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Showing results for tags 'Patient / family involvement'.
Found 543 results
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Content Article
It’s time to rename the ‘visitor’: reflections from a relative
Anonymous posted an article in By patients and public
In my first blog, ‘Visiting restrictions and the impact on patients and their families’, I highlighted how the pandemic has shone a stark spotlight on so many inequities and inconsistencies in access to health and social care. I wanted to draw attention to how visiting restrictions can result in worse outcomes for patients and their families. In my second blog I want to focus on the terms ‘visiting’ and ‘visitor’ and discuss what defines a visitor and why, in my opinion, it requires redefining and renaming. -
Content ArticleThis article in the journal Resuscitation examines the needs of the 'forgotten patient' in out-of-hospital cardiac arrests (OHCA), which have a mortality rate of between 80 and 90%. Unlike many other critical illnesses, family members and partners often witness the collapse or have to perform CPR on their friend or loved one. The traumatic burden associated with these events can be significant, resulting in unique psychosocial needs both for survivors and those who witness or perform CPR. The partner or caregiver may struggle to deal with the fear, anxiety and guilt associated with the arrest, CPR provision and subsequent care upon discharge of their loved ones from hospital. This often makes the caregiver a ‘forgotten patient’ and there is growing literature examining the high levels of stress, anxiety, anger and confusion experienced by caregivers of survivors in the first 12 months after OHCA.
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Content ArticleIn this interview with Dr. Robert Mentz, Editor-in-Chief and Dr. Anu Lala, Deputy Editor at the Journal of Cardiac Failure, Kristin and Will Flanary (AKA Lady and Dr. Glaucomflecken) share their experience as co-patient and patient. Will suffered a cardiac arrest in May 2020 and the experience of discovering her husband, having to perform CPR and waiting in isolation for news left his wife Kristin with significant trauma. The interview explores the experience of those involved in medical trauma who are not the patient themselves, the 'co-patient', and the ways in which healthcare professionals can support them to process their experience.
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Content ArticleIn his account in the Journal of Cardiac Failure, Kristin Flanary describes her experience of discovering her husband having a cardiac arrest, giving him CPR and the subsequent wait for information on his condition. She then describes the trauma she experienced in the weeks and months following the incident. She highlights that healthcare providers can play an important role in helping relatives or non-patients who have been part of a medical emergency process their experiences.
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Content ArticleFor many years the NHS has talked about the need to shift towards a more personalised approach to health and care so that people have the same choice and control over their mental and physical health that they have come to expect in every other part of their life. And as local health and care organisations work together more closely than ever before, they are recognising the power of individuals as the best integrators of their own care. This document sets out how the NHS Long Term Plan commitments for personalised care will be delivered. It introduces the comprehensive model for personalised care, comprising six, evidence-based standard components, intended to improve health and wellbeing outcomes and quality of care, whilst also enhancing value for money. Implementation will be guided by delivery partnerships with local government,
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Content ArticleThis report by the Healthcare Safety Investigation Branch (HSIB) has been published as part of a local pilot, which has been launched to evaluate HSIB’s ability to carry out effective investigations occurring between specific hospitals and trusts. After an evaluation, it will be decided whether this model can be implemented more widely by HSIB. This investigation reviewed the case of a woman who was taken to an emergency department by ambulance in April 2021, following a 999 call from her Granddaughter to the emergency operations centre. The emergency operations centre used the wrong NHS number for the patient, which was assigned to her for the duration of her stay in hospital and led to her being offered incorrect medication.
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Content ArticlePatients and families are important contributors to the diagnostic team, but their perspectives are not reflected in current diagnostic measures. Patients/families can identify some breakdowns in the diagnostic process beyond the clinician’s view. Bell et al. developed a framework with patients/families to help organisations identify and categorise patient-reported diagnostic process-related breakdowns (PRDBs) to inform organisational learning. The framework describes 7 patient-reported breakdown categories (with 40 subcategories), 19 patient-identified contributing factors and 11 potential patient-reported impacts. Patients identified breakdowns in each step of the diagnostic process, including missing or inaccurate main concerns and symptoms; missing/outdated test results; and communication breakdowns such as not feeling heard or misalignment between patient and provider about symptoms, events, or their significance. The PRDB framework can help organisations identify and reliably categorise PRDBs, including some that are invisible to clinicians; guide interventions to engage patients and families as diagnostic partners; and inform whole organisational learning.
