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Showing results for tags 'Patient engagement'.
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Content ArticleUnsafe medication practices and medication errors are a leading cause of injury and avoidable harm in health care systems across the world. The World Health Organization (WHO) has launched the Third WHO Global Patient Safety Challenge: Medication Without Harm to improve medication safety. Considering the huge burden of medication-related harm, Medication Safety has also been selected as theme for World Patient Safety Day 2022. WHO has launched a series of webinars to introduce the strategic framework for implementation of the Challenge, technical strategies, tools and provide technical support to countries for reducing medication-related harm. The webinars share country and patient experiences in implementing the Challenge. This webinar focuses on the role of patients and their families in improving medication safety, recognising that they are the only constants in increasingly complex healthcare systems, and that they can provide essential information and feedback.
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In this blog, Lotty Tizzard, Patient Safety Learning’s Content and Engagement Manager, looks at the difficulties people experience in disposing of needles and injection devices safely at home. Variation in services across the UK can lead individuals to dispose of sharps incorrectly, posing a risk to refuse workers and the wider public. -
Content ArticleIn this episode of The King's Fund podcast, host Helen McKenna speaks with Professor Dame Lesley Regan and Dr Janine Austin Clayton about women’s health journeys from start to finish. They explore why women can struggle to get medical professionals to listen to them and the impact this has on diagnosis and treatment, as well as the mental and physical effects on women themselves.
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Content ArticleMeasures of patient safety culture from the perspective of health workers can be used – along with patient-reported experiences of safety, traditional patient safety indicators (see indicator “Safe acute care – surgical complications and obstetric trauma”) and health outcome indicators (see, for example, indicator “Mortality following acute myocardial infarction”) – to give a holistic perspective of the state of safety in health systems.
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This is the third in our new series of Patient Safety Spotlight interviews, where we talk to different people about their role and what motivates them to make health and social care safer. Deinniol tells us about how his role at the Healthcare Safety Investigation Branch (HSIB) helps make healthcare services in the UK safer for both patients and staff. He explains the importance of understanding the complexity of healthcare systems and the pressures that staff within the NHS face. He highlights the need build trust with patients, staff and other stakeholders to find ways forward in improving patient safety. -
Content ArticleIn this blog for The BMJ, several doctors who are experiencing long term impacts of Covid-19 share their report of a meeting with the World Health Organization's Covid-19 response team in August 2020. They highlighted the importance of patient-led research and and engaging with patients with Long Covid.
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Content ArticleHealthcare is recognised as a high-risk industry, involving complex systems, vulnerable individuals, and constantly evolving clinical treatments and healthcare products. This is the recording of a webinar hosted by NHS Supply Chain which looked at key patient safety issues in the NHS. It includes examples of learning related to patient safety and assurance priorities for safe healthcare products and services. Speaker panel: Helen Hughes, Chief Executive of Patient Safety Learning Tracey Cammish, NHS Supply Chain Heather Tierney-Moore OBE, NHS Supply Chain Dave Fassam, Healthcare Safety Investigation Branch (HSIB)
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Content ArticleAs Clare Gerada finished the final house calls of her long career in general practice, it struck her how detached she was from her patients now – and that it was not always like this. Where did we go wrong, and what can we do to fix it? she asks in this article in the Guardian.
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Content ArticleHistorically, patients have always been considered the passive recipients of healthcare. This way of thinking affected everything from how people were cared for in a clinician’s office or hospital bed, to how they participated in clinical trials. It’s also meant that patients have previously had no role in the production or review of medical literature after research has been completed. However, this is changing, and now patients and members of the public are increasingly involved in new and meaningful ways at more steps in the research process, including as potential reviewers of medical papers. This has enormous benefits for science and healthcare. But patients and members of the public are not always provided with the relevant resources to participate effectively and efficiently, and this is something that journals need to work on.
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Content ArticleIn this blog for the British Journal of General Practice comment and opinion website, BJGP Life, GP Will Mackintosh discusses the impact of health inequalities on patients' ability to play an active role in their care. He calls for training for all GPs to understand the constraints and pressures that may be affecting their patients, so that they can better assess the causes of health issues and therefore treat them more effectively. The article examines concepts of freedom for both GP and patient, and argues that a purely evidence-based approach does not help patients from deprived backgrounds overcome health issues. The author highlights that GPs operate in a 'grey zone' between the medical and the non-medical, and argues that this means they are well placed to understand and help tackle the root causes of health disparities.
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Content ArticleThis article in Studies in Health Technology and Informatics looks at how patient-peer support can be a valuable resource for patients in the context of hospital safety. Hospitalised patients often lack access to safety systems and face difficulties in having a proactive role in their safety. The authors of this study conducted semi-structured interviews with 30 patients and caregivers at a paediatric and an adult hospital. They highlight the potential benefits of incorporating patient-peer support into patient-facing technologies and argue that helping patients access such support can help them engage with and improve the quality and safety of their hospital care.
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Content ArticleThis article in the journal Resuscitation examines the needs of the 'forgotten patient' in out-of-hospital cardiac arrests (OHCA), which have a mortality rate of between 80 and 90%. Unlike many other critical illnesses, family members and partners often witness the collapse or have to perform CPR on their friend or loved one. The traumatic burden associated with these events can be significant, resulting in unique psychosocial needs both for survivors and those who witness or perform CPR. The partner or caregiver may struggle to deal with the fear, anxiety and guilt associated with the arrest, CPR provision and subsequent care upon discharge of their loved ones from hospital. This often makes the caregiver a ‘forgotten patient’ and there is growing literature examining the high levels of stress, anxiety, anger and confusion experienced by caregivers of survivors in the first 12 months after OHCA.
