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Showing results for tags 'Health inequalities'.
Found 1,218 results
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Content ArticleThe Collaboration for Change is a group of two UK universities, nine community organisations and two small and medium size enterprises, who have conducted research on how to improve vaccine uptake among ethnic minority groups. This report outlines the results of a co-produced research study by the Collaboration for Change that combines research, evidence and lived experience to understand and improve vaccine uptake in ethnic minority communities. The report highlights the following factors influencing vaccine uptake: Using trusted messengers to encourage vaccine uptake may be a useful strategy to increase uptake in communities with low vaccination rates A lack of trust in the organisations and individuals encouraging vaccine uptake impacts vaccine uptake across many ethnic minority communities People are less likely to accept the offer of vaccination if little culturally and linguistically appropriate information is available to them, especially when their concerns are not covered Alongside the report, the Collaboration for Change has produced some recommended strategies to improve vaccine confidence and uptake.
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People with eating disorders often find it difficult to get help and treatment from the health system because of pervasive stigma, misinformation and stereotypes around eating disorders. In this blog, Hope Virgo, an eating disorder survivor and mental health campaigner, looks at the barriers people face when they try to access support, and talks about her own experience of being told she was ‘not thin enough for support’. She calls for long-overdue action on funding, training and awareness of eating disorders within the NHS. -
Content ArticleIn this episode of the Wild Card - Whose Shoes? podcast, Rachel Power, CEO of the Patients' Association talks about the importance of treating patients as equal partners in the health service. She shares insight on how to measure impact in difficult areas and overcoming barriers to shared decision making.
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Content ArticleIn this blog for The Patients Association, Patient Safety Commissioner Henrietta Hughes looks at the importance of patient involvement in improving patient safety. She argues that patient voices should be embedded in the design and delivery of healthcare, and highlights that services and organisations need to seek feedback from patients from a wide variety of backgrounds. She also outlines why shared decision making and consent are vital to ensure patients are safe and have more control over their care and treatment.
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Supporting equity-centred engagement
Patient_Safety_Learning posted an article in Patient engagement
This guide was developed through a collaboration between the Public and Patient Engagement Collaborative (PPEC) and the Public Engagement in Health Policy (PEHP) Project at McMaster University. As groups and organisations seek to bring a stronger equity focus to their engagement work, there are many things to consider and a growing number of resources to support this work. The aim of this guide is to help you navigate the many helpful resources that exist to help centre equity in your engagement work. -
Content ArticleThis report by the user-led non-profit organisation Shaping Our Lives examines the results of a 2021 survey that explored people’s experiences of service user involvement. This research shows the current picture of involvement and explores the barriers that deaf and disabled people face when wanting to share their lived experience. The report contains recommendations for organisations that want to run truly inclusive, meaningful involvement to shape and improve their services.
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This 1-page infographic makes the case for the development of health literate information. It sets out the average UK skills for literacy and numeracy, the impact this has on health and what information producers can do to develop information that works for everyone. The principles for development echo the PIF TICK criteria. They can be applied to all health information, in all formats whatever the topic – from vaccines to verruca. The infographic has been designed in response to member demand. It makes the case that health literate information is not 'dumbed down', rather it helps level up. -
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Patient Information Forum (PIF) have launched a new website to help people find trusted health information. The PIF TICK website allows members of the public to see which organisations have the PIF TICK – the UK quality mark for health information – and offers advice on how to find trust health information. -
Content ArticleEpistemic injustice sits at the intersection of ethics, epistemology, and social justice. Generally, this philosophical term describes when a person is wrongfully discredited as a knower; and within the clinical space, epistemic injustice is the underlying reason that some patient testimonies are valued above others. The following essay, published in Philosophy, Ethics, and Humanities in Medicine, seeks to connect patterns of social prejudice to the clinical realm in the United States: illustrating how factors such as race, gender identity, and socioeconomic status influence epistemic credence and associatively, the quality of healthcare a person receives.
