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Content ArticleIn this guest blog for mumsnet, Nadine Montgomery talks about her journey to the Supreme Court to cement patients’ right to make an informed decision. Nadine highlights the lack of information she was given around potential birth risks as a diabetic pregnant women and how, if better informed, she would have made different choices which could have prevented her baby from suffering harm.
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Content ArticleThe General Medical Council has published an updated guide on Decision making and consent, which comes into effect on 9 November 2020. The guidance aims to support doctors to practise shared decision making and help their patients to make healthcare decisions that are right for them. New features include: a focus on taking a proportionate approach, acknowledging not every paragraph of the guidance will be relevant to every decision seven key principles which summarise the guidance a new section to help doctors find out what matters to patients so they can share relevant information to help them decide between viable options suggestions for how other members of the healthcare team can support decision making.
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Content ArticleEmerging evidence indicates that there has been an increase in the prescription of antipsychotic medications for people living with dementia in care settings during the COVID-19 pandemic. In this blog, Patient Safety Learning explores the patient safety concerns relating to the use of antipsychotic medications for people with dementia and suggests areas for further investigation and action.
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Content ArticleIn this blog Patient Safety Learning reflects on responses received from Robin Swann MLA, Minister of Health (Northern Ireland), Jeane Freeman MSP, Cabinet Secretary for Health and Sport (Scotland) and Vaughan Gething MS, Minister for Health and Social Services (Wales), regarding concerns about painful hysteroscopy procedures in the NHS.
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Patient Safety Movement: Informed consent blog
Patient Safety Learning posted an article in Consent issues
Clinicians often have competing priorities in the clinical setting which hinder their ability to provide time for thorough dialogue with patients. Often, this dialogue contains information about procedures or processes for which the patient needs a thorough understanding in order to make an informed decision. Due to the lack of time, sometimes this informed consent process is passed from the clinician to the medical assistant or nurse. Furthermore, clinicians are increasingly facing pressure to visit with more and more patients, thereby cutting the time with each one shorter and shorter. Therefore, typically only the most essential information is discussed with the patient during these short times and often, education doesn’t make the cut. This asymmetrical information makes it difficult for patients to make informed decisions about their care and may create situations with unforeseen consequences. These workflow barriers within the system itself make it extraordinarily difficult for clinicians to effectively explain and discuss informed consent with their patients.- Posted
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Through the hysteroscope: Reflections of a gynaecologist
SairaS posted an article in Women's health
At Patient Safety Learning, we’ve been working with others to understand the issues surrounding painful hysteroscopies. In this interview, we talk to Obstetrics and Gynaecology consultant, Saira Sundar, about the process. She offers her clinical insight and highlights some of the challenges involved when it comes to managing pain during hysteroscopies. Saira also offers advice to colleagues and patients seeking to reduce anxiety and improve the patient experience.- Posted
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Content ArticleIn this blog, Patient Safety Learning reflects on a recent response from Nadine Dorries MP, Minister of State for Mental Health, Suicide Prevention and Patient Safety, regarding concerns about painful hysteroscopy procedures in the NHS. Towards the end of last year, Patient Safety Learning published a blog outlining five calls to action that could be taken to improve the safety of hysteroscopy procedures in the NHS.[1] This has been an issue raised by patients, campaign groups and politicians in recent years, highlighting concerns that women having been suffering avoidable harm from hysteroscopies. We wrote to several key stakeholders in healthcare across England, Northern Ireland, Scotland and Wales, to raise awareness of this issue and call for urgent action to prevent future harm. While we welcome the Minister in her response supporting the general principles of informed consent and good practice guidance for hysteroscopy, we know that many women are still not being offered a choice of pain relief or given adequate information before consenting to the procedure. It remains unclear from her response whether the Government will take action to investigate the frequency of these experiences and respond to improve hysteroscopy safety.
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Content ArticleFollowing the publication of Donna Ockenden’s first report: Emerging Findings and Recommendations from the Independent Review of Maternity Services at the Shrewsbury and Telford Hospitals NHS Trust on 11 December 2020, the NHS has issued this latest update. Read previous letter update
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Content ArticleChoosing Wisely UK is part of a global initiative aimed at improving conversations between patients and their doctors and nurses.By having discussions that are informed by the doctor, but take into account what’s important to the patient too, both sides can be supported to make better decisions about care. Often, this will help to avoid tests, treatments or procedures that are unlikely to be of benefit.
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Content ArticleNHS Resolution received 1,223 claims for incidents occurring between 2012 and 2017 that have cost the NHS £233 million so far. Of these cases, 728 claims are under review due to the complexities around consent. Consent can be a common contributing factor in many claims. This leaflet looks at examples of failure to provide adequate consent, a breakdown of these kinds of claims by clinical speciality, the importance of the Montgomery ruling and what supported decision making looks like.
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Content ArticleThis video from NHS Resolution looks at the criteria that need to be met in order for patient consent to be legally valid. Advice is provided on how to ensure practitioners obtain legally valid consent.
