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Claire Cox

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Everything posted by Claire Cox

  1. Content Article
    In this webinar Dr Brian McClean, Clinical Psychologist working with Acquired Brain Injury Ireland, spoke about grading behaviour support plans.
  2. Content Article
    Compulsory face coverings pose particular challenges when patients are deaf or have dementia. This blog by Lesley Carter give practical advice on how to communicate clearly with patients when wearing a face mask.
  3. Content Article
    This webinar by Professor Keith R. McVilly PhD (University of Melbourne) focuses on developing and maintaining healthy friendships and relationships in a time of national physical distancing during the COVID-19 pandemic. Professor Keith R. McVilly PhD is a Registered Clinical Psychologist and the Foundation Professorial Fellow for Disability & Inclusion, in the School of Social and Political Sciences at the University of Melbourne. His work addresses the translation of research into policy and practice, with a focus on promoting the well-being and community inclusion of people with multiple and complex disabling experiences.
  4. Content Article
    Hospital-acquired pneumonia, whether device associated or not, is the number one hospital-acquired infection in the United States and a major threat to the safety of patients. This blog by Patient Safety Movement discusses how engaging nurses in quality improvement around mouth care reduces ventilator acquired pneumonias.
  5. Content Article
    This poster from MacIntyre helps to raise awareness of health screening for people with learning disabilities among frontline staff. Giving an overview of relevant health checks depending on sex and age the poster serves as a quick visual reminder. This image is also available to download via the link below.
  6. Content Article
    This easy read document, from Macintyre, should be used as an aid in helping people to: prepare for their appointment participate in the appointment understand the advice given at the appointment. It can also be presented to the health professional - by using information from One Page Profile, the document serves as an aid for the health professional on how to engage with the person during the appointment.
  7. Content Article
    The Keep Going…….Don’t Stop! (KGDS) group was formed in May 2016 with a focus of creating work (related to growing older, dementia and health) that is easily accessible to people with a learning disability in different formats, predominantly easy read. The aim is to ensure the documents will support people with a learning disability to have more of an understanding of what is happening with their changing health needs as they grow older. By making the documents accessible, MacIntyre can make sure they are involving the people they support as much as possible and staff can be confident that they have the tools to support such conversations.
  8. Content Article
    This resource, produced by the MacIntyre Dementia Project, is designed to provide: An understanding of what discrimination and stigma is and how it can affect a person. Knowledge of how to recognise when a person is being discriminated against. Knowledge of who to report concerns to. Contents: Definition of discrimination Why people with a learning disability are at increased risk of discrimination Additional discrimination seen when people have Dementia Definition of Stigma Why stigma is historically a BIG problem in Dementia The importance of challenging stigma to support living well What has been done to tackle stigma? The national ambition for reducing discrimination and stigma How discrimination and stigma can make a person feel Recognising discrimination and stigma in everyday life How to support a person when they are the subject of discrimination or stigma Reporting concerns How you can avoid being discriminatory or stigmatising Combating discrimination and stigma Taking inspiration from the disability movement Education! Education! Education.
  9. Content Article
    This animation has been made to help patients stay safe while they are in hospital. It has been developed by Haelo, an innovation and improvement centre in Salford, in partnership with Guy’s and St Thomas’, and is based on the airline-style safety card developed by Guy’s and St Thomas’.  Designed as part of their award-winning Welcome Pack, the safety card supports our commitment to patient safety and enables patients to play an active role in their care.
  10. Content Article
    Most people experience anxiety at some point in their life, but this may be more acute for a person with a learning disability or autism who then develops dementia. If a person has a history of being anxious or of living with a condition, particularly conditions like OCD (Obsessive Compulsive Disorder), phobias or panic disorders that makes them anxious, developing dementia may then make that worse. The person's communication skills may have diminished due to their dementia, leaving them frustrated at being unable to express themselves and anxious about the consequences of this. Contents of this booklet: Why does it happen? Ways to support the person Think about unmet needs Understanding the person's health needs Changing daily life
  11. Content Article
    In this case study, Angela gives us a first person account of her life, detailing her family history, life with her husband, her interests and her healthcare, including her recent diagnosis of dementia. Nicola, who has supported Angela with her diagnosis, reflects on the importance of telling Angela about the diagnosis and the support needed moving forward.