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Content ArticleIn this interview with Dr. Robert Mentz, Editor-in-Chief and Dr. Anu Lala, Deputy Editor at the Journal of Cardiac Failure, Kristin and Will Flanary (AKA Lady and Dr. Glaucomflecken) share their experience as co-patient and patient. Will suffered a cardiac arrest in May 2020 and the experience of discovering her husband, having to perform CPR and waiting in isolation for news left his wife Kristin with significant trauma. The interview explores the experience of those involved in medical trauma who are not the patient themselves, the 'co-patient', and the ways in which healthcare professionals can support them to process their experience.
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Content ArticleOver the past 12 years, the number of emergency hospital admissions in England has increased by 42%, from 4.25 million in 2006/07 to 6.02 million in 2017/18. Over 60% of patients admitted to hospital as an emergency have one or more long-term health conditions such as asthma, diabetes or mental illness. Patients with long-term conditions spend under 1% of their time in contact with health professionals. The majority of their care, such as monitoring their symptoms and administering medication and treatment, comprises tasks they or their carers manage on a daily basis. To find out how able patients currently feel to manage their health conditions, the Health Foundation looked at Patient Activation Measure (PAM) scores, which assess four levels of knowledge, skill and confidence in self-management, for over 9,000 adults with long-term conditions. In this briefing, the Health Foundation assesses the evidence for the effectiveness of a range of approaches the NHS could use more often to support patients to manage their health conditions. These include: health coaching, self-management support through apps, social prescribing initiatives and peer support including via online communities.
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Content ArticleFor many years the NHS has talked about the need to shift towards a more personalised approach to health and care so that people have the same choice and control over their mental and physical health that they have come to expect in every other part of their life. And as local health and care organisations work together more closely than ever before, they are recognising the power of individuals as the best integrators of their own care. This document sets out how the NHS Long Term Plan commitments for personalised care will be delivered. It introduces the comprehensive model for personalised care, comprising six, evidence-based standard components, intended to improve health and wellbeing outcomes and quality of care, whilst also enhancing value for money. Implementation will be guided by delivery partnerships with local government,
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Content ArticleThis patient decision aid from the National Institute for Health and Care Excellence (NICE) aims to help adults with type 2 diabetes understand the risks and benefits of taking a second medication, so that they can make an informed decision about their care.
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Content ArticleThis patient decision aid from the National Institute for Health and Care Excellence (NICE) aims to help family members and carers of severe stroke patients under 60 understand the risks and benefits of decompressive hemicraniectomy, so that they can make an informed decision about treatment.
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Content ArticleThis patient decision aid from the National Institute for Health and Care Excellence (NICE) aims to help patients with high blood pressure understand the risks and benefits of different treatment options so that they can make an informed decision about their care.
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Content ArticleThese free e-learning courses about communicating the potential harms and benefits of treatment to patients have been produced by the Winton Centre for Risk & Evidence Communication, the Academy of Medical Royal Colleges in the UK and the Australian Commission on Safety & Quality in Healthcare.
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Content ArticleThe use of healthcare complaints to improve quality and safety has been limited by a lack of reliable analysis tools and uncertainty about the insights that can be obtained. The Healthcare Complaints Analysis Tool, developed by Alex Gillespie and Tom W. Reader was used to analyse a benchmark national data set, conceptualise a systematic analysis, and identify the added value of complaint data.
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Content ArticlePatients and families are important contributors to the diagnostic team, but their perspectives are not reflected in current diagnostic measures. Patients/families can identify some breakdowns in the diagnostic process beyond the clinician’s view. Bell et al. developed a framework with patients/families to help organisations identify and categorise patient-reported diagnostic process-related breakdowns (PRDBs) to inform organisational learning. The framework describes 7 patient-reported breakdown categories (with 40 subcategories), 19 patient-identified contributing factors and 11 potential patient-reported impacts. Patients identified breakdowns in each step of the diagnostic process, including missing or inaccurate main concerns and symptoms; missing/outdated test results; and communication breakdowns such as not feeling heard or misalignment between patient and provider about symptoms, events, or their significance. The PRDB framework can help organisations identify and reliably categorise PRDBs, including some that are invisible to clinicians; guide interventions to engage patients and families as diagnostic partners; and inform whole organisational learning.
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Content ArticleThis article in Social Science and Medicine examines the role of patients in naming and defining Long Covid. Patients with the condition, many of whom had ‘mild’ illness initially, used different evidence and advocacy to demonstrate a longer, more complex course of illness than was laid out in initial reports from Wuhan.
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Content ArticleThis blog on the tech website Mashable outlines the key points of a recent international consensus statement on open-source automated insulin delivery. It discusses the need for a consensus statement, the impact of this technology on the lives of people with diabetes and the importance of the statement in paving the way for further user-driven technologies and innovations in healthcare.
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National Maternity and Perinatal Audit lay summaries (2021)
Patient-Safety-Learning posted an article in Maternity
The National Maternity and Perinatal Audit (NMPA) has produced lay summaries covering three of its sprint audits into: perinatal mental health services maternity care for women with a body mass index of 30kg/m2 or above ethnic and socio-economic inequalities in NHS maternity care. The NMPA is a large-scale project established to provide data and information to those working in and using maternity services. The purpose of NMPA is to evaluate and improve NHS maternity services, as well as to support women, birthing people and their families to use the data in their decision-making. -
Content ArticleThis guide for people who inject insulin or GLP-1 to treat diabetes includes information on: how to correctly inject insulin where to inject to ensure insulin and GLP-1 medication enter the body correctly how to avoid ‘Lipos’ how to store medication correctly how to dispose of needles safely.
