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Showing results for tags 'Patient / family involvement'.
Found 543 results
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Content ArticleIn this study in BMC Pregnancy and Childbirth, the authors examined the views of men from Uganda currently living in the UK of an educational board game used to promote engagement in maternal health. Men can play a significant role in reducing maternal morbidity and mortality in low-income countries and maternal health programmes are increasingly looking for innovative interventions to engage men to help improve health outcomes for pregnant women. The study found that men were receptive to the board game and reported that easy-to-understand visual aids and messages helped change their perspective. Participants suggested that the game needs to be adapted to the local context for use with men in rural Uganda.
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Content ArticleIn this podcast, Gill Phillips speaks to Dr Alice Ladur who has used the Whose Shoes?® board game in her PhD project in Uganda, working with men to bring about culture change and improve maternal outcomes. Gill developed Whose Shoes?® as a tool to allow people to 'walk in other people's shoes'. Through a wide range of scenarios and topics, Whose Shoes?® helps groups explore many of the concerns, challenges and opportunities facing the different groups affected by the transformation of health and social care.
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Content ArticleThe purpose of this investigation by the Healthcare Safety Investigation Branch (HSIB) is to help improve patient safety in relation to recognition of the acutely ill infant and child, recognising the difficulty in distinguishing between simple viral illnesses and life-threatening bacterial infections in very young patients. This Healthcare Safety Investigation Branch investigation reviewed the case of Mohammad, a baby who had become unwell and was taken to an emergency department by ambulance following a call to NHS 111. He arrived at 8.04pm and was considered to have a mild viral illness, subsequently being transferred to a paediatric observational ward, and discharged at 11.45pm with a diagnosis of likely bronchiolitis. At approximately 3.40am his mother contacted the ward as his condition worsened, which resulted in a 999 call. The ambulance crew did not consider that Mohammad was seriously ill so did not conduct a ‘blue light’ emergency transfer to hospital. Mohammad was admitted to the emergency department at approximately 4.40am and suffered a respiratory and then cardiac arrest at 5:28am, with attempts to resuscitate unsuccessful and stopped at 6:10am. Mohammad died of septicaemia caused by meningococcus (serogroup B) bacteria.
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Content ArticleThe People’s Covid Inquiry, chaired by the human rights lawyer Michael Mansfield QC, began in January 2021 to learn lessons quickly after the government rejected calls for a public inquiry. The Government was informed of the inquiry on 23 February 2021 and invited to take part. No response was received. The first session of the People’s Covid Inquiry began on 24 February and convened in live sessions fortnightly until 16 June 2021. The Inquiry took evidence over nine sessions from over 40 witnesses including international and UK experts, frontline workers, bereaved families, trade union leaders, and representatives of disabled people’s and pensioners’ organisations.
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Content ArticleThe James Lind Alliance (JLA) Guidebook is aimed at people interested in the JLA’s priority setting process: namely, patients and their carers, clinicians and the organisations that represent them. It is a step-by-step guide to establishing and managing a Priority Setting Partnership (PSP) and the principles behind it. PSPs bring patients, their carers and clinicians together to identify and prioritise unanswered questions (or as they can sometimes be referred to ‘evidence uncertainties’) in specific conditions or areas of healthcare, for research, using JLA methods, The Guidebook is intended to help PSPs work effectively using established methods to ensure credible and useful outcomes.
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Content ArticlePatients falling (falling, slipping) is considered one of the most important patient safety risks in the elderly, in health institutions (hospitals, health centres..., etc.) in particular, and more generally in daily life activities at home, out shopping, etc. In this article I call for a cultural transformation for avoiding falls: from a culture of patient safety that focuses on falls within health facilities to a wider societal culture that must be adhered to by all members of society to prevent the risks of falling in the elderly and other groups at high-risk (including those with specific diseases, disabilities due to congenital causes, accidents...).
