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AHRQ’s Consumer Assessment of Healthcare Providers and Systems (CAHPS®) program will host a free webcast about how the agency’s CAHPS Consortium is addressing survey stakeholders’ emerging needs for patient experience measurement and improvement. Topics of the webcast include: The value of AHRQ’s CAHPS program and its use of survey results to improve patient experience. Updates in survey content in response to changes in care delivery. Efforts to improve CAHPS survey design and administration methods. The development of new surveys in response to emerging information needs. Register

In this Patient Partnership Week webinar, the Patients Association will be talking about their work with patients, the Royal College of Physicians and NHS England to explore what the future of outpatient care should look like. The webinar will be chaired by Sarah Tilsed, Head of Patient Partnership. Joining her are: Dr Fiona McKevitt, Clinical Director for Outpatient Recovery and Transformation, NHS England Dr Theresa Barnes, Clinical Lead for Outpatients, Royal College of Physicians Irene Poku, Representative Patient and Public Involvement and Engagement with experience of using outpatient services. Sarah champions the voice of patients in our work and the work of other organisations. As outpatients is such a pivotal part of the NHS and is visited by millions of patients, it really is important that patients feed into the design and delivery of this service, as they know what is and isn’t working for them in terms of their care. The webinar will explore how patients have been involved. Register

This September, join the global patient safety community for the annual World Patient Safety Day (WPSD), organised by the World Health Organization. This year’s theme is ‘Engaging patients for patient safety’, in recognition of the crucial role patients, families and caregivers play in the safety of healthcare. The Institute of Global Health Innovation (IGHI) at Imperial College London and Imperial College Healthcare NHS Trust (ICHT) are excited to host a virtual event to celebrate and elevate patient and family voices for patient safety. Featuring expert patient advocates, researchers and healthcare professionals, it will discuss how patients and families can be engaged at all stages of care. Ways to reduce inequalities and empower underserved communities, both nationally and globally, will be explored. It hopes to facilitate impactful and insightful conversations about how key stakeholders can work together to empower patients with becoming advocates for their own safety to improve outcomes. This event has been co-designed with valuable input from patient representatives from the NIHR North West London Patient Safety Research Collaboration’s Research Partners Group and the ICHT’s Patient Safety Partners, acknowledging the value of the patient perspective. What to expect: Keynote speeches including from Professor the Lord Ara Darzi, Co-Director of the IGHI, Henrietta Hughes, Patient Safety Commisioner for England, and Rosie Bartel, patient advocate and educator Panel session on how clinicians, patients and carers can work together to support patients and their families to feel safe and engage with their care. Register

Sara Turle is a Patient and Public Voice Partner with NHS England and a member of Kent & Medway Cancer Alliance. She is passionate about partnership working with the NHS. On Tuesday 26th September at 12pm, she'll be talking about her journey in patient partnership, why partnership is important, and advice she would give to patients and professionals with our Chief Executive Rachel. To listen in on what will be a fascinating discussion about patient partnership book your place on this free webinar.

