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Found 11 results
  1. News Article
    NHS trusts are sharing intimate details about patients’ medical conditions, appointments and treatments with Facebook without consent and despite promising never to do so. An Observer investigation has uncovered a covert tracking tool in the websites of 20 NHS trusts which has for years collected browsing information and shared it with the tech giant in a major breach of privacy. The data includes granular details of pages viewed, buttons clicked and keywords searched. It is matched to the user’s IP address – an identifier linked to an individual or household – and in many cases details of their Facebook account. Information extracted by Meta Pixel can be used by Facebook’s parent company, Meta, for its own business purposes – including improving its targeted advertising services. Records of information sent to the firm by NHS websites reveal it includes data which – when linked to an individual – could reveal personal medical details. It was collected from patients who visited hundreds of NHS webpages about HIV, self-harm, gender identity services, sexual health, cancer, children’s treatment and more. It also includes details of when web users clicked buttons to book an appointment, order a repeat prescription, request a referral or to complete an online counselling course. Millions of patients are potentially affected. Read full story Source: The Guardian, 27 May 2023
  2. News Article
    YouTube has launched a verification system for healthcare workers in the UK as it battles disinformation online. In 2022, health videos were viewed more than three billion times in the UK alone on the video-sharing platform. Doctors, nurses and psychologists have been applying for the scheme since June and must meet rigorous criteria set by the tech giant to be eligible. Successful applicants will have a badge under their name identifying them as a genuine, licensed healthcare worker. But YouTubers have warned the system is only meant for education purposes, not to replace medical advice from your GP. Vishaal Virani, who leads health content for YouTube, said it was important simply due to the sheer number of people accessing healthcare information on the video-sharing platform. "Whether we like it or not, whether we want it or not, whether the health industry is pushing for it or not, people are accessing health information online," he told the BBC. "We need to do as good a job as possible to bring rigour to the content that they are subsequently consuming when they do start their care journey online." Read full story Source: BBC News, 8 September 2023
  3. Content Article
    A diagnosis of any type of diabetes can be a frightening and lonely experience at any age. You may have read stories about others living with diabetes or heard of “a friend of a friend” who had the condition. Those tales may not have been lavished in positives and, if you’ve been recently diagnosed, may even have had a negative impact upon you. At the time of my own diagnosis with type 1 diabetes, there was little in the way of peer support. That was a long time ago, in 1984. I remember talk of diabetes “camps” but, quite frankly, at the tender age of eight the prospect terrified me and I just wanted to feel like every child—every other child who didn’t have diabetes, at least. Without peers to talk to, I spent the rest of my childhood getting support from healthcare professionals. In the 1980s and 1990s, that support was primarily based around monitoring my HbA1c and keeping my blood glucose as low as possible. It was a lonely and confusing time and eventually, as I hit my teens and as many teens do, I rebelled. Adulthood, employment, marriage and children followed, but it wasn’t until my 40th birthday that I really began to accept that I have diabetes. I did some internet searching around the subject of complications and stumbled upon several communities of people living with type 1 diabetes. That was a turning point in my life with diabetes. If all of those strangers were talking about their day-to-day worries—their data, their good days, their highs and lows, how to bolus for pizza?—then I should too. What’s the worst that could happen? The internet is still pretty anonymous and I could always hide behind a moniker. The moniker which I settled on was DiabeticDad; I figured that described me very well. Within a few days of exchanging messages on a forum, I’d launched my own YouTube channel and began creating videos about my diabetes. I don’t mind admitting that I was terrified and that my videos were amateur but, remarkably, people began to subscribe to my channel and engage with me. One subscriber mentioned social media, specifically Twitter, a platform which I was already familiar with. I created @DiabeticDadUK and began tweeting. Within 24 hours, I had 100 people living with or with an interest in diabetes following me. The friendliness and immediate support was obvious. That was five years ago, and since that time, I have been given immeasurable levels of help and support from my peers within the Twitter community of #GBDoc (Great Britain Diabetes Online Community) and beyond. My peers helped me to realise that I’m not alone, that they’d been through the same struggles as me, that life can be absolutely fine with diabetes. I’ve attended many “meet up” events with my peers, many of whom I am very proud to call my friends. Those events helped me to open up and talk about my diabetes, to share my stories and my lived experience. I’ve since attended many conferences in person and virtually, and even spoken at some. Along the way, my peer support network has grown to such an extent that I feel I can reach out to any number of my friends for help or an answer to a question and they’ll be there. The support and information I’ve gained over the years has helped others, too. I am now a GBDoc community volunteer. That means I help to organise events, “signpost” the community to good things happening within the world of diabetes, help to support the fun things which our community runs such as monthly Zoom quizzes and Fantasy Football competitions and, more recently, offer one to one support as a mentor. My social media accounts and blog document all the important things that happen to me and my diabetes because I’m a great believer in sharing “warts an’ all” to help to normalise the condition for those living with it. I think it’s also helpful for the general public who may be confused by what diabetes is, not understand what the different types are, and might believe the myths and misinformation that are out there. I want to provide a voice to de-stigmatise diabetes in all its types. Peer support has dramatically changed my long-term outlook with diabetes. I have embraced technology and moved from finger pricking and injections to the use of a continuous glucose monitor and an insulin pump. Both of those transitions came about through engagement with my peers. The result was a much lower HbA1c but, more importantly for me, a greater quality of life with far less burden. It has been an absolute pleasure to share that journey with the community and hear of others experiencing similar improvements. Tales of peer support helping the lives of people living with Diabetes are cropping up all the time, rarely does a day go by without me witnessing a person thanking another for their help - help which might take some time to obtain through NHS professionals. Peer support comes in many forms, from the very light-hearted chats to the most serious discussion, it only needs somebody to start the conversation. So, drop by and say hello and use the hashtag of #GBDoc. You’re almost certain to find help and friendship from people who live with Diabetes. You are not alone. Read more from Paul on his blog about living with diabetes. He also tweets as @DiabeticDadUK
