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Found 457 results
  1. Content Article
    Long Covid is now estimated to affect 2 million people in the UK, and almost 145 million globally. It’s a complicated diagnosis to receive and those affected have to cope with both the physical symptoms and the psychological strain of having an illness that is not yet well understood and does not have well-established treatments. Three Long Covid patients share with the Guardian on how they navigated this journey.
  2. Content Article
    These stories provide examples of how people with pancreatic cancer are diagnosed, the treatment they have, their experiences and how they take care of themselves. Everyone diagnosed with pancreatic cancer will be different in terms of how they received their diagnosis and how they respond to and cope with treatment.
  3. Content Article
    This practice pointer in The BMJ provides an update on treating Long Covid in primary care and outlines how healthcare professionals might respond to questions that patients ask about the condition. The article provides information on: Definition of Long Covid Epidemiology Symptoms and case definition Questions patients ask Further resources for patients and healthcare professionals
  4. Event
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    The number one focus in the world right now is health care and the critical need to bring greater efficiency to treating patients. During the COVID-19 pandemic, vast amounts of information are rapidly cross-crossing the globe. Governments, health systems, and research communities in the European region are looking to learn as much as possible from each other, as quickly as possible, about the nature of COVID-19 and the most effective interventions for preventing and treating it. We cannot afford to ignore the clear signs pointing to a new future of increased care needs, labour shortages, and operational strain. From COVID-19 to general routine care, we must act now to ensure that no patient waits for the care they need. For health care professionals looking to structure their leadership plans around lessons learned in the field comes the 'Hospital Flow in the UK: During and Beyond COVID-19'. In this online course from the Institute for Healthcare Improvement (IHI), health care leaders address challenges and share successes, best practices, and strategies to effectively advance the long-term goal of improving community health in a post-COVID world. Experts will discuss noteworthy global challenges and responses to COVID-19, specifically focusing on efforts in the United Kingdom (UK) to monitor and quickly improve treatment for patients across the care continuum. Further information and registration
  5. Content Article
    Research has shown that frontline staff understand the dangers of pressure sores but experience significant challenges in their attempts to prevent them. The research, undertaken by NHS Midlands and East and downloadable below, showed that staff feel they do not have the time to treat patients and need improved communication between the patients, their carers and the homes from which they might have come. In response to this, NHS Midlands and East has created the Pressure Ulcer Path, a tool to support staff in preventing pressure ulcers and treating them, alongside a number of useful resources.
  6. Content Article
    New analysis by the Health Foundation shows there were 4.7 million fewer people referred for routine hospital care – for things like hip, knee and cataract surgery – between January and August 2020 compared to the same period in 2019, representing a potential hidden backlog of unmet care needs. The research highlights the scale of the challenge facing the NHS as it looks to resume services following the disruption caused by the first wave of COVID-19. The number of patients in hospital with COVID-19 is growing as we head into winter, a time when the NHS always experiences greater pressures from flu and other seasonal illnesses. If the virus is not controlled and emergency pressures surge, even more routine treatment will need to be postponed which will only add to the challenge of recovering from the pandemic.
  7. Content Article
    Developed to support healthcare professionals at the front line of prostate cancer diagnosis and care, Prostate Cancer UK's Best Practice Pathway uses easy to follow flowcharts to guide healthcare professionals deliver best practice diagnosis, treatment and support. It sets out how to achieve an early diagnosis in men at higher than average risk of the disease. It also supports use of the most up-to-date, cutting-edge research-led innovations - so that healthcare professionals are equipped and supported to provide the very latest evidence-based best practice to their patients.
  8. Content Article
    The purpose of this Royal College of Nursing (RCN) document is to provide standards and sample assessment tools for training in genital examination in women for registered nurses working in sexual and reproductive health settings, and related health and social care settings. It is envisaged that this document could be used by registered health care professionals who would require training in genital examination in order, for example, to undertake the following procedures: cervical sampling including liquid based cytology and colposcopy taking swabs as part of a sexual health examination inserting, checking or removing intrauterine devices and IUS vaginal ultrasound hysteroscopy nurses working within early pregnancy and acute gynaecology settings and as part of any extended role in history taking and examination for the assessment of symptomatic women.
