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Found 142 results
  1. News Article
    People with dementia, particularly care home residents early in the pandemic, were “disproportionately” vulnerable to fatal Covid infections, according to a new report. The analysis, commissioned by the Scottish Government, also found that excess deaths involving dementia during 2020 were “almost wholly” attributable to Covid. Of the 2,154 deaths where both dementia and Covid were listed on the death certificate, 95 per cent had Covid as the main underlying cause. This contradicts previous suggestions that a rise in dementia deaths early in the pandemic may have been linked indirectly to the virus as a result of “lockdown distress” or an increased use of potentially harmful sedation in elderly people confused by restrictions. The report also found that 73% (1,577) of those who died with both Covid and dementia mentioned on their death certificates had passed away in care homes. Henry Simmons, chief executive of Alzheimer’s Scotland, said their loved ones had been “torn apart by grief and loss” and that the report “raises many more questions as to why so many people with dementia living in care homes quickly became victims of Covid-19”. Read full story Source: The Herald, 10 February 2022
  2. Content Article
    The pandemic has shone a stark spotlight on so many inequities and inconsistencies in access to health and social care. Unfortunately, many of these inequities were already there and so, in some respects, its nothing new. In this blog, I want to draw attention to how visiting restrictions can result in worse outcomes for patients and their families. I will focus mainly on the needs of older adults in hospital or care, and those with dementia, because that has been my own experience. But these restrictive practices have affected so many groups: among them, those with mental health conditions and those with learning and behavioural difficulties. 
  3. Content Article
    This study in the British Journal of General Practice looked at the association between continuity of GP care and potentially inappropriate prescribing in patients with dementia, as well as the incidence of adverse health outcomes. The study authors found that for patients with dementia, consulting with the same doctor consistently, resulted in: 35% less risk of delirium 58% less risk of incontinence 10% less risk in emergency admission to hospital less inappropriate prescribing. The results demonstrate that increasing continuity of care for patients with dementia could improve their treatment and outcomes.
  4. News Article
    Hundreds of care homes in England are providing substandard care to dementia patients, analysis by the Guardian has found. One in five homes specialising in dementia are rated “inadequate” or “requires improvement” by the Care Quality Commission (CQC), inspection reports show. Some pose such a serious risk to people with dementia – including filthy conditions, poor infection control and untrained staff – that inspectors have ordered them to be placed into special measures. Altogether, 1,636 care homes are failing patients in findings described by charities and campaigners as “appalling”. They said urgent action was needed to tackle the “unacceptable” state of dementia care across the country. Zoe Campbell, the director of operations at the Alzheimer’s Society, said: “It’s appalling to hear that one in five care homes specialising in dementia are delivering substandard care. Every person with dementia deserves to live in a safe, secure place and to be treated with compassion and respect.” Campbell said the revelations meant staff recruitment and dementia training must be prioritised in the government’s social care proposals. Read full story Source: The Guardian, 18 January 2022
  5. News Article
    The number of adults living with dementia worldwide is on course to nearly triple to 153 million by 2050, according to the first study of its kind. Experts described the data as shocking and said it was clear that dementia presented “a major and rapidly growing threat to future health and social care systems” in every community, country and continent. US researchers said the dramatic rise from an estimated 57 million cases in 2019 would be primarily due to population growth and ageing. However, several risk factors for dementia – including obesity, smoking and high blood sugar – would also fuel the increase, they said. Improvements in global education access are projected to reduce global dementia prevalence by 6.2 million cases by 2050. But this will be countered by anticipated trends in obesity, high blood sugar and smoking, which are expected to result in an extra 6.8 million dementia cases. Hilary Evans, the chief executive of Alzheimer’s Research UK, who was not involved in the study, said the figures “lay bare the shocking scale of dementia across the world”. She said: “We need to see concerted global action to avoid this number tripling. Dementia doesn’t just affect individuals, it can devastate whole families and networks of friends and loved ones. The heartbreaking personal cost of dementia goes hand in hand with huge economic and societal impacts, strengthening the case to governments across the world to do more to protect lives now and in the future.” Read full story Source: The Guardian, 6 January 2022
  6. Content Article
    This report examines the impact of the Covid-19 pandemic on people living with long-term conditions and highlights that many have deteriorated faster than usual due to being unable to access rehabilitation services. It makes recommendations to the government aimed at restoring rehabilitation support services. The report was produced collaboratively by The Alzheimer's Society, The Stroke Association, Macmillan Cancer Support, The Centre for Mental Health, Age UK, The College of Podiatry, The Royal College of Speech and Language Therapists, The Royal College of Occupational Therapists, The Chartered Society of Physiotherapy and The British Dietetic Association.
