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Found 545 results
  1. Content Article
    This video published by the Irish Health Service Executive (HSE) tells the story of Pat, whose bowel cancer diagnosis was missed, resulting in his premature death. His daughter Patricia talks about the two investigations that took place into her father's death and how the hospital's internal investigation failed to acknowledge that a staff member had raised concerns about Pat's initial colonoscopy on five occasions, but this had not been followed up. She describes the impact of these events on her father and the rest of the family and calls on medical professionals to "trust us (families) more and fear solicitors less."
  2. Event
    PRSB is hosting a live podcast which will feature a vibrant discussion on the importance of human connection and personalised approach in providing care. Attendees will hear from Sarah Woolf, Movement Psychotherapist, who will talk about her own experience of how personalised care helped her recover from her condition, not only physically, but also emotionally and mentally. Sarah had the chance to describe her story in an article for the BMJ. The podcast will provide the opportunity for Q&A, and attendees will also be encouraged to share their own experiences and how they think personalised care can meet people's needs and expectations of care. The event is free to attend and everyone is welcome to join. Register
  3. Content Article
    Sarah Woolf shares the impact her cancer treatment had on her mental health and describes why it is important to see each patient as a whole person, understanding that their body has meaning for them
  4. News Article
    An invitation to a cervical screening test upon your 25th birthday has become a necessary but often unwanted coming-of-age present. Despite years of education and advocacy about the benefits of screening, many women still do not attend. About 16 million women in the UK aged 25-64 are eligible for testing, but only 11.2 million took a test in 2022, the lowest level in a decade. There unfortunately remains a false narrative that there are good reasons to be nervous about cervical screening tests. In reality, the test is not physically painful for the vast majority of women, although it can be a bit uncomfortable. However, the test can be needlessly emotionally painful, and for no good reason. This is in part because some women go through the experience of sitting with legs spread apart and “private parts” out, and then hear the nurse call for “the virgin speculum” to be used. This is the archaic and unnecessarily sexualised term for the extra-small speculum. It should have no place being used in 2023, and it clearly creates feelings of vulnerability. Next week it is Cervical Cancer Awareness week, and campaigners are hoping to shine a light on barriers to cervical screening testing that must be removed. By creating feelings of vulnerability around testing, we are allowing cervical cancer to continue to go undetected. All women should be aware of the importance of attending their cervical screening test and do so with confidence, regardless of their sexual status. This will play a valuable role in reducing the mortality rate. Read full story Source: The Guardian, 19 January 2023 Further hub reading: Doctors’ shocking comments reveal institutional misogyny towards women harmed by pelvic mesh Misogyny is a safety issue: a blog by Saira Sundar Gender bias: A threat to women’s health (August 2020)
  5. Content Article
    This report from the National Oesophago-Gastric Cancer Audit (NOGCA) focuses on the care received by patients diagnosed with invasive epithelial cancer of the oesophagus, gastro-oesophageal junction (GOJ) or stomach, or high-grade dysplasia (HGD) of the oesophagus between April 2019 and March 2021. For outcomes of curative surgery among people with OG cancer, data are reported for a three year period (April 2018 to March 2021).
