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News ArticleThe chief executive at a trust behind one of the UK’s first ‘virtual hospitals’ has said this model is the ‘new gold standard’ for care provision and the trust is looking at a significant expansion. West Hertfordshire Teaching Hospitals Trust boss Matthew Coats said the trust aimed to eventually have “hundreds” of virtual beds for patients to be monitored at home. The trust has been at the forefront of NHS England’s programme to significantly expand the use of virtual wards across the NHS. It was also among the first to launch a virtual ward to monitor Covid patients at home during the pandemic. Its virtual ward model has since evolved beyond covid, to what the trust calls its “virtual hospital”, providing remote care for patients across several different pathways and specialties, including heart failure, respiratory and frailty patients, who are admitted from either a hospital bed, the emergency department or by GPs. Mr Coats told HSJ its virtual hospital is not only supporting better flow through the hospital, but is also leading to better patient experience. Read full story (paywalled) Source: HSJ, 25 September 2023
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News ArticleA cancer patient with months to live has spoken of her fear and anger after chemotherapy was delayed by this week’s strikes. Flora White, 51, began chemotherapy last month, which is required fortnightly to shrink a tumour so it can be surgically removed. But it has now been set back, after the appointment she was due to have with her oncologist the day before was cancelled as a result of strikes. Ms White said that until she got the devastating news about her own delays she had thought cancer patients would be protected from the impact of industrial action. “It’s hard to deal with as it is, let alone the extra worry and stress,” she said. “Your treatment being cancelled and delayed, they don’t understand how they’re affecting some people.” Earlier this week, Prof Karol Sikora, a leading consultant oncologist, said it was “against the ethics of medicine” for doctors to strike, as he urged medics to think again. “If you miss cancer and someone goes for another two years without a diagnosis, it’s as good as leaving someone in the gutter bleeding ... people will die,” he said. Read full story (paywalled) Source: The Telegraph, 21 September 2023
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Content ArticleDementia remains the biggest killer in the UK and is on track to be the nation’s most expensive health condition by 2030. This report by the charity Alzheimer's Research UK sets out a series of calls for party leaders ahead of the next general election, all of which are underpinned by an urgent recommendation for greater investment in dementia research.
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News Article
Patients feel misled by pledge of cannabis on NHS
Patient Safety Learning posted a news article in News
A high-profile government climbdown which legalised a type of cannabis medicine on the NHS five years ago misled patients, campaigners say. It was thought the law change would mean the unlicensed drug, which treats a range of conditions, could be freely prescribed by specialist doctors. But fewer than five NHS patients have been given the medicine, leaving others to either pay privately or miss out. The government says safety needs to be proven before a wider rollout. Legalisation of whole-cannabis medicine was hailed as a breakthrough for patients - giving either NHS or private specialist doctors the option to prescribe it if they believed their patients would benefit. But patients are being turned away, say campaigners, because doctors often do not know about the medicine, which is not on NHS trusts' approved lists. Some specialists who do know about it say there is insufficient evidence of the drug's safety and benefits to support prescribing. Senior paediatric consultant Dr David McCormick, from King's College Hospital in London, says it was "disingenuous" of the government to suggest in 2018 that NHS prescribing was ready to take place. "Parents were clamouring at our door, or phoning all the time, as they believed we were able to prescribe and that was not the case. "The message went out, 'doctors can now prescribe cannabis products' and that put us in a difficult position, because in truth we need to apply for that to be approved by NHS England." Read full story Source: BBC News, 13 September 2023 -
Content ArticleDemand for surgical and non-surgical cosmetic treatments has spiralled in the past ten years among men and women, especially young women in the 18-34 age group, thanks to social media, reality TV and celebrity endorsements. A corresponding increase in ‘botched’ procedures is putting pressure on the NHS to solve problems created by unregistered, unqualified practitioners. Official advice is to check your practitioner is qualified and has appropriate insurance. This makes sense but it’s not always easy to know where to look. That’s why the Professional Standards Authority have done the hard work for you. The Check a Practitioner service exists for situations like these. You can check if a practitioner is regulated by law or belongs to a reputable Accredited Register.
