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News Article
PHIN responds to Government update on the Paterson Inquiry
Patient Safety Learning posted a news article in News
Following the statement from Nadine Dorries MP, Minister for Patient Safety, providing an update on the Paterson Inquiry, Matt James, Chief Executive of the Private Healthcare Information Network, said: “Although we were expecting the Government’s full response by now, it’s reassuring to know that this is still firmly on the agenda. The updates provided today are all welcome, but perhaps most telling is what remains to be addressed – most notably whole-practice information and better information for patients (recommendations one and three). “While it’s disappointing not to see more specifics, it is crucial that the recommendations are implemented properly and with the right consideration, resisting the temptation to create new systems from scratch and instead build on the excellent progress made by organisations such as NHS Digital, GIRFT, NCIP and PHIN. “We will continue to work with our partners across the NHS and private sector to make positive changes which improve transparency, accountability and information for patients. We will continue to liaise with the Department of Health and Social Care when invited to do so.” Press release Source: PHIN, 23 March 2021 -
News Article
Middle-aged women 'worst affected by long Covid', studies find
Patient Safety Learning posted a news article in News
Middle-aged women experience the most severe, long-lasting symptoms after being treated in hospital for COVID-19, two UK studies suggest. Five months on, 70% of patients studied were still affected by everything from anxiety to breathlessness, fatigue, muscle pain and "brain fog". But the researchers say there is no obvious link with how ill people originally became. How women's bodies fight off illness could explain their poorer recovery. The larger study - led by the University of Leicester - which is yet to be peer-reviewed, followed up more than 1,000 patients who had been admitted to hospital with Covid-19 in the UK last year. It found that up to 70% had not fully recovered, an average of five months after leaving hospital, with women most affected. A separate smaller pre-print study, led by University of Glasgow, found women under 50 were seven times more likely to be more breathless, and twice as likely to report worse fatigue than men of the same age who had had the illness, seven months after hospital treatment. Read full story Source: BBC News, 25 March 2021 -
News ArticleDeborah Stanford is one of many women who have received a Boston Scientific implant and suffered complications. She has joined Shine Lawyers’ class action, which was filed today in the Australian Federal Court, to hold the manufacturers to account for the continuous pain she has endured since the Obtryx sling was implanted on 12 September 2012. Ms Stanford’s bladder was sitting in the birth canal and the sling was placed, on medical advice, to reposition her bladder. “It has been 9 years of suffering." “If I knew how hard this was going to be, I never would have gone through it,” said Ms. Stanford. Boston Scientific is the third pelvic mesh manufacturer to face a class action over their range of prolapse mesh and incontinence sling implants. Shine Lawyers has filed all three actions against Johnson & Johnson, Ethicon and American Medical Systems (AMS). Read full story Source: Shine Lawyers, 22 March 2021
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News ArticlePregnant women and new mothers are three times as likely to suffer from poor mental health in the wake of the coronavirus pandemic, according to a new study. The report, carried out by a coalition of leading maternal mental health organisations, suggested before that the public health crisis up to 20% of women developed a mental illness during pregnancy or within the first year after having a baby. But in lockdown, 6 in 10 mothers had substantial concerns around their mental health, according to researchers who polled more than 5,000 pregnant women and parents. The study warned women were more likely to suffer from anxiety, depression, loneliness and suicidal thoughts during the COVID-19 crisis. The Maternal Mental Health Alliance is one of the organisations behind the research. Luciana Berger, a former Labour MP who is now chair of the group, said: “Today’s report should serve as an ear-splitting warning siren about the dangers to women’s maternal mental health and potential risks to the wellbeing of their babies." Read full story Source: The Independent, 16 March 2021
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News Article
A third of women hide menopause symptoms at work
Patient Safety Learning posted a news article in News
A third of women who have suffered symptoms of the menopause say they hid them at work, and many think there remains a stigma around talking about the subject, according to a survey of workers in five countries. More than 5,000 women in the UK, Germany, Spain, Italy and South Africa were interviewed about their experiences of the menopause and work in research for the mobile phone provider Vodafone. In all of the countries except Italy, about a third said they had hidden symptoms, while in Spain more than half felt a stigma around the subject in the workplace. South African women seemed most comfortable discussing the subject with colleagues, with 37% saying they thought there was a stigma, while in Italy the proportion who said they had hidden symptoms was lowest at 28%. The survey found those who experienced symptoms before they were 45 were most likely to say that they were too embarrassed to ask for support in the workplace. Of those in the UK, 63% of adults under the age of 44 said they had shied away from asking for help, while across all ages the figure was 43%. The figures were similar in the four other countries. In recent years, businesses have begun to introduce policies to help women who are suffering from menopausal symptoms such as hot flushes, anxiety and fatigue. However, there are concerns that many women are still leaving the workforce because they struggle with some of the effects, and feel they are not supported by their employers. Read full story Source: The Guardian, 8 March 2021 -