  9. Content Article
    Patient Safety Learning’s response to the announcement by the NHS on the 7 October 2020 of a new five-part package of measures to boost support for Long Covid patients.
  10. Content Article
    The National Organization for Rare Disorders (NORD)’s Rare Disease Database provides brief introductions for patients and caregivers to specific rare diseases. 
  11. Content Article
    This report is a culmination of findings from Rare Disease UK and Genetic Alliance UK to evidence the experiences of those living with a rare condition. The report underpins their call for a refresh and review of the UK Strategy for Rare Diseases focussing on five key areas: diagnosis, rare disease care and treatment, information and support, rare disease research and keeping the strategy up to date.
  12. Content Article
    If you have a rare disease, the search for a diagnosis can often feel like the longest detective investigation - with no clues, lots of blind alleys and, occasionally, disbelieving authorities. It may seem like things are going nowhere, even for years. Sometimes this is because information on the condition just isn’t available and not enough research has been done; other times it’s difficult to find someone knowledgeable enough to spot the signs of a rare disease. After all, these diseases are so rare that many doctors have never come across them in their careers. Either way, a person with a rare disease can end up playing investigator in their own personal medical mystery – and in some situations even end up solving the case, or devising treatment, for themselves! Read some stories from patients.
  13. Content Article
    The NIHR-supported RECOVERY trial has shown that tocilizumab – an anti-inflammatory rheumatoid arthritis treatment – reduces the risk of death for hospitalised patients with severe COVID-19. Researchers also found that the drug reduces the length of hospital admission, and the risk of patients requiring mechanical ventilation. Last year, the RECOVERY study was the world’s first to show that dexamethasone – a cheap and available steroid – reduces the risk of dying from COVID-19. The latest results from the study also suggests that for COVID-19 patients who have significant inflammation and require oxygen, a combination of a systemic corticosteroid – such a dexamethasone – alongside tocilizumab reduces mortality by about one third for patients requiring simple oxygen and nearly one-half for those requiring invasive mechanical ventilation. RECOVERY is now the second NIHR-supported study to demonstrate the effectiveness of tocilizumab as a treatment for COVID-19 patients, after results from the REMAP-CAP study last month showed that tocilizumab and a second similar drug called sarilumab have a significant impact on survival and can reduce the relative risk of death for critically ill patients in intensive care. The latest results from RECOVERY show that a much wider cohort of COVID-19 patients can potentially benefit from tocilizumab - beyond those critically ill on mechanical ventilation. For this preliminary report, information on the primary outcome was available for 92% of patients. Report has not been peer-reviewed yet.
  14. Content Article
    As yet, no commonly agreed clinical definition of long term covid-19 exists, nor a clear definition of treatment pathway. To assist clinicians, the National Institute for Health and Care Excellence (NICE), the Scottish Intercollegiate Guidelines Network (SIGN), and the Royal College of General Practitioners (RCGP) have developed the COVID-19 rapid guideline: managing the long term effects of COVID-19. It covers care for people with signs and symptoms that continue for more than four weeks, and which developed during or after an infection consistent with covid-19, and which are not explained by alternative diagnoses. This guide, published by the BMJ, provides a summary of the NICE, SIGN, and RCGP rapid guideline.
  15. Content Article
    This paper, commissioned by UCB, investigates how five leading specialist hospital services in the UK are innovating in care for people with severe psoriasis, inflammatory bowel disease (IBD), axial spondyloarthritis, osteoporosis and combinations of inflammatory conditions. The paper is based on interviews with a range of staff at the sites: the psoriasis clinic at Salford Royal NHS Foundation Trust; the IBD service at Western General Hospital in Edinburgh; the axial spondyloarthritis service at the Royal National Hospital for Rheumatic Diseases; the osteoporosis service at Oxford University Hospitals NHS Foundation Trust; and the specialist spondyloarthritis service at Leeds Teaching Hospitals NHS Trust. It describes how these services are innovating to improve care for the people who access them and deliver more holistic care that addresses individuals’ biomedical, psychological and social needs. The paper draws out possible learning for other services working with people with long-term conditions.
  16. Content Article
    At Patient Safety Learning, we’ve been working with others to understand the issues surrounding painful hysteroscopies. In this interview, we talk to Obstetrics and Gynaecology consultant, Saira Sundar, about the process. She offers her clinical insight and highlights some of the challenges involved when it comes to managing pain during hysteroscopies.   Saira also offers advice to colleagues and patients seeking to reduce anxiety and improve the patient experience.
