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PatientSafetyLearning Team

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Everything posted by PatientSafetyLearning Team

  1. Content Article
    The webinar took place on Wednesday 16 September but if you missed it, you can watch the recording below. To receive information about future webinars please register with the hub for free or you can follow us on Twitter @ptsafetylearn. To find out more about this issue, please read Patient Safety Learning's blog: Patient safety on the frontline: Responding to the treatment backlog safely
  2. Content Article
    Women's Lives, Women's Rights: Strengthening Access to Contraception Beyond the Pandemic also sets out detailed recommendations under the following sections: Funding Commissioning structures and accountability Workforce and training Data and monitoring Improving access to contraception Information and education Education settings. The full report and the executive summary can be accessed via the link below, or the attached documents.
  3. Community Post
    COVID-19 has placed the health and social care system under enormous pressure. To meet the demand created by the pandemic, a range of non COVID care and treatment was postponed. Now staff are faced with the new challenge of responding to the treatment backlog safely. Many are understandably still struggling to cope with the mental and physical effects of working on the frontline during a global pandemic. Patients and relatives are also concerned. Some are worried that the delays will have had a negative impact on health outcomes or that they still do not know when they will be seen. Others feel they may have been prematurely discharged to help reduce the backlog. We want to hear from patients, relatives and staff who can share their insight on what is and isn't working, the challenges and the safety concerns. Your experiences will help us identify and highlight patient safety gaps that need addressing. Please comment below to join the conversation or you can get in touch with us at content@pslhub.org if you'd prefer to share your experience anonymously. Nb: You'll need to sign in to the hub to comment (click on the icon in the top right of your screen). If you're not a member yet, you can sign up here for free.
  4. Content Article Comment
    @Shamim Odera RN has kindly created a presentation explaining the process of informed consent. Available now on the hub: https://www.pslhub.org/learn/patient-engagement/consent-and-privacy/the-process-of-informed-consent-a-presentation-r2996/
  5. Community Post
    Shared anonymously: "Six years ago I underwent hysteroscopy. Due to very heavy periods they wanted to investigate. I had an LA and the pain was bearable for me. But what really shocked me was that, while I was still in position, with my legs in the air, they said they were just going to insert something that would help with my periods. It wasn't really a question. It was a Mirena implant. They passed me the form to sign while I was still reclined which I thought was odd at the time but I trusted them. It was only when I came home that I could actually research what I had agreed to, something I would have done beforehand usually. Thankfully the Mirena has worked well for me but I know that isn't the case for all women. I still can't believe the approach used to get my 'consent', it certainly didn't feel informed."
  6. Community Post
    Thank you for sharing your insight @Sally A. I recently watched a webinar about the Your Covid Recovery portal and the lady presenting said that the assessments for post-covid clinic support would likely go via pulmonary clinicians. I am not sure if that is still the case but it sounds like it may be respiratory focused where you went. Which, like you said, may not be meeting everyone's needs as people have concerns and symptoms relating to different parts of the body. We hope the letter we have sent to Simon Stevens will prompt greater clarity so we can highlight any gaps like this.
  7. Community Post
    Today (Friday 11 September), Patient Safety Learning has written to Sir Simon Stevens, Chief Executive of the NHS, calling on him to take steps to publicise the locations and details of these clinics. You can read the letter in the attached PDF below: Letter_PSLtoSimonsStevens_110920_Issued.pdf Thank you all for continuing to provide patient insight on this issue.
