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Showing results for tags 'Patient / family support'.
Found 285 results
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Content ArticleThis framework produced by the Royal College of Paediatrics and Child Health (RCPCH) aims to improve how healthcare organisations recognise and respond to children at risk of deterioration. A safer system can work in partnership with families and patients, develop a patient safety culture and support ongoing learning. The framework covers: Patient safety culture Partnership with families Recognising deterioration Responding to deterioriation Open and consistent learning Education and training
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Content ArticleThis webpage provides information about patient rights and responsibilities while under the care of John Hopkin's Children's Center. It includes the following resources and guides: Patient and family handbook Preparation Pain management Your child’s care team Rooms Meals Visitation Patient safety Parent and family journal
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Content ArticleThe aim of this study in Australian Critical Care was to develop an evidence-based paediatric early warning system for infants and children, that takes into consideration a variety of paediatric healthcare contexts and addresses barriers to escalation of care. The development process resulted in an agreed uniform ESCALATION system incorporating a whole-system approach to promote critical thinking, situational awareness for the early recognition of paediatric clinical deterioration as well as timely and effective escalation of care. Incorporating family involvement was an important and new component of the system.
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Content ArticleThis study in Health Expectations aimed to identify barriers and facilitators to implementing a parent escalation of care process: Calling for Help (C4H). Guided by the Theoretical Domains Framework, the authors carried out audits, semi-structured interviews and focus groups in an Australian paediatric hospital where a parent escalation of care process was introduced in the previous six months. The authors found that although there was a low level of awareness about C4H in practice, there was in-principle support for the concept. Initial strategies had primarily targeted policy change without taking into account the need for practice and organisational behaviour changes.
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Content ArticleThis Australian study in Health Expectations aimed to evaluate the implementation of 'Calling for Help'(C4H), an intervention for parents to escalate care if they are concerned about their child's clinical condition. The study used a convenience sample of 75 parents from inpatient areas during the audit, and the authors held interviews with ten parents who had expressed concern about their child's clinical condition and five focus groups with 35 ward nurses. The authors found that there was an improvement in the level of parent awareness of C4H, which was viewed positively by both parents and nurses. To achieve a high level of parent awareness in a sustainable way, a multifaceted approach is required and further strategies will be required for parents to feel confident enough to use C4H and to address communication barriers.
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Content ArticleThis document outlines the standard operating procedure (SOP) adopted by University Hospitals Bristol NHS Foundation Trust, relating to parental involvement in escalation of clinical care for acutely ill children. It aims to clarify the process of empowering parents to escalate concerns if they are worried about the clinical condition and care being delivered to their child, or themselves if they are a patient. It also aims to ensure accurate and appropriate information is provided to parents on admission (elective and acute) regarding how they should escalate concerns about the care their child is receiving.
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Content ArticleThis standard operating procedure (SOP) for Leicester Royal Infirmary Children's Hospital outlines the process to be followed at times of increased pressure on services caused by increased acuity or activity in the pathway for non-elective care.
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Content ArticleThis document outlines the Escalation Policy for Leicester Children’s Emergency Department. It identifies five particular factors that lead to difficulty within the department. Acknowledging that these issues can be closely interlinked and may not occur in isolation, it provides practical way to deal with these factors to try and prevent secondary events. Staffing Overcrowding Inflow Outflow Acuity
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Content ArticleIn this blog, Melanie Ottewill, National Investigator and Senior Investigation Science Educator at the Healthcare Safety Investigation Branch (HSIB), explains how HSIB's work is supporting the NHS to adopt a systems approach to local safety investigations through the Patient Safety Incident Response Framework (PSIRF). She looks at how PSIRF promotes a proportionate response to patient safety incidents, highlights the importance of organisations developing patient safety incident response plans and explores how PSIRF promotes compassionate involvement in patient safety incidents. She also highlights guidance to support staff in planning PSIRF implementation.