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News ArticleMost women going through menopause are not receiving effective treatment for their symptoms, in part because of widespread misinformation, according to new research. A comprehensive literature review led by Prof Susan Davis from Monash University in Australia calls for more personalised treatment plans that address the greatly varying physical and mental symptoms of menopause. After adverse affects were reported from the landmark 2002 Women’s Health Initiative study into menopausal hormone therapy (MHT), Davis said there was a blanket fear that “hormones are dangerous” and as a result, “menopause [treatment] just went off the radar”. Read full story Source: The Guardian, 6 September 2023
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Content ArticleThis review from Davis et al. summarises the biology and consequences of menopause, the role of supportive care, and the menopause-specific therapeutic options available to women.
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News ArticleHundreds of migrants have declined NHS treatment after being presented with upfront charges over the past two years, amid complaints the government’s “hostile environment” on immigration remains firmly in place. Data compiled by the Observer under the Freedom of Information Act shows that, since January 2021, 3,545 patients across 68 hospital trusts in England have been told they must pay upfront charges totalling £7.1m. Of those, 905 patients across 58 trusts did not proceed with treatment. NHS trusts in England have been required to seek advance payment before providing elective care to certain migrants since October 2017. It covers overseas visitors and migrants ruled ineligible for free healthcare, such as failed asylum seekers and those who have overstayed their visa. The policy is not supposed to cover urgent or “immediately necessary” treatment. However, there have been multiple cases of people wrongly denied treatment. Dr Laura-Jane Smith, a consultant respiratory physician and member of the campaign group Medact, said: “I had a patient we diagnosed as an emergency with lung cancer but they were told they would be charged upfront for treatment and then never returned for a follow-up. This was someone who had been in the country for years but who did not have the right official migration status. A cancer diagnosis is devastating. To then be abandoned by the health service is inhumane.” Read full story Source: The Guardian, 20 August 2023
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Content Article
With addiction treatment programs, ensuring the safety of patients undergoing recovery is paramount. However, addressing medication safety within these programs can be a complex endeavour. As addiction treatment evolves to meet the needs of individuals on their path to recovery, it's crucial to adopt strategies that prioritise both the efficacy and safety of medications. In this blog, Dr Alexandre Kirk, Medical Director at Bright Futures Treatment Center in Florida, examines the various facets of medication safety challenges in addiction treatment programs and explores practical solutions to overcome them. -
News Article
NHS cancer standards reform to speed up diagnosis for patients
Patient Safety Learning posted a news article in News
Thousands of people referred for urgent cancer checks every month are set to be diagnosed and treated sooner, as the NHS reforms its cancer standards to reflect what matters most to patients and to align with modern clinical practice. Developed by clinical experts and supported by leading cancer charities, there will be three cancer standards, which combine all of the previous standards and cover additional patients: the 28-Day Faster Diagnosis Standard (FDS) which means patients with suspected cancer who are referred for urgent cancer checks from a GP, screening programme or other route should be diagnosed or have cancer ruled out within 28 days. the 62-day referral to treatment standard which means patients who have been referred for suspected cancer from any source and go on to receive a diagnosis should start treatment within 62 days of their referral. the 31-day decision to treat to treatment standard which means patients who have a cancer diagnosis, and who have had a decision made on their first or subsequent treatment, should then start that treatment within 31 days. GPs will still refer people with suspected cancer in the same way, but the focus will rightly be on getting people diagnosed or cancer ruled out within 28 days, rather than simply getting a first appointment. The three agreed standards will come into effect from October. Read full story Source: NHS England, 17 August 2023 -
News Article
Woman dies after doctors fail to properly read brain tumour scans
Clive Flashman posted a news article in News
