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Showing results for tags 'Patient engagement'.
Found 1,330 results
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Content ArticleAn increasing number of cancer patients are using the internet to better understand their disease and connect with others facing the same challenges. Online cancer communities have developed into resources that highlight new research and evolving treatments. Combined with increasing health literacy and social media, they have enabled some patients to become experts in their cancer. This article in the journal JCO Oncology Practice examines the role of expert patients (e-patients) in advancing cancer medicine, and looks at opportunities available to those who wish to become more involved in research advocacy. The authors found that e-patients play a greater role in their own care and in larger conversations regarding practice, research, and policy. They highlight that clinicians can engage e-patients as partners in cancer care to work together towards improving healthcare access and outcomes for people with cancer.
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Content ArticleHealth literacy is about people having enough knowledge, understanding, skills and confidence to use health information, be active partners in their care and navigate health and social care systems. Health literacy levels in the UK are low, with 43% of 16 to 65-year-olds in England struggling with text-based health information and 61% unable to understand health information that includes both text and numbers. This e-learning resource by Health Education England and NHS Scotland aims to help people working in health and social care understand and promote health literacy.
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Content ArticleThe Department for Health and Social Care (DHSC) launched a call for evidence in March 2021 to inform the first-ever government-led Women’s Health Strategy for England. This report focuses on the survey component of the consultation. Nearly 100,000 people in England got in touch to share: their personal views and experiences as a woman the experiences of a female family member, friend or partner their reflections as a self-identified health or care professional. The results highlight priority areas for action and further research and underpin DHSC’s vision statement for England’s Women’s Health Strategy (published in December 2021). The full strategy will be published in spring 2022.
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Content Article
Blog - Why do I have to wait? (12 July 2021)
Patient-Safety-Learning posted an article in GP and primary care
This blog by GP Dr Abbie Brooks examines rising patient demand for GP services and the need to manage patient expectations around appointment waiting times. It looks at the impact of the pandemic, and how patients can help primary care cope with increased demand by ensuring they are using the appropriate NHS service for their needs and being patient while waiting for initial and follow up appointments. -
Content ArticleThere is a well-described mismatch between the research that is done on a particular condition and the research that patients themselves would like to see done. Formal research priority-setting partnerships aim to reduce this mismatch by involving patients in the selection of topics for research. The National Institute for Health Research (NIHR) has strongly supported patient and public involvement (PPI) in research, produced national benchmarks for PPI, funded INVOLVE (www.invo.org.uk) which promotes patient involvement in all aspects of biomedical research, and written up some exemplar case studies. Trish Greenhalgh looks back at the history of patient involvement in research and suggests a vision for an institute for patient-led research.
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Content ArticleThis long read by the Health Foundation examines the challenges of discharging people from hospital, and looks at 'discharge to assess' (D2A) an approach to reducing the incidence of delayed discharge. It outlines priorities for policymakers and the NHS and suggests next steps for managing hospital discharge.
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Content ArticleThe concept of woman-centred care is at the core of midwifery care and midwives have a key role as advocates and facilitators of women’s choices. This briefing from the Royal College of Midwives provides guiding principles and support for midwives in facilitating personalised care and women’s choices, including when those fall outside clinical recommendations.
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Content ArticleIn this article in the journal Health Expectations, the authors explore how current investigative responses can increase the harm for all those affected by failing to acknowledge and respond to the human impacts. They argue that when investigations respond to the need for healing alongside learning, it can reduce the level of harm for everyone involved, including including patients, families, health professionals and organisations.
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Content ArticleProviding high quality care and treatment for patients coming to the end of their lives is likely to involve making difficult and emotionally challenging decisions. This guidance from the General Medical Council provides a framework to support doctors in meeting the needs of each patient as they come towards the end of their life.
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Content ArticleA patient satisfaction survey for outpatient hysteroscopy for patient's to share their comments on the service they received.
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Content ArticlePeople affected by health conditions bring insights and wisdom to transform healthcare – ‘jewels from the caves of suffering'. Yet traditional patient and public engagement relies on (child–parent) feedback or (adolescent–parent) ‘representative' approaches that fail to value this expertise and buffers patients' influence. This editorial from David Gilbert outlines the emergence of ‘patient leadership' and work in the Sussex Musculoskeletal Partnership, its patient director (the first such role in the National Health Service) and a group of patient/carer partners, who are becoming equal partners in decision-making helping to reframe problems, generate insight, shift dynamics and change practice within improvement and governance work.
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Content ArticleWearable devices are a modern marvel. They teach users exactly how many calories you can burn by running up a flight of stairs, record sleep patterns down to the minute a neighbour’s safety light wakes you up, monitor your heart rate and alert you if anything gets out of whack, and even control your music during a workout. And that’s not even touching on the medical wearables that patients use to manage chronic conditions. We’re living in a time when so much information is available on our wrists or in our palms, and these devices are improving the lives and health of users all over the world. And yet, they’re not perfect. Software Advice surveyed over 450 US patients who currently use medically-prescribed wearable devices to better understand their experiences.
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Content Article
Animation - The 'D' word (10 March 2022)
Patient-Safety-Learning posted an article in End of life care
This short animated video looks at the importance of clear, compassionate communication in healthcare, particularly when discussing end-of-life care and death with patients. -
Content ArticleThis analysis by the Health Foundation examines the mismatch between the public’s perceptions of what influences health (namely individual behaviour and access to care) and the clear evidence base that demonstrates the significance of wider determinants of health. The authors explore the reasons behind public perceptions and look at how public health professionals can use communications techniques to improve public understanding of evidence about health inequalities.
