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Showing results for tags 'Children and Young People'.
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Content ArticleLong-term health sequelae of COVID-19 are a major public health concern. However, evidence on Long Covid is still limited, particularly for children and adolescents. Using comprehensive healthcare data on approximately 46% of the German population, Roesller et al. investigated post-COVID-19-associated morbidity in children/adolescents and adults.
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- Long Covid
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Content ArticleThis framework produced by the Royal College of Paediatrics and Child Health (RCPCH) aims to improve how healthcare organisations recognise and respond to children at risk of deterioration. A safer system can work in partnership with families and patients, develop a patient safety culture and support ongoing learning. The framework covers: Patient safety culture Partnership with families Recognising deterioration Responding to deterioriation Open and consistent learning Education and training
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- Patient
- Children and Young People
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Content ArticleThis webpage provides information about patient rights and responsibilities while under the care of John Hopkin's Children's Center. It includes the following resources and guides: Patient and family handbook Preparation Pain management Your child’s care team Rooms Meals Visitation Patient safety Parent and family journal
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- Patient / family support
- Children and Young People
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Content ArticleThe aim of this study in Australian Critical Care was to develop an evidence-based paediatric early warning system for infants and children, that takes into consideration a variety of paediatric healthcare contexts and addresses barriers to escalation of care. The development process resulted in an agreed uniform ESCALATION system incorporating a whole-system approach to promote critical thinking, situational awareness for the early recognition of paediatric clinical deterioration as well as timely and effective escalation of care. Incorporating family involvement was an important and new component of the system.
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- Children and Young People
- Speaking up
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Content ArticleThis study in Health Expectations aimed to identify barriers and facilitators to implementing a parent escalation of care process: Calling for Help (C4H). Guided by the Theoretical Domains Framework, the authors carried out audits, semi-structured interviews and focus groups in an Australian paediatric hospital where a parent escalation of care process was introduced in the previous six months. The authors found that although there was a low level of awareness about C4H in practice, there was in-principle support for the concept. Initial strategies had primarily targeted policy change without taking into account the need for practice and organisational behaviour changes.
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- Deterioration
- Children and Young People
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Content ArticleThis Australian study in Health Expectations aimed to evaluate the implementation of 'Calling for Help'(C4H), an intervention for parents to escalate care if they are concerned about their child's clinical condition. The study used a convenience sample of 75 parents from inpatient areas during the audit, and the authors held interviews with ten parents who had expressed concern about their child's clinical condition and five focus groups with 35 ward nurses. The authors found that there was an improvement in the level of parent awareness of C4H, which was viewed positively by both parents and nurses. To achieve a high level of parent awareness in a sustainable way, a multifaceted approach is required and further strategies will be required for parents to feel confident enough to use C4H and to address communication barriers.
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- Patient / family support
- Children and Young People
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Content ArticleThis document outlines the standard operating procedure (SOP) adopted by University Hospitals Bristol NHS Foundation Trust, relating to parental involvement in escalation of clinical care for acutely ill children. It aims to clarify the process of empowering parents to escalate concerns if they are worried about the clinical condition and care being delivered to their child, or themselves if they are a patient. It also aims to ensure accurate and appropriate information is provided to parents on admission (elective and acute) regarding how they should escalate concerns about the care their child is receiving.
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- England
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Content ArticleThis standard operating procedure (SOP) for Leicester Royal Infirmary Children's Hospital outlines the process to be followed at times of increased pressure on services caused by increased acuity or activity in the pathway for non-elective care.
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- Patient / family support
- Children and Young People
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Content ArticleThis document outlines the Escalation Policy for Leicester Children’s Emergency Department. It identifies five particular factors that lead to difficulty within the department. Acknowledging that these issues can be closely interlinked and may not occur in isolation, it provides practical way to deal with these factors to try and prevent secondary events. Staffing Overcrowding Inflow Outflow Acuity
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- Patient / family support
- Deterioration
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Content ArticleThis guideline describes good patient experience for babies, children and young people, and makes recommendations on how it can be delivered. It aims to make sure that all babies, children and young people using NHS services have the best possible experience of care. It includes recommendations on: overarching principles of care communication and information planning healthcare consent, privacy and confidentiality advocacy and support improving healthcare experience, including healthcare environments accessibility, continuity and coordination
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- Children and Young People
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Content ArticleIn this Guardian article, parents reveal their heart-wrenching struggles to access NHS services, which have sometimes been too late to help their children.