  6. News Article
    Death rates from cancer in the US have fallen by 32% over the three decades from 1991 to 2019, according to the American Cancer Society. The decline is thanks to prevention, screening, early diagnosis and treatment of common cancers, including lung and breast cancer. The drop has meant 3.5m fewer deaths. However, cancers are still the second leading cause of death in the US, after heart disease. In 1991, the cancer death rate was 215 per 100,000 people and in 2019 it dropped to 146 per 100,000 people. Lung cancer, of which there are 230,000more cases each year, kills the most patients, 350 per day. But people are being diagnosed sooner, and technological advancements have increased the survival rate by three years. The report also examined racial and economic disparities in cancer outcomes. The Covid-19 pandemic added to already existing difficulties for marginalised groups to get cancer screenings and treatment. For nearly every type of cancer, white people have a higher survival rate than black people. Black women with breast cancer face a 41% higher death rate than white women. Read full story Source: BBC News, 12 January 2023
  7. News Article
    Prostate cancer patients across the UK face a “postcode lottery” of care, a charity has warned, with men in Scotland almost three times more likely to be diagnosed at a late stage compared with men in London. Prostate Cancer UK said the proportion diagnosed when the disease may be too advanced to treat varied hugely depending on where patients lived. Health leaders called the findings “shocking”. In Scotland, more than a third (35%) of men are only diagnosed when the disease is classed as stage 4, meaning the cancer has spread to another part of the body – known as metastatic cancer. In London, the figure is 12.5%. Chiara De Biase, director of support and influencing at Prostate Cancer UK, said, "We can’t say for sure what’s behind this gap in diagnosis, but it’s clear that men are more likely to be diagnosed at an earlier stage in areas with higher rates of PSA blood testing. That means the key way to tackle this is by raising awareness – especially in places like Scotland which are worst-affected." Read full story Source: The Guardian, 12 January 2023
  8. News Article
    A record number of people in England are waiting longer than ever for cancer treatment, as the total waiting more than three months surpassed 12,000 for the first time. More than 4% of the 287,000 people on cancer waiting lists had waited more than 104 days to receive treatment after diagnosis, despite 2,000 of those being considered urgent patients, according to NHS England figures for the week ending on 1 January, seen by Health Service Journal. Michelle Mitchell, Cancer Research UK’s chief executive, said that missing waiting time targets–which have not been fully met since December 2015–was “unacceptable when a matter of weeks can be enough for some cancers to progress”. She called on the government to publish an “ambitious and fully funded” 10-year cancer plan. “Only then will we see significant improvements in early diagnosis and survival,” she said. Read full story Source: The Guardian
  9. Content Article
    Cancer Research UK, in partnership with London-based tech company Stitch, are piloting an app for patients to use whilst participating in a clinical trial. The Trialmap app, which was co-created with patients, is being piloted on a clinical trial run by Cancer Research UK’s Centre for Drug Development. The aim of the app is to ensure patients feel valued for their participation, and to improve patient experience during clinical trials. This article looks at how the app: allows patients to easily view information about the trial gives reminders about appointments and what patients might need to do to prepare for them gives patients the opportunity to provide real-time feedback regarding their time on the trial.
  10. Content Article
    Patients are facing increased delays at almost every stage of their NHS treatment, as the health system struggles to find the resources to deal with demand. The latest data shows waiting lists across England have surpassed record highs every month for two years running, one of many major challenges currently facing the NHS. But what impact does this have on ordinary people trying to access the NHS in 2022? Through a combination of interviews with health professionals and analysis of official data, the Guardian has plotted the journeys of four fictional patients through their NHS journey and how waiting times have changed at each stage of their treatment and recovery.
  11. News Article
    Nearly 8,900 more people have died of cancer than expected in Britain since the start of the pandemic, amid calls for the Government to appoint a minister to deal with the growing crisis. In an essay in The Lancet Oncology, campaigners and medics said the upward trend of cancer deaths is likely to continue, with 3,327 in the last six months alone. They urged the Government to tackle the crisis with the same focus and urgency given to the Covid vaccine rollout, and called for a cancer minister to get on top of the backlog. NHS data from November showed that in the last 12 months, 69,000 patients in the UK have waited longer than the recommended 62-day wait from suspected cancer referral to start of treatment. Professor Gordon Wishart, a former cancer surgeon and chief medical officer of Check4Cancer, said: “The Covid-induced cancer backlog is one of the deadliest backlogs and has served to widen the cracks in our cancer services". “Now we face a deadly cancer timebomb of treatment delays that get worse every month because we don’t have a sufficiently ambitious plan from policymakers. I urge the Government to work with us.” Read full story (paywalled) Source: The Telegraph, 15 December 2022
  12. News Article
