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Found 404 results
  1. News Article
    In ‘Invisible Women: Exposing Data Bias in a World Designed For Men’ author Caroline Criado Perez writes about Rachael, a woman who suffered years of severe and incapacitating pain during her period. It takes, on average, eight years for women in the UK to obtain a diagnoses of endometriosis. In fact, for over a decade, there has been no improvement in diagnostic times for women living with the debilitating condition. You might think, given the difficulty so many women experience in having their symptoms translated into a diagnosis, that endometriosis is a rare condition that doctors perhaps don’t encounter all that often. Yet it is something that affects one in ten women – so what is going wrong? Read the full article here in The Scotsman
  2. Content Article
    Restorative practices involve inclusive democratic dialogue between all those affected by healthcare harm. They are guided by concern to address harms, meet needs, restore trust, and promote repair or healing for all involved. In this webinar recording from the Canadian Patient Safety Institute, participants explore New Zealand's approach to healing after healthcare harm from surgical mesh and ask: What was the impetus for a restorative approach?  What inspired the choice of a relationship-centric and reconciliatory model?  How did restorative practices support the co-design process between consumer advocates and Ministry of Health representatives? How do restorative approaches support New Zealand's commitment to Te Tiriti o Waitangi- The treaty that determines the partnership between the Crown and indigenous peoples?
  3. Content Article
    The purpose of this Royal College of Nursing (RCN) document is to provide standards and sample assessment tools for training in genital examination in women for registered nurses working in sexual and reproductive health settings, and related health and social care settings. It is envisaged that this document could be used by registered health care professionals who would require training in genital examination in order, for example, to undertake the following procedures: cervical sampling including liquid based cytology and colposcopy taking swabs as part of a sexual health examination inserting, checking or removing intrauterine devices and IUS vaginal ultrasound hysteroscopy nurses working within early pregnancy and acute gynaecology settings and as part of any extended role in history taking and examination for the assessment of symptomatic women.
  4. News Article
    Endometriosis care across the UK needs urgent improvement and diagnosis times need to be cut in half, a report by MPs says. It found an average wait for a diagnosis was eight years and that has not improved in more than a decade. Endometriosis affects one in 10 women in the UK and causes debilitating pain, very heavy periods and infertility. Nadine Dorries, minister for women's health, said awareness was increasing but there was still a long way to go. More than 10,000 people took part in the All-Party Political Group inquiry which found that 58% of people visited the GP more than 10 times before diagnosis and 53% went to A&E with symptoms before diagnosis. The majority of people also told MPs their mental health, education and careers had been damaged by the condition. About 90% said they would have liked access to psychological support but were never offered it, with 35% having a reduced income due to endometriosis. Helen-Marie Brewster, 28, from Hull, has been told by doctors that her only remaining treatment option is a full hysterectomy. She had symptoms throughout secondary school but was only diagnosed when she left education. "GPs ask me to explain to them what endometriosis is, because they don't know. They're the ones who are meant to help." "Last year I visited the A&E department 17 times trying to find help and pain relief for this condition, even for just a few days so I can keep going. The wait time for diagnosis is so long that in that time it's spreading and doing more damage the longer it is left untreated... We can't carry on like this." Read full story Source: BBC News, 19 October 2020 Read press release
  5. Content Article
    An Inquiry by the All Party Parliamentary Group (APPG) on Endometriosis has highlighted the devastating impact endometriosis can have on all aspects of a person’s life, and urges Ministers to take bold action to ensure those with endometriosis have access to the right care at the right time. The inquiry surveyed over 10,000 people with endometriosis, interviewed healthcare practitioners and those with the condition about their experiences.
  6. Content Article
    In this guest blog for mumsnet, Nadine Montgomery talks about her journey to the Supreme Court to cement patients’ right to make an informed decision. Nadine highlights the lack of information she was given around potential birth risks as a diabetic pregnant women and how, if better informed, she would have made different choices which could have prevented her baby from suffering harm.
  7. Content Article
    Ultrasound scans are important for checking the health of you and your baby. There are different types of scanning service and it's important to understand what each type offers. The Care Quality Commission provides some guidelines.