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- Mental health
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Content ArticleRyan Saunders is a little boy who died in 2007 from an undiagnosed streptococcal infection, which led to Toxic Shock Syndrome. According to the Queensland Clinical Excellence Division, when Ryan’s parents were worried he was getting worse, they did not feel their concerns were acted on in time. This blog outlines Ryan's Rule, a process introduced by the Queensland Department of Health to try and prevent similar events happening in future. Ryan's Rule allows patients and their families and carers to escalate serious concerns about their own or a family member's condition.
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- Deterioration
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Content ArticleIn this debate the Parliamentary Under-Secretary of State for Health and Social Care, Maria Caulfield MP, responds to an Urgent Question asking for a statement on abuse and deaths in secure mental health units. The Minister discusses the recent findings from investigations into the deaths of Christie Harnett, Nadia Sharif and Emily Moore who were in the care of the Tees, Esk & Wear Valleys NHS Foundation Trust, reflecting on these in the context of broader concerns highlighted by other recent patient safety scandals concerning NHS mental health services. This is followed by questions from MPs in the chamber and the Minister’s responses.
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- Mental health
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Content ArticleThese reports outline the findings of separate investigations into the deaths of three teenage girls who were detained mental health patients in the care of Tees, Esk & Wear Valleys NHS Foundation Trust (TEWV). The reports uncover many systemic failings at West Lane Hospital in Middlesbrough, the secure mental health unit for children where Christie Harnett and Nadia Sharif, both 17 years old, died and where Emily Moore, 18, was placed prior to her death in Lanchester Road Hospital, Durham. The girls had been friends and spent time together at West Lane, and all three deaths were self-inflicted. The reports highlight a total of 119 care and service delivery problems at West Lane including ineffective management, reduced staffing, lack of leadership, aggressive handling of disciplinary problems, issues with succession of crisis management and failures to respond to concerns from patients and staff. Although West Lane was closed in 2019, it was reopened in May 2021 under the new name of Acklam Road Hospital. Subsequent Care Quality Commission (CQC) inspections and further deaths demonstrate that dangerous cultures and practices are still operating in the Trust's inpatient mental health units. In June, the Care Quality Commission (CQC) announced that they will be bringing criminal charges against TEWV in relation to Christie’s death. This document contains three separate investigation reports relating to Christie Harnett, Nadia Sharif and Emily Moore's individual cases.
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- Mental health
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HypoBaby blog - The beginning… Diagnosis (20 August 2018)
Patient-Safety-Learning posted an article in Diabetes
The HypoBaby blog is written by the parents of Noah, a young boy who was diagnosed with type 1 diabetes as a baby. In this post, they describe Noah's diagnosis and why it took so long to work out that it was diabetes causing his symptoms. Noah ended up in diabetic ketoacidosis (DKA) and needed emergency treatment. They highlight the importance of being aware of the symptoms of type 1 diabetes, stating that if they had been aware of the symptoms, he may have been diagnosed sooner. -
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Blog - Positivity in adversity (24 October 2022)
Patient-Safety-Learning posted an article in Patient stories
Matt Eagles was only seven when he was diagnosed with Parkinson's disease. Now an adult, Matt uses his experiences of healthcare, to help other patients learn how to better communicate with healthcare professionals. In this blog, he talks about his experiences of living with Parkinson's and the work he does to raise awareness of the condition.- Posted
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- Parkinsons disease
- Children and Young People
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Content ArticleIn this BMJ feature, journalist Emma Wilkinson looks at how a shortage of health visitors in England is leaving babies and children exposed to safeguarding risks, late diagnosis and other problems. An estimated third of the health visitor workforce has been lost since 2015, and research by the Parent-Infant Foundation suggests that 5000 new health visitors are needed. Families are not getting the minimum recommended number of contacts with health visitors during the first three years of life, and research into the impact of this on children's outcomes is ongoing. Emma speaks to different mothers, including Phillippa Guillou, who had a baby in 2020 and struggled to breastfeed. Philippa felt unsupported and ignored by her local health visiting service, who only saw her once by videocall when her baby was one year old.