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NHSE - Commitment to carers
Patient-Safety-Learning posted an article in NHS England
With 1.4 million people providing 50 or more carer hours a week for a partner, friend or family member, carers make a significant contribution to society and the NHS. NHS England has developed 37 commitments to carers spread across eight key priorities, that have been developed in partnership with carers, patients, partner organisations and care professionals. Some of the areas covered include: raising the profile of carers education and training person-centred coordinated care primary care This webpage contains information on: Supporting carers in general practice: a framework of quality markers How to identify and support unpaid carers Supporting commissioners End of year progress summary -
Content ArticleIn this Guardian article, parents reveal their heart-wrenching struggles to access NHS services, which have sometimes been too late to help their children.
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Content ArticleMaking Families Count aims to improve outcomes for families affected by serious harm and traumatic bereavements in health and social care services. They offer peer support, training, information, advice and guidance to families who have suffered a traumatic bereavement. They also provide independent training in the importance of good family engagement for NHS Trusts, public health and social and care organisations. The training includes working with families after serious incidents, developing Family Liasion work, good engagement throughout treatment and developing resilience for professional staff. The charity's vision is that the NHS, social care and other public bodies will make families count by ensuring that families are integral to health and social care investigations, leading to better investigations, better learning, safer services and the right support for families.
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HypoBaby blog - The beginning… Diagnosis (20 August 2018)
Patient-Safety-Learning posted an article in Diabetes
The HypoBaby blog is written by the parents of Noah, a young boy who was diagnosed with type 1 diabetes as a baby. In this post, they describe Noah's diagnosis and why it took so long to work out that it was diabetes causing his symptoms. Noah ended up in diabetic ketoacidosis (DKA) and needed emergency treatment. They highlight the importance of being aware of the symptoms of type 1 diabetes, stating that if they had been aware of the symptoms, he may have been diagnosed sooner. -
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AvMA case study: Stuart's story
Patient-Safety-Learning posted an article in Risk management and legal issues
This article tells the story of Stuart, who died as a result of medication errors while recovering from surgery at a private hospital in January 2013. Stuart had dystonia, an incurable condition that he managed by taking a careful balance of three medications. Following surgery to remove his larynx, the private neurological centre where he was staying ran out of clonazepam, a medication Stuart needed to control his dystonia. Stuart became very unwell, but instead of seeking advice from a doctor, the nurses treated his symptoms as a UTI. on 26 December he was found unresponsive in bed and rushed to ICU at a local hospital. but died a few weeks later from sever kidney and muscle damage. An inquest into Stuart's death found that the lack of clonazepam had caused an increase in Stuart’s muscle spasms, eventually leading to severe muscle and kidney damage. He then developed bronchopneumonia, which was the final factor in his death. -
Content Article
AvMA case study: Chloe's story
Patient-Safety-Learning posted an article in Risk management and legal issues
This article tells the story of two-year-old Chloe, who died after hospital staff failed to recognise that she had meningitis, sending her home after her parents first took her to A&E. The NHS Trust carried out an internal investigation which identified many areas where care should have been better and set out a range of recommendations for improving care of children in A&E in the future. The Trust only apologised to the family after an out-of-court settlement was made. -
Content ArticleTransitions of care between hospital departments are necessary, but they may disrupt care coordination, such as discharge planning. Family carers often serve as liaisons between the patient and healthcare professionals, but they frequently experience exclusion from care planning during intrahospital transfers (IHTs). This has the potential to decrease their awareness of patients’ clinical status, postdischarge needs and carer preparation. This study aimed to explore family carers’ perceptions about IHTs, patient and carer ratings of patient discharge readiness and carer self-perception of preparation to engage in at home care.