News ArticleWomen and girls in England are being asked to share their experiences of the health system as part of a government strategy to address inequalities. Ministers say there is "strong evidence" services for female patients need improving. Fertility, maternity and menopause care are among the areas to be discussed. Campaigners say they are "delighted" steps are "finally" being taken to close the so-called "gender health gap". While women in the UK have a longer life expectancy than men, the Department for Health and Social Care says they are spending less of their life in good health. Nadine Dorries, minister for women's health, said: "Women's experiences of healthcare can vary and we want to ensure women are able to access the treatment and services they need. "It's crucial women's voices are at the front and centre of this strategy so we understand their experiences and how to improve their outcomes." Studies suggest gender biases in clinical trials are a contributing factor. Less is also said to be known about many female-specific conditions and how to treat them. Patients have repeatedly reported to the BBC that they have felt overlooked when talking to doctors about conditions like endometriosis or complications following a pelvic mesh repair. Read full story Source: BBC News, 6 March 2021
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News ArticleNew stats from Endometriosis UK this week for Endometriosis Awareness Month reveal that 62% of women (aged 16-54) would put off going to a doctor with symptoms of endometriosis. Reasons include they don’t think it’s serious enough to bother a doctor with, they’d be embarrassed, they don’t think they’d be taken seriously, or they think symptoms including painful periods are normal. This statistic rises to 80% of 16-24-year-olds. 1.5 million UK women are currently living with endometriosis, with average diagnosis time standing at an unacceptable 8 years Endometriosis UK says it is vital that Governments, society, the NHS and workplaces wake-up and recognise the symptoms and impact endometriosis can have, and afford those with the condition the support and access to treatment they need to manage their symptoms. Commenting on the new research, Emma Cox, CEO of Endometriosis UK said: “Endometriosis is a long-term chronic health condition affecting 1.5 million in the UK, yet it still all too often considered a taboo or not important due to links with the menstrual cycle. Symptoms including chronic pelvic pain, painful periods, painful bladder and bowel movements, and infertility, can have a major, life-long impact, physically and mentally. But far too many find their symptoms are not believed nor taken seriously." “Myths such as “chronic period pain is normal” or “you must have a low pain threshold” manifesting in society, workplaces, schools, and even healthcare settings contribute to those experiencing symptoms being put off from seeking medical advice and contribute to diagnosis taking on average a shocking 8 years. “The impact of delayed diagnosis on people’s physical and mental health can’t be overstated. If undiagnosed, the disease may progress, and negatively impact people’s careers, education, relationships and all aspects of their life.” Read full story Source: Endometriosis UK, 1 March 2021
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News Article
8 things people living with endometriosis want you to know
Patient Safety Learning posted a news article in News
Endometriosis is not uncommon – in fact, it’s believed to affect one in 10 women/people who menstruate. Yet it’s still widely misunderstood, and those affected can struggle for years before getting proper help. Because it’s associated with the menstrual cycle (it occurs when cells similar to those that grow in the womb lining grow outside the womb too, resulting in inflammation, scar tissue or adhesions and blood-filled cysts/endometriomas), it’s often dismissed as being ‘just bad periods’. But endometriosis is a medical condition which can have a huge impact. To mark Endometriosis Month, Abi Jackson helps bust some misconceptions around this common condition. Read full story Source: The Independent, 1 March 2021 -
News Article
Smear tests: Women to trial 'do-it-at-home' kits for NHS
Patient Safety Learning posted a news article in News
About 31,000 women in London are being offered "do-it-at-home" tests to check for early warnings of cervical cancer, as part of an NHS trial. It could be a way to encourage more women to get screened, experts hope. Embarrassment, cultural barriers and worries about Covid, along with many other factors, can stop women going for smear tests at a clinic or GP surgery. Smear-test delays during the pandemic prompted calls for home-screening kits from cervical cancer charities. The swabbing involves using a long, thin cotton bud to take a sample from inside the vagina, which is then sent by post for testing. If the results reveal an infection called human papillomavirus (HPV) they will be invited to their GP for a standard smear test to closely examine the cells of their cervix. Dr Anita Lim, from King's College London, who is leading the YouScreen trial, said: "Women who don't come for regular screening are at the highest risk of developing cervical cancer. "So it is crucial that we find ways like this to make screening easier and protect women from what is a largely preventable cancer. Self-sampling is a game-changer." Read full story Source: BBC News, 24 February 2021 -
News Article
Are women the fitter sex?
