Dalila’s story: “With lupus, you don’t know when your next flare will be ”

Summary

Dalila, who lives in Cardiff, was diagnosed with systemic lupus erythematosus during childhood. In this blog for Lupus Awareness Month she talks about her experiences with the condition and the differences in the care she’s received between England and Wales.  

The experience of people like Dalila is why the Rare Autoimmune Rheumatic Disease Alliance are calling for change in how people with rare autoimmune rheumatic diseases are cared for in Wales. 

They are calling for:

• A properly commissioned specialised centre for rare autoimmune rheumatic diseases in Wales. 
• A network, where this specialised centre can support local hospitals to deliver better care. 
• Urgent action to resolve workforce issues in rheumatology in Wales.