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Content ArticleSepsis is the leading killer of infants and children worldwide and kills more than 250,000 Americans each year. On 1 April 2012, 12-year-old Rory Staunton died from sepsis after grazing his arm while playing basketball at school. This account by Rory's parents Orlaith and Ciaran Staunton describes the multiple errors by the school and different healthcare professionals that led to their son's death - from the wound not being cleaned by the school, to Rory's paediatrician missing key sepsis warning signs and the ER's failure to read Rory's blood test results that showed he was seriously ill. The article also includes a link to a short video where Orlaith and Ciaran describe what happened to Rory.
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Content ArticleThe gap in healthy life expectancy is being driven by the increasing numbers of people managing a long-term condition (LTC) and, increasingly more than one – known as multi-morbidity. This situation affects a higher proportion of the population facing systemic discrimination and marginalisation, and those experiencing higher levels of deprivation. This report from the Chartered Society of Physiotherapy raises awareness of health inequities in rehabilitation and recovery services across the UK
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Content ArticleThere are large numbers of patients with olfactory disturbance in the UK and shortfalls in assessment and support amongst mainstream practice in both primary and secondary care leading to significant quality‐of‐life impairment and potential missed diagnoses. The aim of this study from Erskine and Philpott was to determine the key themes which can be identified from the accounts of anosmia sufferers and to identify important areas to target for future research or service development.
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Prostate Cancer UK: Best practice pathway
Patient Safety Learning posted an article in Men's health
Developed to support healthcare professionals at the front line of prostate cancer diagnosis and care, Prostate Cancer UK's Best Practice Pathway uses easy to follow flowcharts to guide healthcare professionals deliver best practice diagnosis, treatment and support. It sets out how to achieve an early diagnosis in men at higher than average risk of the disease. It also supports use of the most up-to-date, cutting-edge research-led innovations - so that healthcare professionals are equipped and supported to provide the very latest evidence-based best practice to their patients. -
Content ArticleExternal Lead Advisor to WHO’s Patients for Patient Safety network, Margaret Murphy, telling the story of her son’s death and how she has used this experience to improve how healthcare organisations work with those who suffer patient harm.
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Independent Living: Keeping in touch (14 October 2020)
Patient Safety Learning posted an article in Blogs
In this article for Independent Living, Philip Anderson reflects on the significance of touch, and possible impact of COVID-19 for those who are deprived of touch. Philip is an advocate for barrier-free accessibility, equality, and inclusiveness for persons with disabilities. He is involved in several initiatives in the NHS, and with various disability, and accessibility advisory groups. -
Content Article"Healthcare systems need to act in equal measures to both enable the recovery of patients and families it has harmed, and to protect future patients.... Yet providing what is set out in the Duty of Candour to harmed patients has not been framed as providing care to make sick or injured people better and/or to minimise their pain and suffering." In this blog, Jo Hughes explains why we need to reframe the Duty of Candour and explores what needs to change.
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First, Do No Harm — But in a Pandemic, How? (25 September 2020)
Patient Safety Learning posted an article in Blogs
As hospitals in the US braced for the onslaught of coronavirus cases this past spring, they radically restructured and reorganised to help ease the burden on staff and minimise transmission within the hospital. Along with ceasing elective surgeries and transforming floors to allow for care of intubated patients, visitors were forbidden from entering hospitals with few exceptions. Now, several months removed from the peak of the pandemic, a limited number of visitors are allowed at a time. While limiting visitors allows some additional element of physical distancing, how much does a ban actually help our patients, and how much does it hurt them — especially mothers-to-be in the vulnerable perinatal period? Is it possible to limit visitor-spread virus while allowing our patients the dignity and the peace of companionship during one of the most stressful periods of their lives? In this blog, Byrne and Goldfarb look at the consequences of limiting visitors during the pandemic and considers the negative effect this may have on the health of the patient. -
Content ArticleWith the National Learning from Deaths Programme Board stalled, the bereaved families who were to be involved in its work have once again been left harmed and without any answers, write Dr Josephine Ocloo and David Smith in this HSJ article.