Despite regular MRI scans at the Royal Preston Hospital showing that the tumour was growing, May Ashford was not offered surgery until five years later. A woman died unnecessarily after doctors failed to operate soon enough on a growing brain tumour, according to the health complaints service. May Ashford, from Blackpool, was diagnosed with a brain tumour in 2010 after experiencing headaches and seizures. Despite regular MRI scans at the Royal Preston Hospital showing that the tumour was growing, she was not offered surgery until five years later. An investigation by the Parliamentary and Health Service Ombudsman (PHSO) said the treatment was too late as medical staff had failed to monitor the scan results properly. Medical experts said Mrs Ashford should have been operated on at least three years earlier, before the tumour had time to grow and affect the surrounding area of the brain. She tragically died aged 71 from a stroke following surgery. Link to full article here -
News ArticleMore than 250,000 dementia patients could miss out on new treatments for the disease because they do not have a formal diagnosis, according to government figures. NHS data published for the first time shows the prevalence of different types of dementia with which people in England have been diagnosed. Dementia is an umbrella term for many different conditions, affecting more than 55 million people worldwide. This week, health regulators were urged to approve two new game-changing dementia drugs, after a landmark study confirmed that donanemab slowed cognitive decline in Alzheimer’s patients by 35%, while last year, a second drug, lecanemab, was found to reduce the rate by 27%. The NHS primary care dementia figures estimate that there are about 708,000 people over 65 with dementia in England, but only about 450,000 have a recorded diagnosis. That means that more than 250,000 are missing out on these potential new treatments. Read full story Source: The Guardian, 20 July 2023
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Content ArticleIn this blog post, Diana Jones, an addiction treatment expert from Archstone Behavioral Health, addresses the topic of stigma and discrimination in addiction treatment. The post explores the importance of creating safe and inclusive environments for individuals seeking recovery. It offers practical strategies such as education, empathy, cultural sensitivity, bias recognition, and shared decision-making to promote positive change in addiction treatment practices. By challenging societal misconceptions and fostering compassionate care, healthcare professionals can help individuals overcome barriers and receive the support they need for successful recovery.
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Content ArticleThis article from Sarcoma UK was written by Dermot’s family to develop their reflections and recommendations on the recent publication of the Healthcare Safety Investigation (HSIB) report, Variations in the delivery of palliative care services to adults.
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Content ArticleMyalgic encephalomyelitis (ME) was recognised as a neurological disease by the World Health Organization in 1969. However, in the 1970s some researchers labelled it as hysteria, leading to the US Centers for Disease Control to rename it as chronic fatigue syndrome (CFS). The name was changed to ME in 2015 to help legitimise the symptoms and experiences of patients. Still, the medical stigma persists. Conditions such as ME disproportionately affect women, whose symptoms and concerns are often ignored by doctors. Many patients with Long Covid face similar challenges. Since 2020, an estimated 1.8 million people in the UK have developed Long Covid after a Covid-19 infection. The debilitating condition is known to cause more than 200 symptoms. Coincidentally, Long Covid shares many symptoms with ME/CFS, including chronic pain, exhaustion, brain fog and exercise intolerance. Many patients with complex chronic illnesses are dismissed by doctors who don’t believe in their symptoms or disease even when it leaves patients bedridden. Now, people with complex illnesses such as ME and Long Covid are taking the hunt for treatments into their own hands
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News Article
Betsi Cadwaladr: More patient deaths may be linked to treatment
Patient Safety Learning posted a news article in News
More families have been told by a health board that their relatives' deaths may have been linked to treatment by vascular services. Betsi Cadwaladr University Health Board (BCUHB) has written to families who were part of a review after concerns were raised last year. Four cases had already been reported to a coroner and the health board says it has been "very open" with relatives of other patients. The service has recently been described by inspectors as making "satisfactory progress", but the health board admit it is still on a "long journey". A report by the Royal College of Surgeons England (RCSE) in January 2022 found risks to patient safety due, in part, to poor record keeping. It recommended to the health board that it investigate fully what happened to the 47 patients its report focused on. Read full story Source: BBC News, 13 July 2023 -
News Article
Chronic fatigue guidance discouraging exercise is flawed, say researchers
Patient Safety Learning posted a news article in News