This virtual masterclass will build confidence in compassionately engaging and involving families and loved ones to work within the requirements of PSIRF and the Complaints Standards Framework. But more than this, the masterclass will support staff to go beyond compliance to understand the issues and emotional component on a deeper level; to have real authentic engagement and involvement with patients and families. New frameworks such as PSIRF are now in place, but how do we not only comply with these, but go beyond compliance to have real authentic compassionate engagement and involvement with patients, families and indeed staff to make a real positive difference? Connecting new knowledge with emotions can really support long term learning, which is an important part of this masterclass. Knowing things may have gone wrong can feel a heavy burden and a complex emotional situation to be managing. Often, we avoid visiting difficult emotions in others, as well as ourselves, because we don’t feel confident or skilled, or we feel fearful of not doing it perfectly. This one-day masterclass will look at the new PSIRF and the Complaints Standards Framework and through real life content, bringing the human focus for the patients, loved ones, and indeed staff to the forefront. It will support staff to explore what compassionate engagement looks like, feels like, and how to communicate it authentically and meaningfully. In a supportive and relaxed environment, delegates will have the opportunity to gain in depth knowledge of the emotional component, relate to, analyse and realise the significance of and believe in their own abilities in creating practices that not only support the PSIRF but go beyond compliance to be working in a way that supports gaining an optimum outcome for patients, families and staff, in often a less than optimum situation. Key learning objectives: Feel, analyse, and explore the presence and absence of compassionate engagement within life, trauma, and a healthcare incident and how empathy is the gateway to compassion. Seeing perspectives and understanding emotional motivations and the emotional component recognising vulnerability in others and self. Seeing the bigger picture and having an enquiring mind to understand the story and how the ‘Funnel of Life’ can impact on our ability to engage. Build confidence in the positive impact of compassionate engagement and really being authentically interested in the emotional component to be able to create an optimum outcome in often a less than optimum situation. Explore and have a good grasp of how internal unconscious belief systems, can link through to the outcomes we achieve. We know what works with compassionate engagement, but why do we so often struggle? Explore and analyse biases, judgments, and how a lack of compassionate engagement not only has the potential to cause psychological harm, but can prevent optimum outcomes for the organisation. Realise the significance of authenticity rather than feeling fearful of not doing things perfectly. Examine where can we get emotional information from to support us, even if we are not aware we are doing it! Identify the importance of an enquiring mind and a hypothesis as we try and understand the story that we are aiming to compassionately engage with. Develop understanding of Safeguarded Personal Resolution (SPR ®) to formulate compassionate engagement under PSIRF and the Complaints Standards Framework. Develop awareness on personal wellbeing and resilience. Register hub members receive a 20% discount. Email info@pslhub.org for discount code.

The annual Healthcare Safety Investigation Branch (HSIB) conference agenda will cover: A focus on patient and family engagement. Sharing learning from HSIB national investigations – what has been learnt and how it can help support and improve local investigation practice. HSIB's maternity investigation programme work with families and trusts. This includes how HSIB implements learning from investigations and where the opportunities are to influence change. HSIB's work on Safety Management Systems. How HSIB's education programme is sharing learning to develop and improve local safety investigations. • An overview of HSIB's international work. Breakout sessions to share knowledge. You will also hear how the HSIB will form into the Health Services Safety Investigations Body and the Maternity and Newborn Safety Investigations (MNSI) function and how this may impact you. Register

This conference focuses on patient involvement and partnership for patient safety including implementing the New National Framework for involving patients in patient safety, and developing the role of the Patient Safety Partner (PSP) in your organisation or service. The conference will also cover engagement of patients and families in serious incidents, and patient involvement under the Patient Safety Incident Response Framework published in August 2022. For further information and to book your place visit: https://www.healthcareconferencesuk.co.uk/conferences-masterclasses/patient-involvement or email kate@hc-uk.org.uk. There are 5 free places for hub members available. Email info@pslhub.org for discount code. Follow on Twitter @HCUK_Clare #PatientPSP2023

The webinar will be aimed at all Nursing and Midwifery professionals in all healthcare settings. It will look at time-critical medication and improving practice in this area, with a particular focus on medication for Parkinson’s Disease and Diabetes. The webinar will draw on expertise in Pharmacy, Nursing, Midwifery and other specialists such as Parkinson’s UK (charity) and their patient led campaign, which links to the focus on Personalised Care in the NHS Long Term Plan. There will be presentations from patient representatives who will share their experience of receiving time critical medication in healthcare settings and experts in this area. The design of the webinar has taken a collaborative approach - with the co-design taking place between NHS England, subject matter experts, clinicians and patient representatives. The codesign process will involve nursing, medical and pharmacy staff in discussion and feedback on processes for safely delivering time critical medication. This will educate staff and help to improve processes through the involvement of both staff and patients. Reserve your place

ELEVATE PX is a gathering bringing together the voices of the global community committed to transforming the human experience in healthcare. ELEVATE PX is a dynamic, interactive event connecting the community for learning, support and the sharing of ideas to positively impact the experience in healthcare organisations around the world. Hear inspiring patient, family and leadership perspectives. All keynotes will be live-streamed for virtual participants. Further information and registration