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NICE guidance on shared decision making
PatientSafetyLearning Team posted an article in Consent and privacy
Shared decision making is when health professionals and patients work together. This puts people at the centre of decisions about their own treatment and care. When making decisions together, it's important that: care or treatment options are fully explored, along with their risks and benefits different choices available to the patient are discussed a decision is reached together with a health and social care professional. The link below includes guidance and tools to support patients and healthcare staff with shared decision making. -
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Informed consent: what is it?
Julie EIDO Healthcare posted an article in Consent and privacy
Julie Smith is Content Director for EIDO Healthcare, an organisation that provides health professionals with resources and support around informed consent. In this blog, Julie explains what it means to give your ‘informed consent’ as a patient, and why it is so important to read the information given to you.- Posted
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Content ArticleThis month, we’ve been looking back over 2020 and highlighting some of the key areas of health and care that Patient Safety Learning has worked in this year. First, Chief Executive, Helen Hughes, gave an overview, detailing some of the main ways we’ve been achieving our aims as an organisation. Following that, we looked at the impact of the COVID-19 pandemic on patient safety, and, earlier this week, we focused on advice and support for people living with Long COVID. In this blog, Patient Safety Learning reflect on the work we’ve been doing to highlight serious patient safety concerns relating to hysteroscopy procedures in the NHS and how we’ve been making the case for change.
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Content ArticleDr. Donna Prosser is joined by Dr John James, a patient safety advocate, and the author of A New, Evidence-Based Estimate of Patient Harms Associated with Hospital Care. The team discusses the meaning of informed consent for clinicians and patients, the steps to a genuine shared decision making dialogue, and the components that should be addressed in the decision making process. Informed consent cannot be separated from the person-centeredness of an organization. While the shared decision making between clinicians and patients and loved ones does require time, attention, and attentiveness to the patient's wishes and goals, it should be a priority for all healthcare organisations.
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Content ArticleInformed consent is a person’s decision, given voluntarily, to agree to a healthcare treatment, procedure or other intervention that is made: Following the provision of accurate and relevant information about the healthcare intervention and alternative options available; With adequate knowledge and understanding of the benefits and material risks of the proposed intervention relevant to the person who would be having the treatment, procedure or other intervention. Ensuring informed consent is properly obtained is a legal, ethical and professional requirement on the part of all treating health professionals and supports person-centred care. Good clinical practice involves ensuring that informed consent is validly obtained and appropriately timed. This fact sheet from the Australian Commission on Safety and Quality in Healthcare includes information for clinicians about informed consent in healthcare.
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The process of informed consent: A presentation
Shamim Odera RN posted an article in Consent and privacy
This presentation explains the process of informed consent and has been adapted from the National Institute for Health Research (NIHR) Introduction to Good Clinical Practice (GCP) Training.- Posted
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Content ArticleThis Heathcare Huddle video focuses on key themes that came out of the First Do No Harm report. You can watch it in two parts or as one full video. PART ONE (with Darren Thorne, Managing Director of Facere Melius) - Theme 1: ‘No-one is listening’ – The patient voice dismissed - Theme 2: ‘I’ll never forgive myself’ – Parents living with guilt - Theme 3: ‘I was never told’ – the failure of informed consent PART 2 - Theme 4: Redress – ‘We want justice’ - Theme 5: ‘We do not know who to complain to’ – Complaints - Theme 6: Duty of Candour – ‘preventing future errors’ - Theme 7: Conflicts of interest – ‘we deserve to know’.
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Content ArticleThis paper, published in the Journal of patient safety, provides evidence from the patient perspective that consent forms are too complex and fail to achieve comprehension. Future studies should be conducted using patients’ suggestions for form redesign and inclusion of supplemental educational tools in order to optimise communication and safety to achieve more informed healthcare decision making.
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Content ArticleThis article, published in the US-based Journal of healthcare information management, looks at the relationship between consent and patient safety. The author, James E. Gottesman, highlights the benefits of clear communication between clinician and patient.
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Content ArticleIn this editorial for the British Medical Journal, Helen Haskell summarises the findings and recommendations of the Cumberlege Review, First Do No Harm. Helen argues that while the report has the potential to be a powerful tool for change in and beyond the UK, patients and families now need to see evidence of action.
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Nadine’s story: Informed consent (the Montgomery case)
Claire Cox posted an article in Consent and privacy
In this short film, Nadine Montgomery presents her story that led to the landmark ruling on consent (Montgomery v Lanarkshire Health Board, 2015) -
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Informed consent: A short film
PatientSafetyLearning Team posted an article in Consent and privacy
This short creative film, produced by A.O Consultancy, explains what it means to give informed consent to medical treatment.- Posted
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Re-consenting, an anonymous blog
Claire Cox posted an article in Consent issues
This anonymous blog high lights the vulnerability of patients, especially when it come to consent. This is a shocking account of events by a well informed patient when they were wrongly consented for a gynaecological procedure.- Posted
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