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Content ArticleThe National Audit of Dementia (NAD) collected feedback between June and July 2020 to examine how the pandemic has affected hospital care for people with dementia. This report presents the findings from surveys completed by patients, their carers and hospital dementia leads.
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Content ArticleGlobally, children have been profoundly affected by the COVID-19 pandemic in many ways. While the majority of children with acute COVID-19 infection experience mild illness and fully recover, many go on to experience Long Covid. Long Covid is clinically identified by experience of persistent (and sometimes different) symptoms for several months after the acute infection (even in children who were asymptomatic). There is currently no agreed consensus on the case definition of Long Covid, but real-world data from American health insurance firms and the UK Office for National Statistics report that children may experience intestinal symptoms, pain, breathlessness, cognitive dysfunction and post-exercise malaise. The current understanding of the natural history, diagnostics and treatments of Long Covid is limited, meaning the medical model in isolation is not helpful. Michael Fanner and Elaine Maxwell in this paper explores how health visitors and school nurses are ideally placed to case-find children with Long Covid and co-produce child and family-centred care.
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Content ArticleIf you're a carer and the person you care for fractures their hip, this guide from the Royal College of Physicians will ensure that you are equipped with the information you need to support their recovery.
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Content Article
The empty chair, a blog by Dr Chris Tiplady
Patient-Safety-Learning posted an article in Blogs
In this blog Dr Chris Tiplady, consultant haematologist at Northumbria Healthcare NHS Foundation Trust, talks about the importance of building relationships with patients, carers and relatives. When a patient's family member dies, it leaves an empty chair in the consultation room and brings a sense of unexpected loss. Dr Tiplady reflects that throughout the pandemic, empty chairs have become a very common sight and he encourages readers to see these empty chairs as a reminder: "They should remind you to talk, to enquire over who should be in that chair, to have the conversations that need to be had, to recognise the relationships we all have that support us and that make our days better."- Posted
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Content ArticleThis new video by the Health Quality & Safety Commission New Zealand features consumers, clinicians and researchers talking about the benefits of following a restorative approach after a harmful event. It describes restorative practice and hohou te rongopai (peace-making from a te ao Māori world view) which both provide a response that recognises people are hurt and their relationships affected by harm in healthcare.
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Content ArticleAfter her infant son suffered due to a succession of medical errors, Sue worked tirelessly to prevent this from happening to others, starting by writing letters to the health care regulatory bodies until she and a group of mothers had formed a nonprofit and put out guidelines for the regulatory bodies to follow. In the midst of all of this, Sue’s husband was misdiagnosed as having a benign tumor, when it was later discovered to be a malignant sarcoma. With this she redoubled her efforts to lead us to a safer health system.
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Content Article
In this blog for the hub, Tim McLachlan, Chief Executive of the Natasha Allergy Research Foundation, highlights the lack of support available for patients and their families who spend their lives trying to keep either themselves or their children safe. To date there has been little attention, importance and investment given to NHS allergy services and this, he says, needs to change. -
Content ArticleIn this episode of VISION ZERO Podcast, Dr Abdulealah Alhawsawi interviews Susan Sheridan, a family member of two medical error victims and a global patient safety advocate. In this podcast they explore how we can prevent such medical errors and harm from happening again and the importance of patient / family empowerment.
