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Showing results for tags 'Patient engagement'.
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Content Article
Engage with impact toolkit (October 2021)
Patient-Safety-Learning posted an article in Patient engagement
The Engage with Impact Toolkit was designed to help organisations evaluate the impact of their patient, family and caregiver engagement programs and activities. It was developed in Canada by a Working Group of patient, family and caregiver partners, health system researchers, engagement leads and government personnel, led by Dr Julia Abelson and the Public and Patient Engagement Collaborative at McMaster University. The Toolkit has been developed as a series of five modules, each of which includes background information, tasks to complete, resources and other support. -
Content ArticleThe Australian health care system includes a national organisation representing health care consumers and equivalent organisations in most states and territories. There are several disease-specific patient organisations, as well as formalised networks advocating for greater patient involvement in health technology assessment and research. This signals a system that sees a place for consumer insights: a system that is on a journey of maturing the way in which it seeks to involve consumers in decision-making. This article explores patient leadership, recognising it as the next level of engagement, highlighting the value and impact of incorporating the experience of patients at all levels of the health system and policy decision-making, and recognising the opportunity for consumers to become leaders.
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Content ArticleThis short animated video explores the issue of prioritising equality in shared decision making, to ensure that all patients' and family members' values are sought and incorporated in treatment decisions.
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Care and support jargon buster
Patient-Safety-Learning posted an article in Patient engagement
This directory from the organisation Think Local Act Personal provides Plain English definitions of jargon commonly used in health and care. -
Content ArticleThis article by the US Centers for Disease Control and Prevention (CDC) provides advice for patients about steps they can take to help avoid catching healthcare-associated infections, which can ultimately lead to sepsis and even death. It outlines ten things patients and their families can do to protect themselves or their loved ones while receiving medical care. Speak up Keep hands clean Ask each day if your central line catheter or urinary catheter is necessary Prepare for surgery Ask your healthcare provider, “Will there be a new needle, new syringe, and a new vial for this procedure or injection?” Be antibiotics aware Watch out for deadly diarrhoea (aka Clostridium difficile) Know the signs and symptoms of infection Get vaccinated Cover your mouth and nose
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Content ArticleThe Covid-19 pandemic has presented new challenges for patients with non-communicable diseases (NCDs) as healthcare systems experience increased resource constraints, conflicting priorities, challenges related to emerging or re-emerging diseases, and difficulties in prioritising NCD services. This report summarises a World Health Organization (WHO) meeting held in December 2020 that aimed to harness the power of community knowledge to tailor priorities, programmes and practices for NCDs and mental health, so that they are realistic, appropriate and attractive to the target populations. Patient experts and representatives with NCDs addressed the following questions: What does meaningful engagement mean? How do we engage meaningfully? Where do we go from here?
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Content ArticleThe Perfect Patient Information Journey is Patient Information Forum's long-running project investigating how high-quality information can be provided throughout a person’s journey with a long-term condition.
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Content ArticleIn this blog, Sarah Tilsed, Head of Patient Partnership at the Patient's Association, reports on an HSJ webinar which discussed how engaging patients could help deal with the NHS care backlog. She talks about the need to involve patients in ways that make them feel supported and in control, and highlights the importance of better communication with patients to improve care.
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Content ArticleThis report by the Patient Experience Library explores the reasons why the healthcare system in the UK has failed to listen to and learn from patient experience. It highlights how the NHS – at an institutional and cultural level – fails to take patient experience evidence seriously enough. It also identifies steps that would strengthen evidence-based practice and ensure that the patient voice is better heard.
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Content ArticleThe NHS is looking for patients, carers and staff to talk about their positive or negative care experiences with participants on NHS Leadership Academy programmes. Being an experience of care partner is a voluntary role.
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Content Article
Virtual Patient programme online training (2021)
Patient-Safety-Learning posted an article in Patient engagement
This Virtual Patient programme for healthcare professionals allows users to specify an environment, patient and therapeutic area to create a ‘case’ to practise and hone clinical and communications skills. -
Content ArticleThis review in Medical Decision Making looks at how healthcare organisations might successfully use patient decision aids (PtDAs) to support person-centred care. It aimed to develop context-specific program theories that explain why and how PtDAs are successfully implemented in routine healthcare settings. Based on the results of their review, the authors recommend the following strategies for organisations wishing to embed PtDAs: Co-production of PtDA content and processes (or local adaptation) Training the entire team Preparing and prompting patients to engage, Ensuring senior-level buy-in Measuring to improve
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Content ArticleThis editorial in the Journal of Patient Safety & Risk Management discusses the significant role patients and their families can have in improving patient safety. The author argues that having a patient present shifts the conversation to the patient perspective, results in a kinder and more respectful tone and promotes a greater urgency to find solutions. He describes patient engagement and empowerment as "perhaps the most powerful tool to improve patient safety" and discusses the significance of the World Health Organization's Patients for Patient Safety program (PFPS).