Health and care, and academic environments can have specific expectations that influence the evaluation of public involvement. These expectations may shape why the evaluation takes place and the approaches deemed ‘valid’. The hosts of this ‘Necessary Conversation’ argue that these environments and the approaches that they tend to favour, can lead to public contributors being absent from the conversation about what matters. Lynn Laidlaw leads this session with Niccola Hutchinson-Pascal and others to be confirmed. Lynn will be asking who is pushing the impact and evaluation agenda, where does the power lie, and what are the different forms of impact that exist? Sign up for this event

More than 1,400 English GP practices, around one in five, offer patients access to their prospective medical records: that means patients can see new entries to their medical records such as tests results, appointment notes and hospital letters online and through the NHS App and certain other apps. This webinar aimed at patients explains more about NHS England's programme to enable patients to access their medical records via the NHS App. Hear from: Patients Association members Claude and Greta about what the benefits are to them of being able to access their health information digitally GP Dr Brian McMillan, a Senior Clinical Lecturer at the Centre for Primary Care and Health Services Research, University of Manchester, and a Registered Health Psychologist, whose research interests include how digital technology can improve patients' experiences of primary care Registered nurse Tristan Stanton who is Assistant Director of Programmes – Primary Care, at NHS England and leads the programme to give people access to their online health records. The Patients Association's Chief Executive, Rachel Power, will chair the webinar. Sign up for the webinar

The Health Research Authority (HRA) rounds off Make it Public Week with a panel discussion, chaired by Professor Sir Terence Stephenson, HRA Chair. Sir Terence will be joined by a panel representing different parts of the research sector, who will revisit and reflect on the key topics of discussion during the week. We will also be looking forward and at what we – as individuals, organisations, and the sector as a whole – can do next to make research transparent from start to finish, and how we can keep the conversation around research transparency going. Participants can submit questions to the panel ahead of the meeting or live on the day using Slido. You can submit a question in advance when registering for the event. Book now to reserve your free space

The Health Research Authority is running its first ever research transparency week. They believe that keeping participants updated and informed as a study develops, as well as with the results at the end, should be the norm. When researchers work with patients and the public to plan individual studies, we hear that recruitment is easier, participants are better supported, and findings are more relevant to patient needs. Ongoing communication between researchers and participants throughout a study can offer further improvements. This strengthens relationships, and creates more opportunities for feedback and improvements to be made in the way findings are shared. This will be a two-hour online workshop, chaired by the co-Chairs of the Make it Public campaign group, Matt Westmore, Chief Executive of the HRA, and Derek Stewart, public contributor. The objective for attendees of this workshop will be to work together in facilitated small groups to explore this theme, and produce a set of 'top tips' to support best practice for those active in research. There will also be a short panel discussion, where attendees can hear directly from the study leads and research participants of studies working creatively and progressively in this area: UCL Covid-19 Social Study The INHALE Project Covid Voices Register for the workshop

The Health Research Authority (HRE) is holding its first ever research transparency week. This lunchtime webinar will be hosted by the HRE's Chief Executive, Matt Westmore. Matt will be talking about the importance of transparency in research with special guest speaker Professor Lucy Chappell, Chief Scientific Adviser to the Department of Health and Social Care and Chief Executive Officer of National Institute for Health and Care Research. They’ll be talking about why transparency is key to building trust with research participants, practical things you can do to ensure research is transparent and what support is available to you. In the spirit of transparency Matt will also be presenting the HRA's second Make it Public annual report on research transparency. He will talk through the priorities and focus of the report and the Make it Public Campaign Group, what has been achieved over the past year, and plans are for Make it Public in 2023. The session will finish by looking at the rest of the activities planned for Make it Public Week and how you can get involved. The webinar will run from 12pm to 1pm on Zoom. Reserve your free space.