    NHS leaders fear patients will come to harm as cancer services are “hit hard” by upcoming nurses’ strikes. The NHS’s four chief nurses wrote to the Royal College of Nursing (RCN) general secretary Pat Cullen warning patients’ lives are at risk due to life-saving services not being protected when nurses walk out on Thursday. And a separate letter from Dame Cally Palmer, the national cancer director for NHS England, urged Ms Cullen to protect urgent cancer operations from strike action “to ensure a consistent and compassionate approach for patients across the country”. The RCN has since agreed that staff will cover emergency cancer and mental health crisis services on strike days but has maintained only night-level staffing for inpatient services. But trust executives told The Independent that they were concerned they won’t be able to fill any gaps with agency staff due to RCN rules, which will worsen existing shortages. One senior NHS source claimed cancer services weren’t being prioritised by unions despite national agreements to protect chemotherapy treatments. They said: “I fear that someone is going to get hurt as the system is so pressured and fragile right now, whether strike-related or not, public sympathy will shift considerably if this were to happen.” Read full story Source: The Independent, 14 December 2022
  13. News Article
    The number of people waiting more than two months to start cancer treatment remained over 30,000 — double the pre-covid level — for three months to the end of October, according to new data published. NHS England previously committed to bringing the number of people waiting longer than 62 days to be diagnosed and begin treatment, after referral for suspected cancer, to pre-pandemic levels – roughly 14,000 – by March 2023. But the number has been generally growing since the spring, and remained above 30,000 from August through to the end of October, the latest figures available. September and October’s monthly totals were higher than the previous monthly peak in May 2020, after services were disrupted in the first covid wave. The increase in waiters this year has been caused by diagnostic and treatment capacity falling short of an increased number of referrals. Matt Sample, policy development manager at Cancer Research UK, said: “While it’s good to see significant numbers of people coming forward with potential cancer symptoms, performance against key targets are among the worst on record, continuing a trend that existed long before the pandemic hit, with one target having been missed for almost seven years.” Read full story (paywalled) Source: HSJ, 8 December 2022
  14. News Article
    NHS England is raiding a national fund earmarked for improvements in cancer, maternity care and other priority services by up to £1bn this year, to pay for deficits elsewhere, and will cut it by a similar amount in 2023-24, HSJ has learned. The “service development fund” is allocated at the beginning of the year for priority service areas also including primary care, community health, mental health, learning disabilities and health inequalities. Several NHSE directors said it was being tightly squeezed this year, amid major cost pressures from inflation, a pay deal unfunded by government, and higher than expected covid-related costs. One well-placed source said the fund this year was required to underspend by about £1bn against what had been planned, which will help balance overspends elsewhere in the NHS. The cuts are likely to be linked to ministers’ view that the NHS should focus on “core” priorities and cut other activities, including reducing NHSE national programme work which is typically linked to SDF budgets. Patricia Hewitt is looking into giving integrated care systems more “autonomy” from NHSE to set their own priorities. Read full story (paywalled) Source: HSJ, 8 December 2022
  15. News Article
    Poorer women in Britain have some of the highest death rates from cancer in Europe, an in-depth new World Health Organization study has found. They are much more likely to die from the disease compared with better-off women in the UK and women in poverty in many other European countries. Women in the UK from deprived backgrounds are particularly at risk of dying from cancer of the lungs, liver, bladder and oesophagus (foodpipe), according to the research by the International Agency for Research on Cancer (IARC), the WHO’s specialist cancer body. IARC experts led by Dr Salvatore Vaccarella analysed data from 17 European countries, looking for socioeconomic inequalities in mortality rates for 17 different types of cancer between 1990 and 2015. Out of the 17 countries studied, Britain had the sixth-worst record for the number of poor women dying of cancer. It had the worst record for oesophageal cancer, fourth worst for lung and liver cancer and seventh worst for breast and kidney cancer. However, the UK has a better record on poor men dying of cancer compared with their counterparts in many of the other 16 countries. It ranked fifth overall, second for cancer of the larynx and pharynx, and third for lung, stomach and colon cancer. That stark gender divide is most likely because women in the UK began smoking in large numbers some years after men did so, the researchers believe. They pointed to the fact that while cases of lung cancer have fallen among men overall in Britain, they have remained stable or increased among women, and gone up among women from deprived backgrounds. Read full story Source: The Guardian, 28 November 2022
  16. Content Article
    Developed in 2020, this Picker survey aims to understand the experiences of cancer and tumour care among children and their parents/carers. The results will help improve children’s cancer services across England. The survey, conducted by the charity Picker on behalf of NHS England, included children, young people, and their parents – with separate questions designed to be appropriate to different age groups. Children and young people were included in the survey if they had a confirmed cancer or tumour diagnosis, received inpatient or day case care from an NHS Principal Treatment Centre (PTC) in 2021, and were under 16 years of age at the time of their discharge.
