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Content ArticlePeople who provide care unpaid for a family member or a friend due to illness, disability, or mental health provide a vital role bridging gaps in state-funded support. But despite the laudable policy statements in support of carers, this Nuffield Trust report looking at the policy history and latest data shows that the reality for unpaid carers has been one of diminishing help over time.
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Content ArticleThe journalist Merope Mills voices her anger at her daughter Martha's preventable death in this Woman's Hour programme.
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News Article
UK care homes still stopping family reunions months after Covid rules eased
Patient Safety Learning posted a news article in News
Two and a half years after Boris Johnson announced the first UK lockdown, and seven months after the last domestic measures ended, some care homes in Britain are still denying people access to their elderly relatives due to Covid restrictions. Grandchildren have been banned by some homes, which put age limits on visitors. Others exclude whole families except for one relative named as “essential caregiver”, something that was dropped from government guidance in April. Support groups the Relatives & Residents Association (R&RA), and Rights for Residents also said there were homes not allowing people to see their parents, husbands or wives in their rooms, instead insisting that the visits take place in pods outside. And some only allow limited timed-visiting slots. About 70% of older care home residents have dementia and often find it distressing to be moved, only settling by the end of the slot. Campaigners have been calling for action to protect care home residents since the first lockdown, because relatives are often best able to help. Research from John’s Campaign shows that people who know someone with dementia are much better at interpreting their behaviour and giving comfort. Read full story Source: The Guardian, 25 September 2022 You may also be interested to read these two original blogs posted on the hub: Visiting restrictions and the impact on patients and their families: a relative's perspective It’s time to rename the ‘visitor’: reflections from a relative -
Content ArticleNot knowing how to unfold or even sit in a wheelchair the right way can cause a catastrophic injury to patients, visitors, volunteers, and staff of a healthcare facility. Wheelchairs are one of the most common assistive devices used in healthcare facilities, from admission to discharge. They are often found at the entrance of a facility for use by both patients and visitors with mobility issues. Hospital volunteers, transport staff, and clinical staff use wheelchairs to take patients to different care areas to have tests performed. Many facilities require that patients be transported in a wheelchair upon discharge. However, not knowing the proper method of unfolding a wheelchair or where to place your hands when sitting down in the seat can cause injuries, specifically to fingers, ranging from lacerations to amputations.
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News Article
It is crucial that doctors listen to patients – and their families
Patient Safety Learning posted a news article in News
Merope Mills’s recent article in the Guardian should be mandatory reading for all medical and nursing students. All of us who are senior doctors or nurses will recognise only too well the dangerous conditions that Merope describes: the senior doctors with overinflated egos; the internecine warfare between departments; the nursing staff and junior doctors who are rendered impotent by repeated attempts to galvanise action from off-site but know-it-all seniors; the lack of integrated thinking that results when there is no consistent lead clinician; and, most dangerous, not listening to the patient or their relatives, and not directly examining the patient. Candour and co-production are terms much used in healthcare, but for some staff these aspects of care are a million miles away from the ego-driven practice in which they engage. This is why Merope’s advice is so important. Do not have blind faith in your clinician. Do not leave all the thinking to them. Do equip yourself with knowledge and, most of all, do demand to be treated as an equal partner in the care of your body or your loved one. Current and former healthcare professionals respond to Merope Mills’s account of losing her daughter after a series of catastrophic medical errors. Read full story Source: The Guardian, 11 September 2022 -
Content ArticleCall 4 Concern enables patients, relatives and carers to call for help/advice from the Acute Intervention Team when they are concerned about a patient’s condition, and/or they feel that their concern is not being addressed by the ward team. County Durham and Darlington share their Call 4 Concern leaflet.
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Content ArticleSharing her story in the Guardian, Merope gives a heart breaking account of how her daughter, Martha Mills, was allowed to die, but also what happens when you have blind faith in doctors – and learn too late what you should have known to save your child’s life.
