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Found 454 results
  1. Content Article
    'Support after Covid-19' is a series of short podcasts exploring Long Covid and work. It was developed by Professor Cathy Bulley and Dr Eleanor Curnow at Queen Margaret University in response to research insights from the ‘Support After Covid Study,’ which was carried out between May 2020 and June 2021. It focuses on the experiences of people working in health services who are living with Long Covid, offering resources, insight and advice.
  2. Content Article
    There is currently limited information on clinical severity phenotypes of symptoms and functional disability in post-coronavirus disease 2019 (COVID) Syndrome (PCS). A370 PCS patients from a dedicated community COVID-19 rehabilitation service was assessed using the COVID-19 Yorkshire Rehabilitation Scale where each symptom or functional difficulty was scored on a 0–10 Likert scale and also compared with before infection. Phenotypes based on symptom severity were extracted to identify any noticeable patterns. The correlation between symptom severity, functional disability, and overall health was explored.
  3. Content Article
    In this interview for Woman's Hour, Dr Nisreen Alwan, Associate Professor in Public Health at the University of Southampton, discusses the impact of Long Covid on her own life with presenter Emma Barnett. She also shares insights from research that suggests women, people of working age, people from areas of high social deprivation and frontline health and education workers are more likely to be affected by Long Covid. Dr Alwan talks about the need to manage Long Covid alongside daily activities and highlights new research that demonstrates that vaccines may reduce the incidence of the condition. The interview can be heard at 17:23-25:20 in the recording.
  4. Content Article
    In this interview with the journal International Politics and Society, Brendan Delaney, professor at the Faculty of Medicine at Imperial College London discusses the impact of Long Covid on individuals and society. He describes his own experience of Long Covid, which rendered him unable to work for months, and highlights that we should not be surprised by the prevalence of Long Covid, as all epidemics result in long-term illness for many people. He draws attention to parts of the political system 'not believing in' Long Covid and highlights the damage caused by psychologising the condition. Finally, he points to the need for more research to better understand Long Covid symptoms.
  5. Content Article
    By autumn 2021 there could be more people suffering from Long COVID in the UK than from dementia. How can healthcare services cope with this serious challenge – a condition which can include multi-organ damage, clotting problems, disordered immune response, and renal, liver and brain issues, yet remains little understood? Dr Elaine Maxwell of the National Institute for Health Research tells us how the NIHR’s Long COVID report uncovered a growing and complex problem, and discovered that the largest group of sufferers are working age women in healthcare – AKA nurses.
  6. Content Article
    COVID-19 is known to cause multi-organ dysfunction in acute infection, with prolonged symptoms experienced by some patients, termed Post-Acute Sequelae of SARSCoV-2 (PASC). However, the burden of infection outside the respiratory tract and time to viral clearance is not well characterised, particularly in the brain. Chertow et al. performed complete autopsies on 44 patients with COVID-19 to map and quantify SARS-CoV-2 distribution, replication, and cell-type specificity across the human body, including brain, from acute infection through over seven months following symptom onset. The study showed that SARS-CoV-2 is widely distributed, even among patients who died with asymptomatic to mild COVID-19, and that virus replication is present in multiple pulmonary and extrapulmonary tissues early in infection. The authors detected persistent SARS-CoV-2 RNA in multiple anatomic sites, including regions throughout the brain, for up to 230 days following symptom onset. Despite extensive distribution of SARS-CoV-2 in the body, the authors observed a paucity of inflammation or direct viral cytopathology outside of the lungs. The data prove that SARS-CoV-2 causes systemic infection and can persist in the body months. * Note: This is a pre-print and has not been peer-reviewed yet.
  7. Content Article
    In the wake of new variants and the relentless spread of Covid-19, understanding the complex nature of Long Covid is crucial. In this article, I aim to present useful information on the risk factors, plausible pathophysiological mechanisms and treatment of Long Covid. The obscure nature of Long Covid is a conundrum both for doctors and patients. To mitigate the burden of Long Covid, early identification of disease signs, appropriate treatment and timely access to rehabilitation care is vital. I believe that strengthening the 4 Rs (Reporting, Recognition, Rehabilitation and Research) through close collaboration between government organisations, pharmaceutical industries, patients and health care providers could reduce the impact of Long Covid.