Patient Safety Learning posted a news article in News
In a Channel 4 documentary, emergency doctor Dr Ronx asks why more men die of COVID-19? Cancer and HIV too. They also challenge many dangerous gender assumptions in medicine impacting on women's health. View documentary (6 days left) -
News ArticleNearly 500 women had to have their cervical smear tests redone after it emerged the nurse who carried them out was not qualified. 'Dishonest' Alison Watts failed to tell her bosses at an NHS surgery that she failed her course and continued screening women for almost two and a half years. When it was discovered Watts had not passed the qualification, 461 women had to be recalled to have the cervix test again so they could have 'quality assured' tests. Now Watts has been struck off for the shocking breach of trust, with a tribunal ruling that she put patients at 'significant risk of harm'. A Nursing and Midwifery Council [NMC] report said: 'This was not a single instance of misconduct but involved 461 patients over a two year period. There is evidence of sustained dishonesty and deep-seated attitudinal issues.' Read full story Source: Daily Mail, 26 January 2021
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News ArticleSmear-test delays during lockdown have prompted calls for home-screening kits. Cervical cancer screening has restarted across the UK - but some women say they will not attend their appointments for fear of catching Covid. Jo's Cervical Cancer Trust is urging "faster action" on home tests for HPV, which causes 99% of cervical cancers. An NHS official said GP practices should continue screening throughout lockdown, and "anyone invited for a cervical smear test should attend". Cancer Research UK said it was not yet known how effective and accurate self-sampling could be in cervical screening. A survey by gynaecological cancer charity the Eve Appeal indicates nearly one in three missed smear tests are the result of people being "put off" by coronavirus. And a Jo's Cervical Cancer Trust survey during the pandemic suggests the same proportion would prefer to take their own human-papillomavirus (HPV) test rather than go to a GP. Acting chief executive Rebecca Shoosmith said coronavirus had added "more barriers" to going for a smear test. "Sadly those who found it difficult before are likely to be no closer to getting tested," she said. "Self-sampling would be a game-changer." Both charities emphasise smear tests are for "women and anyone with a cervix" and transgender and non-binary people may have additional barriers to going. Jo's Cervical Cancer Trust said DIY tests could also help people who had been sexually assaulted and those with disabilities or from backgrounds where smear tests were taboo. Read full story Source: BBC News, 21 January 2021
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News ArticleWhen pharmacist Ifeoma Onwuka, known to her friends as Laura, went into hospital to have her daughter, she and her husband hoped the delivery would go smoothly, and that they would soon be able to take their new arrival home to meet her siblings. Onwuka's labor was induced at James Paget University Hospital in Great Yarmouth in late April 2018. Things progressed quickly and there were soon signs that her baby was in distress, causing staff to begin preparations for an emergency Caesarian section, but Onwuka's daughter was born in the recovery room. Shortly after the birth, Onwuka's condition began to deteriorate. According to the family's lawyer, Tim Deeming, she began to bleed heavily, and was taken into surgery where attempts were made to stem the loss of blood. Hours later, and only after a second consultant had been called in, she was given an emergency hysterectomy. The mother-of-three died three days later. The coroner, Yvonne Blake, said an expert had told Onwuka's inquest that the delay to surgery contributed to her death, since acting early could have controlled the bleeding. Black mothers have worse outcomes during pregnancy or childbirth than any other ethnic group in England. According to the latest confidential inquiry into maternal deaths (MBRRACE-UK). Black people in England are four times more likely to die in pregnancy or within the first six weeks of childbirth than their White counterparts. Read full story Source: CNN. 14 January 2021
