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Showing results for tags 'Patient engagement'.
Found 1,334 results
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Content ArticleIn this blog for The Patients Association, Patient Safety Commissioner Henrietta Hughes looks at the importance of patient involvement in improving patient safety. She argues that patient voices should be embedded in the design and delivery of healthcare, and highlights that services and organisations need to seek feedback from patients from a wide variety of backgrounds. She also outlines why shared decision making and consent are vital to ensure patients are safe and have more control over their care and treatment.
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Content ArticleIn this webinar, Jane O'Hara, Professor of Healthcare Quality and Safety at the University of Leeds, outlines how understanding of the role of patients and families in supporting patient safety has developed over the past few years. She highlights the work of the Yorkshire Quality and Safety Research Group (YQSR) and looks at research demonstrating the role patients and families can play in improving the safety of healthcare systems.
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Content ArticlePatient Participation Groups (PPGs) are generally made up of a group of volunteer patients, the practice manager and one or more of the GPs from a practice. PPGs meet on a regular basis to discuss the services on offer, and how improvements can be made for the benefit of patients and the practice. The Patients Association has produced this set of videos and resources for PPGs, including: information on why GP practices and Primary Care Networks need patient groups step-by-step guide to establishing a GP patient group reasons to have a patient group and what’s in it for the GP practice and patients effectively working together in partnership recruitment, increasing diversity and communicating with the wider patient population.
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Content ArticleThe National Centre for Social Research’s (NatCen’s) British Social Attitudes (BSA) survey has been conducted annually since 1983. Each year the survey asks people what it's like to live in Britain and what they think about how Britain is run, including measuring levels of public satisfaction with the health and care services. The most recent survey was carried out between 7 September and 30 October 2022 and asked a nationally representative sample (across England, Scotland and Wales) of 3,362 people about their satisfaction with the National Health Service (NHS) and social care services overall, and 1,187 people about their satisfaction with specific NHS services, as well as their views on NHS funding. This report highlights the key findings of the survey, which was jointly sponsored this year by The King's Fund and the Nuffield Trust.
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Content ArticleIn this blog, Dr Timothy Ferris, NHS England National Director of Transformation and Rachel Power, Chief Executive at The Patients Association, look at patient access to health records. Dr Ferris writes about NHS England's ambition that patients are able to see their GP health record "at the touch of a button" and Rachel explains why it's important that patients have access to their records. Three patients also share why they find digital access to their records so useful.
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Content ArticleThis study, published in International Journal for Quality in Health Care, evaluated the efficacy of a patient feedback intervention (PRASE). This hospital intervention comprised two tools: i) a questionnaire which asked patients about factors contributing to safety (PMOS) ii) a proforma for patients to report both safety concerns and positive experiences (PIRT). A report to wards was produced summarising this feedback and action planning meetings were organized with ward staff to develop improvements in safety to address this feedback.
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Content ArticlePatients are increasingly being asked for feedback about their healthcare and treatment, including safety, despite little evidence to support this trend. This review, published in Health Expectations, identifies the strategies used to engage patients in safety during direct care, explores who is engaged and determines the mechanisms that impact effectiveness.
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Content ArticleAn open, collaborative, person-centred approach which listens to, and involves, patients and their families is perceived to lead to improved outcomes. For the patient and their family, it can help with reconciliation following a traumatic event and help restore their faith in the healthcare system. For the health service, listening and involving people will likely enhance learning with subsequent improvements in healthcare provision with reduction in risk of similar events occurring for other patients. This qualitative study in BMJ Open aimed to explore what ‘good’ patient and family involvement in healthcare adverse event reviews may involve. 19 interviews were conducted with patients who had experienced an adverse event during the provision of their healthcare, or their family member. Four key themes were derived from these interviews: trauma, communication, learning and litigation. The authors concluded that there are many advantages of actively involving patients and their families in adverse event reviews.
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Content ArticlePatient-reported outcome measures (PROMs) are increasingly used in health care. To capture the patient’s perspective, patient involvement in PROM development is needed. This study, published in BMC Health Services Research, aimed to investigate why PROM developers do or do not involve patients, how patients can be successfully involved and what the negative aspects and benefits of patient involvement are.
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Content ArticlePatient‐reported outcome measures (PROMs) are questionnaires that collect health outcomes directly from the people who experience them. This review, published in Health Expectations, critically synthesises information on generic and selected condition‐specific PROMs to describe trends and contemporary issues regarding their development, validation and application.
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Content ArticleHow does the public view the state of the health and care service? After political turmoil in Westminster, do people think the Government has the policies to set the NHS on the right course? With the health service under so much strain, do people remain committed to its founding principles? This long read by The Health Foundation presents its analysis of public perceptions research conducted with Ipsos that tracks the public’s views on health and social care in the UK every six months. The survey was conducted via Ipsos’ UK KnowledgePanel between 24 and 30 November 2022, with 2,063 people aged 16 and older across the UK.
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Content ArticleHealth literacy describes "the personal characteristics and social resources needed for individuals and communities to access, understand, appraise and use information and services to make decisions about health." The National Health Literacy Community of Practice provides resources for healthcare staff about health literacy. On this online platform, the community shares research and best practice, offers support for training and discusses ideas about health literacy. Resources include a Health Literacy GeoData tool which provides an estimate of the percentage of a local authority population with low health literacy and numeracy.