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Content ArticleCall 4 Concern is a patient safety initiative enabling patients and families to call for immediate help and advice when they feel concerned that they are not receiving adequate clinical attention. Here is the Royal Berkshire NHS Foundation Trust's leaflets for adults and children. You may also be interested in: NHS Mid and South Essex's 'We're Listening' leaflet
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Content ArticleA glimpse of moving and powerful Rounds discussions that took place at the Massachusetts General Hospital Cancer Center and at Emerson Hospital in Concord, MA, USA
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Content Article
AvMA: Just culture
Patient Safety Learning posted an article in Culture
“Just culture” is rightly, a much-used phrase in patient safety and a major theme in the patient safety strategy for England and all the UK countries. However, there is no single definition of ‘just culture’ and most discussion of it is limited to the issue of being fair to healthcare staff. This is vitally important, which is why we advised on and endorsed the NHS Resolution Being Fair guidance and NHS Improvement’s Just Culture Guide. However, AvMA and many of the stakeholders believe that we need a nationally agreed definition that places equal emphasis on being fair to patients and families, and which covers the whole system, from policy formulation to the delivery of healthcare and what happens when harm occurs. -
Content ArticleThis free online e-learning course is designed for parents and carers of severely allergic children. This course aims to improve and update knowledge about the everyday management of severe allergies. Topics include: What happens in an anaphylactic reaction Early recognition of the signs and symptoms of anaphylaxis How and when to use adrenaline injectors, and how to care for these devices Crisis management The long-term management, such as avoidance of allergens What you need to know to lessen the risk of a severe allergic reaction Food labelling regulations in the UK and Europe The role of parents and carers in enabling schools to support children who have severe allergies. Individuals can work through this course at their own pace, it will take around 1 hour to complete. Upon successful completion of this AllergyWise course (75% pass rate) you can buy a certificate for £5 plus VAT for proof. To register please follow the link below.
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Content ArticleDerek Richford talks to Rob Behrens about the loss of his newborn grandson, Harry, at East Kent Hospitals University Trust. He explains how his sheer persistence uncovered the truth of what went wrong and eventually led to a criminal investigation at the Trust. He also tells us what organisations involved in the complaint process can learn from his family's tragic experience.
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Content Article
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At Patient Safety Learning we believe that sharing insights and learning is vital to improving outcomes and reducing harm. That's why we created the hub; providing a space for people to come together and share their experiences, resources and good practice examples. This month, our Content and Engagement Manager, Steph, has hand-picked seven resources, particularly relevant for patient safety managers working in hospital settings. Shared with us by hub members and patient safety advocates, they are jam-packed with practical tools and rich insights. -
Content ArticleThis video, produced in conjunction with Royds Withy King Solicitors, provides a quick overview of AvMA’s services and how volunteers help them to deliver the vital support people need after experiencing medical harm.
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Content Article
A series of failures: a relative's story
Patient Safety Learning posted an article in Keeping patients safe
At the first Patient Safety Management Network (PSMN)* meeting of 2022, we were privileged to hear from a bereaved relative about her shocking experience, which reminded us all of why we do what we do. Claire Cox, one of the PSMN founders, invited Susan (not her real name to protect her confidentiality) to share with us the causes of her relative’s untimely death and the poor and shameful experience when she and her GP started to ask questions. This kicked off a valuable and insightful discussion about how patients are responded to when things go wrong and about honesty and blame, patient and family engagement in decision making when patients are terminally ill, and how we need to ensure that the new Patient Safety Incident Response Framework (PSIRF) guidance embeds good practice informed by the real-life experience of patients and staff.- Posted
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Content ArticleIn this podcast, Gill Phillips speaks to Nadia Leake and Rachel Collum, parents of premature babies who had long stays in neonatal care after birth, about the importance of Family Integrated Care. Gill developed Whose Shoes?® as a tool to allow people to 'walk in other people's shoes'. Through a wide range of scenarios and topics, Whose Shoes?® helps groups explore many of the concerns, challenges and opportunities facing the different groups affected by the transformation of health and social care.
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Content Article
Bleed Out: HBO documentary (2018)
Patient Safety Learning posted an article in Investigations and complaints
Medical error is the third leading cause of death in the U.S. After a routine partial hip replacement operation leaves the mother of filmmaker and comedian Steve Burrows in a coma with permanent brain damage, what starts as a personal video diary becomes a citizen’s investigation into the state of American healthcare.
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