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Content Article
Data saves lives - a series of animations
Claire Cox posted an article in Data and insight
Understanding Patient Data has produced a series of animations to explain how data saves lives. Following the journeys of patients with cancer, a heart attack, diabetes, dementia and asthma, they show the huge range of ways data is used to improve care, and the safeguards that are in place to protect confidentiality. -
Content ArticleDifficult conversations are always needed in healthcare and are important in order to offer informed choice of what treatments will be of benefit to the patient and are important to manage the expectations of patients, families and clinicians. But what is currently happening during the coronavirus pandemic in primary care? What should be best practice? Claire, a clinical outreach nurse, explores this in her latest blog.
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Content ArticleThe emergence in December 2019 of COVID-19, caused by a novel coronavirus, and its subsequent spread around the world, led the World Health Organisation to declare a pandemic on March 11, 2020: the first to be caused by a coronavirus . The virus appears to have originated in bats, with spread to humans likely mediated by an intermediate mammalian. This paper by Dr Nicole Le Saux, discusses the current epidemiology for COVID 19 in children.
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Content ArticleThis guidance is aimed at all professionals carers supporting patients with COVID-19, and their families, in the hospital setting – whether this is in critical care or elsewhere in the hospital. All hospitals have access to specialist palliative care teams, whether as in-house hospital palliative care teams or as in-reach teams from the local palliative care services. These teams will be able to provide additional advice and guidance but it will not be possible for them to provide direct care to everybody who needs it, especially as the pandemic progresses. This guidance includes flow charts to help aid treatment and symptom control. Nb: The most current version of the guidance document will be available on the public-facing pages of the Association for Palliative Medicine website (https://apmonline.org/). It is advised that you always check that you are referring to the most current version.
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Content Article
The Patients Association: Report your care
Patient Safety Learning posted an article in Complaints
The Care Quality Commission (CQC) is an organisation that inspects and regulates health and social care services to make sure they meet fundamental standards of quality and safety. About seven million people who used NHS services in the past five years had concerns about their treatment but had never raised them, according to the Care Quality Commission. Of these, over half (58%) expressed regret about not doing so. However, when people did raise a concern or complaint, the majority (66%) found their issue was resolved quickly, it helped the service to improve and they were happy with the outcome. The Patients Association is here to help and can pass on the information you provide to the CQC. Whether this is a positive example of great health or social care you've received, or of a troubling experience you or your family have had. -
Content ArticleThis is an easy to understand guide for people with learning disabilities who might be admitted to hospital with COVID-19. The author, Georgia, is a Speech & Language Therapist at Northants Healthcare.
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Content ArticleThe Talking about dying report seeks to offer advice and support for any doctor on holding conversations with patients much earlier after the diagnosis of a progressive or terminal condition, including frailty. The report identified that the timely, honest conversations about their future that patients want are not happening. Yet, these proactive discussions are fundamental to effective clinical management plans, part of being a medical professional and align with the aspirations of the Royal College of Physicians's Future Hospital Commission report. The Talking about dying report begins to highlight and challenge professional reluctance to engage in conversations with patients about uncertainty, treatment ceilings, resuscitation status and death. It offers some ‘mythbusters’ to get physicians thinking and we offer signposts to tools and educational resources to support physicians and other healthcare professionals.
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Content ArticleThis American Society for Reproductive Medicine (ASRM) guidance is in response to the coronavirus (COVID-19) global pandemic. Their goal is to provide practices with recommendations that guard the health and safety of their patients and staff, and recognise our social responsibility, as an organisation and as a community of providers and experts, to comply with national public health recommendations.
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Content ArticleThe way we treat cancer over the next few months will change enormously. Oncologists, will have to find a tenuous balance between under-treating people with cancer, resulting in more deaths from the disease in the medium to long term, and increasing deaths from Covid-19 in a vulnerable patient population. Lucy Gossage, an oncologist, discusses in the Guardian the difficult decisions that will need to be made.
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Content ArticleBjonda Haliti shares her experience on Thread reader on her experience to help bring awareness to her age group and to relieve any stress/anxiety some may have due to the pandemic.
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Coronavirus: My disabled son is on his own without any help
Anonymous posted an article in Blogs
I'd like to share what I am currently living through during the coronavirus with my 25-year-old son who has significant cerebral palsy due to kernicterus and is speech, hearing and motor impaired -
Content ArticleIn a blog published in the Guardian, Kathryn Hearn says the UK government’s treatment of the coronavirus outbreak has in effect written off all of us with health issues. The language used by officials describing the spiralling scenarios risks dehumanising us, and makes us feel we no longer matter, Kathryn explains. NHS England’s latest report on the health of the nation acknowledged that 43% of adults – that’s nearly 20 million people – are living with at least one long-term health condition. Although not all of those would be directly in danger from Covid-19, there’s still a major section of our society who will be. You’ll know somebody, for sure. Until Monday’s U-turn, the UK government’s policy was to manage rather than to contain the virus - which would have allowed close to a quarter of a million people to die. Allowing Covid-19 to spread throughout the population in the hope of building some “herd immunity” among the youngest, fittest and healthiest "felt irresponsible at best, and callous at worst".