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News Article
Donna Ockenden urges families to come forward for Nottingham maternity review
Patient Safety Learning posted a news article in News
The midwife leading a review into Nottingham's maternity services has urged families and staff to come forward with their experiences. Donna Ockenden was appointed in May to head the inquiry into the services at Queen's Medical Centre and City Hospital. It was launched after more than 100 families with experiences of maternity failings wrote to former Health Secretary Sajid Javid demanding the action. A much-criticised initial review was subsequently scrapped. Ms Ockenden, who uncovered 200 avoidable baby deaths at Shrewsbury and Telford NHS Trust across two decades, said the review is now open to families, NHS workers and others who wish to contribute. "By September 1 we'll be ready to receive contact from families," she told Nottinghamshire Live. "In the mean time if there are either families or members of the NHS that want to get in touch they can use our new email. And also those who represent communities, whether that's safe communities or women's groups in Nottingham." People can contact the review through the email nottsreview@donnaockenden.com, which was launched last week. Ms Ockenden said that positive steps were being made in putting in place the "building blocks" for the review, which is due to start on 1 September 2022. Read full story Source: Nottinghamshire Live, 17 August 2022 -
News Article
Survivors of contaminated blood scandal awarded interim payments
Patient Safety Learning posted a news article in News
Survivors of the contaminated blood scandal have been awarded interim government payments after a 40-year battle, but thousands of parents and children of the victims have still received nothing. Ministers have accepted the urgency of the need to make the £100,000 payments to about 3,000 surviving victims, after being warned that those mistakenly infected with HIV and hepatitis C were dying at the rate of one every four days. But parents and children of the victims accused the government of perpetuating the scandal by failing to recognise their own trauma and loss in today’s announcement. Contaminated blood products administered in the 1970s and 1980s to up to 6,000 people have already led to the deaths of more than 2,400 people in the biggest treatment scandal in NHS history. The government said it intends to make payments to those who have been infected and bereaved partners in England by the end of October. The same payments will be made in Scotland, Wales and Northern Ireland. Announcing the plan, the prime minister, Boris Johnson, said: “While nothing can make up for the pain and suffering endured by those affected by this tragic injustice, we are taking action to do right by victims and those who have tragically lost their partners by making sure they receive these interim payments as quickly as possible. “We will continue to stand by all those impacted by this horrific tragedy, and I want to personally pay tribute to all those who have so determinedly fought for justice.” Read full story Source: The Guardian, 17 August 2022 -
Content Article
Who killed patient safety? (5 May 2022)
Patient Safety Learning posted an article in Research, data and insight
The medical communities commitment to patient safety has withered over the past 10-15 years after the original call for action in 2000 with the release of the IOM report. What was once a call for action, safety in hospitals and oversight by government has been deprioritised, defunded, and devalued, leaving patients like the authors of this article wondering: What happened to patient safety? -
Content ArticleCall 4 Concern is a patient safety initiative enabling patients and families to call for immediate help and advice when they feel concerned that they are not receiving adequate clinical attention. Here is the University Hospitals Sussex Trust's leaflet.
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Content ArticleCall for Concern is a patient safety service for adult inpatients, families and friends to call for help and advice if you or your family are concerned that there is a noticeable change or deterioration in condition. This service is delivered by the Critical Care Outreach team who are available 24 hours a day to help support ward teams in the care of acutely ill patients. We also offer emotional support to patients and their families who have recently been discharged from the Critical Care Unit as this can be an anxious time. When can I call? After you have spoken to the ward team or doctor but feel the healthcare team are not recognising or responding to your concern. If you have been a patient in Critical Care and are experiencing difficulties such as anxiety, bad dreams, low mood or feeling emotional.
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Content ArticleFrimley Health has launched a new service for members of the public to independently raise concerns if they believe a patient’s clinical condition is deteriorating. The Call 4 Concern programme enables friends, relatives – and the patients themselves - to make a direct referral if their concerns have not been alleviated by first speaking to the medical team. The Trust’s critical care outreach practitioners will then review the patient, liaise with the medical team and take any appropriate action. At Frimley Park Hospital, call 07717 303231. At Wexham Park Hospital call 07909 930728. The Call 4 Concern programme is available 24 hours a day, seven days a week and has previously been successfully implemented by several other NHS organisations.