New guidance for doctors discouraging them from recommending exercise and cognitive behavioural therapy for chronic fatigue patients is not evidence based, according to researchers. A study questions the National Institute for Health and Care Excellence (NICE) review process for this guideline for clinicians dealing with chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME) patients and its use of scientific standards in considering the evidence. One of the study’s lead authors, Prof Trudie Chalder from the psychiatry department at King’s College London said: “The decision to change the guideline has had a direct effect on doctors’ and therapists’ ability to treat patients. Services are no longer able to provide a full range of evidence-based therapeutic interventions. “This could have a devastating impact on people’s lives in that they will no longer be able to access the treatment that could help them the most.” ME, also called CFS, is a long-term condition believed to affect about 25,000 people in the UK, which has a wide range of symptoms including extreme tiredness, muscle pain, mental fogginess and insomnia. Read full story Source: The Guardian, 11 July 2023 -
News Article
Patient dies and three hospitalised in Sciensus chemotherapy incident
Patient Safety Learning posted a news article in News
A cancer patient has died and three others have been hospitalised after they were administered unlicensed versions of chemotherapy by Sciensus, a private company paid millions by the NHS to provide essential medication. Three health regulators have launched inquiries into the incident, according to people familiar with the matter. It was caused by an issue at the firm’s medicines manufacturing unit. In a statement, Sciensus confirmed an “isolated incident” had “affected four patients” and that it was “deeply saddened” that one of them had died. Sciensus offered its “sincere condolences” to the family and friends of the patient who died, and is conducting a thorough investigation, it added. The four patients received unlicensed versions of cabazitaxel, a licensed chemotherapy used to treat prostate cancer. The versions administered to the patients differed from the licensed product and therefore were considered unlicensed medicines. Sciensus is required to comply with official standards to ensure the quality of the products it produces and the protection of public health. Breaches of these standards can result in the MHRA suspending or removing a company’s licence. “Patient safety is our highest priority,” said Dr Alison Cave, the MHRA’s chief safety officer. “We are urgently investigating this issue and we will take any necessary regulatory measures to ensure patients are protected." Read full story Source: The Guardian, 7 July 2023 -
News Article
Huge leap in breast cancer survival rate
Patient Safety Learning posted a news article in News
The number of people who die after a breast cancer diagnosis has decreased by two-thirds since the 1990s, a study of more than half a million women in England has shown. The research has taken ten years to complete, says Carolyn Taylor, lead author of the study and an oncologist at the University of Oxford, UK. The analysis includes the 512,447 women in England who were diagnosed with early invasive breast cancer between January 1993 and December 2015. The results published in the BMJ found women who were diagnosed in 1993–99 had a 14.4% risk of dying within 5 years. This fell to 4.9% for women diagnosed in 2010–15. Patient involvement was important to the study, Taylor says. The scientists appointed two patient representatives to guide their research. “They helped us in the questions to be addressed. They looked at the analyses and gave comments and suggestions throughout the study. And they helped us to interpret the results in the way that patients can understand.” Read full story Source: Nature, 23 June 2023 -
News ArticleMany vulnerable patients are struggling to access covid treatments after commissioning responsibility switched to integrated care boards this week, charities have warned. Approximately two million vulnerable patients must now contact local services themselves to access treatments designed to combat covid infections, such as the antivirals Paxlovid and Sotrovimab. Integrated care boards are expected to coordinate and fund “equitable” access. Prior to 27 June, identification of patients and the delivery of treatment was coordinated nationally under pandemic arrangements. However, a group of 20 patient charities have written to Steve Barclay warning that most ICBs have not drawn up plans to deliver this new responsibility, leaving patients and primary care clinicians unclear on how to access the treatments. “Despite continually raising our concerns with those carrying out the planning, implementation, and communication of this [policy], we now find that we are in exactly the position we warned against,” they said. Read full story (paywalled) Source: HSJ, 3 July 2023
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News Article
AI cuts treatment time for cancer radiotherapy
Patient Safety Learning posted a news article in News