This conference will focus on measuring, understanding and acting on patient experience insight, and demonstrating responsiveness to that insight to ensure Patient Feedback is translated into quality improvement and assurance. Through national updates and case study presentations the conference will support you to measure, monitor and improve patient experience in your service, and ensure that insight leads to quality improvement. For further information and to book your place visit https://www.healthcareconferencesuk.co.uk/conferences-masterclasses/patient-experience-insight or email kate@hc-uk.org.uk. hub members receive 20% discount. Email info@pslhub.org for discount code. Follow on Twitter @HCUK_Clare #PatientExp

Hear about the work undertaken on digital storytelling via the NHS England cancer alliances and how they have been used to improve services. There will also be a session by Macmillian Cancer Care on digital storytelling project which shares peoples experiences of cancer diagnosis and treatment. Register

Here at Solent, we have fundamentally changed the way we work with local people and communities. We want to ensure that the way we develop, design and improve our services is based on what really matters most to people who use them, not that we believe as health professionals is important. We now actively recognise and celebrate the strengths of our community, as people with exceptional knowledge, skills and expertise, that which sadly often goes untapped by providers of health and care services. By working with the Touch Network, we are enabling people to unlock stories about difficult times. This helps us understand what we do well, and what we need to change to ensure people who use our services have a positive experience of care. Do join us, Debs Carter, Founder of Touch Network and Sarah Balchin, Director of Community Engagement and Experience, to hear our story of sharing and learning. Register

A peer-led digital patient storytelling model. 'Stories place patients at the heart of our work to discover what truly matters most'. In 2020, the patient and public engagement team at Royal Brompton and Harefield Hospitals recruited patients, staff and volunteers to take part in digital patient storytelling training. At this session, you will meet this pioneering peer team who, starting as absolute beginners, lead this work, their motivation, and their training experience. How recording of a patient's experience can be transformed into video stories that celebrates great care, can provide vital learnings, and highlight potential future improvements. Register

PRSB is hosting a live podcast which will feature a vibrant discussion on the importance of human connection and personalised approach in providing care. Attendees will hear from Sarah Woolf, Movement Psychotherapist, who will talk about her own experience of how personalised care helped her recover from her condition, not only physically, but also emotionally and mentally. Sarah had the chance to describe her story in an article for the BMJ. The podcast will provide the opportunity for Q&A, and attendees will also be encouraged to share their own experiences and how they think personalised care can meet people's needs and expectations of care. The event is free to attend and everyone is welcome to join. Register

This conference focuses on patient involvement and partnership for patient safety including implementing the New National Framework for involving patients in patient safety, and developing the role of the Patient Safety Partner (PSP) in your organisation or service. The conference will also cover engagement of patients and families in serious incidents, and patient involvement under the Patient Safety Incident Response Framework published in August 2022. This conference will enable you to: Network with colleagues who are working to involve patients in improving patient safety. Reflect on patient perspective. Understand the practicalities of recruiting Patient Safety Partners. Improve the way you recruit, work with and support Patient Safety Partners, Develop your skills in embedding compassion and empathy into patient partnership. Examine the role of patients under the new Patient Safety Incident Response Framework (PSIRF). Understand how you can improve patient partnership, family engagement and involvement after serious incidents. Identify key strategies for support patients, their families and carers to be directly involved in their own or their loved one’s safety. Learn from case studies demonstrating patient partnership for patients safety in action. Examine methods of involving patients to improve patient safety in high risk areas. Self assess and reflect on your own practice. Supports CPD professional development and acts as revalidation evidence. This course provides 5 Hrs training for CPD subject to peer group approval for revalidation purposes. Register hub members receive a 20% discount. Email info@pslhub.org for discount code.

Sarah Whitehead, External Relations and Public Affairs Manager, Novo Nordisk and Sarah Louis, patient partnership, talk about The Patient Association's biosimilars project. A speaker from Nutricia, and Carolyn Wheatley, patient participant, will speak about the nutrition checklist. Dr Aman Gupta, Medical Affairs Manager at Pfizer and Fran Husson, patient participant, will speak about their work in antimicrobial resistance. Register for this event.