  7. Content Article
    This is the report of an inquiry conducted by the Health and Social Care Select Committee in 2020/21 which considers how the social care system is supporting those living with dementia. In the report the Committee make the case that the UK government’s plans for the health and care levy provides insufficient funding for social care over the next three years.
  8. Community Post
    Hello! Patients with dementia or inattention (e.g. following stroke) can struggle to remember to use a walking aid prescribed by physiotherapists to enable safe mobility. This can result in increased falls, as patients mobilise without their aids. A simple solution is to provide a red walking aid; the colour contrasts with the surroundings and draws the patient’s attention to the aid, prompting them to use it for mobilising. There are no articles on this, possibly as it is hard to prove a causal link between red frames and reduced falls? I am looking for evidence (subjective or objective) for the use of red walking aids to increase patient's independent use of aid, and reduce falls in patients with dementia. I hope to promote the prescription of these within my trust, wherein they are currently classed as a special order, but I also want to spread the word as none of my colleagues had heard of them! Many thanks, Susanna
  9. Content Article
    The National Audit of Dementia (NAD) collected feedback between June and July 2020 to examine how the pandemic has affected hospital care for people with dementia. This report presents the findings from surveys completed by patients, their carers and hospital dementia leads.
  10. Content Article
    The Alzheimer’s Society has published three reports on dementia diagnosis to identify and address the challenges faced by people accessing a dementia diagnosis. 
  11. Content Article
    'This is me' is a simple leaflet for anyone receiving professional care who is living with dementia or experiencing delirium or other communication difficulties. 'This is me' can be used to record details about a person who can't easily share information about themselves. For example, it can be used to record: a person’s cultural and family background important events, people and places from their life their preferences and routines.
  12. Content Article
    The 21 September 2021 marks World Alzheimer’s Day. This is an international campaign to raise awareness and highlight issues faced by people affected by dementia (dementia is an umbrella term for a number of diseases that affect the brain, with Alzheimer’s disease its most common cause). In this interview, Patient Safety Learning speaks to Alison Keizer, a Mental Health Nurse and trust-wide Dementia Lead, and Fran Hamilton, Occupational Therapist and Deputy Dementia Lead, at Sussex Community NHS Foundation Trust, about the patient safety issues affecting patients with dementia and how they can be supported to reduce risk.
  13. Content Article
    Published at the halfway point of the Global action plan on the public health response to dementia 2017 – 2025, this report from the World Health Organization assesses the actions taken by Member States, WHO and civil society since the adoption of this plan and identifies barriers to its implementation. The report also includes estimates on dementia burden and costs globally based on WHO’s Global Health Estimates 2019 and the Global Burden of Disease study 2019.
  14. News Article
    New research has emerged that may be able to diagnose dementia after a single brain scan. Scientists have begun testing a new artificial intelligence system that could identify the condition and predict predict whether it will remain stable for many years, slowly deteriorate or need immediate treatment. Prof Zoe Kourtzi, of Cambridge University and a fellow of national centre for AI and data science The Alan Turing Institute, said "If we intervene early, the treatments can kick in early and slow down the progression of the disease and at the same time avoid more damage". Read full story. Source: BBC News, 10 August 2021
  15. Content Article
    This project, led by Hertfordshire Partnership NHS Foundation Trust, focused on acute mental health care and dementia care pathways across the Eastern region’s five mental health trusts. It aimed to improve patient safety in mental health care by addressing teamwork and communication issues that can affect the safety and effectiveness of care, and patient experience. Clinical teams were trained in system safety assessment (SSA) and human factors (HF).
  16. Content Article
    This toolkit has been developed to inform improvement work in inpatient and residential settings which support people with dementia. It provides guidance on the steps needed to organise and manage an improvement project, how to utilise the experiences of people affected by dementia to develop improvement priorities and shares work and interventions by teams across Scotland.