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News ArticleIn July last year, the Independent Medicines and Medical Devices Safety Review – chaired by Baroness Cumberlege— published its landmark report, First Do No Harm. It followed a two-year review of harrowing patient testimony and a large volume of other evidence concerning three medical interventions: Primodos, sodium valproate and pelvic mesh. Yesterday, in a written statement to Parliament, the Minister for Patient Safety, Suicide Prevention and Mental Health, Nadine Dorries, gave an update on the government’s response to the recommendations of the Cumberlege Review. In an article in The Times today, Baroness Cumberlege welcomes that the government has now accepted the need for a patient safety commissioner for England and the amendment to the Medicines and Medical Devices Bill, which is being considered in the House of Lords today, which she hopes "will swiftly become law". However, she also states that "... a full response to the review's is still outstanding 6 months after publication. Action is urgently needed to ensure we help those who have already suffered and reduce the risk of harm to patients in future". Read full story (paywalled) Source: The Times, 12 January 2021
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News ArticleThousands of women have had abortions after falling pregnant while having difficulties accessing contraception during the pandemic, healthcare providers have warned. Sexual health clinics have been forced to shut or run reduced services while staff are transferred to work with Covid patients or have to self-isolate – with the profound disruption leaving many women unable to access their usual methods of contraception. Many women are struggling to get the most effective long-acting contraceptive choices of a coil or an implant due to these requiring face-to-face appointments which have largely been suspended as consultations are carried out remotely via phone or video call to curb the spread of COVID-19. British Pregnancy Advisory Service, the UK's largest abortion provider, told The Independent they provided the progestogen-only contraceptive pill to almost 10,000 women undergoing an abortion between May and October last year. Katherine O’Brien, a spokesperson for the service, said: “Many of these women will have fallen pregnant after struggling to access contraception, so there really is a huge unmet need for contraceptive services which will only worsen as lockdown and Covid continues. “We routinely hear from women during the pandemic who simply can’t access their regular method of contraception because of clinics closing or staff being deployed elsewhere or staff self-isolating.” Read full story Source: The Independent, 9 January 2021
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News Article
One in four women under 40 have never checked themselves for breast cancer
Patient Safety Learning posted a news article in News
One quarter of women under 40 have never checked themselves for breast cancer – believing they are too young, or they don’t think it will affect them, or they are just too busy. And half of all women do not regularly check their breasts for signs of cancer. The study of 2,000 women found those aged 18 to 39 are the least likely to look for signs of cancer, with a tenth believing they are not old enough to suffer the illness. But a quarter admit they do not have the confidence to inspect themselves, while 1 in 10 put it off in case they find a lump. It also emerged women from South Asian backgrounds are the least likely to examine themselves compared to other ethnicities, with 40% admitting to never checking at all. This drops to 27% of black women and just 13% cent of those of other ethnicities. Of the South Asian women polled who don’t check themselves for signs of breast cancer, more than a third said they forget or don’t know what they are looking for. While more than 1 in 20 (7%) don’t feel comfortable checking themselves due to cultural reasons. Barriers to going to the doctor when noticing a lump or change in breasts vary – from not wanting to waste their doctor’s time, the fear of not being taken seriously, concerns that a female doctor won’t be available, and not wanting to know what caused the change. Read full story Source: The Independent, 11 October 2021 -
News ArticleHRT used to be a dirty word. Now it’s a battle cry. Women will begathering in Parliament Square in London later this month to support the menopause bill to demand free prescriptions for hormone replacement therapy in England. The bill could help thousands more women to access this life-changing treatment and will put the menopause under the microscope. For years, a combination of medical sexism, hysterical reporting and outdated science has held women back from asking for the health care they need. HRT replenishes the oestrogen, progesterone (and sometimes testosterone) that women lose when having the menopause. As a result of previous misleading reports linking the treatment to a risk of breast cancer and dementia, HRT has long been considered controversial. Last week, however, a BMJ paper studying more than 100,000 HRT users over two decades in the UK found that there was no overall association between hormone replacement and an increased risk of developing dementia. Meanwhile, the science lumping the many different types of HRT together in one “causes-breast-cancer” basket is being questioned by menopause experts. A sexist, ageist culture has kept the menopause – and the stigma associated with it – hidden for decades. In a TUC survey of 4,000 women, 85% said the menopause affected their working life. Many women have lost their health, jobs, relationships and even their lives at the time of their menopause, when rates of suicide peak. But now, Labour MP Carolyn Harris is pushing the second reading of her menopause bill through parliament later this month. Aside from making HRT free in England (it’s already free in Scotland and Wales), the bill will also cover broader issues around menopause rights and education, particularly in the workplace. Read full story Source: The Guardian, 6 October 2021
