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Showing results for tags 'Learning disabilities'.
Found 250 results
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Content ArticleThe UK Positive Behavioural Support (PBS) Competence Framework provides a detailed framework of the things that you need to know and the things that you need to do when delivering best practice PBS to people with learning disabilities who are at risk of behaviour that challenges. The objectives of the framework are that: More individuals with learning disabilities and behaviours that challenge will benefit from high-quality, evidence-based support delivered by competent professionals working as part of a multi-disciplinary team. Practitioners will benefit from professional development and occupational standards. Organisations supporting individuals with learning disabilities and behaviours that challenge will be able to employ practitioners with a greater degree of certainty about competence and quality. Commissioners will have a greater understanding of the nature and use of PBS in practice. Practice based research will contribute to the growing evidence base for PBS.
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Content ArticleResearch has shown that there is variability in quality of life (QOL) outcomes for people with intellectual disabilities who live in group homes. The aim of this study from Humphreys et al. was to examine dimensions of group home culture as predictors of QOL outcomes.
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Content ArticleResearch has shown that there is variability in quality of life (QOL) outcomes for people with intellectual disabilities who live in group homes. The aim of this study from Humphreys et al. was to examine dimensions of group home culture as predictors of QOL outcomes.
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Content ArticleBuilding on cultural dimensions of underperforming group homes, Bigby and Beadle-Brown analyses culture in better performing services. In depth qualitative case studies were conducted in three better group homes using participant observation and interviews. The culture in these homes, reflected in patterns of staff practice and talk, as well as artefacts differed from that found in underperforming services. Formal power holders were undisputed leaders, their values aligned with those of other staff and the organization, responsibility for practice quality was shared enabling teamwork, staff perceived their purpose as “making the life each person wants it to be,” working practices were person centered, and new ideas and outsiders were embraced. The culture was charactersed as coherent, respectful, “enabling” for residents, and “motivating” for staff. Though it is unclear whether good group homes have a similar culture to better ones the insights from this study provide knowledge to guide service development and evaluation.
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Content ArticleThis is an easy read document explaining the importance of sharing information about your support needs. These are sometimes called reasonable adjustments.
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Content ArticleIn this Episode of the 'This Is Nursing' podcast series, Gavin Portier speaks to Amanda McKie, Matron -for Learning Disabilities & Complex Needs Coordinator at Calderdale & Huddersfield NHS Foundation Trust. In this episode Amanda talks about health inequalities, mental capacity, advocacy and high profile key documents such as Death by Indifference, the LeDer Mortality programme and the current case of Oliver McGowan. Learning disabilities is a life long condition and they can present in any areas of health care. In this podcast we discover how important it is to have an understanding an appreciation and insight into the care experience of a person with a learning disability and their parents or carers.
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Content ArticleBased on extensive interviews with the leaders of seven trusts in the NHS providing good or outstanding care to people with a learning disability and people with autism, and broader ongoing engagement with trusts providing these services, this report from NHS Providers sets out in detail the common themes behind high-quality care, offering detailed case studies of how these services have succeeded.
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Content Article
Building a communication passport
Claire Cox posted an article in Learning disabilities
Kate and Jenny Sanger’s 'Communication Passport' gives a voice to the voiceless and enables those being supported and those providing that support to have the two-way conversation that leads to a happy and positive relationship. The passport is a powerful support tool for staff, giving them confidence and job satisfaction that they are doing their best for the person they support. Kate and Jenny Sanger created the communication passport originally for Kate’s daughter, Laura. The aim of the passport is to enable a range of professionals and specialists access important information so that care can be delivered more holistically. The communication passport has now been shared widely to help other families and individuals with complex needs. Kate and Jenny Sanger speak in this webinar about building a communication passport. -
Content ArticleWhat does good end of life care planning look like? What should you talk about, how and when should you talk about it? Big questions. It’s hard enough for any of us to plan for our time of declining health and dying. Much harder, still, for people with learning disabilities. And much, much harder still at this time of COVID-19. There is a danger that we talk about it at an unhelpful time or in an unhelpful way. This danger is greatest if there is a tick-box approach to “end of life care planning” (or, as it is often called, “advance care planning”), where the focus is on completed paperwork rather than on communication. In this webinar, Professor Irene Tuffrey-Wijne talks about what end of life care planning is (and what it isn’t), and talks through her top tips on how to approach this with people with learning disabilities. She will also discuss some of the particular challenges we face now, during COVID-19, in relation to end of life care planning.
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Content ArticleIn this webinar Dr Brian McClean, Clinical Psychologist working with Acquired Brain Injury Ireland, spoke about grading behaviour support plans.
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Content ArticleThis webinar by Professor Keith R. McVilly PhD (University of Melbourne) focuses on developing and maintaining healthy friendships and relationships in a time of national physical distancing during the COVID-19 pandemic. Professor Keith R. McVilly PhD is a Registered Clinical Psychologist and the Foundation Professorial Fellow for Disability & Inclusion, in the School of Social and Political Sciences at the University of Melbourne. His work addresses the translation of research into policy and practice, with a focus on promoting the well-being and community inclusion of people with multiple and complex disabling experiences.