  8. Content Article
    Friday 11 September 2020 Dear Sir Simon, I am writing to you regarding the support available for people with confirmed or suspected COVID-19 who are continuing to struggle with prolonged, debilitating and sometimes severe symptoms months later. These patients are sometimes referred to as ‘long-haulers’ or described as having ‘post-acute’, ‘chronic’ or ‘long-term’ COVID-19. Here, we will use the term ‘Long COVID’. Patient Safety Learning By way of a quick introduction, I am the Chief Executive of Patient Safety Learning, an independent charity and voice for improving patient safety. We believe patient safety is not just another priority; it is a core part of the purpose of health and social care. Patient safety should not be negotiable. Our aim is to reduce harm to patients from unsafe care. Long COVID and patient safety In July, we highlighted patient safety concerns around care and support for Long COVID patients with a number of key stakeholders and decision-makers in health and social care, along with a proposed set of actions to address these issues. We drew on patient experiences in this respect, two of which were shared on our patient safety shared learning platform, the hub, and which you may find of particular interest: My experience of suspected 'Long COVID' Dismissed, unsupported and misdiagnosed: Interview with a COVID-19 'long-hauler' Subsequently, the NHS launched the ‘Your COVID Recovery’ online portal, which we welcomed as a positive step in recognising the need to increase the support for those recovering from COVID-19. From our conversations with patients and community support groups, we are aware that concerns remain about the availability of support for those who have been managing their condition from home. Patients have highlighted that much of the ‘Your COVID Recovery’ site focuses only on those patients who have been in hospital. Post-COVID clinics On 8 September 2020, speaking at the Health and Social Care Select Committee the Secretary of State Matt Hancock MP stated: “The NHS set up Long COVID clinics and announced them in July. I am concerned by reports this morning from the Royal College of GPs that not all GPs know how to ensure that people can get into those services. That is something I will take up with the NHS and that I am sure we will be able to resolve.”[1] We have found that there is significant confusion as to where these clinics are, what services they offer and who is eligible for support. As far as we are aware, there is no published list of post-COVID clinics. We have been inviting patients to share with us where these clinics are. Most responses are ‘we don’t know’. From our conversations with patients on social media and the hub we believe that the following information would provide greater clarity for Long COVID patients: Location of these services Publish a list of all existing post-COVID clinics and contact details. Where there are regional disparities, set out plans to address these and avoid a postcode lottery. We note that a recent report from the BBC stated that less than 12% of the 86 Clinical Commissioning Groups asked were running such services and that the Royal College of GPs had called “for a national network of ‘post-COVID’ clinics”.[2] Referral process Confirm whether Long COVID patients who have not been hospitalised can access these clinics by referral from a GP or self-referral. If by GP referral, confirm that these now been added to the e-Referrals System and publish the guidance issued to GPs on this process. Eligibility and services available Clarify whether services at these clinics are restricted to those who have been hospitalised or also open to those who are managing their symptoms at home. Clarify whether these services are available to all patients or only those who have had a confirmed positive test for COVID-19. We are aware of a significant number of Long COVID patients who have not received a positive test and have expressed concerns about the lack of clinical recognition for their illness and access to appropriate medical support Confirm what services are available at these clinics. Will they help patients access a range of clinical investigations, as well as treatment and rehabilitation? Second phase of ‘Your COVID Recovery’ Publish the timeframe for the implementation of Phase 2 of the ‘Your COVID Recovery’ portal, described as a virtual rehabilitation platform offering patients interactive and tailored support. Initially, it was stated that the portal would launch “later in the summer”, therefore we ask for transparency about the cause of delay.[3] I welcome your comments on these issues and look forward to your response in due course. Yours sincerely, Helen Hughes Chief Executive, Patient Safety Learning [1] Health and Social Care Committee, Oral evidence: Social care: funding and workforce, HC 206, 8 September 2020. https://committees.parliament.uk/oralevidence/817/pdf/ [2] BBC News, Coronavirus: ‘Long Covid’ patients need treatment programme, doctors say, 8 September 2020. https://www.bbc.co.uk/news/health-54031587 [3] NHS England and NHS Improvement, NHS to launch ground breaking online COVID-19 rehab service, 5 July 2020. https://www.england.nhs.uk/2020/07/nhs-to-launch-ground-breaking-online-covid-19-rehab-service/