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News ArticleThe number of women in the UK who have not had vital NHS breast screening, which can stop people dying from breast cancer, has risen by an estimated 50% - to nearly 1.5 million women - since services resumed, the leading UK breast cancer charity warns during Breast Cancer Awareness Month. Breast Cancer Now reveals an alarming increase of around half a million women who haven’t been screened since services restarted in summer 2020, estimating that around 1,480,000 fewer women in the UK had breast screening between March 2020 and May 2021, compared to pre-pandemic levels. This comes a year after the charity reported that almost one million women had missed breast screening due to COVID-19 seeing services paused. According to the charity, nearly 12,000 people in the UK could have been living with undiagnosed breast cancer at the end of May 2021, due to the impact of the pandemic on breast screening services and fewer women being referred to specialists with possible symptoms of the disease since March 2020 – a frightening prospect when early detection can stop people dying from the disease. Full article here Source: Breast Cancer Now Also covered in the Independent
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News Article
TikTok video of IUD removal at home prompts warning from health authorities
Patient Safety Learning posted a news article in News
A TikTok user who went viral with a video of herself removing her implanted birth control device has prompted calls among sexual health experts for better monitoring of social media platforms. In a video which has gained over 178,000 likes, TikTok user Mikkie Gallagher is filmed performing a ‘DIY IUD removal’ wearing medical gloves, writing on top of the post: “A lot easier than I thought TBH,” and “Catch of the day: Mirena IUD, 2 inches”. An intrauterine device (IUD) is inserted into the uterus to prevent pregnancy and sometimes assist in relieving period pain. They usually need to be taken out every five to 10 years depending on the type. Women can choose when to have them removed. Family Planning Victoria CEO, Claire Vissenga, said she found it very concerning that “DIY could pass as healthcare or professional assistance”. “... it’s just a ridiculous thing to do. Removing an IUD potentially does physical damage, and could complicate contraception,” says Vissenga Family Planning medical director, Kathleen McNamee, said 80% of DIY IUD removals failed, leading to GP or emergency visits. “If the person dislodges the IUD in a failed attempt, it could no longer be effective as a contraceptive method and result in an unwanted pregnancy,” she said. Read full story Source: The Guardian, 24 September 2021 -
News ArticleA woman with stage 4 endometriosis said she was told she needed to "be more positive" before her diagnosis - despite heavy blood loss and pain. Anna Cooper, from Newbridge, Wrexham, started her periods at 11 and by the time she turned 14, her mother was pushing for a referral. Since then she has had 13 surgeries, with a 14th due in the coming months. She said: "It is not taken seriously enough. It seems to be that we are just not being heard at the minute." Watch video Source: BBC News, 9 September 2021
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News Article
Folic acid to be added to UK flour to help prevent birth defects
Patient Safety Learning posted a news article in News
Folic acid is to be added to UK flour to help prevent spinal birth defects in babies, the government will announce. Women are advised to take the B vitamin - which can guard against spina bifida in unborn babies - before and during pregnancy, but many do not. It is thought that adding folic acid to flour could prevent up to 200 birth defects a year. Mandatory fortification - which the government ran a public consultation on in 2019 - would see everybody who ate foods such as bread getting more folic acid in their diets. Neural tube defects, such as spina bifida (abnormal development of the spine) and anencephaly, a life-limiting condition which affects the brain, affect about 1,000 pregnancies per year in the UK. Many babies diagnosed with spina bifida survive into adulthood, but will experience life-long impairment. Kate Steele, chief executive of Shine, a charity providing specialist support for people affected by spina bifida and hydrocephalus and which has campaigned for mandatory fortification of flour for more than 30 years, said she was "delighted" by the decision. "In its simplest terms, the step will reduce the numbers of families who face the devastating news that their baby has anencephaly and will not survive," she said. "It will also prevent some babies being affected by spina bifida, which can result in complex physical impairments and poor health." Read full story Source: BBC News, 20 September 2021 -
