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Showing results for tags 'Information sharing'.
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Content ArticleThis is part of our series of Patient Safety Spotlight interviews, where we talk to people working for patient safety about their role and what motivates them. Ian talks to us about rebuilding patient trust in the healthcare system, how the Private Healthcare Information Network (PHIN) is helping to improve decision making for patients in the private sector, and why recognising the link between physical and mental health is vital to patient safety.
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- Private sector
- Data
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Content ArticleThis online comic has been developed by the Royal College of Anaesthetists and the Association of Paediatric Anaesthetists of Great Britain and Ireland to help children aged 7-11 understand what it’s like to have a general anaesthetic, using familiar Beano characters to help reduce any anxiety they may have about surgery. It is a fun and playful way to help children understand more about their operation and how to prepare for it, and includes links to other resources. Readers can accompany Dennis on a fun-filled journey as he prepares to have his tonsils removed, from diagnosis to discharge from hospital. The comic answers children's questions, including: what is a general anaesthetic and is it safe? how will I feel when I wake up? how can I prepare for my operation? what should I do if I am worried or have questions? 'Dennis has an anaesthetic' will also help children and their parents and carers understand what happens in the run-up to an operation, the care children will need afterwards and how they can best prepare.
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- Surgery - Paediatric
- Patient engagement
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Content ArticleCancer Research UK, in partnership with London-based tech company Stitch, are piloting an app for patients to use whilst participating in a clinical trial. The Trialmap app, which was co-created with patients, is being piloted on a clinical trial run by Cancer Research UK’s Centre for Drug Development. The aim of the app is to ensure patients feel valued for their participation, and to improve patient experience during clinical trials. This article looks at how the app: allows patients to easily view information about the trial gives reminders about appointments and what patients might need to do to prepare for them gives patients the opportunity to provide real-time feedback regarding their time on the trial.
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- Cancer
- Health and Care Apps
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Content ArticleThis guide by the Patient Information Forum (PIF) provides practical support for translating health information. It offers tips on overcoming key challenges and links to useful resources. It is mainly focused on foreign language translation, but the principles can also be applied to British Sign Language and Braille. Research shows that in the UK, up to a million people cannot speak English well or at all, and these people have a lower proportion of good health than English speakers. Providing culturally appropriate, translated health information can help people manage their own health and take part in shared decision making. Translation is consistently raised as a key challenge by health information producers. Please note, you will need to join PIF to view this content.
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- Health inequalities
- Health Disparities
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Content ArticleThis report published by the National Confidential Enquiry into Patient Outcome and Death (NCEPOD) assesses the quality of care provided to adult patients with a pre-existing epilepsy disorder, or who were subsequently diagnosed with epilepsy and presented to hospital following a seizure, between 1 January and 31 December 2020.
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- Epilepsy
- Information sharing
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Content ArticleIn this episode of the NICE talks podcast, Consultant Respiratory Physician Dr Hitasha Rupani, Medicines Consultant Clinical Adviser at the National Institute for Health and Care Excellence (NICE) Jonathan Underhill and asthma patient Sheba Joseph discuss NICE’s recently published patient decision aid on asthma inhalers and climate change. The tool supports people with asthma to consider whether they might be able to use inhalers which have a smaller carbon footprint as part of their treatment plan. View the NICE patient decision aid on asthma inhalers and climate change
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- Asthma
- Decision making
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Content ArticleThis report by the Harmed Patients Alliance (HPA) explores the needs of injured patients and their loved ones for independent advocacy, advice and information when they have been involved in patient safety incidents that are believed to have led to harm. It examines the extent to which this is available or resourced, and aims to stimulate and inform a national discussion about this issue in England among key stakeholders. It looks at the historical context and the moral and economic arguments and implications of resourcing these kinds of services.
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- Patient safety incident
- Patient engagement
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Content ArticleThe Patients Association has been working with NHS England to look at how to improve GP referrals of patients to hospital. The goal was to look at ways specialists could support GPs so they could reduce the number of outpatient appointments patients have to attend, without compromising care. This report includes an overview of the patient panel workshops, key themes and findings from the workshops, and a set of recommendations.