  9. Community Post
    Below are some more comments that have been shared with us by patients (with their permission) from a Facebook COVID research group. Some wished to remain anonymous. "Asked GP in Southampton...she has been supportive....knew of none." Anon. "I tried mid-August to pull together a list by asking the Long Covid support group and literally got only 1 answer. I was trying to get my MP to follow up on it. it seems unfathomable to me that this doesn't exist already. FWIW, I asked my GP here in Bristol and he was unaware of any. I asked him to look at Southmead Hospital (have research underway) but there is nothing." Michelle Gates. "I have e-mailed a question re Covid Clinics (and where are they where I live) to my NHS Trust for their board of directors meeting and was told the question would be asked. I am waiting for a transcript/minutes of the meeting to see if the question was raised?" Anon. "This (the list) would be so helpful. My GP in the north east had never heard of any!" Anon. "No clinics in Durham." Tracey Birch. "I asked my GP a few weeks ago to refer me to such a clinic but she looked into it and said there was nothing for Bexley (just outside London) patients to be referred to." Karen Corbett-Smith. "My GP looked into the post-Covid clinic at Adenbrookes in Cambridge and confirmed rumours that I’d heard that it is only for previously hospitalised and I think also ventilated patients. There seems to be nothing available in the county and precious little in the East of England. Apparently there’s a clinic in Stevenage (Herts) - somebody I chatted to has a phone appointment with them next week. Thanks for looking into this- so many promises, so little follow-through." Annette Shelford. "I’m in East Berkshire and when I asked my GP a few weeks ago if there are any post Covid clinics in our area he said there is nothing he is aware of, that he’d ask around and get back to me if he found anything, but nothing." Anon. "I asked my gp multiple times and there is no covid hub in Bristol, despite Bristol-led long covid research study (that focus on hospitalised patients only) and other covid research. I did get sent to the respiratory hot clinic where the consultant was very knowledgeable outside of discipline eg we discussed blood clotting, heart and nervous system effects. I Have separate referrals to ENT. Cardiology-Echocardiogram. I Will get a lung CT scan, but it would make sense if they looked at multiple organs, but because it was ordered by the respiratory team they will only look at lungs. Frustrating ! Really need a multidisciplinary team to coordinate tests, meds and rehab." Jo House.
  10. Community Post
    @Raeven thank you for giving your insight. As you have highlighted, there are thousands of patients, who like you, are suffering chronic symptoms. Greater clarity around access to post-COVID support is really needed.
  11. Community Post
    Yesterday Matt Hancock, Secretary of State for Health and Social Care said: "The NHS set up Long Covid clinics and announced them in July and I'm concerned by reports this morning from the Royal College of GPs that not all GPs know how to ensure people can get into those services."[1] Many patients are having to find out about Long Covid clinics through word of mouth or their own research, as Barbara Melville explains: "I admin the Long Covid Support Group on Facebook, which has over 20, 000 members. We're hearing of 'Covid Clinics', but we still don't know where they are, how we access them, or what support we can expect. I learned of Edinburgh’s Covid service on Facebook, when a friend photographed a poster on a GP surgery door – the absolute last place I would have gone. But it wasn’t plain sailing once I knew. I managed to access physio, but it is still light, and mostly phone based. One friend, who was hospitalised, was sent leaflets through the post – he had to push hard for physio. Neither of us were able to access investigations to determine if exercise is really safe, which is worrying given emerging evidence of multi-system complications." Where is the list of these clinics? Has it been widely shared with GPs and patients so those suffering symptoms of Covid-19 months later can access help? How many clinics are able to help patients access clinical investigations as well as rehabilitation? What about those who did not get a positive test result? Or were not hospitalised? Are they able to access these services? Do you know of a central list or of services near you? Please comment below to #share4safety. Nb: You'll need to sign in to the hub to comment (click on the icon in the top right of your screen). If you're not a member yet, you can sign up here for free. Health_and_Social_Care_Committee_08-09-20_11-14-22 (1).mp4 Reference 1. Matt Hancock, 8 September 2020, Health and Social Care Select Committee (00:01:35 of attached video).