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Content ArticleAlmost all of us reading about the tawdry details of “partygate” will have specific memories from the past two years to put the revelry at No. 10 Downing Street into sombre context. Families separated, funerals missed, partners unable to be present at the birth of their child, children unable to be present at the death of their parent, loneliness, social isolation, depression, anxiety—all the inevitable consequences of following rules laid down for the collective good. In this BMJ article, Nicci Gerrard, founder of John’s Campaign, which was set up to campaign on behalf of the rights of people living with dementia, shares her own memories and the stories and pain of a particular group of people who suffered greatly during the pandemic, whose health was harmed, whose hearts were broken, and in some cases, whose lives ended because of the rules drawn up under the pandemic.
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Content ArticlePeople with living dementia or mild cognitive impairment and their family carers face challenges in managing medicines. This review, published in Age and Ageing, identifies interventions to improve medicine self-management for people with dementia and mild cognitive impairment and their family carers, and the core components of medicine self-management that they address.
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Content ArticleCall 4 Concern is a patient safety initiative enabling patients and families to call for immediate help and advice when they feel concerned that they are not receiving adequate clinical attention. Here is the University Hospitals Dorset Trust's leaflet.
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News Article
Trusts resist visiting rule after ‘Javid threatens to call CEOs’
Patient Safety Learning posted a news article in News
Local clinical leaders are continuing to question pressure from government and NHS England to relax Covid-19 visiting restrictions. Visitors, and people accompanying patients, have been restricted throughout covid, and in recent months there has been substantial local variation. Ministers and NHSE, as well as other politicians and some patient groups, have been pressing for more relaxed restrictions for some time and in recent weeks have stepped up their instructions. National visiting guidance was eased in March, and other infection control guidance, including requiring the isolation of covid contacts, was relaxed last month. Last week, the Daily Telegraph reported health and social care secretary Sajid Javid planned to “name and shame” trusts not implementing the changes, and to call hospital chief executives directly about it. Meanwhile, chief nursing officer Ruth May reiterated the visiting rules last month, saying on Twitter: “We must not underestimate the important contribution that visiting makes to the wellbeing and personalised care of patients and make it happen.” However, an NHSE online meeting for clinical leaders on Friday was told that while “a great number of trusts have returned to previous visiting policies… we know there are trusts which haven’t implemented this fully”. One said: “It is very difficult to safely return to pre-covid visiting as some hospital’s estate can’t safely support visitors in already over-crowded [emergency departments] and increasingly busy [outpatient departments]. “Surely local risk assessment is key and should be supported rather than increasing pressure to simply blanketly return to pre-pandemic arrangements everywhere?” Read full story (paywalled) Source: HSJ, 9 May 2022 You may also be interested in: Visiting restrictions and the impact on patients and their families: a relative's perspective It’s time to rename the ‘visitor’: reflections from a relative -
News Article
'Utterly inhumane' hospitals still ban bedside visitors as Covid cases plunge
Patient Safety Learning posted a news article in News
Hospitals are still banning patients from having bedside visitors in ‘immoral’ Covid restrictions. Last night, MPs, patient groups and campaigners criticised the postcode lottery that means some frail patients are still denied the support of loved ones. Nine trusts continue to impose total bans on any visitors for some patients, The Mail on Sunday has found. Almost half of trusts maintain policies so strict that they flaunt NHS England’s guidance that patients should be allowed at least two visitors a day. Shrewsbury and Telford Hospital NHS Trust, Sandwell and West Birmingham Hospitals NHS Trust and Royal Papworth Hospital NHS Foundation Trust are among those continuing total bans on visiting for some of their patients. University College London Hospitals NHS Foundation Trust (UCLH) has even been imposing its draconian restrictions on disabled patients who need special help for their care – only allowing visits on three days a week for a maximum of an hour each time. Tory MP Alicia Kearns said: ‘It is utterly unforgivable and immoral. There is no scientific evidence for any remaining inhumane restrictions on visiting. Trusts are breaching the rights of families. 'Visitors save lives, they advocate and calm their loved ones. When will this madness end?’ Read full story Source: MailOnline, 1 May 2022 You may also be interested in: Visiting restrictions and the impact on patients and their families: a relative's perspective It’s time to rename the ‘visitor’: reflections from a relative -
News Article
Families banned from Covid wards during lockdown ‘left with PTSD’
Patient Safety Learning posted a news article in News