  12. Content Article
    This patient information leaflet produced by Guys and St Thomas' NHS Foundation Trust gives 8 simple steps to keep yourself safe during your stay in hospital. These include; Preventing falls Preventing blood clots Preventing infection Your medicines Pressure ulcers Identification Your concerns Leaving hospital.
  13. Content Article
    It is important to be able to talk about end of life with the people, it is not a topic that should remain taboo. We must break through barriers and remove any stigma associated with talking about end of life care. The people we support are entitled to a ‘good’ death, everyone is. Staff teams must respect their end of life wishes and have those ‘difficult’ conversations so that they know what these wishes are.  Contents: The importance of good quality end of life care What is the difference between end of life care and palliative care? Useful words that can help you understand end of life care Talking about death and dying Talking about death to the dying person Respecting human rights and a right to know Human rights and end of life care Supporting people at the end of their life.
  14. Content Article
    This is Alison’s Story. The charity MacIntyre supports Alison. She has Down’s Syndrome and a diagnosis of dementia.  Her story is one of relationships and the emotional impact that dementia can have on friendship. Alison has a really close relationship with Rachel, her best friend who she also lives with. In this case study you will hear: who Alison is how she received her diagnosis of dementia a reflection on Alison's diagnosis by her support manager.
  15. Content Article
    Advance Care Planning (ACP) is becoming increasingly important in ensuring that people receive good care and ultimately experience a “good death”. ACP can lead to less aggressive or invasive medical care, better quality of life near death, decreased rates of hospital admission, and people being more likely to receive care that is aligned with their wishes and dignity. It can be a difficult subject to discuss and can be confusing for health and social care professionals, staff and families, due to a lack of knowledge about ACP and a lack of awareness regarding the legal position. Why is Advance Care Planning Important? What is Advance Care Planning? Who can undertake Advance Care Planning and when should it occur? When should Advance Care Planning take place? Identify ways of promoting positive communication around ACP Recognise barriers to communication Promoting opportunities for discussion and responding to 'cues' Time and place Communicate and Listen Documenting References.
  16. Content Article
    The accident and emergency grab sheet has been developed by Macintyre to aid quick information handover in an emergency situation.
  17. Content Article
    People with a learning disability must be involved in all decisions about their health, and be in control over these choices. Some of the barriers to equal access to healthcare faced by people with a learning disability are: Lack of information that is easy to understand. ‘Diagnostic overshadowing’ - when signs and symptoms are mistakenly attributed to the person’s learning disability. Family carers and others who know the person well are not listened to when they are often able to describe changes in the person in a way that will aid diagnosis. A hospital might assume that the person has 24-hour support, when in fact they only get a few hours’ support a week and will need some extra help to follow the post-discharge treatment plan. General information about the NHS Who does what? How is the NHS regulated? Why do we need to think about how people with a learning disability access the NHS? How does The Equality Act 2010 ensure people with a learning disability have equal access to healthcare? What are reasonable adjustments? The Mental Capacity Act 2005 and access to healthcare What to do if things do not go well: The NHS Complaints process Top Tips to involve someone you support in their health care In Summary.
  18. Content Article
    In this episode of the 'MacIntyre Families Podcast' Jim Blair, a leading Learning Disability Nurse, Health Advisor at the British Institute of Learning Disabilities and Associate Professor at Kingston and St George's Universities answers questions submitted by the people Mcintyre support, their families and staff. Jim has over two decades of experience working as a learning disability nurse and is passionate about ensuring everyone with a learning disability is heard and involved in decisions about their own lives.