  17. Content Article
    Dementia can have a significant impact on a person’s daily life, including how well they function within their home. Memory issues or problems recognising and interpreting the objects around them can cause the person frustration or create safety issues. Dementia UK have produced a leaflet with tips and guidance on how to make the home more safe for someone with dementia.
  18. Content Article
    Back in February, the team at Patient Safety Learning highlighted how the number of antipsychotic medication prescriptions for people living with dementia had increased in care settings.  What’s worrying, is these prescriptions can be administered inappropriately and cause tremendous harm. This is one family's pandemic story. 
  19. Content Article
    Julia’s mum, Gladys, lived with vascular dementia. She was a bubbly, social woman and her care replicated that. The support Gladys received was exceptional, and now Julia would like to help families, not as lucky as her own, to receive the same. Read Julia's story.
  20. News Article
    Tens of thousands of people with dementia are taken to hospital each year for emergency admission because inadequate social care has left them unprotected from infections, falls and dehydration, an investigation has found. There has been a 27% increase over a four-year period in avoidable illnesses and injuries caused by failures in care for those living with dementia, according to the Alzheimer’s Society. “This news comes just under a week after the Queen’s speech frustratingly made only a brief mention of the prime minister’s promise nearly two years ago to deliver a clear plan for social care reform, a devastating blow for the 850,000 people living with dementia, worst hit by coronavirus,” said Kate Lee, chief executive officer at Alzheimer’s Society. The charity found that nearly two-thirds of dementia emergency admissions could have been avoided. It blames cuts in social care budgets and warned that worse is to come. Launched to mark Dementia Action Week, the charity’s investigation also found that nearly three-quarters of family carers said loved ones with dementia had experienced preventable medical issues because of lack of support. One in nine had been taken to hospital. Read full story Source: The Guardian, 17 May 2021
  21. Content Article
    The Alzheimer’s Society has supported the development of Jelly Drops, bite-sized sweets designed to increase your water intake. Find out how they've been helping people during the pandemic.
  22. Content Article
    The theme for this year’s World Health Day (7 April) is building a fairer and healthier world for everyone. Making sure all patients can access and understand healthcare information is absolutely key to this. In this interview, anaesthetist Rachael Grimaldi tells us about CardMedic, the organisation she founded to empower staff and patients to communicate across any barrier. Rachael explains how their tools can be used to support vulnerable groups and reduce inequalities. 
  23. Content Article
    Students learn about medication and non-medication strategies for reducing symptoms of depression and other neuropsychiatric symptoms (e.g. agitation, anxiety) in people with dementia. While non-medication strategies are often emphasised as being preferable, often we lack the time and resources to facilitate their implementation. There is also a sense that people believe that medications worked better—even though we don’t really know if this is true since studies comparing medication to non-medication strategies are rare. The problem with prescribing medications in this patient population is that medications are associated with potentially catastrophic side effects (e.g. falls and fractures). Jennifer Watt and Zahra Goodarzi  undertook a research project looking at the comparative efficacy of interventions for reducing symptoms of depression in people with dementia. Based on their clinical experience as geriatricians, they hypothesised that non-medication strategies could effectively reduce symptoms of depression because they are addressing its underlying causes. 
  24. News Article
    Nanotechnology could be used to test blood for evidence of Alzheimer’s disease years before symptoms appear, researchers have said. Scientists used nanotechnology to extract previously unseen blood signals of neurodegeneration in a mouse model of Alzheimer’s disease. They say tests that capture early signs of neurodegeneration in blood offer enormous potential for those who suffer from the disease, as well as dementia patients, to receive effective treatment or manage their progressive condition before significant brain damage occurs. Alzheimer’s disease can currently be diagnosed using brain scans only after someone has been showing behavioural symptoms, such as memory impairment. By the time symptoms emerge, it is often too late to treat patients effectively. Read full story Source: The Independent, 17 March 2021
  25. Content Article
    Antipsychotic drugs are most commonly prescribed for behavioural and psychological symptoms, such as aggression or hallucinations, in people with dementia. This webpage from the Alzheimer's Society provides information on the prescription of these medications for people living with dementia, their potential side effects, and tips for carers when discussing these treatments with healthcare professionals.
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