England Rare Diseases Action Plan 2023 (DHSC, 28 February 2023)

Summary

The UK Rare Diseases Framework was published in January 2021 and set out a shared vision for addressing health inequalities and improving the lives of people living with rare diseases across the UK.

This is England’s second Rare Diseases Action Plan, following the commitment to publish action plans annually during the lifetime of the UK Rare Diseases Framework. This action plan has been developed in close collaboration with delivery partners across the health system and the rare disease community. It reports on progress against the 16 actions set out in the first Rare Diseases Action Plan and announces 13 new specific, measurable actions for the next year under the framework’s priority areas and underpinning themes.