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- Patient engagement
- GP
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News Article
‘Know, Check, Ask’ before you take medication urges Northern Ireland's Minister
Patient Safety Learning posted a news article in News
Both patients and healthcare staff have a central role to play in ensuring the safe use of medicines, Health Minister Robin Swann has said. Minister for Health Robin Swann was speaking at an event to mark the roll out of the ‘Know, Check, Ask’ Campaign across all healthcare sectors in Northern Ireland. The aim of the campaign is to increase awareness and understanding about the importance of using medicine safely. The call for action of the campaign is for: Patients to Know Check Ask – Before you take it: KNOW your medicines and keep an up-to-date list. CHECK that you are using your medicines in the right way. ASK your healthcare professional if you’re not sure. Health Care staff to Know Check Ask – Before you give it: KNOW your medications. CHECK you have the right: patient, medicine, route, dose and time. ASK your patient if they understand and ask your colleagues when you are unsure. Minister Swann added “I want to encourage and help patients to be more curious about their medication, know what medication they are using, how to use it safely and feel able to ask their health care professionals questions about their medicines. Patients should also feel able and confident to report problems with their medication early and so help reduce avoidable harm.” Read full story Source: Department of Health, 30 September 2022- Posted
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- Medication
- Northern Ireland
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News ArticleHealth professionals should not let fears about sharing personal data “stand in the way” of reporting patients at risk of ”being groomed into terrorist activity”, new government guidance has stressed. New guidance has been developed in response to concerns raised by clinicians about information sharing without consent for the purposes of the anti-terror Prevent and Channel programmes. It stresses that “fears about sharing personal data should not be allowed to stand in the way of the need to safeguard and promote the welfare of children and adults at risk of abuse or exploitation”. However, despite the need for clarity it describes how the decision for making a referral without someone’s informed consent should be subject to a “case-by-case” basis assessment, which considers whether the informed consent of the individual can be obtained, and if the proposed data sharing is legitimate, necessary, proportionate and lawful. It said: “This assessment should be based on your professional opinion that there is tangible public interest or best interest considerations involved.” Read full story (paywalled) Source: HSJ, 29 September 2022
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News ArticlePhrases such as “cutting edge,” “game changing,” and “ground breaking” have no place in the description of new drugs by the government and NHS agencies, a therapeutics specialist and GP has warned. James Cave, editor in chief of the Drug and Therapeutics Bulletin (DTB), said in an editorial1 that the degree of hyperbole and omission of important information in government press releases and media statements “leaves patients and healthcare professionals with a limited and unbalanced view of a medicine.” In a letter to the heads of NHS England, the National Institute for Health and Care Excellence (NICE), and the Medicines and Healthcare Products Regulatory Agency (MHRA) he referred to a loss of objectivity in statements about new drugs over the past few years. Rather, some statements contained “a degree of hyperbole that might be more associated with an advertising agency.” Read full story (paywalled) Source: BMJ, 28 September 2022
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- Communication problems
- Medication - related
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Content ArticlePatients benefit from guideline-based preventive, chronic disease, and acute care, but many do not receive it. A limitation to providing high-quality care is insufficient time for primary care providers (PCPs). The aim of this study was to quantify the time needed to provide preventive care, chronic disease care, and acute care for a nationally representative adult patient panel by a PCP alone, and by a PCP as part of a team-based care model. The authors concluded that PCPs do not have enough time to provide the guideline-recommended primary care. With team-based care the time requirements would decrease by over half, but still be excessive.
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- Primary care
- Patient
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Content ArticleTo receive and participate in medical care, patients need high quality information about treatments, tests, and services—including information about the benefits of and risks from prescription drugs. Provision of information can support ethical principles of patient autonomy and informed consent, facilitate shared decision making, and help to ensure that treatment is sensitive to, and meets the needs and priorities of, individuals. Patients value high quality, written information to supplement and reinforce the verbal information given by clinicians. This is the case even for those who do not want to participate in shared decision making. The aim of this study was to evaluate the frequency with which relevant and accurate information about the benefits and related uncertainties of anticancer drugs are communicated to patients and clinicians in regulated information sources in Europe. The findings of this study highlight the need to improve the communication of the benefits and related uncertainties of anticancer drugs in regulated information sources in Europe to support evidence informed decision making by patients and their clinicians.
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- Medication
- Prescribing
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Content Article
NHS Knowledge and Library Hub
Patient Safety Learning posted an article in Suggest a useful website
The NHS Knowledge and Library Hub connects NHS staff and learners to high quality knowledge and evidence resources in one place, using a single search. includes all journal articles, e-books, guidelines and evidence summary tools provided nationally and by your local NHS library team provides seamless access to full text, as an immediate download or on request from an NHS library avoids the less-reliable sources you might find in a general web search. Full access is free to all NHS staff and learners using your NHS OpenAthens account.- Posted
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- Knowledge issue
- Information sharing
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Content ArticleEasyFOI is an email address compiler designed to help you send identical freedom of information requests to multiple organisations. Journalists, researchers and ordinary members of the public use the FOI act every day to request all kinds of information from statutory public bodies. You may want to request the same information from different organisations. But it can be hard to find a central list of every public body in the country, let alone their FOI inboxes (which don't tend to follow a standard format). EasyFOI is here to make that easier. Instead of searching for each organisation's contact details, or compiling your own database, you can use this simple tool to copy the appropriate email address for every relevant organisation straight into your device's clipboard. You can also use the EasyFOI generator to help you write your request in seconds. The EasyFOI database doesn't yet cover all public bodies. But it's expanding all the time, and currently includes more than 1,000 organisations.
