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Found 1,206 results
  1. Content Article
    This review in Medical Decision Making looks at how healthcare organisations might successfully use patient decision aids (PtDAs) to support person-centred care. It aimed to develop context-specific program theories that explain why and how PtDAs are successfully implemented in routine healthcare settings. Based on the results of their review, the authors recommend the following strategies for organisations wishing to embed PtDAs: Co-production of PtDA content and processes (or local adaptation) Training the entire team Preparing and prompting patients to engage, Ensuring senior-level buy-in Measuring to improve
  2. Content Article
    This editorial in the Journal of Patient Safety & Risk Management discusses the significant role patients and their families can have in improving patient safety. The author argues that having a patient present shifts the conversation to the patient perspective, results in a kinder and more respectful tone and promotes a greater urgency to find solutions. He describes patient engagement and empowerment as "perhaps the most powerful tool to improve patient safety" and discusses the significance of the World Health Organization's Patients for Patient Safety program (PFPS).
  3. Content Article
    The Medicines & Healthcare products Regulatory Agency (MHRA)'s first 'Patient Involvement Strategy' sets out how they will engage and involve the public and patients at each stage of the regulatory journey. The MHRA involved patients throughout the process of developing this strategy and carried out a final public consultation before it was published. The strategy identifies five priority areas for the MHRA: Patient and public involvement Responsiveness Internal culture Measuring outcomes Partnerships.
  4. Content Article
    Fraser Gilmore, Head of Scotland at Care Opinion, outlines the highlights of the 'Annual Review of Stories told on Care Opinion about NHS Boards in Scotland during 2020/21'. He describes an increase in patient feedback and highlights the success of Care Opinion Scotland's online events, including their first conference.
  5. Content Article
    This Annual Review contains data and infographics about patient and staff engagement with Care Opinion at 17 NHS boards in Scotland between April 2020 and March 2021. The theme of the review is 'Communication, connectivity and relationships' and it notes that use of online communication has become more widespread as a result of the COVID-19 pandemic, a factor which has contributed to increases in online patient feedback.
  6. Content Article
    This 1-page infographic makes the case for the development of health literate information. It sets out the average UK skills for literacy and numeracy, the impact this has on health and what information producers can do to develop information that works for everyone. The principles for development echo the PIF TICK criteria. They can be applied to all health information, in all formats whatever the topic – from vaccines to verruca. The infographic has been designed in response to member demand. It makes the case that health literate information is not 'dumbed down', rather it helps level up. 
  7. Content Article
    Patients are commonly given written information, for example in the form of leaflets; however, they often do not retain it and poor literacy is a barrier for many. To address this, working in partnership with a local university, a pre-operative assessment unit designed and developed video animations for patients to illustrate preparation for surgery. The aim was to enhance the accessibility and retention of information to improve patient safety and experience.
  8. Content Article
    Health literacy is a person’s ability to find, understand, and use information and services to inform health-related decisions and actions. Not surprisingly, many Americans do not have levels of health literacy that allow them to truly understand their care or take appropriate actions to improve their health. According to the Centers for Disease Control and Prevention (CDC), 9 out of 10 adults have difficulty understanding health information when it is complex or unfamiliar. In this blog, Regina Hoffman, Executive Director of Pennsylvania’s Patient Safety Authority, outlines the steps your organisation can take to fulfill its role in closing the gap on health literacy.
  9. Content Article
    These patient leaflets, shared on the BMJ Bets Practice website, aim to provide concise easy to read summaries to reassure patients and carers and help them make informed, shared decisions with healthcare professionals. Search their library of leaflets by condition or treatment by clicking on the link below.
  10. Content Article
    This online tool, from the Patient Experience Library, allows you to search by condition and treatment to access information on waiting times at NHS Trusts in England. This data is sourced from NHS England, and is published two months in arrears.
  11. Content Article
    Patient Information Forum (PIF) have launched a new website to help people find trusted health information. The PIF TICK website allows members of the public to see which organisations have the PIF TICK – the UK quality mark for health information – and offers advice on how to find trust health information.
  12. Content Article
    In this webinar recording, Gill Phillips, founder of the Whose Shoes? approach to co-production, talks about: Building the future using virtual Whose Shoes? The power of poems, with some thought-provoking and entertaining examples and crowdsourced audio Bridging the gaps between what services provide and what people actually want Health inequalities and talking to people to understand and address the real issues People disproportionately affected by the pandemic and live crowdsourcing of 'micro first steps support' Using common purpose to smash the rules, where necessary Unhelpful NHS language Whose Shoes? is being used as a quality improvement approach in over 80 NHS trusts and many other organisations.