  17. Content Article
    Reducing socioeconomic inequalities in cancer is a priority for the public health agenda. In this study, cancer-specific mortality data by socioeconomic status, as measured by educational level, were collected and harmonised across 18 countries in Europe and for multiple points in time over the period 1990–2015. The study found that everywhere in Europe, lower-educated individuals have higher mortality rates for nearly all cancer-types relative to their more highly educated counterparts, particularly for tobacco/infection-related cancers. However, the magnitude of inequalities varies greatly by country and over time, predominantly due to differences in cancer mortality among lower-educated groups, as for many cancer-types higher-educated have more similar (and lower) rates, irrespective of the country. Inequalities were generally greater in Baltic/Central/East-Europe and smaller in South-Europe, although among women large and rising inequalities were found in North-Europe. These results call for a systematic measurement, monitoring and action upon the remarkable socioeconomic inequalities in cancer existing in Europe.
  18. Event
    until
    NHS England (NHSE) and Picker are pleased to announce a National Insight Webinar designed to unpick the results of the 2021 Under 16 Cancer Patient Experience Survey (U16 CPES). The webinar is dedicated to helping NHS teams, providers, charities, commissioners, and the wider public to better understand their results, identify areas for action, and place person centred care at the heart of operations. Register
  19. News Article
    NHS England’s national cancer director has said that she is “cautiously optimistic” about reaching cancer waiting time targets by March 2023, but she refused to be drawn on what had happened to the government’s proposed 10 year cancer plan. Cally Palmer was speaking to MPs on the Health and Social Care Committee at a special one-off session on the urgent challenges facing cancer services, including workforce shortages, winter pressures, and poor performance. Latest figures from September, published on 10 November, show that 60.5% of patients began their first treatment within 62 days of being urgently referred for suspected cancer, against a target of 85%. That target was pushed back to March 2023 from March this year. Palmer told the committee on 23 November that the 85% target aimed to reduce the 62-day backlog to pre-pandemic levels. Read full story (paywalled) Source: BMJ, 24 November 2022
  20. Content Article
    In July 2022, HSIB launched a national investigation into the safety risk of clinical investigation booking systems failures. Specifically, the investigation explores the use of paper or hybrid booking systems and the production of appointment letters. This interim bulletin highlights a safety risk identified by the investigation and presents a safety observation for the attention of NHS care providers. Some vital NHS services still use paper-based or hybrid systems, which may have been developed over time and could leave unintended gaps where patients can be lost in the system. The reference case for this investigation is the experience of a patient whose magnetic resonance imaging (MRI) scan was not rescheduled following a cancellation, leading to a delay in the diagnosis of cancer. Hybrid systems were in use, which did not assist staff to keep track of patients. Additionally, the hybrid systems in use did not allow appointment letters in non-English languages to be produced.
