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Found 457 results
  1. News Article
    A Harley Street doctor suspended for working while testing positive for Covid at the height of the pandemic has said that his patient’s cancer treatment took priority. Dr Andrew Gaya was found to have “blatantly disregarded” the rules by going to work at a centre for patients with brain tumours after he tested positive for the disease. The “highly regarded” consultant oncologist “dishonestly” misled colleagues that he was safe to work by keeping his positive test secret, a tribunal found. Dr Gaya, whose work is at the forefront of tumour care and has been described as “world class”, said he defied Covid-19 rules because he believed “the risk of harm to his patient” in delaying treatment was “greater than the risk he posed”. Now, the doctor of 27 years has been suspended for three months at a Medical Practitioners’ Tribunal. Read full story (paywalled) Source: The Times, 20 Ocotober 2022
  2. Event
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    NHS England & Improvement has asked all Integrated Care Systems to extend, or introduce for the first time, the Virtual Ward model. The guidance starts a two-year funded transformation programme to support the development of Virtual Wards, including Hospital at Home. In this free webinar an expert panel will discuss how Virtual Wards can support elective recovery and improve patient flow during the critical Winter period. Our panel will also focus on the practicalities of setting up, rolling out and managing Virtual Wards across multiple treatments and care pathways. Headline discussion points: NHS winter pressures and tools to support delivery. Setting up, rolling out and managing Virtual Wards. Impact of Virtual Wards on the Healthcare system. Hospital at home & community based care models. What attendees will learn: What is a virtual ward and what needs to be in place to make virtual wards work. Innovation and initiatives that have been used previously to support delivery. How virtual wards can be rolled out across a system and new treatments/pathways introduced within a virtual ward. Register
  3. News Article
    A woman says she was forced to pay around £25,000 for private healthcare to treat endometriosis after her symptoms were “overlooked” for eight years. Aneka Hindocha, 34, started voicing her concerns about painful periods when she was aged 25 but says she was initially told by doctors this was normal. Ms Hindocha, who described the pain of endometriosis as “someone ripping your insides out”, says the condition should have been diagnosed sooner but argued women’s pain often gets overlooked and ignored. Endometriosis is a very common chronic inflammatory condition, impacting an estimated 1.5 million women in the UK. An inquiry by the All-Party Political Group found that like Ms Hindocha, it takes an average of eight years to get a diagnosis. The condition sees tissue comparable to womb-lining grow in other places in the body - with symptoms often debilitating and spanning from infertility to painful periods, tiredness, pain while having sex, as well as depression and anxiety. “I was told painful periods were normal, which they are not, but I believed that at the time,” Ms Hindocha told The Independent. “I thought the issue was me. I thought I was being a hypochondriac.” Her health massively deteriorated in the summer of 2020 and she became bedbound for three days. “I needed someone to find out what was wrong with me,“ Ms Hindocha added. “I was crying I was in so much pain.” She says that two years later she still had not received her laparoscopy despite the fact her pain was getting more severe and so she ended up paying for a private scan. She finally got diagnosed with stage 4 endometriosis a week later. “By the time of having my surgery at the end of February 2022, it had been nearly two years on the NHS waiting list and I was still being told to wait.” Read full story Source: The Independent, 18 October 2022
  4. Content Article
    These stories provide examples of how people with pancreatic cancer are diagnosed, the treatment they have, their experiences and how they take care of themselves. Everyone diagnosed with pancreatic cancer will be different in terms of how they received their diagnosis and how they respond to and cope with treatment.
  5. Content Article
    Long Covid is now estimated to affect 2 million people in the UK, and almost 145 million globally. It’s a complicated diagnosis to receive and those affected have to cope with both the physical symptoms and the psychological strain of having an illness that is not yet well understood and does not have well-established treatments. Three Long Covid patients share with the Guardian on how they navigated this journey.
