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Content Article
Dementia and COVID-19: Four big problems, three solutions
Anonymous posted an article in Blogs
Day 1, Dad goes into a care home so Mum can have respite care. Day 5, the care home provider announces a lockdown is in place. Day 12, Dad develops a raging temperature. Day 13, he develops a persistent cough, and they try to evict him back home to Mum. Here’s our story... -
Content ArticleLiving with dementia at any time brings everyday challenges for the person and those around them. Coronavirus is making daily life much harder. You may feel anxious, scared or lonely. But you are not alone – the Alzheimer's Society have collated guidance, tips and advice.
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Content ArticleDifficult conversations are always needed in healthcare and are important in order to offer informed choice of what treatments will be of benefit to the patient and are important to manage the expectations of patients, families and clinicians. But what is currently happening during the coronavirus pandemic in primary care? What should be best practice? Claire, a clinical outreach nurse, explores this in her latest blog.
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News Article
Coronavirus: GP surgery apology over 'do not resuscitate' form
Patient Safety Learning posted a news article in News
A GP surgery has apologised after sending a letter asking patients with life-limiting illnesses to complete a "do not resuscitate" form. A letter, from Llynfi Surgery in Maesteg, asks people to sign to ensure emergency services would not be called if their condition deteriorated due to coronavirus. "We will not abandon you.. but we have to be frank and realistic," it said. Cwm Taf health board issued an apology from the surgery, the Guardian reports. The letter says in an "ideal situation" doctors would have had this conversation in person but had written to them due to fears they were carrying the virus and were asymptomatic. Read full story Source: BBC News, 1 April 2020 -
Content ArticleThe emergence in December 2019 of COVID-19, caused by a novel coronavirus, and its subsequent spread around the world, led the World Health Organisation to declare a pandemic on March 11, 2020: the first to be caused by a coronavirus . The virus appears to have originated in bats, with spread to humans likely mediated by an intermediate mammalian. This paper by Dr Nicole Le Saux, discusses the current epidemiology for COVID 19 in children.
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Coronavirus crisis hits pregnant women as clinics shut
Patient Safety Learning posted a news article in News
Hundreds of thousands of pregnant women face a crisis as maternity and abortion services shut their doors because of the coronavirus outbreak. One MP this weekend warned that pregnant women were being treated like “second-class citizens” with the closure of NHS services and a lack of government guidance for those in need of urgent care. The NHS faces a severe shortage of midwives with the number of unstaffed positions doubling to one in five since the virus arrived in Britain. A fifth (22%) of senior midwives said their local maternity units had shut indefinitely because of staff self-isolating or being deployed elsewhere. Read full story (paywalled) Source: The Times, 29 March 2020 -
Content Article
The Patients Association: Report your care
Patient Safety Learning posted an article in Complaints
The Care Quality Commission (CQC) is an organisation that inspects and regulates health and social care services to make sure they meet fundamental standards of quality and safety. About seven million people who used NHS services in the past five years had concerns about their treatment but had never raised them, according to the Care Quality Commission. Of these, over half (58%) expressed regret about not doing so. However, when people did raise a concern or complaint, the majority (66%) found their issue was resolved quickly, it helped the service to improve and they were happy with the outcome. The Patients Association is here to help and can pass on the information you provide to the CQC. Whether this is a positive example of great health or social care you've received, or of a troubling experience you or your family have had.- Posted
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Content ArticleThe Talking about dying report seeks to offer advice and support for any doctor on holding conversations with patients much earlier after the diagnosis of a progressive or terminal condition, including frailty. The report identified that the timely, honest conversations about their future that patients want are not happening. Yet, these proactive discussions are fundamental to effective clinical management plans, part of being a medical professional and align with the aspirations of the Royal College of Physicians's Future Hospital Commission report. The Talking about dying report begins to highlight and challenge professional reluctance to engage in conversations with patients about uncertainty, treatment ceilings, resuscitation status and death. It offers some ‘mythbusters’ to get physicians thinking and we offer signposts to tools and educational resources to support physicians and other healthcare professionals.
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Content ArticleAfter a year of attending lectures on pre-clinical medicine, Usama Ali found herself on the wards for the first time. Except for her, things were different. She was there as a patient in a psychiatric ward. In this BMJ article, Usama reflects on her experience and explains how the whole patient journey can influence recovery.
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Content ArticleThe way we treat cancer over the next few months will change enormously. Oncologists, will have to find a tenuous balance between under-treating people with cancer, resulting in more deaths from the disease in the medium to long term, and increasing deaths from Covid-19 in a vulnerable patient population. Lucy Gossage, an oncologist, discusses in the Guardian the difficult decisions that will need to be made.