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Content ArticleThis video has been produced by the staff at Guy's and St Thomas' Hospital NHS Foundation Trust. It demonstrates how to prone an intensive care patient. If proning a patient with COVID-19, full personal protective equipment (PPE) will be required by all staff.
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In praise of NHS domestics: a blog by Adam's mum
Claire Cox posted an article in By patients and public
This blog written by Adams mum gives praise to the domestic staff that work with in our hospitals. She explains how the domestic staff were a source of support and company for Adam and the family when he was admitted. Adams mum is a mother an academic, lawyer and lay advisor. -
Content ArticleKidney Care UK has been working with medical colleagues and partners on information and advice about COVID-19 specifically for people with kidney disease. Their web page contains guidance for kidney patients and also information on the action that NHS renal services are taking during this outbreak. Further guidance is being developed for those on dialysis; those with a transplant; those with renal diseases who depend on immunosuppressant medication; those with declining kidney function; and those with chronic kidney disease. At the moment your current treatment plans will not change. However, advice is being updated on a daily basis so please do refer back to Kidney Care UK's page as it will be updated in response to any developments.
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Content ArticleProfessor Karol Sikora, in this video on Medscape, talks about the impact of the coronavirus pandemic on cancer care globally. Karl is a Professor of Cancer Medicine and Founding Dean, University of Buckingham Medical School; Consultant Oncologist; Harley Street Cancer Centre, London.
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Content ArticleThis guidance for the public was developed by 'Doctors of the World'. It has been written in 16 different languages: English Vietnamese Turkish Spanish Portuguese Pashto Mandarin Kurdish Hindi French farsi Dari Bengali Arabic Albanian.
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Content ArticleThe rapid spread of COVID-19, and the fact that healthcare facilities could be sources of contagion, has focused attention on new models of care that avoid face-to-face contact between clinician and patient. There has been particular interest in video consultations, which are already being rolled out in many countries as part of national digital health strategies. In this Editorial in the BMJ, Trisha Greenhalgh and colleagues discuss how appropriate video consultations are for dealing with the coronavirus crisis and what are the challenges of scaling up this model at speed.
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Content ArticleMedical errors are the third leading cause of death in the United States. Putting patients first — listening to their own and their families’ concerns — can help eliminate medical errors altogether. A patient-centric approach encourages patients to communicate their ‘gut feelings’ when something seems wrong, thereby working to end the pervasive and dangerous culture of silence and fear in hospitals.
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WHO: What is patient safety?
Claire Cox posted an article in WHO
The World Health Organization has produced a factsheet about patient safety, what it is and the burden of harm. -
Content ArticleThis website gives up to date, rolling information about the ongoing viral crisis.
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Content ArticleJames Munro, Chief Executive of Care Opinion, argues that there is extraordinary, yet untapped value in patient feedback which is not being recognised in current policy and practice. His blog follows the launch of the National Institute of Healthcare Research's (NIHR) themed review on using patient feedback to improve care. Gathering feedback from people who use health services sounds like a simple and straightforward matter. Doesn’t everyone love feedback? The NIHR themed review Improving Care by Using Patient Feedback highlights that this is a topic beset by complexity, uncertainty and disagreement. It’s also an area which can provoke strong emotions both from those offering feedback, such as: “why isn’t anyone listening?” and those receiving it: “why am I being attacked when I work so hard?”.
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ICU Steps: Patient and relative experiences of critical illness
Claire Cox posted an article in Patient stories
For many people involvement with intensive care is a daunting experience. For some it's part of the care plan after major surgery but for many others it's a sudden and unexpected event.You find yourself in an alien environment unlike any you've known before where patients are connected to all kinds of machines and drips, where you might not be able to tell day from night and where there's constant noise and activity. The people that work in the Intensive Care Unit do an amazing job, but even when patients are on the road to recovery they still have a long way to go before they're fully better. Depending on how ill the patient has been, recovery can take a year or more. Knowing what might lie ahead and also that you're not alone in what you're going through can be a great help for both patients and relatives. This webpage set up by ICU Steps, include experiences from patients and relatives as they have spent time on the intensive care unit. -
Content Article
Intensive care: a guide for patients and relatives
Claire Cox posted an article in Patient recovery
This guide from ICU Steps, contains advice and information about intensive care. It tells you how critical illness may be treated and what recovery may be like. Not every patient will experience all of these things, but they are more likely to if they have been in intensive care for more than a few days. Most of this guide is written for patients but there is a section specifically for relatives and visitors. By reading the guide, relatives will learn what a patient's recovery may involve and it will give them the answers to some of the questions they may have. -
Content ArticleThese instructions are for patients who have been advised to undertake 'conscious proning'. Proning is the medical term for lying on your tummy or front. Proning has been proved to help with breathing in patient who have coronavirus.