  19. Content Article
    As part of its commitment to a safe healthcare system for all South Australians (SA), the SA Department of Health and Wellbeing (DHW) has used the Safety Learning System (SLS) since 2011. This is an incident management system that allows healthcare staff to report incidents and near misses. They are reviewed, escalated where appropriate, analysed and investigated in an attempt to prevent their occurrence in the future. The SLS is a “state-wide” system which allows healthcare professionals access to report incidents in all SA public health services and related agencies such as ambulance. This is an independent review of the SLS: 1. To consider recommendations made by the State Coroner and by independent reviews conducted in response to the Chemotherapy Underdosing that relate to incident reporting and management. 2. To determine and describe how the SLS is used across SA Health for patient incident reporting and management including: a. adoption and uptake; b. data extraction; c. reporting; d. incident management; and e. open disclosure to patients and feedback to staff. 3. To identify factors that are impeding or may impede the use of SLS, including; a. the culture of reporting and incident management, and b. the availability and uptake of training and education. 4. To determine if Datix Web, the software platform used for the SLS, meets the needs of SA Health and whether its functionality is comparable to alternative programs. 5. To make recommendation to the Chief Executive (CE), Department of Health and Wellbeing that will assist in assuring robust incident reporting and management and the sharing of learnings across SA Health.
  20. Content Article
    The Antibiotic Resistance & Patient Safety Portal (AR&PSP) is an interactive web-based application that was created to innovatively display data collected through CDC’s National Healthcare Safety Network (NHSN), the Antibiotic Resistance Laboratory Network (AR Lab Network), and other sources. It offers enhanced data visualizations on Antibiotic Resistance, Use, and Stewardship datasets as well as Healthcare-Associated Infection (HAI) data.
  21. Content Article
    Founded in 1951, The Joint Commission seeks to continuously improve health care for the public, in collaboration with other stakeholders, by evaluating health care organisations and inspiring them to excel in providing safe and effective care of the highest quality and value. The Joint Commission evaluates and accredits more than 22,000 health care organisations and programs in the United States. The below link takes you to the 2020 National Patient Safety Goals (NPSGs) for the Ambulatory Health Care program. The purpose of the National Patient Safety Goals is to improve patient safety. The goals focus on problems in health care safety and how to solve them.
  22. Content Article
    This poster produced by the Safe Anaesthesia Liaison Group, is aimed at theatre staff - especially anaesthetists. it is to ensure they have a second checker when it comes to administering an anaesthetic block.
  23. Content Article
    Survive the wards with key information at your fingertips with this top rated app. It provides clear and succinct information to help UK Foundation doctors navigate some of the common clinical scenarios that they'll face on the wards. There are 4 types of documents in the Foundation Doctor Handbook; Assessment Management Reference Calculator.
  24. Content Article
    The COVID-19 pandemic has changed most lives internationally. Households have shifted, balancing financial concerns and anxieties about the health of family and friends with the trials and responsibilities of childcare. During this pandemic it became clear that while many were struggling with the same issues, a series of shared stories could help the wellbeing of frontline NHS staff who might feel isolated and alone. The following voices are not unique to Guy’s and St Thomas’ NHS Foundation Trust, anaesthesia or healthcare in the UK, but they were selected from the department to represent some of many healthcare workers who have taken on new professional roles as well as radically different ways of working and living.
  25. Content Article
    The East Midlands Academic Health Science Network have captured a number of different perspectives and experiences of COVID-19. These highlight pivotal moments, barriers, and learnings. The experiences and learnings will be particularly useful as the health and care system plans for reset, restoration, and recovery.  These interviews include: Dr Julie Barker, GP, End of Life lead and member of Care Home cell. Clinical Design Authority clinical lead for Nottingham Nottinghamshire Integrated Care System (ICS) Joanne Taplin, GP Partner – Abbey Medical Centre, Beeston, Nottinghamshire. GP team member working with NottsWest PCN Advance Care Planning Nurses. Jane Borland, Care Home Manager Rathgar Care Home, Northamptonshire Patient story (anonymous).

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