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Showing results for tags 'Patient engagement'.
Found 1,334 results
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Content ArticlePatients are commonly given written information, for example in the form of leaflets; however, they often do not retain it and poor literacy is a barrier for many. To address this, working in partnership with a local university, a pre-operative assessment unit designed and developed video animations for patients to illustrate preparation for surgery. The aim was to enhance the accessibility and retention of information to improve patient safety and experience.
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Content ArticleHealth literacy is a person’s ability to find, understand, and use information and services to inform health-related decisions and actions. Not surprisingly, many Americans do not have levels of health literacy that allow them to truly understand their care or take appropriate actions to improve their health. According to the Centers for Disease Control and Prevention (CDC), 9 out of 10 adults have difficulty understanding health information when it is complex or unfamiliar. In this blog, Regina Hoffman, Executive Director of Pennsylvania’s Patient Safety Authority, outlines the steps your organisation can take to fulfill its role in closing the gap on health literacy.
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Content ArticleThe first meeting of the Independent Medicines and Medical Device Safety Review (IMMDS) Patient Reference Group took place on Thursday 25th February. The website contains summaries of all the meetings.
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Content ArticleIn this article, published by Pfizer, Dr Berkeley Phillips, Country Medical Director, highlights the importance of actively listening to patients and patient organisations in order to understand their changing needs.
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4pi National Involvement Standards
PatientSafetyLearning Team posted an article in Patient engagement
Developed by people with lived experience as part of the National Involvement Partnership (NIP) project, the 4Pi National Standards ensure effective co-production, thus improving experiences of services and support. They were formally launched at the National Survivor User Network's (NSUN's) Annual General Meeting in 2013.4Pi is a simple framework on which to base standards for good practice, and to monitor and evaluate involvement.The framework builds on the work on many people: mental health service users and carers and others who have lived and breathed involvement and shared their experiences in various ways, both written and unwritten.Meaningful involvement means making a difference: it should improve services and improve the mental health, wellbeing and recovery of everyone experiencing mental distress.Follow the link below to access 4pi resources and case studies. -
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Patient leaflets (BMJ Best Practice)
PatientSafetyLearning Team posted an article in Patient engagement
These patient leaflets, shared on the BMJ Bets Practice website, aim to provide concise easy to read summaries to reassure patients and carers and help them make informed, shared decisions with healthcare professionals. Search their library of leaflets by condition or treatment by clicking on the link below. -
Content ArticleThis report from the Patients Association describes shared decision making and its benefits, before going on to assess how it has been formally embedded in NHS programmes and practice. It identifies the barriers preventing shared decision making becoming a reality for patients as a matter of course, and possible solutions.
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Content ArticleThis online tool, from the Patient Experience Library, allows you to search by condition and treatment to access information on waiting times at NHS Trusts in England. This data is sourced from NHS England, and is published two months in arrears.
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Patient Information Forum (PIF) have launched a new website to help people find trusted health information. The PIF TICK website allows members of the public to see which organisations have the PIF TICK – the UK quality mark for health information – and offers advice on how to find trust health information. -
Content ArticleThis review article describes surgical site infections (SSIs) and it's association with increased mortality and morbidity. The review suggests patient engagement is an important approach in SSI prevention.
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Content ArticleThis guideline covers how to make shared decision making part of everyday care in all healthcare settings. It promotes ways for healthcare professionals and people using services to work together to make decisions about treatment and care. It includes recommendations on training, communicating risks, benefits and consequences, using decision aids, and how to embed shared decision making in organisational culture and practices.
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Content ArticleIn this article, published by Ayiecho Odembi Consultancy, the author draws on personal experiences as a Black nurse and Patient to illustrate the link between racism and patient safety. "Nursing while black on the NHS is a skill I had mastered but nothing had prepared me for being a patient while black on the NHS and how the system is stacked against you and how lonely, frustrating, anxious, helpless and dare I say angry you feel while also wrestling with the guilt of essentially raging against your employer and not wanting to cause a fuss because it is the NHS, you love the NHS, you are constantly reminded how lucky we are to have the NHS, so it would be in very bad faith to complain."
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Content ArticleWhen Rupert was born he had to be immediately cooled after a difficult birth. Babies are cooled in certain circumstances in the hope of slowing down the processes that may cause brain damage. The Healthcare Safety Investigation Branch (HSIB) maternity investigators initiated an investigation to find out what went wrong. In this short video we hear from Rupert’s mum, Leila, who describes what it was like to be involved with a HSIB maternity investigation from a family point of view. Leila shares why she and her family wanted to be involved, how HSIB’s approach to them was welcomed and how they felt this contributed to improving safety for the benefit of other families in the future.