News Article
Call for investigation of menstrual changes after Covid jabs
Patient Safety Learning posted a news article in News
Changes to periods and unexpected vaginal bleeding after having a Covid vaccine should be investigated to reassure women, says a leading immunologist specialising in fertility. Writing in the BMJ, Dr Victoria Male, from Imperial College London, said the body's immune response was the likely cause, not something in the vaccines. There is no evidence they have any impact on pregnancy or fertility. The UK's regulator has received more than 30,000 reports of period problems. These include heavier than usual periods, delayed periods and unexpected bleeding after all three Covid vaccines, out of more than 47 million doses given to women in the UK to date. After reviewing the reports, the Medicines and Healthcare products Regulatory Agency (MHRA) says it "does not support a link" between Covid vaccines and the symptoms. However, writing in an opinion piece in the BMJ, Dr Male says "robust research" into reports of period problems would help to counter misinformation around the vaccines. "Vaccine hesitancy among young women is largely driven by false claims that COVID-19 vaccines could harm their chances of future pregnancy. Failing to thoroughly investigate reports of menstrual changes after vaccination is likely to fuel these fears." "If a link between vaccination and menstrual changes is confirmed, this information will allow people to plan for potentially altered cycles," she said. Read full story Source: BBC News, 16 September 2021 -
News Article
NHSE funding policy risks ‘levelling down’ maternity safety, warns hospital chief
Patient-Safety-Learning posted a news article in News
Glen Burley, an acute trust chief executive has said NHS England risks ‘levelling down’ safety in some maternity services by ‘disproportionately’ directing additional funding to struggling trusts. This comes after NHS England said the funding prioritised the trusts which needed the most support to meet the essential actions in the Ockenden Report, where in March, NHSE invited trusts to bid for a share of £96m extra funding for maternity services. A spokeswoman for NHS England has said: “The NHS made an additional £96m investment in maternity services following the Ockenden Review, the majority of which will bolster the workforce by funding an additional 1,200 midwives and 100 obstetricians. While the funding for additional workforce is for all NHS trusts, it is right that those who most need the support are prioritised.” Read full story. Source: HSJ, 02 September 2021 -
News ArticleA new study has found stress in the workplace could be leading women suffering from warning signs of heart disease. These signs included work-related stress, sleep disorders, and tiredness - which are important but non-traditional risk factors for having a heart attack or a stroke. Dr Wagner, a neurology professor at the University of Zurich, said "Traditionally men have been perceived to be more affected by heart attacks and strokes than women, but in some countries, women have overtaken men. There is a gender gap and further research is needed to find out why”. Read full story. Source: The Independent, 31 August 2021
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News Article
Life-saving world first NHS test to rule out pre-eclampsia in pregnant women
Patient-Safety-Learning posted a news article in News
A same-day blood test that can rule out pre-eclampsia, in pregnant women is being rolled out across the NHS in England. The test, known as placental growth factor (PLGF) testing, is already being used in three quarters of maternity units in England. NHS clinical director for maternity and women‘s health Matthew Jolly said: “Pre-eclampsia is a life-threatening condition for both mum and baby if left untreated and this is why the NHS takes every precaution possible when soon-to-be mums have some of the early signs, like high blood pressure. This new way of testing means we can rule out the condition in a much quicker and easier way - it removes the stress that comes with the uncertainty around not having a diagnosis and will reassure thousands of pregnant women every year.” Read full story. Source: The Independent, 25 August 2021