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Content Article
In this interview, Dr Alice Ladur talks about her experience of using the Whose Shoes? approach to increase male partners’ involvement in maternity care in Uganda. Whose Shoes? is a co-production tool that uses a board game to help participants share experiences and reflect on their experiences of services. Alice describes the importance and impact of involving partners and families in antenatal care and highlights the value of adapting interventions to specific cultures and locations. -
Content ArticleThis study in Patient Education and Counseling aimed to systematically review parental perceptions of shared decision-making (SDM) in neonatology, and identify barriers and facilitators to implementing SDM. The study identified the following key barriers to SDM: Emotional crises experienced in the NICU setting Lack of medical information provided to parents to inform decision-making Inadequate communication of information Poor relationships with caregivers Lack of continuity in care Perceived power imbalances between HCPs and parents. It also identified the following key facilitators for SDM: Clear, honest and compassionate communication of medical information Caring and empathetic caregivers Continuity in care Tailored approaches that reflected parent’s desired level of involvement.
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Content ArticleCOVID-19 has meant people have died the ultimate medicalised deaths, often alone in hospitals with little communication with their families. But in other settings, including in some lower income countries, many people remain undertreated, dying of preventable conditions and without access to basic pain relief. The unbalanced and contradictory picture of death and dying is the basis for the Lancet Commission on the Value of Death. Drawing on multidisciplinary perspectives from around the globe, the Commissioners argue that death and life are bound together: without death there would be no life. The Commission proposes a new vision for death and dying, with greater community involvement alongside health and social care services, and increased bereavement support.
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Content Article
Visiting restrictions and the impact on patients and their families: a relative's perspective
Anonymous posted an article in By patients and public
The pandemic has shone a stark spotlight on so many inequities and inconsistencies in access to health and social care. Unfortunately, many of these inequities were already there and so, in some respects, its nothing new. In this blog, I want to draw attention to how visiting restrictions can result in worse outcomes for patients and their families. I will focus mainly on the needs of older adults in hospital or care, and those with dementia, because that has been my own experience. But these restrictive practices have affected so many groups: among them, those with mental health conditions and those with learning and behavioural difficulties. -
Content ArticleThis campaign from Kit Tarka Foundation aims to remind anyone coming into contact with a young baby to remember their T-H-A-N-K-S: Think Hands And No Kisses. Young babies are particularly susceptible to infections, but many people are unaware of the risks and what they can do to reduce them.
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Content Article
Statement from Sajid Javid, Secretary of State for Health and Social Care, to the House on establishing a Special Health Authority for Independent Maternity Investigations. -
EventThis virtual masterclass will build confidence in compassionately engaging and involving families and loved ones to work within the requirements of PSIRF and the Complaints Standards Framework. But more than this, the masterclass will support staff to go beyond compliance to understand the issues and emotional component on a deeper level; to have real authentic engagement and involvement with patients and families. New frameworks such as PSIRF are now in place, but how do we not only comply with these, but go beyond compliance to have real authentic compassionate engagement and involvement with patients, families and indeed staff to make a real positive difference? Connecting new knowledge with emotions can really support long term learning, which is an important part of this masterclass. Knowing things may have gone wrong can feel a heavy burden and a complex emotional situation to be managing. Often, we avoid visiting difficult emotions in others, as well as ourselves, because we don’t feel confident or skilled, or we feel fearful of not doing it perfectly. This one-day masterclass will look at the new PSIRF and the Complaints Standards Framework and through real life content, bringing the human focus for the patients, loved ones, and indeed staff to the forefront. It will support staff to explore what compassionate engagement looks like, feels like, and how to communicate it authentically and meaningfully. In a supportive and relaxed environment, delegates will have the opportunity to gain in depth knowledge of the emotional component, relate to, analyse and realise the significance of and believe in their own abilities in creating practices that not only support the PSIRF but go beyond compliance to be working in a way that supports gaining an optimum outcome for patients, families and staff, in often a less than optimum situation. Key learning objectives: Feel, analyse, and explore the presence and absence of compassionate engagement within life, trauma, and a healthcare incident and how empathy is the gateway to compassion. Seeing perspectives and understanding emotional motivations and the emotional component recognising vulnerability in others and self. Seeing the bigger picture and having an enquiring mind to understand the story and how the ‘Funnel of Life’ can impact on our ability to engage. Build confidence in the positive impact of compassionate engagement and really being authentically interested in the emotional component to be able to create an optimum outcome in often a less than optimum situation. Explore and have a good grasp of how internal unconscious belief systems, can link through to the outcomes we achieve. We know what works with compassionate engagement, but why do we so often struggle? Explore and analyse biases, judgments, and how a lack of compassionate engagement not only has the potential to cause psychological harm, but can prevent optimum outcomes for the organisation. Realise the significance of authenticity rather than feeling fearful of not doing things perfectly. Examine where can we get emotional information from to support us, even if we are not aware we are doing it! Identify the importance of an enquiring mind and a hypothesis as we try and understand the story that we are aiming to compassionately engage with. Develop understanding of Safeguarded Personal Resolution (SPR ®) to formulate compassionate engagement under PSIRF and the Complaints Standards Framework. Develop awareness on personal wellbeing and resilience. Register hub members receive a 20% discount. Email info@pslhub.org for discount code.
