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Showing results for tags 'Patient engagement'.
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Content ArticleIn a project led by the Race Equality Foundation, the Men’s Health Forum teamed up with Faith Action and Clinks to develop a community-centred programme to offer blood pressure testing and raise awareness amongst black African and Caribbean males. The programme was piloted in barbershops, a bus depot and a local church in three London boroughs. It demonstrated that offering blood pressure checks in community settings could help overcome the reluctance amongst black African and Caribbean men to have their blood pressure checked. The report, following evaluation between February-March 2020 in the London boroughs of Southwark, Hackney and Brent, concluded: 'The community blood pressure programme was welcomed in all community settings. The pilots engaged a considerable number of men in an accessible environment that they were comfortable in. There was a willingness from community stakeholders for the programme to be implemented over a longer period of time, and healthcare providers may wish to consider the practicalities of delivering blood pressure testing in similar settings for specific target groups.'
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Content ArticleThere has been an identified need for greater patient and family member involvement in healthcare. This is particularly relevant in an intensive care unit (ICU), as the family provides a key communicative and practical link between patient and clinician. Family members have been deemed a positive beneficial influence on ICU care and recovery processes, yet they themselves are often emotionally affected after discharge. There has been no standardised evidenced-based approach which explores research on family member involvement and the range and quality of contributions remain unclear. This study from Xyrichis et al. undertook a systematic review to assess the evidence base for interventions designed to promote patient and family member involvement in adult intensive care settings and develop a comprehensive typology of interventions for use by clinicians, patients and carers. The review provides valuable and rigorous insight into the range and quality of interventions available to promote patient and family member involvement in ICU. This is the first step towards addressing the absence of a synthesis of research for this context, and will, in addition, develop a typology of available interventions that will help service users and clinicians make informed decisions about the approaches to patient and family member involvement which they might want to adopt.
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Content ArticleThe call for meaningful patient and family engagement in healthcare and research is gaining impetus. Healthcare institutions and research funding agencies increasingly encourage clinicians and researchers to work actively with patients and their families to advance clinical care and research. Engagement is increasingly mandated by healthcare organizations and is becoming a prerequisite for research funding. In this article, Burns et al. review the rationale and the current state of patient and family engagement in patient care and research in the ICU. The authors identify opportunities to strengthen engagement in patient care by promoting greater patient and family involvement in care delivery and supporting their participation in shared decision-making. They also identify challenges related to patient willingness to engage, barriers to participation, participant risks, and participant expectations. To advance engagement, clinicians and researchers can develop the science behind engagement in the ICU context and demonstrate its impact on patient- and process-related outcomes. In addition, the authors provide practical guidance on how to engage, highlight features of successful engagement strategies, and identify areas for future research. At present, enormous opportunities remain to enhance engagement across the continuum of ICU care and research.
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Content ArticleHealthcare is in the midst of significant change, with substantial shifts in emphasis and priorities. Patient-centered care has become central to the core goals of better health, better quality, and lower costs while highlighting the necessity of incorporating patients’ efforts, needs, and perspectives into healthcare at all levels. Patient and family engagement (PFE) is critical to patient-centered care, and important theoretical and empirical work has identified key elements and implications of PFE, especially for management of chronic illnesses and preference-sensitive clinical decision making. Brown et al. believe that the ultimate goal of active, mutually respectful partnership among clinicians and patients/families is urgent and important. However, consistent terminology and definitions of PFE are still lacking. This deficit is particularly striking in intensive care units (ICUs), which pose special challenges to outpatient models of PFE: the emotional stakes are high, time is greatly compressed, surrogates play a central role, and the specter of death often dominates decision making.
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Content Article
WHO: What you need to know before and after surgery
Patient Safety Learning posted an article in Surgery
If you or your child is undergoing a surgical procedure, be sure to communicate the following to your healthcare provider. Your active participation in health care is important for your safety. This information from the World Health Organization (WHO) will help your discussion with your care-provider. Be a well-informed partner in your own care. -
Content ArticleMany seniors remain unaware that certain medications may be harmful, despite high rates of polypharmacy and inappropriate medication use among community-dwelling older adults. Patient education is an effective method for reducing the use of inappropriate medications. Increasing public awareness and engagement is essential for promoting shared decision-making to deprescribe. The Canadian Deprescribing Network was created to address the lack of a systematic pan-Canadian initiative to implement deprescribing among older Canadians. The Canadian Deprescribing Network deliberately included patient advocates in its organisation from the outset, in order to ensure a key strategic focus on public awareness and education. In this paper, Turner et al. present the processes and activities rolled out by the Canadian Deprescribing Network as a blueprint model for engaging the public on deprescribing.
