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Found 323 results
  1. Content Article
    This Virtual Patient programme for healthcare professionals allows users to specify an environment, patient and therapeutic area to create a ‘case’ to practise and hone clinical and communications skills.
  2. Content Article
    This review in Medical Decision Making looks at how healthcare organisations might successfully use patient decision aids (PtDAs) to support person-centred care. It aimed to develop context-specific program theories that explain why and how PtDAs are successfully implemented in routine healthcare settings. Based on the results of their review, the authors recommend the following strategies for organisations wishing to embed PtDAs: Co-production of PtDA content and processes (or local adaptation) Training the entire team Preparing and prompting patients to engage, Ensuring senior-level buy-in Measuring to improve
  3. Content Article
    Shared decision making (SDM) is when patients and clinicians work together to make evidence-based decisions based on patient values and preferences. This may be to select a test or intervention, such as going ahead with surgery. SDM ensures individuals are supported to make decisions which are right for them. The Centre for Perioperative Care has a number of resources on their website on shared decision making.
  4. Content Article
    This report from the Patients Association describes shared decision making and its benefits, before going on to assess how it has been formally embedded in NHS programmes and practice. It identifies the barriers preventing shared decision making becoming a reality for patients as a matter of course, and possible solutions.
  5. Content Article
    This guideline covers how to make shared decision making part of everyday care in all healthcare settings. It promotes ways for healthcare professionals and people using services to work together to make decisions about treatment and care. It includes recommendations on training, communicating risks, benefits and consequences, using decision aids, and how to embed shared decision making in organisational culture and practices.
  6. Content Article
    This study in AIDS and Behavior looked at patient-provider communication in HIV care and the role of shared decision making in improving health outcomes. The authors found that good quality engagement between patients and their healthcare providers was associated with better health-related outcomes. A substantial proportion of patients did not report having good quality engagement and this was associated with significantly poorer outcomes.
  7. Content Article
    This German study in the journal Implementation Science aimed to evaluate an empirically and theoretically grounded implementation program for shared decision making (SDM) in cancer care. The program included six elements: Training for health care professionals Individual coaching for physicians Patient activation intervention Patient information material/decision aids Revision of quality management documents Reflection on multidisciplinary team meetings. The results showed no statistically significant improvement in SDM uptake and the authors conclude that this may be because of the low reach of the study. They call for further research to understand factors influencing the uptake of SDM in cancer care.
  8. Content Article
    In this blog Suzanne Rastrick, Chief Allied Health Professions Officer (England) and Rob Moriarty, Personalised Care Strategic Coproduction Group and Peer Leader at NHS England, share the importance of asking the simple question ‘What matters to you?’
  9. Content Article
    In this BMJ opinion piece, Consultant Orthopaedic surgeon Scarlett McNally writes about the need for a new approach to preventing long-term conditions and providing healthcare for patients with multiple conditions. She highlights the importance of Government policy in promoting healthier lifestyle choices and improving patient engagement in shared decision making. She also outlines the importance of retaining healthcare professionals with expertise in managing risk and complexity in patients with multiple morbidity.
  10. Content Article
    In this blog, Dr Chloe Stewart, health psychologist and national clinical advisor in personalised care for NHS England, looks at the role of personalised care in helping overcome the care backlog and addressing health inequalities in people with musculoskeletal conditions (MSKs). She looks at examples of coproduction in MSK services and highlights the need to give patients better information and training about how to manage their condition.
  11. Content Article
    Shared decision making involves ensuring patients are able to contribute meaningfully to decisions about their care. Healthcare professionals ensure patients are informed of the options available to them and fully involve patients in making treatment decisions. This report by the Patients Association sets out the views of 1,416 healthcare professionals on shared decision making, expressed in an online survey in Spring 2022. Respondents included GPs, consultants, specialist nurses and practice nurses. The survey found that most healthcare professionals are positive about shared decision making, but feel their ability to practice it regularly is limited by the current situation in the NHS. Many said that lack of time, gaps in the workforce and large caseloads prevented them partnering with patients to make decisions about treatment and care together.
  12. Content Article
    Finding out a patient's perspective about their care and treatment is a key part of shared decision making, but healthcare professionals do not always proactively do this in practice. This scoping review in the journal Patient Education and Counselling explored the extent to which the personal perspectives of patients are drawn out by clinicians during a consultation, as part of a shared decision making process. It reviewed studies in five databases about shared decision making. The authors found that studies reported low levels of healthcare professionals eliciting patient perspectives, The majority of content healthcare professionals and patients discussed related to physical health, with social and psychological topics mostly unaddressed.