  13. Content Article
    This study in the International Journal of Nursing Studies looked at the role of primary care nurses in coaching patients in shared decision making about their treatment. It evaluated an approach to support nurses in coaching patients, which was found to have a positive impact overall. Nurses became more aware of their own attitudes and learning needs and reported more in-depth discussions with patients. However, nurses struggled to integrate the approach in routine care and highlighted the need to receive support from their practice to implement the new approach.
  14. Content Article
    This article in The Primary Care Companion for CNS Disorders looks at the impact of the doctor-patient relationship on patient outcomes. It highlights issues that can arise in this relationship, looks at their causes and suggests potential solutions.
  15. Content Article
    This study in AIDS and Behavior looked at patient-provider communication in HIV care and the role of shared decision making in improving health outcomes. The authors found that good quality engagement between patients and their healthcare providers was associated with better health-related outcomes. A substantial proportion of patients did not report having good quality engagement and this was associated with significantly poorer outcomes.
  16. Content Article
    This report by The Patients Association is based on information gathered from more than 1,000 patients in a survey carried out in December 2021, just before the omicron wave of the Covid-19 pandemic hit the UK. The results of the survey highlight that patients found it hard to access care during this period, with pressures affecting the NHS compromising their care. They also show that the worst affected patients were those whose illness or care needs seriously affect their day-to-day lives.
  17. Content Article
    This study, published by Applied Ergonomics, found that employing user experience design (UXD) could help to improve health education materials. Researchers looked at printed information about breast and cervical cancer screening and its perceived usability. 
  18. Content Article
    Primary care services are the front door to the NHS - they are the first port of call when we feel unwell and the main coordinator of care when we are living with health conditions. The primary care team have an important role in making people feel welcomed, listened to and taken seriously. Yet we often hear examples about people who have not had their communication needs met within primary care. This includes people with sensory impairments, people with learning disabilities, autistic people, people living with dementia, people who don’t speak English fluently, people with low or no literacy, people who are digitally excluded, people living nomadically, people experiencing homelessness and many others.   This report sets out the key issues faced by people with specific communication needs within primary care and what they feel would make the biggest difference, as well as key actions primary care leaders and teams can take to support inclusive communication. 
  19. Content Article
    In this blog Suzanne Rastrick, Chief Allied Health Professions Officer (England) and Rob Moriarty, Personalised Care Strategic Coproduction Group and Peer Leader at NHS England, share the importance of asking the simple question ‘What matters to you?’
  20. Content Article
    In this blog, Becki Meakin, Involvement Manager with Shaping Our Lives, a non-profit making user-led organisation that enables individuals to have a stronger voice, writes about why all patients should think about speaking up about their health experiences. She talks about the difference sharing your story can make, and how to get started.
  21. Content Article
    In this BMJ opinion piece, Consultant Orthopaedic surgeon Scarlett McNally writes about the need for a new approach to preventing long-term conditions and providing healthcare for patients with multiple conditions. She highlights the importance of Government policy in promoting healthier lifestyle choices and improving patient engagement in shared decision making. She also outlines the importance of retaining healthcare professionals with expertise in managing risk and complexity in patients with multiple morbidity.
  22. Content Article
    Shared decision making involves ensuring patients are able to contribute meaningfully to decisions about their care. Healthcare professionals ensure patients are informed of the options available to them and fully involve patients in making treatment decisions. This report by the Patients Association sets out the views of 1,416 healthcare professionals on shared decision making, expressed in an online survey in Spring 2022. Respondents included GPs, consultants, specialist nurses and practice nurses. The survey found that most healthcare professionals are positive about shared decision making, but feel their ability to practice it regularly is limited by the current situation in the NHS. Many said that lack of time, gaps in the workforce and large caseloads prevented them partnering with patients to make decisions about treatment and care together.
  23. Content Article
    Finding out a patient's perspective about their care and treatment is a key part of shared decision making, but healthcare professionals do not always proactively do this in practice. This scoping review in the journal Patient Education and Counselling explored the extent to which the personal perspectives of patients are drawn out by clinicians during a consultation, as part of a shared decision making process. It reviewed studies in five databases about shared decision making. The authors found that studies reported low levels of healthcare professionals eliciting patient perspectives, The majority of content healthcare professionals and patients discussed related to physical health, with social and psychological topics mostly unaddressed.
  24. Content Article
    The Patient Information Forum (PIF) has launched an update to the UK’s only assessed quality mark for print and digital health and care information. The update places a greater emphasis on inclusion and reflects the huge evolution in health and care information since the PIF TICK was launched in 2020.
  25. Content Article
    This video introduces the SingHealth Patient Advocacy Network (SPAN), a patient-led collaborative that encourages patients and caregivers to be actively involved in their care. SPAN is co-chaired by two patients and aims to rethink traditional models of care. The network wants to improve the quality and design of healthcare so that it encompasses the needs and desires of patients and their caregivers.
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