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Content Article
NRAS - SMILE-RA e-learning for patients
Patient-Safety-Learning posted an article in Patient engagement
SMILE (Self-Management Individualised Learning Environment) is an e-learning experience for people with rheumatoid arthritis (RA) who want to learn more about RA, its treatments and how to become good at self-managing. Each module is on a particular theme or subject and takes between 20 mins and half an hour to complete. -
Content ArticleIn this episode of the Ipsos Politics & Society Podcast, Kate Duxbury and Anna Quigley from Ipsos, Tim Gardner from The Health Foundation and Dan Wellings from The King’s Fund, discuss public perceptions towards the NHS and Social Care. They discuss: findings from the first results from the Health Foundation and Ipsos Policy Polling Programme. recent findings from the Expectations Tracker, including the public’s current and future expectations of the NHS and Social Care. upcoming findings from the King’s Fund British Social Attitudes survey.
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Content ArticleSally Percival is Co-Chair of the National Co-production Advisory Group at the organisation Think Local Act Personal (TLAP). In this blog, she reflects on what has changed in co-production over the past 12 years, including the increased desire from policy makers to listen to patients' lived experience. She also talks about the importance of creating the right environment for co-production to take place and TLAP's 'Making it Real' approach.
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Content ArticleThis analysis by the King's Fund looks at the latest British Social Attitudes (BSA) survey, which revealed that public satisfaction with the NHS fell by 17 percent between 2020 and 2021. It discusses the 'halo effect' that affected public attitudes to the NHS at the beginning of the pandemic, and why this has faded since 2021. The article highlights the importance of addressing workforce issues, but states that returning the NHS to an 'even keel' will take a long period of time. In the meantime, the Government should prioritise managing public expectations of the NHS. It also highlights that although the survey shows great dissatisfaction with the care currently provided, the public appears to have upheld its faith in the core principles of the NHS.
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Content ArticleWhat Matters to You? (WMTY) is an international person-centred care movement. It is based on the principle that healthcare workers should 'Ask, listen, do', in order to shift the power to the person who knows best about the help or support needed - whether that be the person with a medical issue or the clinicians providing care. WMTY conversations help healthcare teams understand what is “most important” to patients, leading to better care partnerships and improved patient experience. This website contains information about organisations involved in the movement as well as resources to help healthcare professionals and services implement WMTY.
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Content ArticleSpeaking to patients about what matters to them helps healthcare teams understand individuals' priorities, leading to better care partnerships and improved patient experience. This toolkit developed by the Montefiore Medical Center in New York provides an outline of how to implement "what matters to you?" (WMTY) conversations in healthcare settings.
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Content Article
Animation - What matters to you? (10 May 2021)
Patient-Safety-Learning posted an article in Patient engagement
This short animation looks at the importance of healthcare professionals routinely asking patients, "What matters to you?" Understanding an individual patient's needs, wants and hopes results in empowered patients, improved outcomes and improved relationships between patients and healthcare professionals. -
Content ArticleIn this blog, Aimee Robson, Deputy Director of Personalised Care at NHS England, talks about how healthcare workers can introduce one simple question into their communication with patients: “What matters to you?” She highlights that facilitating dialogue with patients about their own priorities is the first step in achieving personalised care, a key commitment outlined in the NHS Long Term Plan.
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Content ArticlePublic satisfaction with the NHS is currently at a 25-year low, and lack of effective communication and engagement with patients has contributed to this dissatisfaction. In this blog, Lucy Watson, Chair, and Rachel Power, Chief Executive of The Patients Association, reflect on the findings of the Ockenden Report and the implications for patient trust in the NHS. They highlight the immense damage to trust caused by the combination of the hospital's substandard clinical care, lack of compassion, tendency to blame mothers and unwillingness to respond to concerns. The authors argue that listening to and better engaging with patients is essential to create the culture change the NHS needs to rebuild public trust and improve safety. They call for honest and transparency about how the NHS is coping, and for more action to tackle low staff morale.
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Content ArticleThe ladder of co-production describes a series of steps towards full co-production in health and social care. Developed by the National Co-production Advisory Group set up by the organisation Think Local Act Personal, it supports greater understanding of the various steps that need to happen in co-production, such as access, inclusion and consultation. This webpage contains a variety of downloadable resources and a video explaining the ladder of co-production.
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Content ArticleShared decision making is a collaborative process in which clinicians and patients consider treatment options based on evidence about their potential benefits and harms, to enable the patient to decide the best course for themselves. The person’s priorities and concerns, wishes, preferences and goals should inform the conversation and the decision made. The Professional Records Standards Body (PRSB) produced this draft standard on shared decision making following widespread consultation and a series of role plays which tested the standard’s usability in practice. It was was developed to align with the GMC guidance on shared decision-making and consent, as well as the NICE guidelines on shared decision-making. The final version of the PRSB standard is due to be released in Summer 2022.
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Content ArticleThis article in the journal Health Affairs describes the three essential elements of shared decision making: Recognising and acknowledging that a decision is required Knowing and understanding the best available evidence Incorporating the patient's values and preferences into the decision. The authors argue that more physicians need training in the approach, systems need to be reorganised around the principles of patient engagement, and more research is needed to identify which interventions are most effective.
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Content ArticleThis report by the user-led non-profit organisation Shaping Our Lives examines the results of a 2021 survey that explored people’s experiences of service user involvement. This research shows the current picture of involvement and explores the barriers that deaf and disabled people face when wanting to share their lived experience. The report contains recommendations for organisations that want to run truly inclusive, meaningful involvement to shape and improve their services.