  8. Content Article
    These information sheets by World Physiotherapy, the global body for physiotherapy member organisations, were produced for World Physiotherapy Day 2021, which focused on the role of physiotherapists in treating and managing people affected by Long Covid. Topics include: What is Long Covid? Rehabilitation and Long Covid Fatigue and post-exertional symptom exacerbation How to use pacing with your physiotherapist Breathing exercises The information sheets are also available in a variety of other languages.
  9. Content Article
    The Office for National Statistics estimates that in December 2021, 1.2 million people in the UK were living with Long Covid. Long Covid is a condition characterised by ongoing symptoms that last for months and even years after an initial Covid-19 infection. It is a difficult condition to diagnose, and nearly two years since it was first seen, medical understanding of Long Covid is still limited. People living with Long Covid often express frustration at misconceptions about the condition that are prevalent amongst medical professionals, policy makers and the general public. In this article, we highlight some of these myths, explain why they are inaccurate and describe the damage they can cause to people living with the condition.
  10. Content Article
    In this article for The Washington Post, Christopher Rowland speaks to Americans with Long Covid about the impact the condition has had on their health, lives and ability to work. He particularly focuses on the experience of Tiffany Patino, who has been left with debilitating symptoms and unable to work. As well as the financial impact of having no income, the article looks at the impact Long Covid has had on her mental health and ability to care for her young son. The author also highlights that health insurance companies are withdrawing support from people with Long Covid as there is little evidence around treatments, and suggests that employers need to take a more flexible approach to allow people with Long Covid to re-enter the labour market.
  11. Content Article
    While it is now apparent that Long Covid may persist after acute COVID-19, its nature, frequency and aetiology are poorly characterised. This study from MicHelen et al. aimed to regularly synthesise evidence on long COVID characteristics, to help inform clinical management, rehabilitation strategies and interventional studies to improve long-term outcomes. The authors conclude that Long Covid is a complex condition with prolonged heterogeneous symptoms. The nature of studies precludes a precise case definition or risk evaluation. There is an urgent need for prospective, robust, standardised, controlled studies into aetiology, risk factors and biomarkers to characterise long COVID in different at-risk populations and settings.
  12. Content Article
    This analysis uses data from the Office for National Statistics UK Coronavirus (Covid-19) Infection Survey data to estimate the prevalence of self-reported Long Covid in the UK.
  13. Content Article
    This is the second of a short series of blogs in which we take a look back at our work in five areas of patient safety during 2021. In this blog, we look at our work to highlight key patient and staff safety issues resulting from the ongoing Covid-19 pandemic. Through our work, Patient Safety Learning seeks to harness the knowledge, insights, enthusiasm and commitment of health and social care organisations, professionals and patients for system-wide change and the reduction of avoidable harm. We believe patient safety is not just another priority; it is a core purpose of health and social care. Patient safety should not be negotiable.
  14. Content Article
    As the impact of Long Covid is still very new and we are continuing to learn more about the condition every day, these NHS guidelines have been drafted to help our NHS line managers and leaders understand what Long Covid is and how they can support colleagues who are experiencing its symptoms. These guidelines include information about what Long Covid is, advice on HR elements such as sick pay and how to record Long Covid-related absence, as well as practical tips on the benefits of having regular health and wellbeing conversations with your teams to talk about Long Covid and reasonable adjustments that might need to be made to support colleagues to return to work. 
  15. Content Article
    This report from CIPD examines the latest evidence and the experiences of employees experiencing long COVID, and offers recommendations for organisations on how to effectively support those with long COVID to return to, and stay in, work.