  6. News Article
    The number of people in Northern Ireland waiting more than a month to start cancer treatment is five times higher than a decade ago. Macmillan Cancer research collated between April 2011 and March 2012 said on average 18 people each month waited more than a month for treatment. By March 2022 that monthly figure had increased to 92 people - or by more than 400%. Macmillan Cancer said the jump revealed a system that was "failing" patients. Sarah Christie, Macmillan policy and public affairs manager, told BBC News NI that the figures revealed a "dark insight into a healthcare system that is failing time and again to meet the needs of people living with cancer". Ms Christie said: "People have a right to be frustrated. They deserve access to care at the right time. "We need a government in place so that change can happen and, crucially, that the three-year budget that had been planned before the executive collapsed can be signed off. "It is impossible to deliver transformation on short-term budget." Read full story Source: BBC News, 29 September 2022
  7. Content Article
    This practice pointer in The BMJ provides an update on treating Long Covid in primary care and outlines how healthcare professionals might respond to questions that patients ask about the condition. The article provides information on: Definition of Long Covid Epidemiology Symptoms and case definition Questions patients ask Further resources for patients and healthcare professionals
  8. Content Article
    An estimated 1 in every 182 Americans will be diagnosed with cancer this year. Providing them safe care has inherent challenges, such as reaching an accurate diagnosis as quickly as possible, differentiating between disease progression and treatment side effects, and addressing broader systemic risks. Caitlyn Allen, sat down with medical oncologist and former chief quality officer of the Dana-Farber Cancer Institute, Dr. Joseph O. Jacobson, to discuss the evolution of oncology care and what the future may hold.
  9. Content Article
    “I wish my GP had known more about my disease” is a comment made by patients with pulmonary fibrosis and idiopathic pulmonary fibrosis on a regular basis. Pulmonary fibrosis can be difficult to diagnose and misdiagnosis is common. That’s why Action for Pulmonary Fibrosis has partnered with the Royal College of General Practitioners to create a new module aimed at improving awareness of pulmonary fibrosis diagnosis. They have also got resources and materials for your patient, so that they have the support they need from diagnosis.
  10. Content Article
    For people who have been diagnosed with dementia, accessing post-diagnosis support can be challenging, particularly when the systems meant to provide support are confusing, limited or in some areas, non-existent. The World Alzheimer Report 2022 looks at the issues surrounding post-diagnosis support, a term that refers to the variety of official and informal services and information aimed at promoting the wellbeing of people with dementia and their carers. This report explores the aspects of living with dementia following diagnosis, through 119 essays written by researchers, healthcare professionals, informal carers and people living with dementia from around the world. These expert essays are accompanied by the results of a survey carried out in May 2022, with responses from 1,669 informal carers in 68 countries, 893 professional carers in 69 countries and 365 people with dementia from 41 countries.
  11. News Article
    NHS England has issued a new deadline to treat patients who have been waiting more than two years for treatment, a month after saying it had ‘virtually eliminated’ the longest waits, it has emerged. The goal of no-one waiting more than 104 weeks for treatment by July this year was one of the first milestones in the elective recovery plan hammered out between NHSE and ministers. They were not eliminated by the end of July, but the number was reduced to 3,000, having stood at 22,000 in January. The remaining group consisted of nearly 1,600 patients who had been offered faster treatment elsewhere but did not want to travel, 1,000 who required complex treatment and could not be transferred to another provider and 168 who were not treated by the deadline, according to information issued in the summer by NHSE. Now integrated care systems have been told there is a new “national expectation” to treat the remaining, final two-year waiters by the end of September. HSJ was told the goal has been framed as an ambition rather than a target because it includes patients who have chosen to wait longer. Read full story (paywalled) Source: HSJ, 21 September 2022
  12. News Article
    At least 12,000 people were treated for sepsis in hospitals in Ireland last year, with one in five of those dying from the life-threatening condition. However, the HSE said the total number of cases is likely to be much higher. Marking World Sepsis Day, it said the condition kills more people each year than heart attacks, stroke or almost any cancer. The illness usually starts as a simple infection which leads to an “abnormal immune response” that can “overwhelm the patient and impair or destroy the function of any of the organs in the body”. Dr Michael O’Dwyer, the HSE’s sepsis clinical lead, said: “The most effective way to reduce deaths from sepsis is by prevention. “A healthy lifestyle with moderate exercise, good personal hygiene, good sanitation, breastfeeding when possible, avoiding unnecessary antibiotics and being vaccinated for preventable infections all play a role in preventing sepsis. “Early recognition and then seeking prompt treatment is key to survival. Recognising sepsis is notoriously difficult and the condition can progress rapidly over hours or sometimes evolve slowly over days.” Read full story Source: Independent Ireland, 13 September 2022 hub resources on sepsis RCNi: Sepsis resource collection NSW Clinical Excellence Commission - Sepsis toolkit Dr Ron Daniels video: Recognising sepsis Introducing the Suspicion of Sepsis Insights Dashboard