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Content ArticleThis interactive webinar was part of the world tour series designed by the World Health Organization's Patients for Patient Safety (PFPS) Global Network and hosted by Patients for Patient Safety Canada, the patient-led program of the Canadian Patient Safety Institute, a WHO Collaborating Centre on Patient Safety and Patient Engagement. Watch on demand and download slides from the webinar.
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Content ArticleAs patients and families impacted by harm, we imagine progressive approaches in responding to patient safety incidents – focused on restoring health and repairing trust. We can change how we respond to healthcare harm by shifting the focus away from what happened, towards who has been affected and in what way. This is your opportunity to hear about innovative approaches in Canada, New Zealand, and the United States that appreciate these human impacts. This interactive webinar was hosted by Patients for Patient Safety Canada, the patient-led program of the Canadian Patient Safety Institute and the Canadian arm of the World Health Organization Patients for Patient Safety Global Network. View the webinar on demand and download the slides.
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Content ArticleWhen a patient's safety is compromised, or even if someone just comes close to having an incident, you need to know you are taking the right measures to address it, now and in the future. The Canadian Patient Safety Institute (CPSI) provides you with practical strategies and resources to manage incidents effectively and keep your patients safe. This integrated toolkit considers the needs and concerns of patients and their families, and how to properly engage them throughout the process. Drawn from the best available evidence and expert advice, this newly designed toolkit is for those responsible for managing patient safety, quality improvement, risk management, and staff training in any healthcare setting.
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Content ArticleFamily members are a vital part of the healthcare team and are often best positioned to recognize the sometimes subtle, yet very important changes in their loved one's condition that may indicate deterioration. You may not know WHAT is wrong, but you know something just isn't right. Empower yourself and your loved ones with the following information and resources from the Canadian Patient Safety Institute (CPSI). They will both help you recognize the signs of deteriorating patient condition, and effectively discuss your concerns with the healthcare provider.
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Content ArticleEmpower yourself with information and tools to help you ask good questions, connect with the right people, and learn as much as you can to keep you or a family member safe while receiving healthcare. The Canadian Patient Safety Institute (CPSI) have created a 'Questions Are the Answer' toolkit to help you effectively prepare for making decisions about medical treatment options by asking the right questions of your healthcare team. It considers topics for before, during, and after appointments, using past, present, and future medicines, medical tests, and surgeries.
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Content ArticlePatients who are actively involved in their health and health care tend to have better outcomes and care experiences and, in some cases, lower costs. Implementing patient and family engagement strategies has led to fewer hospital-acquired infections, reduced medical errors, reduced serious safety events, and increased patient satisfaction scores. After reviewing best practices and evidence-based strategies for increasing patient and family engagement in direct care settings, hospitals, health systems, the community, and through policy, the Task Force on Patient and Family Engagement developed and refined a set of 16 recommendations that will catalyse patient and family engagement and improve health and health care systems in North Carolina.
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Content ArticleStudies comprehensively assessing interventions to improve team communication and to engage patients and care partners in intensive care units are lacking. This study from Dykes et al. examines the effectiveness of a patient-centered care and engagement program in the medical ICU. They found implementation of a structured team communication and patient engagement program in the ICU was associated with a reduction in adverse events and improved patient and care partner satisfaction.
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Content ArticleThe NHS is full of dedicated staff who, at a one-to-one level with patients, offer deeply personal and compassionate care. But too often the system as a whole seems institutionally deaf to the patient voice. This report from the Patient Experience Library explores the reasons for that. It shows how the NHS – at an institutional and cultural level – fails to take patient experience evidence seriously enough. It calls for a few simple and entirely feasible steps that would strengthen evidence-based practice and ensure that the patient voice is better heard.
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Content ArticlePEP Health is a social media listening tool which offers a radical new approach to collecting and analysing the views of patients on the health services they encounter. The platform delivers comprehensive real-time reporting of what patients really think about their care and provide actionable insights that can function as a board assurance tool and provide feedback to inform operational decisions. This report explores some of the key findings from PEP Health data on trends and variation in patient experiences across hospitals in England and derives insights and recommendations that can lead to improvement in care.
