse's first-hand account of a corridor care shift in this blog on the hub: A silent safety scandal: A nurse’s first-hand account of a corridor nursing shift
  12. News Article
    An NHS trust has lost an employment tribunal case against a nurse who had his shifts cancelled after whistleblowing when a patient was put in seclusion because of staff shortages. A judgment published last week found that Mark Temperton, a mental health nurse, was “subjected to detriment” after having made a “protected disclosure” during his agency shift at Greater Manchester Mental Health Foundation Trust’s (GMMH) Atherleigh Park Hospital. Mr Temperton, who is also employed by the Priory Group as a regulatory inspector as well as doing ad-hoc work for the Care Quality Commission, worked as an agency mental health nurse for Blackstone Recruitment and was booked to work a night shift in a psychiatric intensive care unit (Priestners Unit) at Atherleigh Park on 14 October 2022. He raised concerns after a patient, brought in by the police, was put “immediately” into seclusion because of staff shortages. Mr Temperton subsequently raised it with the nurse in charge and with a locum consultant psychiatrist but the patient was kept in seclusion. According to the Mental Health Act’s Code of Practice, seclusion “should not be used as a punishment or a threat, or because of a shortage of staff”. Serious concerns were also raised about the trust’s Edenfield Centre in September 2022 by BBC Panorama, one of them being use of inappropriate seclusion. Paul Lewis-Grundy, associate director of corporate governance at GMMH, said: “It is absolutely vital that staff feel confident and safe to speak up, with no detrimental impact to themselves or their career and prospects. Over the past two years, we have invested significantly, and taken a number of steps, to support this across GMMH.” Read full story (paywalled) Source: HSJ, 15 May 2024
  13. Content Article
    In an increasingly global healthcare environment, with patients and professionals from many different cultural and linguistic backgrounds, precision in medical document translation is key. Medical documents can range from patient records, patient information leaflets, consent forms, prescriptions, treatment plans to research papers. The translator must have a thorough understanding of the source text and subject matter in order to produce a high-quality target document and ensure patients receive accurate information. But this can come with patient risk, if not done properly. In this blog, Melanie Cole, Translations Coordinator at EIDO Systems International, talks about the challenges, risks and opportunities for using AI in healthcare translation. 
  14. Yesterday
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    The First Do No Harm All Part Parliamentary Group meeting is on 21 May 10-11am via Teams (capacity is up to 1000 people). There will Update on financial redress and Q&A. Speakers: Jason Farrell - Sky journalist behind the documentary Primodos: The secret drug scandal Patient Safety Commissioner - Henrietta Hughes Henrietta will be talking about the report she has written titled "Options for redress for those harmed by valporate and pelvic mesh", following it's publication in February this year. To join the meeting: Meeting ID: 357 367 879 202 Passcode: R8Yos4 Dial in by phone: +44 20 3321 5213 Phone conference ID: 14499851#
  16. Content Article
    In this blog, Dr Henrietta Hughes, Patient Safety Commissioner, talks about the 6th Global Ministerial Health Summit in Santiago, Chile. She reflects on how it was a great opportunity to hear from global partners about progress in patient safety and innovations to embed patient voice.
  17. News Article
    A weight loss injection could reduce the risk of heart attacks and benefit the cardiovascular health of millions of adults across the UK, in what could be the largest medical breakthrough since statins, according to a study. It found that participants taking the medication semaglutide, the active ingredient in brands including Wegovy and Ozempic, had a 20% lower risk of heart attack, stroke, or death due to cardiovascular disease. Read full story Source: Guardian, 14 May 2024
  18. Content Article
    This insightful session was inspired by Louise Roe's blog "Why it made sense at the time: Local rationality questions for healthcare investigations". In this webinar from Maternity and Newborn Safety Investigations (MNSI), participants explored the importance of how questions are asked, the local rationality principle, how the local rationality question tool was developed, putting the tool into practice, and had a Q&A session.
  19. Content Article
    Carolyn Cleveland has delivered training on empathy and compassion to healthcare organisations for many years. In this interview, she describes how she came to develop her training approach and outlines how creating a psychologically space environment for individuals to engage with the practice of empathy contributes to safer organisational cultures.
  20. Content Article
    Patient (Lived Experience) Leadership is about those affected by life-changing illness, injury or disability who want to influence change through being equal partners in decision-making. In this monthly expert briefing for Health Service Journal, patient leadership champion David Gilbert picks out the most significant developments in a field of increasing relevance to the NHS. 
  21. News Article
    The government is spending £5.5bn less on health in England than it suggested it would be at this stage, the Institute for Fiscal Studies says. Plans set out in the 2019 election campaign indicated the budget would increase by 3.3% a year above inflation during this Parliament, the IFS said. But despite extra being put in to cover the high inflation seen, spending had risen by only 2.7% a year on average. Read full story Source. BBC News, 14 May 2024
  22. News Article
    An NHS England review has found the proportion of ‘low acuity’ patients attending emergency departments is far smaller than expected. During a trial of new acuity measures at 17 accident and emergency sites, NHSE found the proportion of patients with low acuity was just 4 per cent, when it had expected the figure to be between 20 and 40 per cent. Low acuity cases are those which could often be seen by less specialist services, such as urgent treatment centres. Read full story (paywalled) Source: HSJ, 13 May 2024
  23. Content Article
    The Royal College of Nursing (RCN) is developing a professional framework for nursing which will encompass the whole nursing workforce, from the nursing support worker through to the consultant nurse. Beyond the point of registration, the work of the registered nurse increases in its complexity, and as part of this framework, the RCN has developed definitions of the levels of nursing practice beyond registration. This webpage provides definitions and standards for enhanced, advanced and consultant levels of nursing. These definitions will help those who aspire to practice at these levels, as well as giving greater clarity to employers and higher education institutions. They can be applied across all fields of nursing and in all settings.
  24. Content Article
    In this opinion piece for BMJ, David Oliver, consultant in geriatrics and acute general medicine, looks at how the professional duty of candour operates in the NHS. In doing so he considers the effectiveness of actions taken in the last five years by the Care Quality Commissioner, General Medical Council and Nursing and Midwifery Council over failure to exercise the duty of candour.
  25. Content Article
    Patient Safety Specialists are individuals in NHS healthcare organisations who have been designated to provide dynamic senior patient safety leadership. This report shares the findings of an evaluation of this role conducted by THIS Institute, which took place between September 2022 and March 2024. As part of this they spoke to people involved in developing and supporting the role and examined the perspectives of role holders using a survey, focus groups and case-study interviews.
  26. Last week
  27. Content Article
    Pharmacies in the UK dispense millions of prescription items each year. Since 2021 there have been reports of increasing supply problems affecting medicines. Recent media coverage has highlighted shortages of medicines used to treat diabetes, attention deficit hyperactivity disorder (ADHD) and epilepsy, as well as hormone replacement therapy (HRT) and others. This briefing provides information on the causes and consequences of medicines shortages in the UK and internationally, and the UK Government’s approach to address supply problems.
  28. Content Article
    On 9 January 2024, the All-Party Parliamentary Group (APPG) on Birth Trauma established the first national inquiry in the UK Parliament to investigate the reasons for birth trauma and to develop policy recommendations to reduce the rate of birth trauma. Seven oral evidence sessions took place on consecutive Mondays between 5 February and 18 March 2024 in the House of Commons. The Inquiry was also informed by written submissions which were received following a public call for evidence. The inquiry received more than 1,300 submissions from people who had experienced traumatic birth, as well as nearly 100 submissions from maternity professionals. It also held seven evidence sessions, in which it heard testimony from both parents and experts, including maternity professionals and academics.
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