  8. Content Article
    When Luce Brett became incontinent at the age of 30, after the birth of her first son, she felt her life had ended. She also felt scared, upset, embarrassed, dirty and shocked. How the hell had she ended up there, the youngest woman in the waiting room at the incontinence clinic? PMSL is her story. A heartfelt, moving and deeply personal account of the decade that followed, told with incredible honesty and wit. Luce has been at the sharp end of a medical issue that affects 1 in 3 women but that remains shrouded in taboo and social stigma. It's sincere, raw and funny - but crucially it is the first memoir to look at incontinence, smashing the stigma and looking at what anyone affected can do to navigate their way through the wet-knickered wilderness. Members of Patient Safety Learning's the hub receive a 20% discount on the book. Follow the steps below to access the discount code: Register with the hub Make sure you are signed in Click on the icon in the top right hand corner and select 'messages' Compose a new message and paste - PatientSafetyLearning Team into the contact field, with the subject 'PMSL member discount' Patient Safety Learning will respond to your message with the code Follow the link below to Bloomsbury Publishing to purchase the book using the code. If you have any difficulties, please email us at: content@pslhub.org
  9. Content Article
    This was an Adjournment Debate from the House of Commons on the 24 September 2020 on NHS Hysteroscopy Treatment tabled by Lyn Brown MP.
  10. Content Article
    September is Gynaecological Cancer Awareness Month. Through September The Eve Appeal runs a national campaign, Go Red, and this year they are raising awareness of the key red flag symptom – abnormal bleeding. They have created this infographic highlighting the signs and symptoms.
  11. Content Article
    This website has been developed by Wendy Jones BSc, MSc, PhD, MRPharmS, a Community Pharmacist for over 40 years. This website is designed to provide information and support for mothers and healthcare professionals struggling to balance the benefits of breastfeeding with the perceived risk of exposing the baby to medication through his/her mother’s breastmilk.The information provided is based upon Wendy's many years experience gained as a pharmacist and from running the BfN national Drugs in Breastmilk Help-line.
  12. Content Article
    Refinery29 UK has published a series of articles focusing on the gender health gap: Uncharted Bodies: Exploring The Gender Health Gap. They looked at five distinct areas in reproductive and gynaecological health where a lack of research and therefore data is directly affecting women’s health: endometriosishormonal contraception and how it affects women’s brainspolycystic ovary syndrome (PCOS)premenstrual dysphoric disorder (PMDD) vaginismus. Follow the link below to find our more.
  13. Content Article
    The aim of this review, published in Archives of Gynaecology and Obstetrics, is to provide an overview of the literature about the perception and management of anxiety and pain in women undergoing an office hysteroscopic procedure.
  14. Content Article
    This Postnatal Risk Assessment Matrix (PRAM) resource was developed by Dr Cindy Shawley, Quality Improvement Lead for Maternity at Hampshire Hospitals NHS Foundation Trust. The pack includes a number of monitoring and assessment tools to help keep mums and babies safe. The following two sections have been selected for the finals of the Nursing Times Awards, under the Patient Safety category: The First Hour of Care: Keeping mums and babies together (a proforma and pathway to promote normal adaptation to life) Holding your baby safely poster (as referenced in the recent National Learning Report, Neonatal collapse alongside skin-to-skin contact) Please open the attached documents to view the full PRAM resource pack as well as the two award-nominated sections that can be downloaded independently.  Many thanks to Dr Shawley for giving permission to share these important patient safety resources on the hub.
  15. Content Article
    This health seminar focuses on one of the most taboo issues in women’s health, incontinence. An estimated 7 million women suffer urinary incontinence which can affect all areas of life, yet it is rarely spoken about and regarded as an issue that only affects older women.  Wellbeing of Women talk to Luce Brett, author of PMSL: Or How I Literally Pissed Myself Laughing and Survived the Last Taboo to Tell the Tale and Elaine Miller a women’s health physiotherapist, for what is a hilariously open but also vital conversation about living with incontinence, why we shouldn’t have to accept it and what we can do.
  16. Content Article
    National Learning Reports offer insight and learning about recurrent patient safety risks in NHS healthcare that have been identified through HSIB investigations. They present a digest of relevant, previously investigated events, highlight recurring themes and, where appropriate, make safety recommendations. National learning reports can be used by healthcare leaders, policymakers and the public to aid their knowledge of systemic patient safety risks and the underlying contributory factors, and to inform decision making to improve patient safety. The Healthcare Safety Investigation Branch (HSIB) Summary of themes arising from HSIB maternity investigation programme report (March 2020) describes eight themes arising from the maternity investigations. Sudden unexpected postnatal collapse (SUPC) was identified as a theme for further exploration in order to highlight areas of system-wide learning. SUPC is a rare but potentially fatal event in otherwise healthy appearing term (born after 37 completed weeks) newborn babies at birth. Between April 2018 and August 2019 HSIB completed 335 maternity investigations. Of the 12 identified SUPC cases, there were 6 cases where positioning of the baby to achieve skin-to-skin contact may have contributed to SUPC. While the number of incidents found was small compared to the number of term babies who had skin-to-skin contact at birth these incidents may in future be avoided and so learning is essential.