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Event
HSIB Safety Investigations Conference 2023
Patient Safety Learning posted an event in Community Calendar
The annual Healthcare Safety Investigation Branch (HSIB) conference agenda will cover: A focus on patient and family engagement. Sharing learning from HSIB national investigations – what has been learnt and how it can help support and improve local investigation practice. HSIB's maternity investigation programme work with families and trusts. This includes how HSIB implements learning from investigations and where the opportunities are to influence change. HSIB's work on Safety Management Systems. How HSIB's education programme is sharing learning to develop and improve local safety investigations. • An overview of HSIB's international work. Breakout sessions to share knowledge. You will also hear how the HSIB will form into the Health Services Safety Investigations Body and the Maternity and Newborn Safety Investigations (MNSI) function and how this may impact you. Register -
EventThis conference focuses on patient involvement and partnership for patient safety including implementing the New National Framework for involving patients in patient safety, and developing the role of the Patient Safety Partner (PSP) in your organisation or service. The conference will also cover engagement of patients and families in serious incidents, and patient involvement under the Patient Safety Incident Response Framework published in August 2022. For further information and to book your place visit: https://www.healthcareconferencesuk.co.uk/conferences-masterclasses/patient-involvement or email kate@hc-uk.org.uk. There are 5 free places for hub members available. Email info@pslhub.org for discount code. Follow on Twitter @HCUK_Clare #PatientPSP2023
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EventBaby Lifeline has announced that their fourth annual National Maternity Safety Conference will take place on Thursday 21st September 2023 at the Hilton Metropole Hotel in Birmingham. Once again it will be focussing on learning together for a safer maternity future, building on the overwhelming success of the previous three conferences. Baby Lifeline is always keen to showcase best practice in healthcare and are pleased to welcome poster presentation abstracts again this year. They are particularly keen to hear about maternity service quality improvement measures which speak to one or more of the following themes: Listening to families and staff Promoting safety culture Teamworking Reducing mortality & morbidity. Register
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EventuntilThis Westminster conference will discuss next steps for improving health outcomes for children and young people in England. Delegates will assess the future of the new network of Family Hubs, with discussion on improving the coordination and accessibility of children’s care, as well as shifting focus towards early intervention and prevention, and improving the provision of support to families. It will be an opportunity to review progress on and next steps for The best start for life: a vision for the 1,001 critical days, which looks at providing support for local authorities in addressing the needs of children and their families, and consider the future of children’s health data. Further sessions will examine measures that were included in the Plan for Patients, which sets out to improve access to children’s mental health services, and enhance funding and regulation to reduce care backlogs. Overall, areas for discussion include: Family Hubs: progress made so far in implementation - addressing challenges in the transition to the family hub service model the role of community support - delivering long-term improvements to the lives of families - improving engagement and communication with families utilising the Family Hubs to improve coordination across support services - developing and sharing best practice across local authorities. Impact of poverty and cost of living pressures: latest thinking on approaches to mitigating the impact of poverty on child development understanding the economic pressures on families - addressing their impact children’s health implementing early intervention and prevention programmes - applying lessons learnt from the Surestart programme. Developing child health services: addressing waiting times and care backlogs - returning service provision to pre-pandemic levels. next steps for regulation and funding - the role of integrated care systems in supporting local needs. Mental health support: developing the community-based offer for mental health support - enabling service coordination meeting the increased demand for services - evaluating resource allocation early years development: progress made following publication of the final Leadsom Review - acting on the recommendations - the future for health visiting and child development checks. Digital health and data sharing: opportunities and issues arising from the use and sharing of child health data - increasing the quality of NHS records to improve outcomes - faster identification of health and social concerns latest thinking on data sharing practices - evaluating digital security provisions, Register