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- Information sharing
- Information processing
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Content ArticleThis tool from the Parkinson's Association of Ireland allows people with Parkinson's to record their essential medical information in an easy to access format, should they need assistance or medical treatment. It includes: information about the physical symptoms of Parkinson's, including how it affects speech and movement. instructions on how to interact with the person if they are having difficulty communicating. personal details and emergency contacts details of medications and treatments the person is taking.
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- Parkinsons disease
- Medication
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Content ArticleIf you are considering 'going private' for the first time, it can be confusing and overwhelming. Private Healthcare Information Network (PHIN) has created some short videos to guide you through your private healthcare journey and demonstrate how the PHIN website and search function can help you. These videos for patients clarify some essential healthcare terms and shows how you can use PHIN's website to make informed decisions when considering private medical treatment. Have a watch, or if you prefer to read the information instead, PHIN has also included the text from each video below it. PHIN is an independent, government-mandated organisation publishing performance and fees information about private consultants and hospitals.
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- Private sector
- Patient
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Content ArticleCincinnati Children’s Hospital Medical Center believes all patients and their families have a right to receive medical information in their preferred language. Andy Schwieter from Cincinnati Children’s shares how his organisation supports the diverse languages of the community they serve through improved communication.
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- Patient engagement
- Communication
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Content ArticleThe first ever HETT North event, which brought together digital health leaders from across the country, took place in March 2023 in Manchester. The event highlighted the latest advancements in digital healthcare, and this blog reports on the final keynote session of the day, which focused on ‘Assessing the landscape of digital health transformation – past, present & future’. Key topics included identifying underlying issues that need to be addressed to allow for digital transformation, and the policy surrounding digital transformation in Integrated Care Systems (ICSs). Alongside Clive Flashman, Patient Safety Learning's Chief Digital Officer, the panel included: Sam Shah, Chair, HETT Steering Committee Henrietta Mbeah-Bankas, Head of Blended Learning & Digital Learning & Development Lead, Health Education England Tremaine Richard-Noel, Head of Emerging Technology, Northampton General Hospital NHS Foundation Trust Liz Ashall-Payne, CEO, ORCHA You can watch a video of the discussion on Youtube.
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- Technology
- Interoperability
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Content ArticleMonthly publications from the Joint Commission that outlines an incident, topic or trend in healthcare that could compromise patient safety.
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- Global health
- Patient safety incident
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Content ArticleConsent to treatment such as operations and diagnostic procedures can only be truly informed if the patient understands the risks, benefits and alternatives. They also need to have considered what will happen if they choose not to have any treatment at all. A failure to obtain informed consent is not only unlawful, but can contribute to lasting physical and psychological harm. In this blog, hub Topic Leader Julie Smith looks at the different areas to consider when creating written information that is genuinely useful to the patient. Julie’s advice also helps readers understand how they can provide information that is medico-legally sound.
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- Patient engagement
- Consent
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Content ArticleIn this video interview, consultant geriatrician Dr Elena Mucci talks about patient safety in geriatrics and end of life care. She describes the importance of: taking a whole-person approach to caring for older people reviewing medications regularly equipping patients to manage their own health. engaging patients and their families in planning for end of life care at an early stage Elena also explains how she is sharing these messages with both patients and healthcare professionals.
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- Older People (over 65)
- Medicine - Geriatric
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Content Article
World Patient Safety Day 2023
Patient Safety Learning posted an article in WHO
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- WPSD23
- Patient engagement
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Content ArticleThis report from the King's Fund looks at the reality of caring for acutely ill medical patients at the NHS front line and asks how care in hospitals can be improved. It comprises a series of essays by frontline clinicians, managers, quality improvement champions and patients, and provides vivid and frank detail about how clinical care is currently provided and how it could be improved. The essays are introduced and summarised by Chris Ham and Don Berwick and the report serves as the starting point of an ongoing appreciative inquiry into improving care processes, particularly for acutely ill medical patients.
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- Organisation / service factors
- Organisational Performance
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News ArticleThe Health Research Authority has launched a new strategy to ensure information about all health and social care research – including COVID-19 research - is made publicly available to benefit patients, researchers and policy makers. The COVID-19 pandemic has highlighted the importance of sharing details of research taking place - to understand the virus and find the tests, treatments and vaccines - so that results can inform best quality care and preventive measures. This also means researchers do not duplicate efforts and can build on each other’s work while the public can see what research is going on. Now the new Make it Public strategy aims to build on this good practice and make it easy for researchers to be transparent about their work. The strategy, delivered by the HRA in partnership with NHS Research Scotland (NRS), Health and Care Research Wales and Health and Social Care Northern Ireland, is about making transparency ‘the norm’ in research and making information more visible to the public. New measures set out in the strategy – will improve transparency and openness in health and social care studies, by: expecting researchers to plan how they will let research participants know about the findings of the study from the beginning introducing additional monitoring to check that researchers are reporting results and to collect information about study findings making information on individual research projects – and their transparency performance - available to the public introducing a system to consider past transparency performance when reviewing new studies for approval and in the future introducing sanctions.
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- Patient involvement
- Evaluation
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