  16. Content Article
    This is the second of two dynamic reviews of the evidence around people’s experience of the enduring symptoms following a Covid-19 infection. The National Institute for Health Research published their first review of the evidence in October 2020. At the time there was uncertainty about the extent to which there could be lasting effects, and most people assumed a linear progression of a severe acute infection with a long recovery tail. The first review on “Living with Covid-19” was informed by the experience of professionals and the NIHR worked closely with a group of people with lived experience. This review focuses on the published evidence. In addition, it reports findings from a short survey of people living with Covid-19. With over 3,000 responses it provides an insight into the key issues and challenges for people living with Covid-19.
  17. Content Article
    This self-assessment tool has been developed by the British Lung Foundation for people with Long Covid symptoms. It aims to help patients identify and prioritise their needs, signposts them to further information and outlines the help they should get in dealing with Long Covid. It is anonymous and takes 5-10 minutes to complete. Patients can also print out their answers and share them with healthcare professionals an employers to clearly highlight an individual's needs.
  18. Content Article
    Infographic from Long Covid Kids & Friends on the obstacles and challenges families, children and young people with Long Covid face.
  19. Event
    At least 65 million individuals worldwide are estimated to have Long Covid, and more than 200 symptoms have been identified and attached to this often-debilitating illness*. Three years on from the start of the pandemic we continue to navigate and build our understanding of Long Covid’s impact, its best treatment pathways and question what the future holds. Following on from their first two episodes in this series, The Royal Society of Medicine return to the topic with ‘Spotlight on Long Covid, part 3’. This extended webinar programme will present the most up-to-date knowledge of the condition, highlight findings from ongoing research and share key insights from clinicians, researchers and patients. Joining the webinar will be researchers from the LOCOMOTION study**, a £3.4 million project identifying the best ways to treat and support Long Covid, alongside clinicians who lead on the treatment, service development and our understanding of the long-term effects of COVID-19. By attending this webinar, you will: Receive an update on the latest statistics and research surrounding Long Covid Receive advice on how to manage and support patients with Long Covid Understand the treatment pathways currently available for those with Long Covid and how these pathways are resourced within the NHS Dive deeper into the key health topics within Long Covid, looking at symptoms, treatment, research and patient experience Register
  20. Event
    until
    This Westminster conference will assess priorities and next steps for addressing the impact of Long Covid in Ireland. Areas for discussion include developing and implementing research into Long Covid, the state of specialised services in Ireland, and the implementation and development of the Model of Care, which recommended the development of eight post-acute and six Long Covid clinics. It will be a timely opportunity to discuss Ireland’s strategy for tackling long COVID following analysis from Denis Naughten TD - who is part-chairing this conference - which suggests that almost 340,000 people in Ireland could have been affected by long COVID. It also follows a motion forwarded by a regional group of TDs calling for swifter action to support those with long COVID, which secured unanimous Dáil Éireann support. With the HSE now implementing the Model of Care for long COVID, and developing an epidemiological survey to gauge long COVID numbers in Ireland, delegates will assess the development of the model, workforce and recruitment priorities, and next steps for research and data. It will include keynote sessions from Dr Siobhán Ní Bhriain, Consultant Psychiatrist & National Clinical Director, Integrated Care, HSE; and Professor John Lambert, Consultant in Infectious Diseases and Genitourinary Medicine, Mater Misericordiae University Hospital and Associate Professor, UCD School of Medicine. Overall, sessions in the agenda will look at: the interim model of care: priorities for development and for creating a centralised care hub to provide support. long COVID clinics: next steps for implementation - providing effective staffing and funding - tackling long COVID backlogs and waiting lists - relieving pressures on GP waiting lists. patients: assessing and providing the support needed by those with long COVID and identifying those most at risk - options for workplace support and assisting those out of work to return quickly. research: building on data from current long COVID and post-acute COVID clinics to inform future strategies - implementing effective surveillance to understand, scale and respond to the issues. policy coordination: integrating responses with Sláintecare reforms and waiting list strategies. Register
  21. Event