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Content ArticleShared decision making (SDM) is when patients and clinicians work together to make evidence-based decisions based on patient values and preferences. This may be to select a test or intervention, such as going ahead with surgery. SDM ensures individuals are supported to make decisions which are right for them. The Centre for Perioperative Care has a number of resources on their website on shared decision making.
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Content ArticleThis article in BMJ Quality & Safety looks at letters of compliment from patients to NHS staff, recognising their role in identifying and encouraging high quality healthcare. The authors examined compliment letters from patients and identified: why patients wrote them which activities they complimented which members of staff the feedback was aimed at. The study found that 77% of letters complimented staff on their relationship with the patient, 50% on clinical work and 30% on management. Many letters commented on staff going above and beyond their role to help patients and most letters had the joint aims of acknowledging and promoting good practice. The authors conclude that by acknowledging, rewarding and promoting positive practice, compliment letters can contribute to healthcare services by promoting positive behaviours and giving staff social recognition.
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Content ArticleThis toolkit from the Department of Veterans Affairs (VA) National Center for Health Promotion and Disease Prevention contains tools that help promote patient engagement in healthcare settings. It was developed in consultation with VA staff and veterans and is based on the Patient Aligned Care Team (PACT) model.
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Content ArticleFraser Gilmore, Head of Scotland at Care Opinion, outlines the highlights of the 'Annual Review of Stories told on Care Opinion about NHS Boards in Scotland during 2020/21'. He describes an increase in patient feedback and highlights the success of Care Opinion Scotland's online events, including their first conference.
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Content ArticleThis Annual Review contains data and infographics about patient and staff engagement with Care Opinion at 17 NHS boards in Scotland between April 2020 and March 2021. The theme of the review is 'Communication, connectivity and relationships' and it notes that use of online communication has become more widespread as a result of the COVID-19 pandemic, a factor which has contributed to increases in online patient feedback.
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Content ArticleThis research-based guide has been co-developed by Healthcare Improvement Scotland, the University of Dundee and the University of Glasgow to provide an overview of PROMs. It also aims to prevent the exclusion of people with low literacy skills and/or learning disabilities from PROM administration.
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In this anonymous blog, the author argues that clinicians need to consider the impact of their words when they are communicating medical findings and diagnoses to patients. Drawing on her daughter’s experience of seeking psychiatric support, she explains how a more humane approach might have prevented additional harm.- Posted
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Content Article
This 1-page infographic makes the case for the development of health literate information. It sets out the average UK skills for literacy and numeracy, the impact this has on health and what information producers can do to develop information that works for everyone. The principles for development echo the PIF TICK criteria. They can be applied to all health information, in all formats whatever the topic – from vaccines to verruca. The infographic has been designed in response to member demand. It makes the case that health literate information is not 'dumbed down', rather it helps level up. -
Content ArticleIn this piece for the BMJ, Partha Kar argues that in these unprecedented times, we need to be honest and clear about what’s feasible within existing staffing and funding envelopes, and that to suggest that all will be OK isn’t fair to the staff or the people.
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Content Article
InHealth Associates patient leadership blogs
PatientSafetyLearning Team posted an article in Patient engagement
In this blog series, InHealth Associates write about their experience in patient leadership, share examples of best practice and cover recent news and events. They aim to share some of the wisdom they have developed through facing, and sometimes overcoming, the challenge of creating change in the health service. -
Content ArticleThe Engagement Cycle helps organisations undertake meaningful patient and public engagement for maximum impact. It is a tried and tested, practical resource, used by dozens of Clinical Commissioning Groups (and others) to plan, design and deliver great services for, and with, local people. This version of the Engagement Cycle has been developed by InHealth Associates. It can be used to help organisations work with patients, carers and the public to transform and improve services so that patients receive integrated services, high quality care and a better experience.
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Content ArticleCan patient and public engagement truly incorporate patient and carers in healthcare decision-making? This eBook, by David Gilbert, provides an account of the work done within the Sussex Musculoskeletal (MSK) Partnership (Central) to embed a different approach to patient and public engagement or co-production – one that supports people with MSK conditions to be true partners in decision-making at all levels: delivery, improvement, governance and leadership.
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