  17. Content Article
    Neonatal herpes simplex virus (HSV) disease is a rare, and potentially fatal, disease which usually occurs in the first four weeks of a baby's life. Early recognition and treatment of the virus has been shown to significantly improve babies' chances of making a full recovery. Kit Tarka Foundation works to prevent newborn baby deaths; primarily through raising awareness of neonatal herpes, funding research and providing advice for healthcare professionals and the general public.
  18. Content Article
    This guideline covers identifying, assessing and managing the long-term effects of COVID-19, often described as ‘Long COVID’. It makes recommendations about care in all healthcare settings for adults, children and young people who have new or ongoing symptoms 4 weeks or more after the start of acute COVID-19. It also includes advice on organising services for Long COVID.
  19. Content Article
    The National Institute for Health Research (NIHR)-supported RECOVERY trial has found no clinical benefit from the antibiotic azithromycin for hospitalised patients with severe COVID-19.
  20. Content Article
    Suffering from an eating disorders can impact on all parts of a person’s life and the NHS is committed to providing evidence based treatment and support to those who need it. The First Episode Rapid Early Intervention for Eating Disorders (FREED) is an innovative service model that has offered support to over 1,200 16 to 25-year-olds who have had an eating disorder for three years or less.
  21. Content Article
    This is the first of a series of webinars Patient Safety Learning, Health Plus Care and BD are holding on patient safety on the frontline, exploring burning patient safety issues and engaging with frontline healthcare workers, clinical leaders and patient safety experts. COVID-19 has had a devastating impact on access to non-COVID care and treatment. We know there are over a million extra patients awaiting hospital treatment. The NHS has issued guidance for ‘accelerating the return to near-normal levels of non-COVID health services, making full use of the capacity available in the ‘window of opportunity’ between now and winter.’ In this webinar, the panel discusses these issues with frontline clinicians and patient safety experts.
  22. Content Article
    Patient Safety Learning, Health Plus Care and BD are holding a series of webinars on patient safety on the frontline, exploring burning patient safety issues and engaging with frontline health care workers, clinical leaders and patient safety experts. The first of these webinars is at 11.00am (BST) on Wednesday 16 September: Responding to the treatment backlog safely. This blog sets out some of the key points to inform the webinar.
  23. Content Article
    In order to inform clinical and research practice in secondary care in light of the COVID-19 pandemic, an online survey was used to collect public opinions on attending hospitals. The survey link was circulated via the National Institute for Health Research (NIHR) Public Involvement (PPI) Leads network and social media. Data collection included self-identified risk status due to comorbidity or age, and 100 point Likert-type scales to measures feelings of safety, factors affecting feelings of safety, intention to participate in research, comfort with new ways of working and attitudes to research. Results for feelings of safety scales indicate two distinct groups: one of respondents who felt quite safe and one of those who did not. *Note: This article is a preprint and has not been peer-reviewed. 
  24. Content Article
    Is the Government oblivious to the avoidable harm caused to non-COVID patients as a result of disruption to health services during the pandemic? Or worse, is it trying to bury bad news? On 18 June 2020, Peter Walsh, Chief Executive, Action against Medical Accidents (AvMA), together with other organisations and experts, wrote to the Prime Minister and the First Ministers of the UK nations about avoidable harm being caused to non-COVID patients as a result of prolonged disruption to health services since the start of the COVID-19 pandemic. However, at the time of writing this blog, there has been no response to that letter Peter asks whether the failure to acknowledge the problem and ensure that it is urgently addressed, or even to show empathy with those affected, is at best irresponsible and deeply disrespectful to all those affected or at risk, or, at worst, whether it could be a conscious decision to bury bad news and avoid responsibility.
  25. Content Article
    Although millions of patients with cancer around the world face delays in diagnosis and treatment because of the diversion of resources during the COVID-19 pandemic, there is a growing expectation that telemedicine may play a central role in easing the backlog. This Lancet Digital Health article explores how telemedicine will be key as healthcare systems move forward in tackling the backlog in not only cancer treatment but also diagnosis, and how augmented intelligence (AI) could be used to help to optimise its use.
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