  13. News Article
    Liz Truss has received a stark insight into the dire state of the NHS after new figures showed millions of people in England were facing often record delays to access vital healthcare. One leading NHS expert said the long waits for care, diagnostic tests and hospital beds showed that Britain’s new prime minister “inherits an NHS in critical condition”. The total number of people in England waiting for hospital treatment rose again to a record high of 6.8 million at the end of July – almost one in eight of the population. Patients are also facing long waits for accident and emergency care, cancer treatment, such as surgery or chemotherapy, and for an ambulance to arrive after a 999 call. Of the 6.8 million people on NHS England’s “referral to treatment” waiting list, 2,665,004 had been waiting for more than 18 weeks, which is the supposed maximum waiting time for procedures such as a joint replacement, hernia repair or cataract removal. In addition, 377,689 had been waiting more than a year to start their treatment, almost 22,000 more than a month before, according to the latest monthly performance data published by NHS England. The data showed that ministers and NHS bosses had failed to fulfil their pledge to eradicate two-year waits by the end of July; 2,885 such cases had not been resolved by then, despite major efforts by hospitals to meet the target. Read full story Source: The Guardian, 8 September 2022
  14. Content Article
    NHS England have released statistics on referral to treatment (RTT) waiting times for consultant-led elective care. The statistics include patients waiting to start treatment at the end of July 2022 and patients who were treated during July 2022.
  15. News Article
    The backlog of urgent cancer referral patients who have waited 104 days or more for treatment has increased month-on-month again, internal NHS data reveals. Data obtained by HSJ shows the total backlog of NHS patients waiting over three months for their first treatment since referral grew by 10% month-on-month, from 10,361 as of 26 June, to 11,212 by 28 August. There are now nearly 341,000 patients are waiting to start their cancer treatment after being referred, the internal data also reveals. Under current NHS rules, the 104-day point marks a “backstop” – beyond which any patient waiting longer than this for treatment should be reviewed for potential harm. The NHS has not achieved this target since 2014. Read full story (paywalled) Source: HSJ, 7 September 2022
  16. News Article
    Excess deaths in the UK have continued to soar, as Covid deaths decreased for fourth week in a row, the latest data shows. A total of 10,942 deaths from all causes were registered in England and Wales in the week to 26 August, according to the Office for National Statistics. This is 16.6%above the five-year average, the equivalent of 1,556 “excess deaths” during this week. However, new figures show a continued downward trend in deaths involving Covid-19, which have fallen to the lowest level since the beginning of July. A total of 453 deaths registered in the seven days to August 26 mentioned coronavirus on the death certificate, according to the Office for National Statistics (ONS) – down 18 per cent on the previous week. Stuart Macdonald, from the Covid-19 actuaries’ response group, wrote: “There have been around 5,300 deaths with Covid-19 mentioned on the death certificate in the last ten weeks. Covid was the underlying cause for 3,400 of these and may also have contributed to others. Since Covid does not explain all the recent excess we need to look at other causes.” Mr Macdonald outlined a number of potential drivers of excess deaths which included increased risk of heart failure in people following Covid-19 infection, delays for urgent treatment within the NHS and missed or delayed diagnoses earlier in the pandemic. Read full story Source: The Independent, 6 September 2022
  17. News Article
    Ongoing research underway at The University of Queensland in Australia is focusing on stopping children undergoing chemotherapy from feeling pain and other debilitating side effects. Dr Hana Starobova from UQ’s Institute for Molecular Bioscience has been awarded a Fellowship Grant from the Children’s Hospital Foundation to continue her research to relieve children from the side effects of cancer treatments. “Although children have a higher survival rate than adults following cancer treatments, they can still be suffering side-effects well into their adulthood,” Dr Starobova said. “A five-year-old cancer patient could be suffering severe pain, gastrointestinal problems or difficulty walking 20 years on from treatment. “There has been a lack of studies on children, which is an issue because they are not just small adults — they suffer from different cancers, their immune systems work differently and they have a faster metabolism, all of which affect how treatments work. “Our aim is to treat children before the damage happens so that the side-effects are dramatically reduced or don’t occur in the