    This Westminster conference will discuss the future for Long Covid research, services, and care. It will be an opportunity to assess Long Covid: the NHS plan for improving Long Covid services and how its ambitions for improving access to services, patient experience and outcomes for patients can be achieved. Further sessions examine priorities for research and improving understanding of Long Covid, looking at implementing the latest developments in research to improve services, and the long-term health implications of Long Covid. There will also be discussion on addressing concerns around inequalities, capacity and wait times for Long Covid services, as well as the primary care referral system, and utilisation of investment. Sessions in the agenda include: latest developments: trends - key issues - assessing the NHS plan for improving long COVID services. clinical research: taking forward the understanding of Long Covid - advancing clinical trials - utilising data - funding and investment. improving patient outcomes, prediction and prevention - accelerating the development of effective treatments - areas for focus, such as cardiology. examining the increased risk of long-term health conditions and impacts of reinfection for Long Covid patients. improving specialist Long Covid services: progress made so far and priorities for moving forward. options for increasing capacity - addressing inequalities in provision, access to services and information - applying latest developments from research. children’s Long Covid services: assessing delivery - implications for child development and attainment. primary care: tackling key challenges for diagnosis and referral. the workforce: priorities for education and training - support for long COVID patients in the workforce. Register
  22. Content Article
    This study in the Journal of Medical Virology aimed to assess the extent and the disparity in excess acute myocardial infarction (AMI)-associated mortality during the pandemic, focusing on the outbreak of the Omicron strain. Using data from the US Centers for Disease Control and Prevention's (CDC's) National Vital Statistics System, the authors found that excess death, defined as the difference between the observed and the predicted mortality rates, was most pronounced for the 25–44 years age group. Excess deaths ranged from 23%–34% for the youngest compared to 13%–18% for the oldest age groups. The trend of mortality suggests that age and sex disparities have persisted even through the Omicron surge, with excess AMI-associated mortality being most pronounced in younger-aged adults.
  23. Content Article
    The aim of the Long Covid webinar held on 5 July 2023 was to discuss where we are now with Long Covid clinics and research. The presentation videos from the webinar can be accessed from the link below.
  24. Content Article
    In a new Lancet Respiratory Medicine Series about Long Covid, Sally J Singh and colleagues discuss the origins of respiratory sequelae and consider the promise of adapted pulmonary rehabilitation programmes and physiotherapy techniques for breathing management. Pratik Pandharipande and colleagues review the epidemiology and pathophysiology of neuropsychological sequelae of COVID-19-related critical illness, highlighting the combined threat of long COVID and post-intensive care syndrome (PICS), and outline potential mitigation strategies. Finally, Matteo Parotto and colleagues discuss pathophysiological mechanisms of diverse, multisystem sequelae in adult survivors of critical illness, including longitudinal effects of endothelial and immune system dysfunction, and consider the challenges of providing appropriate care and support for patients.
  25. Content Article
    My last blog, "Forgotten heroes" – the sequel, built upon a very moving BBC Panorama programme Forgotten heroes of the Covid front line. The BBC documentary told the sad story of healthcare workers (HCWs) who had bravely and knowingly put themselves in harm's way to care for their patients during the darkest days of the pandemic. Many lost their lives, while many more were rendered so severely injured by the disease (Long Covid) that they were (and remain) unable to work and have been unceremoniously sacked by their NHS Health Trusts/Boards. The way that an organisation manages its activities is known as 'governance'. Good governance will lead to high standards of ethics, morality, care and compassion for the people who work within it and those who may be affected by its acts and omissions. Hence, when applied to a whole country, it is known as 'Government', its departments and agencies. In this blog, I propose a possible hypothetical scenario that may have led to the tragic situation revealed by the BBC documentary. I hope this will lead you to consider the standards of 'governance' that apply to the 'duty of care' which a Government owes to its HCWs during a pandemic and what, morally and ethically, should be done to support those "forgotten heroes" if the Government’s governance should be found to be severely lacking. But is the scenario I am asking you to imagine hypothetical or is it real? I shall leave that to your judgement – and that of the Covid-19 Public Inquiry. 
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