  13. Content Article
    This video introduces the SingHealth Patient Advocacy Network (SPAN), a patient-led collaborative that encourages patients and caregivers to be actively involved in their care. SPAN is co-chaired by two patients and aims to rethink traditional models of care. The network wants to improve the quality and design of healthcare so that it encompasses the needs and desires of patients and their caregivers.
  14. Content Article
    The Personalised Care Group at NHS England aims to help improve the choice and control that patients have over their health, as part of its NHS Long Term Plan commitments. These decision support tools will help people discuss their treatment choices with their healthcare professionals through shared decision making. The eight new tools cover the following conditions: Dupuytren’s contracture Carpal tunnel syndrome Hip osteoarthritis Knee osteoarthritis Further treatment for atrial fibrillation Cataracts Glaucoma Wet age-related macular degeneration
  15. Content Article
    The Accessible Information Standard is a set of principles for the presenting, sharing and discussing information with patients. It aims to make sure that people who have a disability, impairment or sensory loss get information that they can access and understand, and any communication support that they need from health and care services.
  16. Content Article
    Patient (or lived experience) leadership involves people affected by life-changing illness, injury or disability becoming equal partners in NHS decision-making. This expert briefing by patient leadership champion David Gilbert highlights the most significant developments in the field of patient leadership.
  17. Content Article
    In January 2023, The Patients Association celebrates its 60th anniversary. In this interview, CEO Rachel Power talks about why The Patients Association was set up and how the organisation still aims to  ensure that everyone can access and benefit from the health and care they need to live well. She describes the benefits of shifting to free membership, how patient partnership is vital to improving health and care services and The Patients Association's role in highlighting the key issues facing patients to the Government. She also highlights the key role that pharmacies play in promoting health information and delivering services to the communities they serve.
  18. Content Article
    It is important that patients understand both verbal and written health information, including clinical explanations, recommendations, instructions and educational materials. However, health information and services often are unfamiliar and confusing, and many people struggle with health literacy and numeracy. Taking steps to help patients understand health information is therefore important to patient engagement and patient-centred care. This checklist is designed to help healthcare providers evaluate their current approaches to ensuring patient understanding and identify potential gaps and opportunities for improvement.
  19. Content Article
    In this blog, Lotty Tizzard, Patient Safety Learning's Content and Engagement Manager, writes about a recent experience taking her son to a local walk-in centre. She describes the negative response she received when asking questions about her son's treatment, and considers the potentially dangerous consequences of patients and parents being disempowered to fully understand and contribute to their own, or their children's, care.
  20. Content Article
    This cross-sectional survey in the BMJ Open aimed to examine the sociodemographic characteristics, activities, motivations, experiences, skills and challenges of patient partners working across multiple health system settings in Canada. This survey was the first of its kind to examine the characteristics, experiences and dynamics of a large sample of self-identified patient partners at a population level. Although patient partners who took part were from similar sociodemographic background, the scope, intensity and longevity of their roles varied. Respondents predominantly identified as female (76.6%), white (84%) and university educated (70.2%). Primary motivations for becoming a patient partner were the desire to improve the health system based on either a negative (36.2%) or positive (23.3%) experience. Respondents reported feeling enthusiastic (83.6%), valued (76.9%) and needed (63.3%) always or most of the time. Just under half felt they had always or often been adequately compensated in their role.
  21. Content Article
    Patients can play a distinct role in protecting their health, choosing appropriate treatments for episodes of ill health and managing chronic disease. Considerable evidence suggests that patient engagement can improve their experience and satisfaction and also can be effective clinically and economically. This policy brief outlines what the research evidence tells us about the effects of engaging patients in their clinical care, and it reviews policy interventions that have been (or could be) implemented in different health care systems across Europe. In particular, it focuses on strategies to improve: health literacy treatment decision-making self-management of chronic conditions.
  22. Content Article
    In this blog, Aleyah Babb-Benjamin, Outreach and Insight Manager at National Voices, shares insights from a Long Covid Webinar event that looked at how to develop a community-focussed response.
  23. Content Article
    Shared decision making describes the way in which patients and their healthcare providers work together to decide treatment, management or self-management support goals. It includes sharing information about a patient’s options and preferred outcomes. The goal is for patient and professional to agree treatment, or no treatment. This webinar hosted by The Patients' Association discusses what makes shared decision making effective, barriers for staff and patients and research on ways to improve the practice.
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