  4. Content Article
    Tweets posted from the UK between January 2018 and October 2020 were extracted using the Twitter application programming interface. The volume of tweets on remote care delivery increased markedly following the COVID-19 outbreak. Five main themes were identified in the tweets: access to remote care, quality of remote care, anticipation of remote care, online booking and asynchronous communication, and publicising changes to services or care delivery. Mixed public attitudes and experiences to the changes in service delivery were found. The proportion of positive tweets regarding access to, and quality of, remote care was higher in the immediate period following the COVID-19 outbreak (March-May 2020) when compared to the time before COVID-19 onset and the time when restrictions from the first lockdown eased (June-October 2020). The study concluded that ussing Twitter data to address our research questions proved beneficial for providing rapid access to Twitter users’ attitudes to remote care delivery at a time when it would have been difficult to conduct primary research due to COVID-19. This approach allowed us to examine the discourse on remote care over a relatively long period and to explore shifting attitudes of Twitter users at a time of rapid changes in care delivery. The mixed attitudes toward remote care highlight the importance for patients to have a choice over the type of consultation that best suits their needs, and to ensure that the increased use of technology for delivering care does not become a barrier for some. The finding that overall sentiment about remote care was more positive in the early stages of the pandemic but has since declined emphasizes the need for a continued examination of people’s
  5. Content Article
    The report highlights a dip in patient satisfaction with NHS services, probably due to the impact of the Covid-19 pandemic. The data also demonstrates increased variation in patient satisfaction between different providers. Trends identified in the report include: Sharp falls in ratings for maternity provision across England Significant variation in ratings for different A&E departments Falls in rapid access to care across whole trusts
  6. Event
    Uncover the impact and value of media stories exposing patient safety incidents. Shaun Lintern, Health Correspondent at The Independent, will join Jonathan Hazan, Chair of Patient Safety Learning and Moira Durbridge, President of the Patient Safety Section of the Royal Society of Medicine, for this interactive webinar which will explain how the media work to promote patient safety stories, illustrate how media stories can be a spur to local patient safety improvements and show how the media can be a powerful medium for communicating patient safety. Register
  7. News Article
    Talking Medicines, a social intelligence company for the pharmaceutical industry, has secured £1.1 million funding deal to scale up its AI-based platform for measuring patient sentiment. Tern, an investment company specialising in the Internet of Things (“IoT”), is the lead investor in a syndicated funding round alongside The Scottish Investment Bank, Scottish Enterprise’s investment arm. Led by CEO Jo Halliday alongside co-founders Dr Elizabeth Fairley and Dr Scott Crae, Talking Medicines will use the funds to support the launch and roll-out of a new AI data platform, which will translate what patients are saying into intelligence by providing a global patient confidence score by medicine. As part of these plans, the business intends to immediately recruit 9 new employees to the NLP data tech team. Formed in 2013 to create new ways of capturing the voice of the patient, the Glasgow-based firm uses a combination of AI, machine learning and Natural Language Processing (NLP) tech tools to capture and analyse the conversations and behaviours of patients at home, with the aim of transforming big pharma’s understanding of patient sentiment. Through mapping the patient voice from social media and connected devices to regulated medicine information, it is able to build data points to determine trends and patterns of patient sentiment across medicines. The round brings the total raised by the firm to £2.5m, including three previous seed funding rounds with previous investors including impact investor SIS Ventures and the Scottish Investment Bank. Talking Medicines CEO Halliday, said: “This investment will scale our team and the development of our AI, ML, NLP tech tools to translate what patients are saying into actionable pharma grade intelligence through our global patient confidence score by medicine.”
  8. Content Article
    The report found large variations between organisations. National trends show: Overall there is a considerably greater volume of positive feedback compared with negative feedback from patients on the care they received from providers. A decrease in patient satisfaction across most quality domains throughout the autumn of 2019 into early 2020. Distinct improvements in reported experiences of acute care as the Covid crisis took hold. Signs of plateauing and possible declines emerging in late summer / early autumn 2020.
  9. News Article
    A qualitative study of Twitter hashtags revealed power hierarchies can damage the patient experience and clinician relationship. In an analysis of a popular Twitter hashtag, researchers found that patients largely take umbrage when they feel their doctor does not believe their ailment or knowledge about their healthcare, and when they perceive a power hierarchy between themselves and their clinician. Although not as many patients are using Twitter to get peer feedback on certain providers (the Binary Fountain poll showed only 21% of patients do this), the social media website still holds a lot of power, researchers from the University of California system explained. Twitter is a large platform that hosts social discourse. Healthcare professionals use Twitter to disseminate public health and patient education messages and to network, while 61% of patients use Twitter to learn more about their health, as well. Read full article Source: Patient Engagement HIT, 29 October 2020
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