  17. Content Article
    In this editorial for the British Medical Journal, Helen Haskell summarises the findings and recommendations of the Cumberlege Review, First Do No Harm. Helen argues that while the report has the potential to be a powerful tool for change in and beyond the UK, patients and families now need to see evidence of action.
  18. News Article
    Like most women affected by incontinence, 43-year-old Luce Brett has her horror stories. As a 30-year-old first time mum she recalls wetting herself and bursting into tears in the “Mothercare aisle of shame”, where maternity pads and adult nappies sit alongside the baby nappies, wipes and potties. But, she adds, these isolated anecdotes don’t really do justice to what living with incontinence is really like. “It’s every day, it’s all day. People talk about leaking when you sneeze or when you laugh, but for me it was also when I stood up, or walked upstairs. It was always having two different outfits every time I left the house to go to the shops. Incontinence robbed me of my thirties; it made me suicidally depressed,” Luce explains. “Everyone kept telling me it was normal to be leaky after a vaginal birth. It took quite a long time for me to find the courage or the words to stop them and say: ‘Everybody in my NCT (National Childbirth Trust) class can walk around with a sling on, and I can’t do that without wetting myself constantly’,” she adds. Read full article here.
  19. Content Article
    This document was drafted on the basis of the Transparency Committee opinion, French National Authority for Health, dated 27 February 2019. It found insufficient clinical benefit of ESMYA* for the treatment of uterine fibroids to justify reimbursement. They conclude: The actual clinical benefit of ESMYA is insufficient to justify its reimbursement by public funding in its two indications. Not approved for non-hospital pharmacy reimbursement or for hospital treatment. *ESMYA - (ulipristal acetate), progesterone receptor modulator.
  20. News Article
    Hospital trust ‘truly sorry that mistakes were made in care’ of Luchii Gavrilescu, who died after being sent home from hospital with undiagnosed tuberculosis. An NHS trust investigated over maternity care failings has apologised after a six-week-old child was found to have died due to mistakes at one of its hospitals. East Kent Hospitals University Trust was embroiled in a major scandal after The Independent revealed the trust had seen more than 130 babies over a four-year period suffer brain damage as a result of being starved of oxygen during birth. A report into the trust concluded in April that there had been “recurrent safety risks” at its maternity units. Read full article here.
  21. Content Article
    For 10 years, 29-year-old historian Robyn battled extreme endometriosis pain, but was continuously dismissed by doctors when she went to them for help. She was finally diagnosed with the condition – but five surgeries later, it was clear the damage had already been done. In this article published by Stylist, she asks why women’s health issues aren’t being taken seriously enough.
  22. News Article
    A national investigation has been launched into the equipment used by NHS staff to monitor babies heart rates during labour because of concerns they could be contributing to deaths and disabilities. The independent Healthcare Safety Investigation Branch (HSIB), which investigates systemic safety risks in the NHS, has opened an inquiry after reviewing hundreds of maternity incidents. It found equipment used to record cardiotocographic (CTG) traces were linked to 138 maternity investigations since 2018 with more than 238 separate findings referencing the use of CTG as a factor in the error. Read the full article here
  23. Content Article
    The goal of this US-based study, published in Psychiatric Services, was to characterise racial-ethnic differences in mental health care utilisation associated with postpartum depression in a multi-ethnic cohort of Medicaid recipients. Medicaid in the United States is a federal and state program that helps with medical costs for some people with limited income and resources. Findings of the study presents evidence of low rates of postpartum depression treatment initiation and continuation, indicating barriers to care among low-income mothers; racial-ethnic disparities imply additional challenges for black women and Latinas. The presence of such disparities points to the need for clinical and institutional policies and programs to address the particular barriers to mental health care faced by black women and Latinas in the months after delivery.
  24. Content Article
    This paper, from THIS Institute, aims to describe exactly what needs to happen for maternity care to be safe by examining how interventions and context work together to nurture and sustain safe practice.
  25. Content Article
    Chaired by Baroness Julia Cumberlege, the Independent Medicines and Medical Devices Safety Review report, First Do No Harm, examines how the healthcare system in England responds to reports about the harmful side effects from medicines and medical devices. In this blog, Patient Safety Learning reflects on one of the key patient safety themes featured in the Review – informed consent. 
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