Summary
A framework from the Department of Health and Social Care (DHSC) setting out a coherent, national vision on how the UK will improve the lives of those living with rare diseases.
The framework outlines 4 key national priorities:
- helping patients get a final diagnosis faster
- increasing awareness among healthcare professionals
- better co-ordination of care
- improving access to specialist care, treatment and drugs.
Policy paper: UK Rare Diseases Framework (DHSC, 9 January 2021)
https://www.gov.uk/government/publications/uk-rare-diseases-framework
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