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EventThis conference focuses on recognising and responding to the deteriorating patient and ensuring best practice in the use of NEWS2. The conference will include National Developments including the recommendations on NEWS2 and Covid-19, and implementing the recommendations from the Healthcare Safety Investigation Branch Report Investigation into recognising and responding to critically unwell patients. The day will include practical case study based sessions on identifying patients at risk of deterioration, improving practice in patient observations, the role of human factors in responding to the deteriorating patient, improving escalation and understanding success factors in escalation, sepsis and Covid-19, involving patients and families in recognising deterioration, using clinical judgement, and improving the communication and use of NEWS2 in the community, including care homes, and at the interface of care. The Recording of NEWS2 score, escalation time and response time for unplanned critical care admissions is now an NHS CQUIN goal. For further information and to book your place visit https://www.healthcareconferencesuk.co.uk/conferences-masterclasses/deteriorating-patient-summit or email kate@hc-uk.org.uk. hub members receive a 20% discount. Email: info@pslhub.org Follow on Twitter @HCUK_Clare #DeterioratingPatient
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HoPE Storytelling Festival - Bounce Back Boy
Sam posted an event in Community Calendar
untilJosh Cawley was 22 when he finally died from catastrophic injuries inflicted on him by his birth parents. These resulted in his inability to speak or to move from his wheelchair, but it didn’t dampen his positive and cheeky spirit. This is his story. Josh was adopted by Lynn Cawley, a campaigning Methodist Minister whose devotion to Josh ensured that he lived his short life as positively and ‘normally’ as possible. Lynn couldn’t just be his loving mum though. She was expected to be his palliative care consultant, his nurse, his campaigner for compensation and she had to fight the ongoing battles with the system .The play explores their real story: having to accept that Josh’s needs were too ‘complex’ for the hospice; and dealing with Josh’s transition from boy, to teenager to adult - and being his full-time interpreter. .Professional actor Joseph Daniel-Taylor performs the play and gives the voice to Josh - the voice that he never had. Register -
EventPRSB is hosting a live podcast which will feature a vibrant discussion on the importance of human connection and personalised approach in providing care. Attendees will hear from Sarah Woolf, Movement Psychotherapist, who will talk about her own experience of how personalised care helped her recover from her condition, not only physically, but also emotionally and mentally. Sarah had the chance to describe her story in an article for the BMJ. The podcast will provide the opportunity for Q&A, and attendees will also be encouraged to share their own experiences and how they think personalised care can meet people's needs and expectations of care. The event is free to attend and everyone is welcome to join. Register
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EventThis conference focuses on patient involvement and partnership for patient safety including implementing the New National Framework for involving patients in patient safety, and developing the role of the Patient Safety Partner (PSP) in your organisation or service. The conference will also cover engagement of patients and families in serious incidents, and patient involvement under the Patient Safety Incident Response Framework published in August 2022. This conference will enable you to: Network with colleagues who are working to involve patients in improving patient safety. Reflect on patient perspective. Understand the practicalities of recruiting Patient Safety Partners. Improve the way you recruit, work with and support Patient Safety Partners, Develop your skills in embedding compassion and empathy into patient partnership. Examine the role of patients under the new Patient Safety Incident Response Framework (PSIRF). Understand how you can improve patient partnership, family engagement and involvement after serious incidents. Identify key strategies for support patients, their families and carers to be directly involved in their own or their loved one’s safety. Learn from case studies demonstrating patient partnership for patients safety in action. Examine methods of involving patients to improve patient safety in high risk areas. Self assess and reflect on your own practice. Supports CPD professional development and acts as revalidation evidence. This course provides 5 Hrs training for CPD subject to peer group approval for revalidation purposes. Register hub members receive a 20% discount. Email info@pslhub.org for discount code.