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Content Article
Health screening poster: Learning disabilities (MacIntyre)
Claire Cox posted an article in Learning disabilities
This poster from MacIntyre helps to raise awareness of health screening for people with learning disabilities among frontline staff. Giving an overview of relevant health checks depending on sex and age the poster serves as a quick visual reminder. -
Content Article
Health appointment information sheet: Easy read
Claire Cox posted an article in Learning disabilities
This easy read document, from Macintyre, should be used as an aid in helping people to: prepare for their appointment participate in the appointment understand the advice given at the appointment. It can also be presented to the health professional - by using information from One Page Profile, the document serves as an aid for the health professional on how to engage with the person during the appointment. -
Content ArticleThe Keep Going…….Don’t Stop! (KGDS) group was formed in May 2016 with a focus of creating work (related to growing older, dementia and health) that is easily accessible to people with a learning disability in different formats, predominantly easy read. The aim is to ensure the documents will support people with a learning disability to have more of an understanding of what is happening with their changing health needs as they grow older. By making the documents accessible, MacIntyre can make sure they are involving the people they support as much as possible and staff can be confident that they have the tools to support such conversations.
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Content Article
Challenging discrimination and stigma: Dementia
Claire Cox posted an article in Learning disabilities
This resource, produced by the MacIntyre Dementia Project, is designed to provide: An understanding of what discrimination and stigma is and how it can affect a person. Knowledge of how to recognise when a person is being discriminated against. Knowledge of who to report concerns to. -
Content Article
Anxiety booklet: Dementia
Claire Cox posted an article in Learning disabilities
Most people experience anxiety at some point in their life, but this may be more acute for a person with a learning disability or autism who then develops dementia. If a person has a history of being anxious or of living with a condition, particularly conditions like OCD (Obsessive Compulsive Disorder), phobias or panic disorders that makes them anxious, developing dementia may then make that worse. The person's communication skills may have diminished due to their dementia, leaving them frustrated at being unable to express themselves and anxious about the consequences of this. -
Content Article
Angela – the importance of post-diagnosis support (dememtia)
Claire Cox posted an article in Learning disabilities
In this case study, Angela gives us a first person account of her life, detailing her family history, life with her husband, her interests and her healthcare, including her recent diagnosis of dementia. Nicola, who has supported Angela with her diagnosis, reflects on the importance of telling Angela about the diagnosis and the support needed moving forward. -
Content Article
An Introduction to End of Life Care
Claire Cox posted an article in Learning disabilities
It is important to be able to talk about end of life with the people, it is not a topic that should remain taboo. We must break through barriers and remove any stigma associated with talking about end of life care. The people we support are entitled to a ‘good’ death, everyone is. Staff teams must respect their end of life wishes and have those ‘difficult’ conversations so that they know what these wishes are. -
Content Article
Alison – the emotional impact of dementia on relationships
Claire Cox posted an article in Learning disabilities
This is Alison’s Story. The charity MacIntyre supports Alison. She has Down’s Syndrome and a diagnosis of dementia. Her story is one of relationships and the emotional impact that dementia can have on friendship. Alison has a really close relationship with Rachel, her best friend who she also lives with. In this case study you will hear: who Alison is how she received her diagnosis of dementia a reflection on Alison's diagnosis by her support manager. -
Content Article
Advanced Care Planning (Macintyre)
Claire Cox posted an article in Learning disabilities
Advance Care Planning (ACP) is becoming increasingly important in ensuring that people receive good care and ultimately experience a “good death”. ACP can lead to less aggressive or invasive medical care, better quality of life near death, decreased rates of hospital admission, and people being more likely to receive care that is aligned with their wishes and dignity. It can be a difficult subject to discuss and can be confusing for health and social care professionals, staff and families, due to a lack of knowledge about ACP and a lack of awareness regarding the legal position. -
Content Article
Accident and emergency grab sheet
Claire Cox posted an article in Learning disabilities
The accident and emergency grab sheet has been developed by Macintyre to aid quick information handover in an emergency situation. -
Content ArticlePeople with a learning disability must be involved in all decisions about their health, and be in control over these choices. Some of the barriers to equal access to healthcare faced by people with a learning disability are: Lack of information that is easy to understand. ‘Diagnostic overshadowing’ - when signs and symptoms are mistakenly attributed to the person’s learning disability. Family carers and others who know the person well are not listened to when they are often able to describe changes in the person in a way that will aid diagnosis. A hospital might assume that the person has 24-hour support, when in fact they only get a few hours’ support a week and will need some extra help to follow the post-discharge treatment plan.
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Content Article
MacIntyres Families Podcast: Jim, a learning disability nurse
Claire Cox posted an article in Learning disabilities
In this episode of the 'MacIntyre Families Podcast' Jim Blair, a leading Learning Disability Nurse, Health Advisor at the British Institute of Learning Disabilities and Associate Professor at Kingston and St George's Universities answers questions submitted by the people Mcintyre support, their families and staff. Jim has over two decades of experience working as a learning disability nurse and is passionate about ensuring everyone with a learning disability is heard and involved in decisions about their own lives. -
Content ArticleIn the light of the current national guidance to reduce the number of inpatient learning disability beds, a review was completed of the quality of lives of the people who had been former inpatients in Cornwall at the time of closure of the learning disability inpatient facilities almost 10 years before transforming care.
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Content ArticleSignificant changes in how autistic people with a learning disability access and experience healthcare can and should be informed by stakeholders, including the patient and their family. This article, published by the University of Hertfordshire, provides different examples and suggestions from experts by parental experience.
