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Showing results for tags 'Patient / family involvement'.
Found 543 results
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Content Article
Oliver's Campaign
Patient Safety Learning posted an article in Learning disabilities
Paula McGowan is a Multi Award-winning Activist who following the preventable death of her teenage son Oliver, has dedicated her life to campaigning for equality of Health and Social Care for Learning Disabled people and Autistic people. She is an Ambassador for several charities and organisations. Paula launched a parliamentary petition asking for all doctors and nurses to receive mandatory training in Learning disability and Autism awareness. She ferociously argued that autism must be included. On 22 October 2018, her petition was debated and gained cross party support. As a direct consequence Government announced that all NHS and Social Care Staff would receive The Oliver McGowan Mandatory Training in Learning Disability and Autism. On the Oliver's Campaign website you can find support, resources and blogs. -
Content ArticleThis report from the AHSN Network shines light on ways we can do more to improve safety for residents of care homes. The publication showcases over 30 examples of projects delivered by England’s 15 Patient Safety Collaboratives (PSCs) and the Academic Health Science Networks (AHSNs) which host them. They include case studies in medicines safety, dementia, monitoring and screening, and workforce development.
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Content Article
Patient Experience Library: quarterly magazine
Patient Safety Learning posted an article in Patient-centred care
The Patient Experience Library provides the latest and best evidence on patient experience and patient/public involvement. This quarterly Patient Experience magazine offers thought-provoking comment alongside the best and latest research. Download the latest issue below. -
Content ArticleThis masterclass, facilitated by Peter Walsh, Chief Executive Action against Medical Accidents (AvMA), and Carolyn Cleveland, Founder and Owner C & C Empathy Training Ltd, will provide participants with an in-depth knowledge of what needs to be done to comply with the duty of candour; clarify ‘grey areas’ and provide guidance on dealing with difficult situations which may arise. It will provide participants with an understanding of good practice in implementing the duty and, in particular doing so in a meaningful way with empathy, to not only comply, but to work with patients and loved ones in a way that puts the emotional experience at the heart of communication. Staff with responsibility for implementing the duty of candour and responsible for quality, safety, clinical governance, safety investigations, complaints or CQC compliance, patient experience and executive teams would benefit from attending this one day masterclass. For more information see the flyer attached. The next events are on the 18 July, 17 October and 12 December.
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Content ArticleThe Australian health care system includes a national organisation representing health care consumers and equivalent organisations in most states and territories. There are several disease-specific patient organisations, as well as formalised networks advocating for greater patient involvement in health technology assessment and research. This signals a system that sees a place for consumer insights: a system that is on a journey of maturing the way in which it seeks to involve consumers in decision-making. This article explores patient leadership, recognising it as the next level of engagement, highlighting the value and impact of incorporating the experience of patients at all levels of the health system and policy decision-making, and recognising the opportunity for consumers to become leaders.
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Content ArticleThis short animated video explores the issue of prioritising equality in shared decision making, to ensure that all patients' and family members' values are sought and incorporated in treatment decisions.
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Content ArticleThis article by the US Centers for Disease Control and Prevention (CDC) provides advice for patients about steps they can take to help avoid catching healthcare-associated infections, which can ultimately lead to sepsis and even death. It outlines ten things patients and their families can do to protect themselves or their loved ones while receiving medical care. Speak up Keep hands clean Ask each day if your central line catheter or urinary catheter is necessary Prepare for surgery Ask your healthcare provider, “Will there be a new needle, new syringe, and a new vial for this procedure or injection?” Be antibiotics aware Watch out for deadly diarrhoea (aka Clostridium difficile) Know the signs and symptoms of infection Get vaccinated Cover your mouth and nose
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Content ArticleThis report by the Patient Experience Library explores the reasons why the healthcare system in the UK has failed to listen to and learn from patient experience. It highlights how the NHS – at an institutional and cultural level – fails to take patient experience evidence seriously enough. It also identifies steps that would strengthen evidence-based practice and ensure that the patient voice is better heard.
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Content ArticleThe NHS is looking for patients, carers and staff to talk about their positive or negative care experiences with participants on NHS Leadership Academy programmes. Being an experience of care partner is a voluntary role.
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Content ArticleThis editorial in the Journal of Patient Safety & Risk Management discusses the significant role patients and their families can have in improving patient safety. The author argues that having a patient present shifts the conversation to the patient perspective, results in a kinder and more respectful tone and promotes a greater urgency to find solutions. He describes patient engagement and empowerment as "perhaps the most powerful tool to improve patient safety" and discusses the significance of the World Health Organization's Patients for Patient Safety program (PFPS).
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Content ArticleThis toolkit from the Department of Veterans Affairs (VA) National Center for Health Promotion and Disease Prevention contains tools that help promote patient engagement in healthcare settings. It was developed in consultation with VA staff and veterans and is based on the Patient Aligned Care Team (PACT) model.
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Content ArticleReflecting on the impact of restrictions placed on families and visitors to hospitals and care homes during the Covid-19 pandemic, this article, published in the BMJ, argues that families must be recognised and valued as partners in patient care.
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Content ArticleCare home residents are particularly vulnerable to patient safety incidents, due to higher likelihood of frailty, multimorbidity and cognitive decline. However, despite residents and their carers wanting to be involved in safety initiatives, there are few mechanisms for them to contribute and make meaningful safety improvements to practice. This study aimed to develop a measure of contributory factors to safety incidents in care homes to be completed by residents and/or their unpaid carers.
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Content ArticleThis policy is for patients and the public, and for NHS England staff. It sets out NHS England’s ambition of strengthening patient and public participation in all of its work, and how it intends to achieve this. The term ‘patients and the public’ includes everyone who uses services or may do so in the future, including carers and families. People who use health and care services may be referred to as ‘experts by experience’. NHS England recognises and values what they can contribute to its work as a result of their lived experience.
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Content ArticleShared decision making describes the way in which patients and their healthcare providers work together to decide treatment, management or self-management support goals. It includes sharing information about a patient’s options and preferred outcomes. The goal is for patient and professional to agree treatment, or no treatment. This webinar hosted by The Patients' Association discusses what makes shared decision making effective, barriers for staff and patients and research on ways to improve the practice.
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Content ArticleThis national learning report from the Healthcare Safety Investigation Branch (HSIB) will highlight the themes emerging from their contact with families during their patient safety investigations. It is due to be published in spring 2020. HSIB's national learning reports describe common themes and findings that come out of their national investigation programme and their maternity investigation programme. The information in these reports is used to inform future HSIB investigations or programmes of work.
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Content ArticleThis report by the Commission for Health Improvement (CHI) sets out what the CHI has found out about the involvement of patients and the public from more than 300 inspections and from its research into the topic. It discusses what CHI looks for when assessing patient, service user, carer and public involvement (PPI), examples of how organisations are tackling this agenda and messages for the NHS in taking PPI forward.
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Content Article
Our son’s final days
Claire Cox posted an article in Patient stories
NHS investigators are to meet the family of a young, autistic man - left starving and desperately thirsty in hospital while waiting for a delayed operation. Mark Stuart spent five days in agony and died following a catalogue of failings by NHS staff. His parents say they have been battling for answers for four years. These are the harrowing events that came days before the needless, avoidable death of Mark Stuart. Mark was a young man with autism.