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Content ArticleInvolving patients in decisions about their care is of fundamental importance to effectively managing long-term conditions and improving patient safety. In 2020, AbbVie brought together patient groups, health and social care services, national organisations, policymakers, and parliamentarians to a Showcase at Westminster celebrating exemplar projects that promote shared decision making practices from across the country. The link below contains the posters from the projects showcased on the day, showcasing the creative work taking place across the UK in the shared decision-making space.
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Content ArticleInformation to help people make the right decisions about their general health and treatment against perceived risk of COVID-19 infection has been a key concern of Patient Information Forum (PIF) members throughout the pandemic. The Covid Choices survey was developed with a collaborative group of expert patients and other partners. More than 800 people responded to the survey and made more than 1000 detailed free text comments expressing their concerns. The vast majority of people had a health condition or cared for someone who did. Around 60% said their long-term condition put them at risk of infection and just under half were shielding. Responses represented people with a wide range of health conditions.
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Content ArticleExternal Lead Advisor to WHO’s Patients for Patient Safety network, Margaret Murphy, telling the story of her son’s death and how she has used this experience to improve how healthcare organisations work with those who suffer patient harm.
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Content ArticleIn this Patient Safety Movement Foundation webinar, Dr Donna Prosser, Chief Clinical Officer at the Patient Safety Movement Foundation, is joined by a multidisciplinary group of patient advocacy experts and clinicians to understand the various meanings of the term 'patient advocacy' and to evaluate how an empowered patient can improve healthcare delivery, experience, and outcomes for all involved. The group discuss the history and current state of patient advocacy, and propose recommendations regarding the extent to which various healthcare disciplines and patients and their families can improve patient advocacy.
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Content ArticleThis statement has been developed and signed by several long COVID patient groups. It outlines a number of their concerns regarding approaches to treatment, in particular, the fear that psychological treatments will be favoured over clinical investigation.
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Content ArticleThis is a book written to celebrate the humanity of people, and to share experiences of what brilliant care and support can look like for families with learning disabled or autistic children and adults. Sara Ryan steers clear of jargon and 'doublespeak' to conjure authentic experiences of families. Speaking with families and professionals, she conveys the love, laughter and joy which binds families and the harsh realities many face; of separation from loved ones, substandard care and frustration and helplessness in the face of inflexible services. From their experiences, Sara looks to capture those pockets of brilliance that families have encountered, and which outstanding practitioners have pioneered, for us all to learn from. We know so much about what support and services should look like in order to enable flourishing lives - this book aims to help families and professionals to achieve it, together.
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Content ArticleIn this blog, Patient Safety Learning sets out its response to NHS England and NHS Improvement’s draft Framework for involving patients in patient safety. We commend the intention and share thoughts on our perspective on this important patient safety issue. We make proposals for how to strengthen patient engagement and co-production.
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Content ArticleCOVID-19 brings an enormous set of challenges to hospitals around the world. One challenge in particular, the current mental state of healthcare workers, is now taking centre stage as clinicians face delivering difficult news to patients and their families about what is happening, what to expect, and how to prepare. ECRI and RLDatix came together to deliver a special webcast led by Dr Tim McDonald, an expert on Communication and Optimal Resolution (CANDOR). A recording of the webinar can be viewed below.
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Content ArticleFor 25 years, the Agency for Healthcare Research and Quality (AHRQ) has developed evidence-based surveys to support healthcare professionals in assessing and improving patients’ experiences with the healthcare system. The range of Consumer Assessment of Healthcare Providers and Systems (CAHPS®) surveys means that patients can measure their experiences with: Providers, such as medical groups, practice sites, and individual clinicians. Care delivered in different settings, including hospitals, dialysis centers, and nursing homes. Care for specific health conditions. Health plans and related programmes. The purpose of the CAHPS programme is to advance our scientific understanding of patient experience with healthcare.
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Content Article
Tim Stephens is a researcher at Queen Mary University of London and Barts Health NHS Trust and a qualified intensive care nurse. He is currently working with a large team of clinicians, patients and scientists to investigate how older people make decisions about having major surgery. In this blog, Tim talks about shared decision-making, individual impact and the need for better data to help clinicians quantify risk.- Posted
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