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Content ArticleThis report by Healthwatch highlights barriers and delays that people with little or no English can face when trying to access healthcare. Based on research conducted by Healthwatch, it examines the difficulties that patients with little or no English encounter at every stage of their healthcare journey, including registering with a GP, accessing urgent care, navigating healthcare premises, explaining their problems and understanding what the doctor says. It highlights system-, staff- and patient-related barriers that must be tackled in order to achieve equal access to care.
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Content ArticleThe cornerstone of good general practice has long been recognised as lying in the quality of the relationship between doctor and patient. This focus on the interaction between GP and patient has been further reinforced in recent years by increasing attention on the patient’s experience of healthcare encounters. However, pleasing the patient is not always consistent with providing good-quality care. GPs are well aware that patients may demand an antibiotic when it is not judged clinically appropriate. The aim of this study from Ashworth et al. was to determine the relationship between antibiotic prescribing in general practice and reported patient satisfaction. The results found that patients were less satisfied in practices with frugal antibiotic prescribing. A cautious approach to antibiotic prescribing may require a trade-off in terms of patient satisfaction.
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The third WHO Global Patient Safety Challenge: Medication Without Harm proposes solutions to address obstacles to safe medication practices. WHO aims to achieve widespread engagement and commitment of WHO Member States and professional bodies around the world to reducing the harm associated with medication. This Strategic Framework of the Global Patient Safety Challenge depicts the four domains of the Challenge: patients and the public, health care professionals, medicines and systems and practices of medication. The framework describes each domain through four subdomains. The three key action areas – polypharmacy, high-risk situations and transitions of care – are relevant in each domain and therefore form an inner circle. -
Content Article
WHO medsafe app
Patient-Safety-Learning posted an article in Medication
The World Health Organization has released a mobile application for patients and their families and caregivers as part of its Global Patient Safety Challenge: 'Medication Without Harm'. The app is designed to guide patients through the five key moments where action can reduce the risk of medication-related harm, and to facilitate patients to ask their healthcare professional important questions about their medications. The app is available from Google Play and the Apple App Store. -
Content ArticleThis document sets out the Northern Ireland Department of Health's ambitions to improve medication safety in Northern Ireland, in line with the World Health Organization's Third Global Patient Safety Challenge 'Medication without Harm'. It outlines the need for safer use of medicines in Northern Ireland and highlights four ways in which the Department for Health will address these challenges: Engagement with patients and the public Introducing new systems and practice Engagement and training of health and social care staff Reducing the burden of avoidable harm from high-risk medicines by building good practice in to the supply of all medications
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Content ArticleThis is the first Women's Health Action Plan published but the Government of Ireland, and it sets out women's priorities for their health. Women, their representatives and women's health professionals have influenced the development of the Action Plan by sharing their insights and experiences through listening projects and participation opportunities carried out by the Women's Health Task Force 2020-2021. The Action Plan responds to key issues that women raised, including faster access to specialist services, reputable sources of health information and enhanced healthcare experiences. Supporting documents and related reading are provided alongside the Action Plan, including information about the Women's Health Taskforce.
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Content ArticleAlthough research has focused on safe disposal of sharps in healthcare settings, the issue of disposal by patients in the home setting has not often been addressed. This US study in the journal Diabetes Spectrum aimed to evaluate methods of disposal and patient demographic factors associated with correct disposal of diabetes-related sharps in the community.
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Content ArticleThe efficacy of injection therapy in diabetes depends on correct injection technique. The aim of the Insulin Injection Technique Questionnaire was to understand how people with diabetes inject, so that guidance can be tailored towards improving injection technique. This article in the Journal of Diabetes analyses the results of the 2008-2009 survey and identifies areas where improvements have been made since the last survey, and areas where there is still progress to be made.
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Content ArticleUnsafe medication practices and medication errors are a leading cause of injury and avoidable harm in health care systems across the world. The World Health Organization (WHO) has launched the Third WHO Global Patient Safety Challenge: Medication Without Harm to improve medication safety. Considering the huge burden of medication-related harm, Medication Safety has also been selected as theme for World Patient Safety Day 2022. WHO has launched a series of webinars to introduce the strategic framework for implementation of the Challenge, technical strategies, tools and provide technical support to countries for reducing medication-related harm. The webinars share country and patient experiences in implementing the Challenge. This webinar focuses on the role of patients and their families in improving medication safety, recognising that they are the only constants in increasingly complex healthcare systems, and that they can provide essential information and feedback.
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Content Article
In this blog, Lotty Tizzard, Patient Safety Learning’s Content and Engagement Manager, looks at the difficulties people experience in disposing of needles and injection devices safely at home. Variation in services across the UK can lead individuals to dispose of sharps incorrectly, posing a risk to refuse workers and the wider public. -
Content ArticleIn this episode of The King's Fund podcast, host Helen McKenna speaks with Professor Dame Lesley Regan and Dr Janine Austin Clayton about women’s health journeys from start to finish. They explore why women can struggle to get medical professionals to listen to them and the impact this has on diagnosis and treatment, as well as the mental and physical effects on women themselves.