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Content ArticleThis roadmap, published in Therapeutic Innovation & Regulatory Science, sets strategic goals for the patient engagement community to achieve meaningful and systematic engagement through changes in the culture, processes and resources of stakeholder organisations. It brings in key PARADIGM outputs to work in a coordinated fashion with existing frameworks and mechanisms to achieve system-wide sustained patient engagement. The roadmap provides a framework for all stakeholders to take collective action within their organisations and across Europe to implement patient engagement in a sustainable manner.
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Content ArticleRosie Davies is Patient and Public Involvement Research Fellow at NIHR ARC West and People, in Health West of England. She’s retiring in June, so here she looks back on 20 years of being involved in patient and public involvement (PPI) – before it was even called PPI.
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Content ArticleDEPTH conducts research to understand the implications and effects of community involvement and dialogue in promoting health, planning health services, and quality improvement of existing services.DEPTH's work spans seven key research themes:Voices and experiences in healthCommunity participation and citizenshipDialogues about sexual and reproductive healthTransitions to adulthoodDigital lifeConducting and communicating science in an ethical wayDialogue and the arts.
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Content ArticleIn this webinar recording, Gill Phillips, founder of the Whose Shoes? approach to co-production, talks about: Building the future using virtual Whose Shoes? The power of poems, with some thought-provoking and entertaining examples and crowdsourced audio Bridging the gaps between what services provide and what people actually want Health inequalities and talking to people to understand and address the real issues People disproportionately affected by the pandemic and live crowdsourcing of 'micro first steps support' Using common purpose to smash the rules, where necessary Unhelpful NHS language Whose Shoes? is being used as a quality improvement approach in over 80 NHS trusts and many other organisations.
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Content ArticleThis study in the International Journal of Nursing Studies looked at the role of primary care nurses in coaching patients in shared decision making about their treatment. It evaluated an approach to support nurses in coaching patients, which was found to have a positive impact overall. Nurses became more aware of their own attitudes and learning needs and reported more in-depth discussions with patients. However, nurses struggled to integrate the approach in routine care and highlighted the need to receive support from their practice to implement the new approach.
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Content ArticleThis study in AIDS and Behavior looked at patient-provider communication in HIV care and the role of shared decision making in improving health outcomes. The authors found that good quality engagement between patients and their healthcare providers was associated with better health-related outcomes. A substantial proportion of patients did not report having good quality engagement and this was associated with significantly poorer outcomes.
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Content ArticleMedicines and Healthcare products Regulatory Agency (MHRA) presentation on their patient involvement strategy and how they are using Patient Reported Outcomes (PROs).
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Content ArticleThe recently published Getting it Right First Time (GIRFT) report on rheumatology found wide variations in rheumatology services and highlights the challenges faced by many units, including rising demand for services, limited resources and an overstretched workforce. The report makes a series of recommendations for changes which would improve patient experience and patient outcomes. However, the Arthritis and Musculoskeletal Alliance (ARMA), a membership organisation for musculoskeletal charities, believes that patient organisations could play a much greater role in supporting these changes than the report indicates In this webinar, Clare Jacklin, CEO of the National Rheumatoid Arthritis Society and Dale Webb, CEO of the National Axial Spondyloarthritis Society outline their vision of the place of patient organisations, and describe how putting patient organisations at the heart of the system can help deliver improved services and relieve the pressure on staff.
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Content ArticleThis German study in the journal Implementation Science aimed to evaluate an empirically and theoretically grounded implementation program for shared decision making (SDM) in cancer care. The program included six elements: Training for health care professionals Individual coaching for physicians Patient activation intervention Patient information material/decision aids Revision of quality management documents Reflection on multidisciplinary team meetings. The results showed no statistically significant improvement in SDM uptake and the authors conclude that this may be because of the low reach of the study. They call for further research to understand factors influencing the uptake of SDM in cancer care.
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Content ArticleThe British Association of Perinatal Medicine is inviting parents of babies who have spent time in a neonatal intensive care unit (NICU) to submit questions for neonatal research to the Neonatal Priority Setting Partnership. The partnership is made up of healthcare professionals and parent representatives that have come together to oversee a process to identify and prioritise research questions that can be tested in randomised trials in UK neonatal care. Answers to the questions submitted should improve neonatal care and reduce unwanted variations in practice. Questions can be submitted until 28 February 2022.
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Content ArticleThis report by the Health Foundation examines shifts in public attitudes towards health, the NHS and social care caused by the Covid-19 pandemic. It highlights key findings from the first wave of the Health Foundation's new programme of polling research, delivered in partnership with Ipsos, that will track public views on health and social care every six months.
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Content ArticleThis report by The Patients Association is based on information gathered from more than 1,000 patients in a survey carried out in December 2021, just before the omicron wave of the Covid-19 pandemic hit the UK. The results of the survey highlight that patients found it hard to access care during this period, with pressures affecting the NHS compromising their care. They also show that the worst affected patients were those whose illness or care needs seriously affect their day-to-day lives.