Relatives of intensive care Covid patients were left traumatised by being banned from visiting their seriously ill loved ones during the pandemic, a study has found. Researchers found two-thirds of family members of patients in intensive care were still suffering high levels of symptoms of post traumatic stress disorder (PTSD) three months after their relative was admitted. Symptoms of PTSD include flashbacks, nightmares and physical sensations such as pain, sweating, feeling sick or trembling. Before the Covid pandemic, symptoms of PTSD in family members of intensive care patients were between 15 and 30 per cent, depending on the condition. The team from the University of Colorado School of Medicine said visitation restrictions may have inadvertently generated a secondary public health crisis of stress-related disorders in family members of Covid patients. At the height of the pandemic, hospitals across Britain restricted access to patients, with many people forced to say goodbye to dying loved ones over Skype, or behind screens or windows. Even as late as last winter, a Telegraph investigation showed that a quarter of trusts were still imposing restrictions on visitors. The findings suggest that the rates of PTSD may be higher in relatives than in patients. A previous study by Imperial College and the University of Southampton found that only one-third of patients on ventilators suffer symptoms. Read full story (paywalled) Source: The Telegraph, 25 April 2022 -
Content ArticleIn patient experience research, participants frequently report the impact that mesothelioma has on their mental health yet there have been very few studies specifically focused on mental health and mesothelioma. In patient experience research, participants frequently report the impact that mesothelioma has on their mental health yet there have been very few studies specifically focused on mental health and mesothelioma. This new study from the Mesothelioma UK research centre aims to create an understanding of the impact of mesothelioma on the mental health of patients, their families and close friends, and what people do to improve their mental health and well-being.
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Content ArticleDr Tejal Gandhi, has been a leader in patient and workforce safety for more than 20 years. Dr. Gandhi talked with Patient Safety Beat following publication of her essay, “Don’t Go to the Hospital Alone: Ensuring Safe, Highly Reliable Patient Visitation,” in the Joint Commission Journal on Quality and Patient Safey.
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News Article
Lateral flow tests could cost care home visitors £73 a month
Patient Safety Learning posted a news article in News
Lateral flow tests could cost care home visitors £73 a month, a leading UK charity has said, as it renewed calls to keep the devices free in such settings. The government has previously announced that free testing for the general public will end from 1 April, and that this will include care home visitors. However, charities have warned the shift away from free tests could place a heavy financial burden on those visiting care homes, where testing is still advised. James White, the head of public affairs and campaigns at the Alzheimer’s Society, said the proposed charge on lateral flow tests for visitors to care homes was a cruel tax on care. “Over the past two years, we’ve consistently heard many tragic stories from families struggling to visit their loved ones in care homes. For many people with dementia, this isolation has led to a significant deterioration in their condition and mental health,” he said. “With infection rates rising once again, the government must provide free lateral flow tests for all visitors to care homes so that families are not put in an agonising position where they are forced to ration visits, leaving people with dementia once again isolated and alone.” Caroline Abrahams, Age UK’s charity director, said: “No one should have to pay out of their own pocket for tests in circumstances where the expert advice is clear that testing remains an important safeguard against Covid,” she said. “If care home visitors are going to continue to be asked to keep testing to protect their loved ones, it would be completely unacceptable to expect them to pay.” Read full story Source: The Guardian, 15 March 2022 Further reading Visiting restrictions and the impact on patients and their families: a relative's perspective -
Content ArticleHealthcare professionals need clearer guidance on responding to racism in paediatric settings, argue Zeshan Qureshi and colleagues.
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Content Article
Binge Eating Disorder GP Leaflet
Patient Safety Learning posted an article in Eating disorders
This leaflet from Beat Eating Disorders is designed for people with binge eating disorder to bring to a GP appointment, to help them get a quick referral from their GP to an eating disorders specialist. It has guidance for the person with binge eating disorder, and a tear-off section for the GP. -
Content Article
It’s time to rename the ‘visitor’: reflections from a relative
Anonymous posted an article in By patients and public
In my first blog, ‘Visiting restrictions and the impact on patients and their families’, I highlighted how the pandemic has shone a stark spotlight on so many inequities and inconsistencies in access to health and social care. I wanted to draw attention to how visiting restrictions can result in worse outcomes for patients and their families. In my second blog I want to focus on the terms ‘visiting’ and ‘visitor’ and discuss what defines a visitor and why, in my opinion, it requires redefining and renaming.