  21. News Article
    All GP practices in England will be able to book cancer tests directly for their patients from later this month, NHS bosses say. The option of GPs booking CT scans, ultrasounds and MRIs has been gradually rolled out in recent years, as community testing centres have opened. NHS England chief executive Amanda Pritchard will announce later all GPs will now be able to do this. GPs have previously relied on referring on to specialist hospital doctors. Before referring, they have to identify clear symptoms the patient may have a specific type of cancer. But only one out of every five cancer cases is diagnosed through these urgent GP referrals. Patients with less clear symptoms face long waits for check-ups or are diagnosed only after presenting at an accident-and-emergency (A&E) unit or being referred to hospital for something else. And Ms Pritchard will tell delegates at the NHS Providers annual conference of health managers, in Liverpool, today, she hopes the new initiative will lead to tens of thousands of cancer cases every year being detected sooner. Read full story Source: BBC News, 16 November 2022
  22. News Article
    Experts have warned that Europe faces a “cancer epidemic” unless urgent action is taken to boost treatment and research, after an estimated 1m diagnoses were missed during the pandemic. The impact of Covid-19 and the focus on it has exposed “weaknesses” in cancer health systems and in the cancer research landscape across the continent, which, if not addressed as a matter of urgency, will set back cancer outcomes by almost a decade, leading healthcare and scientific experts say. A report, European Groundshot – Addressing Europe’s Cancer Research Challenges: a Lancet Oncology Commission, brought together a wide range of patient, scientific, and healthcare experts with detailed knowledge of cancer across Europe. One unintended consequence of the pandemic was the adverse effects that the rapid repurposing of health services and national lockdowns, and their continuing legacy, have had on cancer services, on cancer research, and on patients with cancer, the experts said. “To emphasise the scale of this problem, we estimate that about 1m cancer diagnoses might have been missed across Europe during the Covid-19 pandemic,” they wrote in The Lancet Oncology. “There is emerging evidence that a higher proportion of patients are diagnosed with later cancer stages compared with pre-pandemic rates as a result of substantial delays in cancer diagnosis and treatment. This cancer stage shift will continue to stress European cancer systems for years to come. “These issues will ultimately compromise survival and contribute to inferior quality of life for many European patients with cancer.” Read full story Source: The Guardian, 15 November 2022
  23. Content Article
    Cancer research is a crucial pillar for countries to deliver more affordable, higher quality, and more equitable cancer care. Patients treated in research-active hospitals have better outcomes than patients who are not treated in these settings. However, cancer in Europe is at a crossroads. Cancer was already a leading cause of premature death before the COVID-19 pandemic, and the disastrous effects of the pandemic on early diagnosis and treatment will probably set back cancer outcomes in Europe by almost a decade. Recognising the pivotal importance of research not just to mitigate the pandemic today, but to build better European cancer services and systems for patients tomorrow, the Lancet Oncology European Groundshot Commission on cancer research brings together a wide range of experts, together with detailed new data on cancer research activity across Europe during the past 12 years.
  24. News Article
    There has been a sharp rise in long waits for cancer therapy in the past four years, BBC analysis shows. The number waiting more than the 62-day target time for therapy in the past year has topped 67,000 across England, Northern Ireland and Scotland - twice as many as the same period in 2017-18. Waits are also getting worse in Wales, but data does not go that far back. The national cancer director for the NHS in England said staff were striving to catch up on the backlog of care, but experts warned the problems could be putting patients at risk. Steven McIntosh, of Macmillan Cancer Support, told the BBC that the delays were "traumatic" and people were living "day-by-day with fear and anxiety". He said the situation was "unacceptable" and could even be having an impact on the chances of survival. Describing the NHS as "chronically short-staffed", he said: "The NHS doesn't have the staff it needs to diagnose cancer, to deliver surgery and treatment, to provide care, support and rehabilitation." Read full story Source: BBC News, 9 November 2022
  25. News Article
    Cases of mouth cancer in the UK have increased by more than one-third in the last decade to hit a record high, according to a new report. The number of cases has more than doubled within the last generation and previous common causes like smoking and drinking are being added to by other lifestyle factors. According to the Oral Health Foundation, 8,864 people in the UK were diagnosed with the disease last year – up 36% on a decade ago, with 3,034 people losing their life to it within the year. This is an increase in deaths of 40% in the last 10 years, and a 20% rise in the last five. Dr Nigel Carter, the chief executive of the Oral Health Foundation, said: “While most cancers are on the decrease, cases of mouth cancer continue to rise at an alarming rate". Survival rates for mouth cancer have barely improved in the last 20 years, partly because so many cases are diagnosed too late. Just over half of all mouth cancers are diagnosed at stage four – where the cancer is at its most advanced. The findings from the Oral Health Foundation have been released to coincide with November’s Mouth Cancer Action Month. The goal of the Oral Health Foundation is to improve people’s lives by reducing the harm caused by oral diseases – many of which are entirely preventable. Read full story Source: The Independent, 9 November 2022
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