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Event
The NHS Patient Safety Conference
Patient Safety Learning posted an event in Community Calendar
The NHS Patient Safety Conference, in partnership with Patient Safety Learning, is a long-standing virtual and in-person event series that has welcomed over 1500 NHS professionals through its doors. In February 2021, further updates and changes were made to the NHS Patient Safety Strategy. The most significant strategy update is the new commitment to address patient safety inequalities, with a new objective added to the safety system strand of the strategy. This event series provides a timely platform to discuss these changes. Key event topics are run across 3 key pillars: Insight Adopt and promote fundamental safety measurement principles and use culture metrics to better understand how safe care is. Use new digital technologies to support learning from what does and does not go well, by replacing the National Reporting and Learning System with a new safety learning system. Introduce the Patient Safety Incident Response Framework to improve the response to an investigation of incidents and implement a new medical examiner system to scrutinise deaths. Improve the response to new and emerging risks, supported by the new National Patient Safety Alerts Committee Share an insight from litigation to prevent harm. Involvement Establish principles and expectations for the involvement of patients, families, carers, and other lay people in providing safer care. Create the first system-wide and consistent patient safety syllabus, training, and education framework for the NHS. Establish patient safety specialists to lead safety improvement across the system. Ensure people are equipped to learn from what goes well as well as to respond appropriately to things going wrong. Ensure the whole healthcare system is involved in the safety agenda. Improvement Deliver the National Patient Safety Improvement Programme, building on the existing focus on preventing avoidable deterioration and adopting and spreading safety interventions. Deliver the Maternity and Neonatal Safety Improvement Programme to support a reduction in stillbirth, neonatal and maternal death, and neonatal asphyxia brain injury by 50% by 2025. Develop the Medicines Safety Improvement Programme to increase the safety of those areas of medication use currently considered the highest risk. Deliver a Mental Health Safety Improvement Programme to tackle priority areas, including restrictive practice and sexual safety. Work with partners across the NHS to support safety improvement in priority areas such as the safety of older people, the safety of those with learning disabilities and the continuing threat of antimicrobial resistance. Work to ensure research and innovation support safety improvement. All organisations are committed to patient safety, but how do leaders ensure that they’re doing all they can to deliver safe and effective care? Join Dr Sanjiv Sharma, Executive Medical Director at Great Ormand Street Hospital for Children, and Helen Hughes, Chief Executive of Patient Safety Learning for a presentation at 9.05am. Dr Sharma will outline their ambitious patient safety transformation journey, how they are designing and delivering an innovative safety systems approach. Embedding Patient Safety Learning’s new standards for patient safety, hear how GOSH’s self assessment has informed the development of prioritised action plans, strengthened governance and leadership engagement and cross organisation collaboration. Helen Hughes, Chief Executive of Patient Safety Learning, will outline why a standards based approach to patient safety is needed and the benefits it can bring. Register -
EventIn its 15th year, the HSJ Patient Safety Congress is the largest annual event to unite patient safety leaders, front-line innovators, national policymakers and patient representatives from across the UK to learn and exchange ideas that will transform patient safety and standards of care. Patient safety is a field that never stands still. Practitioners across the patient pathway are dedicated to continuous improvement and improving the patient experience, ensuring equity of care for all and optimising outcomes. As a result of this Congress, changes have been made to medical textbooks and led to new research being commissioned. But more importantly, it is through this event that changes are made within teams and organisations that help save lives. This year’s Congress will address both new and long-standing patient safety challenges, offering new insights, practical ideas and actionable solutions to help improve care in your organisation: Building a restorative culture. Integrating human factors approach to improve safety. Focusing on patient safety in non-acute settings. Practical approaches to patient and family engagement. Safety and equality in women’s health. Protecting and supporting our workforce. Improving governance and regulation to achieve consistent care. Encouraging clinician-led innovation. Examining safety for vulnerable people. Recognising and responding to the deteriorating patient. Breaking the cycle of repeat errors to advance the safety agenda. Responding to catastrophe in a healthcare setting. Reversing the impact of normalised deviance on patient safety. Eliminating unnecessary deaths in a post-pandemic. Register
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Content Article
In this blog, Patient Safety Learning looks ahead to World Patient Safety Day 2023 and the theme of this year’s event, ‘Engaging patients for patient safety’. -
Content ArticleThis report provides a review of the Healthcare Safety Investigation Branch (HSIB) maternity investigation programme during 2022/23. During this period HSIB completed 702 reports and made more than 1,380 safety recommendations.