first place.” Dr Starobova is currently analysing how specific drugs could prevent a cascade of inflammation caused by chemotherapy drugs, which lead to tingling and numbness in hands and feet, and muscle pain and weakness that makes everyday tasks, like walking and doing up buttons, a challenge. She is focusing on Acute lymphoblastic leukaemia, one of the most frequently diagnosed cancers in children, with over 700 children diagnosed in Australia each year. “We are studying the most commonly used chemotherapy treatment for children, which is a mix of drugs that are very toxic, but have to be used to treat cancer fast and stop it becoming resistant to the drugs,” Dr Starobova said. “It’s a fine balance — too little chemotherapy and cancer won’t be killed but sometimes the side effects are so bad, patients have to stop the therapy. “I hope that by having a treatment to reduce side-effects, it will be one less thing for these kids and their families to worry about.” Read full story Source: The Print, 15 August 2022
  18. Content Article
    This National Confidential Enquiry into Patient Outcome and Death (NCEPOD) report reviews the quality of care of patients aged 16 and over who had a pulmonary embolism (PE), The study aimed to highlight areas where care could be improved in patients with a new diagnosis of acute PE. A retrospective case note and questionnaire review was undertaken in 526 patients aged 16 and over who had a PE, and who either presented to hospital or developed a PE whilst an inpatient for another condition. You can view and download the following documents: Full report Summary report Summary sheet Recommendation checklist Infographic Slide set Commissioners' guide Fishbone diagram Audit toolkit YouTube video: Know the Score
  19. Content Article
    On the 21 July 2022 NHS Resolution’s Safety and Learning team, in partnership with the National Infusion and Vascular Access Society, hosted a virtual forum on extravasation injury claims. The intention of this event was to raise awareness of these injuries and help spread learning and process review across health providers.
  20. News Article
    There is an urgent need to develop evidence based clinical guidelines for managing cases of monkeypox, scientists said, after finding that existing guidance frequently lacked detail and was based on poor research. They urged establishing a 'living guideline' for infectious disease to ensure that up-to-date information, based on robust research, was available globally and in any setting. The study, published in BMJ Global Health, also called for investment to back research into optimal treatments and prophylaxis strategies. The study authors wrote: "The lack of clarity between guidelines creates uncertainty for clinicians treating patients with MPX [monkeypox] which may impact patient care." They concluded: "Our study highlights a need for a rigorous framework for producing guidelines ahead of epidemics and a recognised platform for rapidly reviewing and updating guidance during outbreaks, as new evidence emerges." Current global concern over the spread of monkeypox was an opportune time to act, they argued. Read full story Source: Medscape, 17 August 2022
  21. Event
    This Westminster Health Forum policy conference will examine the key priorities for the future of cancer prevention, diagnosis, care and treatment as the Government develops a 10-year Cancer Plan for England. Delegates will discuss priorities for the next stage of the elective care backlog delivery plan, including meeting demand as waiting times for new referrals increase, and what can be learned from success in clearing the longest waiting times for patients. With questions about the future of the National Insurance increase and social care funding, it will be an opportunity to discuss priorities for the Government under a new prime minister. Overall, areas for discussion include: the pandemic - assessing its impact on cancer services and patient care - the future for personalised care in England reducing cancer waiting times - options for increasing capacity - priorities for diagnostics, infrastructure and the use of digital technology - building workforce resilience and retention the 10-year Cancer Plan for England - stakeholder perspectives on next steps in its development screening programmes - progress in recovering services and options for future delivery - developing public awareness health outcomes - improving early diagnosis and access to innovation - use of data and developing prevention programmes to meet local need - addressing accessibility and health inequalities personalised care - the future for patient engagement and involvement in their own care plans - how this should look within cancer care in England. Agenda Register
  22. Content Article
    Decision support tools, also called patient decision aids, support shared decision making by making treatment, care and support options explicit. They provide evidence-based information about the associated benefits/harms and help patients to consider what matters most to them in relation to the possible outcomes, including doing nothing. NHS England has just published a suite of eight decision support tools that will help people with their healthcare professionals in clinical consultations, about their treatment choices for their condition through shared decision making. NHS England has worked with patients, patient charities health professionals and research teams over several months to develop the tools in line with NICE guidance on shared decision making standards.