A new type of artificial-intelligence technology that cuts the time cancer patients must wait before starting radiotherapy is to be offered at cost price to all NHS trusts in England. It helps doctors calculate where to direct the therapeutic radiation beams, to kill cancerous cells while sparing as many healthy ones as possible. Researchers at Addenbrooke's Hospital trained the AI program with Microsoft. For each patient, doctors typically spend between 25 minutes and two hours working through about 100 scan cross-sections, carefully "contouring" or outlining bones and organs. But the AI program works two and a half times quicker, the researchers say. When treating the prostate gland, for example, medics want to avoid damage to the nearby bladder or rectum, which could leave patients with lifelong continence issues. Read full story Source: BBC News, 27 June 2023 -
News ArticleAt least 100,000 people across the UK have had their lives put at risk over the last decade because of delays to them getting tested or treated for cancer, a new report claims. In some cases, patients’ treatment options narrowed or their cancer spread or became incurable as a direct result of their long waits for NHS care, according to Macmillan Cancer Support. The “inhumane” impact of delays on patients is “shameful”, it said, blaming ministers across the four home nations for underfunding and not tackling staff shortages in cancer services. “I’ve had patients arrive for their radical chemotherapy appointment, who wait three hours only to be told that because of staff shortages we can’t deliver their treatment today. It’s inhumane”, said Naman Julka-Anderson, an advanced practice therapeutic radiographer who is also an allied health professional clinical adviser for Macmillan. Many waited longer than 62 days to start treatment – surgery, chemotherapy or radiotherapy – after a GP referred them as an urgent case, the charity’s analysis of official NHS data found. At least 100,000 of those 180,000 people have seen their symptoms worsen, or their cancer progress or their chances reduce of successfully being treated because they have had to wait. Read full story Source: The Guardian, 20 June 2023
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Content ArticleElectro-Convulsive Therapy , or ECT, is a controversial treatment for a number of severe mental illnesses. In essence, an electric current is passed through the brain and induces an epileptic seizure. Though less frequently used these days, it may still be employed in cases of severe depression and mania resistant to other therapies. After treatment, patients may suffer headaches, feelings of confusion and temporary memory loss. In this article, Dr Paul Lambden summarises the treatment, technique used, the risks and side effects, and longer term outcomes.
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News ArticleA reduction in the number of GP referrals to hospitals could be creating a "hidden backlog" of patients needing help, according to a new report. The study by the Institute for Government (IFG) and Public First says that not enough data is published about the "advice and guidance" referral system. Family doctors have been told to reduce the number of people they refer for hospital care by using the 'advice and guidance' route – whereby a GP will call or email a hospital doctor to ask for advice on whether or not a referral is required. The method has been used since 2015 but NHS England introduced a target for GPs to have 12 "advice and guidance" patients for every 100 outpatient appointments in October 2021 in an attempt to reduce the backlog of hospital care. This has now increased to 16 but it has been reported that as many as 22 out of 100 potential hospital appointments are being handled this way. The IFG and Public First report states: "There is a risk that GPs making fewer referrals – in part to address hospital capacity concerns – is creating a 'hidden backlog' by allowing treatable conditions to deteriorate and possibly leading to more unplanned admissions." Read full story Source: Medscape, 14 June 2023
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News Article
NHS struggling to provide safe cancer care, say senior doctors
Patient Safety Learning posted a news article in News
The Royal College of Radiologists is warning that all four UK nations are facing "chronic staff shortages", with cancer patients waiting too long for vital tests and treatments. Half of all cancer units are now reporting frequent delays for both radiotherapy and chemotherapy. Ministers say a workforce strategy for the NHS in England is due shortly. The plan, which is meant to spell out how the government will plug staffing gaps over the next 15 years, has been repeatedly delayed, to the frustration of some in the health service. In June 2022, Carol Fletcher, from South Wales, finally had her routine screening appointment for breast cancer, which was itself overdue. "It took another eight weeks after my mammogram before I was told there might be something wrong," she said. Since her cancer diagnosis, there have been more waits - for scans, tests, surgery and then chemo. "I was told that I might not get results back [quickly] after my mastectomy because they haven't got enough pathologists, so there was another eight-week delay for chemotherapy," she said. "I can't plan for the future and it's had a huge impact on my family." Read full story Source: BBC News, 8 June 2023