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Content ArticleThe Patient Information Forum (PIF) has launched an update to the UK’s only assessed quality mark for print and digital health and care information. The update places a greater emphasis on inclusion and reflects the huge evolution in health and care information since the PIF TICK was launched in 2020.
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Content ArticleThe Accessible Information Standard is a set of principles for the presenting, sharing and discussing information with patients. It aims to make sure that people who have a disability, impairment or sensory loss get information that they can access and understand, and any communication support that they need from health and care services.
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Content ArticleIn this blog, Dr Amy Proffitt, Royal College of Physicians (RCP) patient involvement officer, explores how the patient voice is represented in patient safety. She highlights the importance of engaging patients from a diverse range of backgrounds and responding to research that highlights particular populations who are experiencing worse outcomes. Eddie Kinsella, chair of the RCP’s Patient and Carer Network, then goes on to share his thoughts on patient safety, highlighting the role of patient partners in bringing about culture change in the NHS, and as advocates for the wider community, especially those who are most disadvantaged.
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Content ArticleIn January 2023, The Patients Association celebrates its 60th anniversary. In this interview, CEO Rachel Power talks about why The Patients Association was set up and how the organisation still aims to ensure that everyone can access and benefit from the health and care they need to live well. She describes the benefits of shifting to free membership, how patient partnership is vital to improving health and care services and The Patients Association's role in highlighting the key issues facing patients to the Government. She also highlights the key role that pharmacies play in promoting health information and delivering services to the communities they serve.
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Content ArticleThis cross-sectional survey in the BMJ Open aimed to examine the sociodemographic characteristics, activities, motivations, experiences, skills and challenges of patient partners working across multiple health system settings in Canada. This survey was the first of its kind to examine the characteristics, experiences and dynamics of a large sample of self-identified patient partners at a population level. Although patient partners who took part were from similar sociodemographic background, the scope, intensity and longevity of their roles varied. Respondents predominantly identified as female (76.6%), white (84%) and university educated (70.2%). Primary motivations for becoming a patient partner were the desire to improve the health system based on either a negative (36.2%) or positive (23.3%) experience. Respondents reported feeling enthusiastic (83.6%), valued (76.9%) and needed (63.3%) always or most of the time. Just under half felt they had always or often been adequately compensated in their role.
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Black and Asian bereaved parents whose baby died during pregnancy or shortly after birth have shared their experiences as part of the Sands Listening Project. The 56 parents who took part shone a light on care that works well, while also highlighting barriers, biases, and poor care. In the report, published by Sands, you can read more about: the findings pregnancy loss and baby deaths among Black and Asian babies in the UK real-life experiences and case studies what needs to change. Follow the link below to access the Listening Project report on the Sands website. -
Content ArticleThe review, which has now concluded, advised the government on the health impact of potential ethnic and other biases in medical devices and made recommendations for more equitable solutions. The final report was published on 11 March 2024.
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Content ArticleSince the Covid-19 pandemic began, a disproportionate number of BAME patients have reported not having their Long-Covid symptoms taking seriously. In this blog, Sheeva Azma looks at the impact of racial profiling on patient safety in the US, highlighting how health inequalities have worsened during the pandemic. She interviews Chimére Smith, who developed Long Covid after catching the virus in March 2020 and was left unable to work. Smith talks about the importance of representation in medicine, sharing how black doctors listened to her and took her seriously, when every white doctor she had seen dismissed her symptoms.
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Content ArticleAt present there is a single specialist service providing gender identity services for children and young people – the Gender Identity Development Service (GIDS) at the Tavistock and Portman NHS Foundation Trust. In recent years GIDS has experienced a significant increase in referrals which has contributed to long waiting lists and growing concern about how the NHS should most appropriately assess, diagnose and care for this population of children and young people. The Cass Review has submitted an interim report to NHS England, which sets out their work to date, what has been learnt so far and the approach going forward. The report does not set out final recommendations at this stage.