  23. Content Article
    The US's response to monkeypox fails to put patients and their care at its centre, writes Eric Kutscher in the BMJ opinion article. As a primary care and addiction medicine physician, Kutscher has been dismayed by the number of patients he has treated over the past few weeks who’ve been infected with the vaccine-preventable monkeypox virus. Most have been in considerable pain and required strong analgesics, with some unable to even sit because of their skin lesions. Yet for many, the most agonising and scarring aspect of their infection is not their physical symptoms, but the complete removal of their humanity by the medical response to monkeypox. As a medical and public health community, we are exhausted after Covid-19, and our compassion fatigue is showing in our policies and procedures for monkeypox. The spread of the virus to previously non-endemic countries was only recently declared a public health emergency of international concern by the World Health Organization. Unlike with Covid-19, this is not a novel virus—we have the appropriate diagnostic testing, treatment, and even vaccines that we need. Yet, just as we have failed to deploy these tools to assist in outbreaks in African nations, we are now also failing our patients from a sexual minority—patients who are already underserved and justifiably mistrusting of a medical system.
  24. Content Article
    Thrombectomy is a game-changing treatment for stroke. It changes the course of recovery from stroke in an instant, significantly reducing the chance of disabilities like paralysis, visual impairment and communication difficulties. It is also extremely cost-effective. Rolling out thrombectomy fully could save the UK £73 million a year, by reducing demand for rehabilitation and community support services.  But thrombectomy isn’t currently available for everyone who needs it (~10% of all stroke patients). The treatment is subject to a postcode lottery and in 2020/21, nearly 80% (5,889) of patients in England who needed a thrombectomy missed out. This report from the Stroke Assoication features some of the amazing people working tirelessly to improve outcomes for stroke patients, under challenging circumstances and often at a personal cost. And most importantly, it shows how truly life-changing thrombectomy can be for patients. The Stroke Association hopes this report will galvanise action at government and ICS levels that will benefit both stroke patients and professionals. They must urgently secure access to a 24/7 thrombectomy service, for every stroke patient who needs.
  25. News Article
    A new report by the Stroke Association released today warns that, if the thrombectomy rate stays at 2020/21 levels, 47,112 stroke patients in England would miss out on the game changing acute stroke treatment, mechanical thrombectomy, over the length of the newly revised NHS Long Term Plan. This year, NHS England missed its original target to make mechanical thrombectomy available to all patients for whom it would benefit – only delivering to 28% of all suitable patients by December 20212. The Stroke Association’s ‘Saving Brains’ report calls for a 24/7 thrombectomy service, which could cost up to £400 million. But treating all suitable strokes with thrombectomy would save the NHS £73 million per year. Stroke professionals quoted in the report cite insufficient bi-plane suites, containing radiology equipment, as a barrier to a 24/7 service. The Stroke Association is calling for: The Treasury to provide urgent funding for thrombectomy in the Autumn Budget 2022, for infrastructure, equipment, workforce training and support, targeting both thrombectomy centres and referring stroke units. Department of Health and Social Care to develop a sustainable workforce plan to fill the gaps in qualified staff. NHS England to address challenges in transfer to and between hospitals in its upcoming Urgent & Emergency Care Plan. Putting innovation - such as artificial intelligence (AI) imaging software and video triage in ambulances - into practice. Juliet Bouverie, Chief Executive of the Stroke Association said: “Thrombectomy is a miracle treatment that pulls patients back from near-death and alleviates the worst effects of stroke. It’s shocking that so many patients are missing out and being saddled with unnecessary disability. Plus, the lack of understanding from government, the NHS and local health leaders about the brain saving potential thrombectomy is putting lives at risk. There are hard-working clinicians across the stroke pathway facing an uphill struggle to provide this treatment and it’s time they got the support they need to make this happen. It really is simple. Thrombectomy saves brains, saves money and changes lives; now is the time for real action, so that nobody has to live with avoidable disability ever again." Read full story Source: The Stroke Association, 28 July 2022
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