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- Children and Young People
- Community care
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SAPHNA - Eating disorder toolkit (October 2022)
Patient-Safety-Learning posted an article in Eating disorders
This toolkit has been co-produced by the School and Public Health Nurses Association (SAPHNA) with school nursing services, mental health campaigners, eating disorder experts, education colleagues and young people with lived-experience of eating disorders. It is aimed at qualified, trained and skilled nurses who have access to robust supervision. The toolkit is free of charge, but you will need to enter your details in order to receive a PDF copy by email.- Posted
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- Eating disorder
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Content ArticleThe journalist Merope Mills voices her anger at her daughter Martha's preventable death in this Woman's Hour programme.
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- Patient / family involvement
- Patient engagement
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Content ArticleM was a young boy who had severe asthma, resulting in regular trips to A&E. His condition was eventually well controlled with a Seretide inhaler. When M's family moved house and changed their GP, they requested a new prescription of Seretide, but when they got to the pharmacy were given the wrong type of inhaler used to treat a different form of asthma. The GP had unwittingly chosen the wrong medication from a drop-down menu. M and his family were unaware that he was taking the wrong medication, and after a few days, M became breathless and his family decided to take him to hospital. Sadly, he died on the journey to A&E. At the inquest, the Coroner found that there two main issues that contributed to M’s death: the unintentional prescription of Serevent the failure to arrange and organise follow up contributed to M’s death.
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- Asthma
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Content ArticleOn 24 October 2019 coroner Lydia Brown commenced an investigation into the death of Asher William Robert Sinclair, age 3. The investigation concluded at the end of the inquest on 24 January 2022. The conclusion of the inquest was: His medical cause of death was: 1a Hypoxic ischaemic brain injury 1b out of hospital cardiac arrest 1c displaced tracheal tube (trachael tube dependant) II Neonatal enterviral myocarditis and encephalitis (trachael ventilator dependant and cardiac pacemaker). Asher died on 8th October 2019 in Great Ormond Street hospital when his life support mechanisms were withdrawn.
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- Coroner
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Content ArticleThe Office for National Statistics reports that 98,000 children are now living with the symptoms of Long Covid in the UK. To support these children and young people at school and college, Long Covid Kids has collaborated with education resource website Twinkl to produce a series of resources for teachers and teaching staff about Long Covid. Although the resources are free to download, you will need to sign up for a Twinkl account to access them.
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- Long Covid
- Children and Young People
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Content ArticleInfant mental health describes the social and emotional wellbeing and development of children in the earliest years of life. It reflects whether children have the secure, responsive relationships that they need to thrive. However, services supporting infant mental health are currently limited; only 42% of CCGs in England report that their CAMHS service will accept referrals for children aged 2 and under. This briefing by the Parent-Infant Foundation is aimed at commissioners looking to set up specialist infant mental health support.
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Content ArticleSepsis is the leading killer of infants and children worldwide and kills more than 250,000 Americans each year. On 1 April 2012, 12-year-old Rory Staunton died from sepsis after grazing his arm while playing basketball at school. This account by Rory's parents Orlaith and Ciaran Staunton describes the multiple errors by the school and different healthcare professionals that led to their son's death - from the wound not being cleaned by the school, to Rory's paediatrician missing key sepsis warning signs and the ER's failure to read Rory's blood test results that showed he was seriously ill. The article also includes a link to a short video where Orlaith and Ciaran describe what happened to Rory.
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- Patient death
- Sepsis
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Content ArticleAndrew Stroud's daughter Bia has type 1 diabetes, and in this blog, Andrew talks about his family's experiences supporting Bia to manage her diabetes. He describes the huge value of technology in improving diabetes management and reducing the mental burden of the condition on people with diabetes and their parents and carers. However, like all technology, medical devices for diabetes can fail, and Andrew highlights the need to be prepared for this situation to ensure the person with diabetes is safe while they cannot use the devices they rely on every day.
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- Diabetes
- Technology
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