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Content ArticleThis American Society for Reproductive Medicine (ASRM) guidance is in response to the coronavirus (COVID-19) global pandemic. Their goal is to provide practices with recommendations that guard the health and safety of their patients and staff, and recognise our social responsibility, as an organisation and as a community of providers and experts, to comply with national public health recommendations.
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Content ArticleBjonda Haliti shares her experience on Thread reader on her experience to help bring awareness to her age group and to relieve any stress/anxiety some may have due to the pandemic.
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Content Article
Coronavirus: My disabled son is on his own without any help
Anonymous posted an article in Blogs
I'd like to share what I am currently living through during the coronavirus with my 25-year-old son who has significant cerebral palsy due to kernicterus and is speech, hearing and motor impaired- Posted
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Content ArticleThe Learning Disabilities Mortality Review (LeDeR) Programme is a world-first. It is the first national programme of its kind aimed at making improvements to the lives of people with learning disabilities. The University of Bristol is one of the partners in the programme, which is funded and run by NHS England. Reviews of deaths are being carried out with a view to improve the standard and quality of care for people with learning disabilities. People with learning disabilities, their families and carers have been central to developing and delivering the programme. Further information and useful resources can be found on the University of Bristol's website.
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Content ArticleIn a blog published in the Guardian, Kathryn Hearn says the UK government’s treatment of the coronavirus outbreak has in effect written off all of us with health issues. The language used by officials describing the spiralling scenarios risks dehumanising us, and makes us feel we no longer matter, Kathryn explains. NHS England’s latest report on the health of the nation acknowledged that 43% of adults – that’s nearly 20 million people – are living with at least one long-term health condition. Although not all of those would be directly in danger from Covid-19, there’s still a major section of our society who will be. You’ll know somebody, for sure. Until Monday’s U-turn, the UK government’s policy was to manage rather than to contain the virus - which would have allowed close to a quarter of a million people to die. Allowing Covid-19 to spread throughout the population in the hope of building some “herd immunity” among the youngest, fittest and healthiest "felt irresponsible at best, and callous at worst".
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Content Article
Video consultations: A guide for practice (18 March 2020)
Patient Safety Learning posted an article in Telemedicine
Many practices are now using or considering using alternatives to face-to-face consultations because of concerns about COVID-19. Important new information and guidance is now available to support video consultations. Produced by researchers at the University of Oxford, this document is packed with extremely useful, practical advice and tips to help doctors,other primary care clinicians, and patients navigate these almost uncharted waters at a time of unprecedented challenge for the health service.- Posted
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Content ArticleThe authors of this paper describe here the content and structure of their patient registry along the Standards for Quality Improvement Reporting Excellence (SQUIRE) with the aim of transparent in-house quality monitoring, communication with patients, and also to facilitate benchmarking with other neurosurgery health care providers.
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Content ArticleThis video has been produced by the staff at Guy's and St Thomas' Hospital NHS Foundation Trust. It demonstrates how to prone an intensive care patient. If proning a patient with COVID-19, full personal protective equipment (PPE) will be required by all staff.
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Intensive Care: a guide for patients and relatives
Claire Cox posted an article in Resources for patients
This guide contains advice and information about intensive care. It tells you how critical illness may be treated and what recovery may be like. Not every patient will experience all of these things, but they are more likely to if they have been in intensive care for more than a few days. Most of this guide is written for patients but there is a section specifically for relatives and visitors. By reading the guide, relatives will learn what a patient's recovery may involve and it will give them the answers to some of the questions they may have. -
Content ArticleProfessor Karol Sikora, in this video on Medscape, talks about the impact of the coronavirus pandemic on cancer care globally. Karl is a Professor of Cancer Medicine and Founding Dean, University of Buckingham Medical School; Consultant Oncologist; Harley Street Cancer Centre, London.
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Content ArticleDo you know your medicines? Do you keep a list? Can you describe and discuss your medicines with healthcare professionals and family when you want to? Ireland's Health Service Executive's National Medication Safety Programme works with patients to improve the safe use of medicines.
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Content ArticlePatients and service users ask us to be clear when we give them information about their health. They also want us to show care and compassion when we talk and write to them. When we explain things clearly and with care and compassion, people have more confidence and trust in us and are more likely to take our advice, and follow medical guidance. They are happy to ask us questions about our advice so that they can take better care of their health. The Health Service Executive gives tips on how we can communicate clearly with patients and service users.
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Content Article
Global Tracheostomy Collaborative
Patient Safety Learning posted an article in Suggest a useful website
The Global Tracheostomy Collaborative has created a community where a multidisciplinary team of healthcare professionals, patients and families are empowered to learn and continuously improve the outcomes of patients with tracheostomies.- Posted
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Content Article
Moms of Tracheostomy Babies Facebook Group
Patient Safety Learning posted an article in Suggest a useful website
This group is designed to bring together mothers (and fathers) of children (of all ages) with a tracheostomy, for support and advice. It is a group for parents only.